David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Medical Ethics 30 (2):185-189 (2004)
Recent research governance documents say that the body of research evidence must reflect population diversity. The response to this needs to be more sophisticated than simply ensuring minorities are present in samples. For quantitative research looking primarily at treatment effects of drugs and devices four suggestions are made. First, identify where the representation of minorities in samples matters—for example, where ethnicity may cause different treatment effects. Second, where the representation of a particular group matters then subgroup analysis of the results will usually be necessary. Third, ensuring representation and subgroup analysis will have costs; deciding on whether such representation is worthwhile will involve cost benefit analysis. Fourth, the representation of minorities should not be seen as mainly a locality issue. For qualitative research it is argued that the representation of diversity is often important. Given the small samples of many qualitative projects, however, the best way to ensure representation occurs is to allow a proliferation of such research, not to stipulate such representation in samples.
|Keywords||consent neonatology health care|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Loretta M. Kopelman (1994). Informed Consent and Anonymous Tissue Samples: The Case of Hiv Seroprevalence Studies. Journal of Medicine and Philosophy 19 (6):525-552.
Asya Al-Riyami, Deepali Jaju, Sanjay Jaju & Henry J. Silverman (2011). The Adequacy of Informed Consent Forms in Genetic Research in Oman: A Pilot Study. Developing World Bioethics 11 (2):57-62.
Stephanie Fullerton & Sandra Lee (2011). Secondary Uses and the Governance of De-Identified Data: Lessons From the Human Genome Diversity Panel. [REVIEW] BMC Medical Ethics 12 (1):16-.
Michael A. Igbe & Clement A. Adebamowo (2012). Qualitative Study of Knowledge and Attitudes to Biobanking Among Lay Persons in Nigeria. BMC Medical Ethics 13 (1):27-.
Margaret Otlowski (2007). Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint. [REVIEW] Journal of Bioethical Inquiry 4 (2):135-150.
Daniel R. Ilgen & Bradford S. Bell (2001). Conducting Industrial and Organizational Psychological Research: Institutional Review of Research in Work Organizations. Ethics and Behavior 11 (4):395 – 412.
Luciana Caenazzo, Pamela Tozzo & Renzo Pegoraro (2013). Biobanking Research on Oncological Residual Material: A Framework Between the Rights of the Individual and the Interest of Society. [REVIEW] BMC Medical Ethics 14 (1):17.
Atsushi Asai, Motoki Ohnishi, Etsuyo Nishigaki, Miho Sekimoto, Shunichi Fukuhara & Tsuguya Fukui (2002). Attitudes of the Japanese Public and Doctors Towards Use of Archived Information and Samples Without Informed Consent: Preliminary Findings Based on Focus Group Interviews. [REVIEW] BMC Medical Ethics 3 (1):1-10.
Lisa S. Parker (2012). The Immortal Life of Henrietta Lacks, Feminist Themes, and Research Ethics. International Journal of Feminist Approaches to Bioethics 5 (1):159-165.
Xinqing Zhang, Kenji Matsui, Benjamin Krohmal, Alaa Zeid, Vasantha Muthuswamy, Young Koo, Yoshikuni Kita & Reidar K. Lie (2010). Attitudes Towards Transfers of Human Tissue Samples Across Borders: An International Survey of Researchers and Policy Makers in Five Countries. BMC Medical Ethics 11 (1):16-.
María del Carmen Triana, María Fernanda Wagstaff & Kwanghyun Kim (2012). That's Not Fair! How Personal Value for Diversity Influences Reactions to the Perceived Discriminatory Treatment of Minorities. Journal of Business Ethics 111 (2):211-218.
Doris Schroeder & Eugenijus Gefenas (2011). Realizing Benefit Sharing – the Case of Post-Study Obligations. Bioethics 26 (6):305-314.
David C. Thomasma (2000). A Model of Community Substituted Consent for Research on the Vulnerable. Medicine, Health Care and Philosophy 3 (1):47-57.
Robert F. Weir & Jay R. Horton (1995). Genetic Research, Adolescents, and Informed Consent. Theoretical Medicine and Bioethics 16 (4).
T. M. Krahn & A. Fenton (2012). Funding Priorities: Autism and the Need for a More Balanced Research Agenda in Canada. Public Health Ethics 5 (3):296-310.
Added to index2010-08-24
Total downloads10 ( #336,791 of 1,907,148 )
Recent downloads (6 months)3 ( #276,350 of 1,907,148 )
How can I increase my downloads?