Toward a Realistic Assessment of PKU Screening
PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:322 - 328 (1994)
| Abstract | Newborn screening for the genetic disease phenylketonuria (PKU) is generally considered the greatest success story of applied human genetics. Even those generally skeptical of the value of genetic testing often comment enthusiastically on this program. In fact, PKU screening has been plagued with serious problems since its inception in the early 1960s. This essay describes some of these difficulties and asks what lessons they hold for other screening programs. It also argues that realism in our assessment of such programs requires that we pay greater attention to the concrete experience of families. How screening should work in theory is of less importance than how it does work in practice. | |||||||||
| Keywords | No keywords specified (fix it) | |||||||||
| Categories | No categories specified (fix it) | |||||||||
| Options |
|
|||||||||
Download options| PhilPapers Archive |
Upload a copy of this paper Check publisher's policy on self-archival Papers currently archived: 5,705 |
| External links |
 |
| Through your library | Configure |
Similar books and articlesLainie Friedman Ross (2010). Mandatory Versus Voluntary Consent for Newborn Screening? Kennedy Institute of Ethics Journal 20 (4):299-328.
Ruth Chadwick, Henk ten Have, Jfrgen Husted, Mairi Levitt, Tony McGleenan, Darren Shickle & Urban Wiesing (1998). Genetic Screening and Ethics: European Perspectives. Journal of Medicine and Philosophy 23 (3):255 – 273.
Robert H. Blank (1982). Public Policy Implications of Human Genetic Technology: Genetic Screening. Journal of Medicine and Philosophy 7 (4):355-374.
R. H. Dees & J. M. Kwon (2013). The Ethics of Krabbe Newborn Screening. Public Health Ethics 6 (1):114-128.
Sahin Aksoy (2001). Antenatal Screening and its Possible Meaning From Unborn Baby's Perspective. BMC Medical Ethics 2 (1):1-11.
N. Nijsingh (2013). Krabbe Newborn Screening: The Issue of Informed Consent. Public Health Ethics 6 (1):126-128.
D. Miller (1996). Parliament and Screening: Ethical and Social Problems Arising From Testing and Screening for HIV and Genetic Disease. Journal of Medical Ethics 22 (6):366-366.
Virginia A. Moyer Ned Calonge Steven M. Teutsch Jeffrey R. Botkin (2008). Expanding Newborn Screening: Process, Policy, and Priorities. Hastings Center Report 38 (3):pp. 32-39.
Leslie E. Blumenson (1987). How Would a Latent Period for Early Breast Cancer Affect the Benefit of Screening? Theoretical Medicine and Bioethics 2 (2):169-182.
Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
Victoria Seavilleklein (2009). Challenging the Rhetoric of Choice in Prenatal Screening. Bioethics 23 (1):68-77.
Ingrid Burger & Nancy Kass (2009). Screening in the Dark: Ethical Considerations of Providing Screening Tests to Individuals When Evidence is Insufficient to Support Screening Populations. American Journal of Bioethics 9 (4):3-14.
Jyotsna Agnihotri Gupta (2007). Private and Public Eugenics: Genetic Testing and Screening in India. Journal of Bioethical Inquiry 4 (3).
Joseph Kupfer (1993). The Ethics of Genetic Screening in the Workplace. Business Ethics Quarterly 3 (1):17-25.
Analytics
Monthly downloads |
Added to index2011-05-29Total downloads5 ( #160,483 of 549,546 )Recent downloads (6 months)1 ( #63,397 of 549,546 )How can I increase my downloads? |
My notes
Discussion
