David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
American Journal of Bioethics 3 (3):35-42 (2003)
Progress in gene sequencing could make rapid whole genome sequencing of individuals affordable to millions of persons and useful for many purposes in a future era of genomic medicine. Using the idea of $1000 genome as a focus, this article reviews the main technical, ethical, and legal issues that must be resolved to make mass genotyping of individuals cost-effective and ethically acceptable. It presents the case for individual ownership of a person's genome and its information, and shows the implications of that position for rights to informed consent and privacy over sequencing, testing, and disclosing genomic information about identifiable individuals. Legal recognition of a person's right to control his or her genome and the information that it contains is essential for further progress in applying genomic discoveries to human lives
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Maureen O'Malley, Jane Calvert & John Dupré (2007). The Study of Socioethical Issues in Systems Biology. American Journal of Bioethics 7 (4):67-78.
Similar books and articles
Ruth Chadwick (2011). Personal Genomes: No Bad News? Bioethics 25 (2):62-65.
Robin O. Andreasen & Milo J. Aukerman (2002). The Human Genome Project: A Reply to Rosenberg. [REVIEW] Biology and Philosophy 17 (5):673-678.
Sheri Alpert (2008). Privacy Issues in Clinical Genomic Medicine, or Marcus Welby, M.D., Meets the $1000 Genome. [REVIEW] Cambridge Quarterly of Healthcare Ethics 17 (04):373-384.
Christian Byk (1998). A Map to a New Treasure Island: The Human Genome and the Concept of Common Heritage. Journal of Medicine and Philosophy 23 (3):234 – 246.
Eline M. Bunnik, A. Cecile J. W. Janssens & Maartje H. N. Schermer (2013). Informed Consent in Direct-to-Consumer Personal Genome Testing: The Outline of A Model Between Specific and Generic Consent. Bioethics 27 (3):343-351.
Ehud Lamm (2010). Genes Versus Genomes: The Role of Genome Organization in Evolution. Dissertation, Tel Aviv University
David L. Wiesenthal & Neil I. Wiener (1996). Privacy and the Human Genome Project. Ethics and Behavior 6 (3):189 – 202.
Ehud Lamm (2011). The Metastable Genome: A Lamarckian Organ in a Darwinian World? In Eva Jablonka & Snait Gissis (eds.), Transformations of Lamarckism: from subtle fluids to molecular biology. MIT Press
Marga Vicedo (1992). The Human Genome Project: Towards an Analysis of the Empirical, Ethical, and Conceptual Issues Involved. [REVIEW] Biology and Philosophy 7 (3):255-278.
Eline Bunnik, Maartje Schermer & A. Cecile Janssens (2011). Personal Genome Testing: Test Characteristics to Clarify the Discourse on Ethical, Legal and Societal Issues. [REVIEW] BMC Medical Ethics 12 (1):11-.
Richard Sternberg (1996). The Role of Constrained Self-Organization in Genome Structural Evolution. Acta Biotheoretica 44 (2).
Gerd Richter & Matthew D. Bacchetta (1998). Interventions in the Human Genome: Some Moral and Ethical Considerations. Journal of Medicine and Philosophy 23 (3):303 – 317.
Chamundeeswari Kuppuswamy (2009). The International Legal Governance of the Human Genome. Routledge.
Christian Byk (1992). The Human Genome Project and the Social Contract: A Law Policy Approach. Journal of Medicine and Philosophy 17 (4):371-380.
Fatimah Jackson (1998). Scientific Limitations and Ethical Ramifications of a Non-Representative Human Genome Project: African American Response. [REVIEW] Science and Engineering Ethics 4 (2):155-170.
Added to index2010-09-14
Total downloads11 ( #219,154 of 1,726,249 )
Recent downloads (6 months)7 ( #99,332 of 1,726,249 )
How can I increase my downloads?