David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Academic Ethics 6 (3):197-203 (2008)
Alzheimer’s disease is the most common form of dementia which is estimated to impact 350,000 people over 65 years of age in Canada. The lack of effective treatment and the growing number of people who are expected to be diagnosed with Alzheimer’s disease in the near future are compelling reasons why continued research is in this area is necessary. With additional research, there needs to be greater recognition of the complexity of seeking ongoing informed consent from those with Alzheimer’s disease. This complexity is because the impairment of memory and cognitive ability does not diminish in a linear manner, but rather fluctuates between periods of impairment and relatively normal cognitive lucidness. There is limited discussion in the guidelines of those progressing from early stages of Alzheimer’s disease who have intermittent cognitive function. Guidelines to research and Research Ethics Boards require further development to facilitate researcher including those with Alzheimer’s disease while protecting this growing pool of potential participants.
|Keywords||Advanced directives Alzheimer’s disease Dementia Cognitive impairment Informed consent Dementia Elderly Ethics Proxy decision maker Research Seniors TCPS CMA|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Cees M. P. M. Hertogh, Marike E. de Boer, Rose-Marie Dröes & Jan A. Eefsting (2007). Would We Rather Lose Our Life Than Lose Our Self? Lessons From the Dutch Debate on Euthanasia for Patients with Dementia. American Journal of Bioethics 7 (4):48 – 56.
Roger Gil, E. M. Arroyo-Anllo, P. Ingrand, M. Gil, J. P. Neau, C. Ornon & V. Bonnaud (2001). Self-Consciousness and Alzheimer's Disease. Acta Neurologica Scandinavica 104 (5):296-300.
L. K. Kutschenko (2012). Diagnostic Misconceptions? A Closer Look at Clinical Research on Alzheimer's Disease. Journal of Medical Ethics 38 (1):57-59.
Atwood D. Gaines & Peter J. Whitehouse (2006). Building a Mystery: Alzheimer's Disease, Mild Cognitive Impairment, and Beyond. Philosophy, Psychiatry, and Psychology 13 (1):61-74.
Janice E. Graham & Karen Ritchie (2006). Mild Cognitive Impairment: Ethical Considerations for Nosological Flexibility in Human Kinds. Philosophy, Psychiatry, and Psychology 13 (1):31-43.
T. B. L. Kirkwood (2006). Alzheimer's Disease, Mild Cognitive Impairment, and the Biology of Intrinsic Aging. Philosophy, Psychiatry, and Psychology 13 (1):79-82.
Benjamin Seltzer, Jennifer J. Vasterling, Charles W. Mathias & Angela Brennan (2001). Clinical and Neuropsychological Correlates of Impaired Awareness of Deficits in Alzheimer Disease and Parkinson Disease: A Comparative Study. Neuropsychiatry, Neuropsychology, and Behavioral Neurology 14 (2):122-129.
Matthew A. Lambon Ralph & Peter Garrard (2001). Category-Specific Deficits: Insights From Semantic Dementia and Alzheimer's Disease. Behavioral and Brain Sciences 24 (3):485-486.
T. P. Jackson (1998). Book Reviews : Forgetting Whose We Are: Alzheimer's Disease and the Love of God, by David Keck. Nashville: Abingdon, 1996. 255 Pp. Pb. US$19.95. The Moral Challenge of Alzheimer's Disease, by Stephen G. Post. Baltimore: Johns Hopkins University Press, 1996. 142 Pp. Hb. 25. [REVIEW] Studies in Christian Ethics 11 (1):94-99.
Piero Antuono & Jan Beyer (1999). The Burden of Dementia: A Medical and Research Perspective. Theoretical Medicine and Bioethics 20 (1):3-13.
Added to index2009-01-28
Total downloads13 ( #127,289 of 1,101,906 )
Recent downloads (6 months)4 ( #91,837 of 1,101,906 )
How can I increase my downloads?