David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Hypatia 17 (3):118-142 (2002)
: This essay examines the possible systematic bias against the disabled in the structure and practice of genetic counseling. Finding that the profession's "nondirective" imperative remains problematic, the authors recommend that methodology developed by feminist standpoint epistemology be used to incorporate the perspective of disabled individuals in genetic counselors' education and practice, thereby reforming society's view of the disabled and preventing possible negative effects of genetic counseling on the self-concept and material circumstance of disabled individuals
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Nel Noddings (1984). Caring: A Feminine Approach to Ethics and Moral Education. University of California Press.
Susan Wendell (1996). The Rejected Body: Feminist Philosophical Reflections on Disability. Routledge.
Joel Feinberg (2007). The Child's Right to an Open Future. In Randall R. Curren (ed.), Philosophy of Education: An Anthology. Blackwell Pub.
Dena S. Davis (1997). Genetic Dilemmas and the Child's Right to an Open Future. Hastings Center Report 27 (2):7-15.
Michael Berube (1998). [Book Review] Life as We Know It, a Father, a Family, and an Exceptional Child. [REVIEW] Hastings Center Report 28 (4):37-42.
Citations of this work BETA
L. McWhorter (2009). Governmentality, Biopower, and the Debate Over Genetic Enhancement. Journal of Medicine and Philosophy 34 (4):409-437.
Licia Carlson (2009). Philosophers of Intellectual Disability: A Taxonomy. Metaphilosophy 40 (3-4):552-566.
Similar books and articles
Susan Wendell (2001). Unhealthy Disabled: Treating Chronic Illnesses as Disabilities. Hypatia 16 (4):17-33.
Robert Roger Lebel (1978). Ethical Issues Arising in the Genetic Counseling Relationship. National Foundation--March of Dimes.
Sonia M. Suter (1998). Value Neutrality and Nondirectiveness: Comments on "Future Directions in Genetic Counseling". Kennedy Institute of Ethics Journal 8 (2):161-163.
Barabara Biesecker (1998). Future Directions in Genetic Counseling: Practical and Ethical Considerations. Kennedy Institute of Ethics Journal 8 (2):145-160.
Susan Wendell (1989). Toward a Feminist Theory of Disability. Hypatia 4 (2):104 - 124.
Mark Yarborough, Joan A. Scott & Linda K. Dixon (1989). The Role of Beneficence in Clinical Genetics: Non-Directive Counseling Reconsidered. Theoretical Medicine and Bioethics 10 (2).
Helen Meekosha (2010). The Complex Balancing Act of Choice, Autonomy, Valued Life, and Rights: Bringing a Feminist Disability Perspective to Bioethics. International Journal of Feminist Approaches to Bioethics 3 (2):1-8.
Mary Terrell White (1998). Decision-Making Through Dialogue: Reconfiguring Autonomy in Genetic Counseling. [REVIEW] Theoretical Medicine and Bioethics 19 (1):5-19.
Anita Ghai (2002). Disabled Women: An Excluded Agenda of Indian Feminism. Hypatia 17 (3):49-66.
Added to index2009-01-28
Total downloads15 ( #175,574 of 1,726,249 )
Recent downloads (6 months)4 ( #183,615 of 1,726,249 )
How can I increase my downloads?