Genetic links, family ties, and social bonds: Rights and responsibilities in the face of genetic knowledge
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Medicine and Philosophy 23 (1):10 – 30 (1998)
Currently, some of the most significant moral issues involving genetic links relate to genetic knowledge. In this paper, instead of looking at the frequently addressed issues of responsibilities professionals or institutions have to individuals, I take up the question of what responsibilities individuals have to one another with respect to genetic knowledge. I address the questions of whether individuals have a moral right to pursue their own goals without contributing to society's knowledge of population genetics, without adding to their family's knowledge of its genetic history, and without discovering genetic information about themselves and their offspring. These questions lead to an examination of the presumed right to genetic ignorance and an exploration of a variety of social bonds. Analyzing cases in light of these considerations leads to a surprising conclusion about a widely accepted precept of genetic counseling, to some ethical insights into typical problems, and to some further unanswered questions about personal responsibility in the face of genetic knowledge.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst (2015). Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice. American Journal of Bioethics 15 (7):3-14.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Emma C. Bullock (2014). Free Choice and Patient Best Interests. Health Care Analysis:1-19.
Jane Wilson (2005). To Know or Not to Know? Genetic Ignorance, Autonomy and Paternalism. Bioethics 19 (5-6):492-504.
Emma C. Bullock (forthcoming). Mandatory Disclosure and Medical Paternalism. Ethical Theory and Moral Practice:1-16.
Similar books and articles
Dena S. Davis (2007). The Changing Face of "Misidentified Paternity". Journal of Medicine and Philosophy 32 (4):359 – 373.
Sharon L. R. Kardia, Jane P. Sheldon, Elizabeth M. Petty, Merle Feldbaum, Elizabeth S. Anderson, Angela D. Lanie & Toby Epstein Jayaratne, Exploring the Public Understanding of Basic Genetic Concepts.
Lisa N. Geller, Joseph S. Alper, Paul R. Billings, Carol I. Barash, Jonathan Beckwith & Marvin R. Natowicz (1996). Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis. [REVIEW] Science and Engineering Ethics 2 (1):71-88.
M. O. (2001). Genetic Prediction: What Are the Limits? Studies in History and Philosophy of Science Part C 32 (4):619-633.
Alan Strudler (1994). The Social Construction of Genetic Abnormality: Ethical Implications for Managerial Decisions in the Workplace. [REVIEW] Journal of Business Ethics 13 (11):839 - 848.
Ruth Hannah Wilkinson (2010). Genetic Information: Important but Not “Exceptional. [REVIEW] Identity in the Information Society 3 (3):457-472.
Ludvig Beckman (2004). Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy. Theoretical Medicine and Bioethics 25 (5-6):387-398.
G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
Added to index2009-01-28
Total downloads25 ( #120,994 of 1,726,249 )
Recent downloads (6 months)1 ( #369,877 of 1,726,249 )
How can I increase my downloads?