Why Non-Directiveness is Insufficient: Ethics of Genetic Decision Making and a Model of Agency [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jonathan Jenkins Ichikawa
Jack Alan Reynolds
Learn more about PhilPapers
Medicine Studies 1 (2):113-129 (2009)
There is no consensus about the ethical ideal of genetic counselling and decision making. This paper reviews and discusses some of the most prominent ethical arguments that have been brought forward against the non-directiveness principle (NDP), which has been the ethical gold standard for a long time. These arguments can be classed in four categories: (i) NDP can be against the best interests of the individuals concerned; (ii) NDP has ideological elements that do not adequately represent the counselling ethos; (iii) NDP was historically a defensive tool that protected the interests of geneticists against social criticism and against litigation; (iv) NDP falsely assumes individual responsibility and hides the shared responsibility of other social actors. The paper argues that a serious understanding of moral space, which people need in order to make ‘their own’ decisions, leads to a necessarily relational concept of agency. The positive counterpart of NDP is to allow a space for agency. Allowing agency implies offering the kind of support that the decision-making person really needs. To make a good decision about personal genetics implies being empowered to act as a contextually sensitive person who is aware of relationships and corresponding responsibilities
|Keywords||Genetic counselling Genetic decisions Non-directiveness Agency Gene tests Disclosure Genetic information Informed consent Genetics|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Bruno Latour (1999). Pandora's Hope: Essays on the Reality of Science Studies. Harvard University Press.
Martha Craven Nussbaum (1990). Love's Knowledge: Essays on Philosophy and Literature. Oxford University Press.
Margaret Urban Walker (1998). Moral Understandings: A Feminist Study In. In Stephen Everson (ed.), Ethics. Cambridge University Press
Aristotle (2004). The Nicomachean Ethics. Penguin Books.
Citations of this work BETA
No citations found.
Similar books and articles
Rivka Grundstein-Amado (1991). An Integrative Model of Clinical-Ethical Decision Making. Theoretical Medicine and Bioethics 12 (2).
Bill Shaw (1995). Virtue Ethics and Contractarianism. Business Ethics Quarterly 5 (2):297-312.
Robert Keith Shaw, Michael A. Peters & James D. Marshall (1986). The Development and Trials of a Decision-Making Model. Evaluation Review, 10 (1):5-27.
Fuat S. Oduncu (2002). The Role of Non-Directiveness in Genetic Counseling. Medicine, Health Care and Philosophy 5 (1):53-63.
Naresh K. Malhotra & Gina L. Miller (1998). An Integrated Model for Ethical Decisions in Marketing Research. Journal of Business Ethics 17 (3):263-280.
Eugene C. Hargrove (1985). The Role of Rules in Ethical Decision Making. Inquiry 28 (1-4):3 – 42.
Kirsten Martin & Bidhan Parmar (2012). Assumptions in Decision Making Scholarship: Implications for Business Ethics Research. [REVIEW] Journal of Business Ethics 105 (3):289-306.
Roselie McDevitt, Catherine Giapponi & Cheryl Tromley (2007). A Model of Ethical Decision Making: The Integration of Process and Content. [REVIEW] Journal of Business Ethics 73 (2):219 - 229.
Kevin Morrell (2004). Decision Making and Business Ethics: The Implications of Using Image Theory in Preference to Rational Choice. [REVIEW] Journal of Business Ethics 50 (3):239-252.
Chris Robertson & Paul A. Fadil (1999). Ethical Decision Making in Multinational Organizations: A Culture-Based Model. [REVIEW] Journal of Business Ethics 19 (4):385 - 392.
Michael Bommer, Clarence Gratto, Jerry Gravander & Mark Tuttle (1987). A Behavioral Model of Ethical and Unethical Decision Making. Journal of Business Ethics 6 (4):265 - 280.
Marc D. Street, Chris Robertson & Scott W. Geiger (1997). Ethical Decision Making: The Effects of Escalating Commitment. [REVIEW] Journal of Business Ethics 16 (11):1153-1161.
Kelly C. Strong & G. Dale Meyer (1992). An Integrative Descriptive Model of Ethical Decision Making. Journal of Business Ethics 11 (2):89 - 94.
William D. Murry, James C. Wimbush & Dan R. Dalton (2001). Genetic Screening in the Workplace: Legislative and Ethical Implications. [REVIEW] Journal of Business Ethics 29 (4):365 - 378.
Dawn R. Elm & Tara J. Radin (2012). Ethical Decision Making: Special or No Different? [REVIEW] Journal of Business Ethics 107 (3):313-329.
Added to index2011-11-26
Total downloads13 ( #298,353 of 1,938,829 )
Recent downloads (6 months)5 ( #125,145 of 1,938,829 )
How can I increase my downloads?