David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Developing World Bioethics 12 (2):87-95 (2012)
Motivations and decision-making styles that influence participation in biomedical research vary across study types, cultures, and countries. While there is a small amount of literature on informed consent in non-western cultures, few studies have examined how participants make the decision to join research. This study was designed to identify the factors motivating people to participate in biomedical research in a traditional Nigerian community, assess the degree to which participants involve others in the decision-making process, and examine issues of autonomy in decision-making for research. A descriptive cross-sectional study was conducted with 100 adults (50 men, 50 women) in an urban Nigerian community who had participated in a biomedical research study. Subjects were interviewed using a survey instrument.Two-thirds of the respondents reported participating in the biomedical study to learn more about their illness, while 30% hoped to get some medical care. Over three-quarters (78%) of participants discussed the enrolment decision with someone else and 39% reported obtaining permission from a spouse or family member to participate in the study. Women were more than twice as likely as men to report obtaining permission from someone else before participating. More specifically, half of the female participants reported seeking permission from a spouse before enrolling. The findings suggest that informed consent in this community is understood and practised as a relational activity that involves others in the decision making process. Further studies are needed in non-Western countries concerning autonomy, decision-making, and motivation to participate in research studies
|Keywords||decision‐making developing world motivation to participate informed consent|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Patricia A. Marshall, Clement A. Adebamowo, Adebowale A. Adeyemo, Temidayo O. Ogundiran, Teri Strenski, Jie Zhou & Charles N. Rotimi (2014). Voluntary Participation and Comprehension of Informed Consent in a Genetic Epidemiological Study of Breast Cancer in Nigeria. BMC Medical Ethics 15 (1):38.
Similar books and articles
Ronald Kiguba, Paul Kutyabami, Stephen Kiwuwa, Elly Katabira & Nelson Sewankambo (2012). Assessing the Quality of Informed Consent in a Resource-Limited Setting: A Cross-Sectional Study. [REVIEW] BMC Medical Ethics 13 (1):21-.
Cheryl M. Sterling & Gary A. Walco (2003). Protection of Children's Rights to Self-Determination in Research. Ethics and Behavior 13 (3):237 – 247.
Dawn R. Elm & Tara J. Radin (2012). Ethical Decision Making: Special or No Different? [REVIEW] Journal of Business Ethics 107 (3):313-329.
Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein (2012). A Qualitative Study Using Traditional Community Assemblies to Investigate Community Perspectives on Informed Consent and Research Participation in Western Kenya. BMC Medical Ethics 13 (1):23-.
Joseph G. P. Paolillo & Scott J. Vitell (2002). An Empirical Investigation of the Influence of Selected Personal, Organizational and Moral Intensity Factors on Ethical Decision Making. Journal of Business Ethics 35 (1):65 - 74.
Victoria A. Miller, William W. Reynolds & Robert M. Nelson (2008). Parent-Child Roles in Decision Making About Medical Research. Ethics and Behavior 18 (2 & 3):161 – 181.
Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish, Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.
David Wendler & Christine Grady (2008). What Should Research Participants Understand to Understand They Are Participants in Research? Bioethics 22 (4):203–208.
Roy Gilbar & Ora Gilbar (2009). The Medical Decision-Making Process and the Family: The Case of Breast Cancer Patients and Their Husbands. Bioethics 23 (3):183-192.
Susan S. Khalil, Henry J. Silverman, May Raafat, Samer El-Kamary & Maged El-Setouhy (2007). Attitudes, Understanding, and Concerns Regarding Medical Research Amongst Egyptians: A Qualitative Pilot Study. [REVIEW] BMC Medical Ethics 8 (1):9.
Shawn Fabrice Jotterand, Archie M. McClintock, Mustafa A. Alexander & M. Husain (2010). Ethics and Informed Consent of Vagus Nerve Stimulation (Vns) for Patients with Treatment-Resistant Depression (Trd). Neuroethics 3 (1).
Rommel Salvador & Robert G. Folger (2009). Business Ethics and the Brain. Business Ethics Quarterly 19 (1):1-31.
Steve Clarke (2013). The Neuroscience of Decision Making and Our Standards for Assessing Competence to Consent. Neuroethics 6 (1):189-196.
Silvana Ferreira Bento, Ellen Hardy & Maria José Duarte Osis (2008). Process for Obtaining Informed Consent: Women's Opinions. Developing World Bioethics 8 (3):197-206.
Sharon Galbraith & Harriet Buckman Stephenson (1993). Decision Rules Used by Male and Female Business Students in Making Ethical Value Judgments: Another Look. [REVIEW] Journal of Business Ethics 12 (3):227 - 233.
Added to index2012-06-19
Total downloads10 ( #331,763 of 1,796,164 )
Recent downloads (6 months)1 ( #468,527 of 1,796,164 )
How can I increase my downloads?