David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Journal of Bioethical Inquiry 2 (3):165-176 (2005)
The issue of genetic discrimination has attracted growing attention and has been the focus of a recent major Australian inquiry. It is, however, a complex and loaded notion, open to interpretation. This paper explores the concept of genetic discrimination in both its theoretical and practical dimensions. It examines its conceptual underpinnings, how it is understood, and how this understanding fits within the legal framework of disability discrimination. The paper also examines the phenomenon in practice, including the ‘fear factor’ and the resulting implications for the development of regulatory policy. The paper argues that we need to be discerning in our interpretation of this term, and differentiate between discriminatory conduct which is legal and illegal. Further, it is argued that a concerted societal response to the ‘problem’ of genetic discrimination is needed involving targeted legal reforms as well as broader non-legal strategies.
|Keywords||Genetic discrimination genetic status disability discrimination genetic equity fairness|
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References found in this work BETA
Lisa N. Geller, Joseph S. Alper, Paul R. Billings, Carol I. Barash, Jonathan Beckwith & Marvin R. Natowicz (1996). Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis. [REVIEW] Science and Engineering Ethics 2 (1):71-88.
Anita Silvers & Michael Ashley Stein (2003). Human Rights and Genetic Discrimination: Protecting Genomics'Promise For Public Health. Journal of Law, Medicine & Ethics 31 (3):377-389.
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