David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Kennedy Institute of Ethics Journal 20 (4):299-328 (2010)
Virtually every infant in the United States (U.S.) undergoes a heel stick within the first week of life to test for a variety of metabolic, endocrine, and hematological conditions as part of state-run universal newborn screening (NBS) programs. In the U.S., NBS began in the 1960s for phenylketonuria (PKU), a metabolic condition that causes intellectual disability if left untreated. I review the history of how NBS came to be a mandatory public health program that did not require parental consent1 and examine whether the policy was morally justifiable. I then examine how three changes to NBS programs are prompting a re-evaluation of the mandatory nature of NBS. The three changes are: (1) the implementation of ..
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Niels Nijsingh (2013). Krabbe Newborn Screening: The Issue of Informed Consent. Public Health Ethics 6 (1):126-128.
Virginia A. Moyer Ned Calonge Steven M. Teutsch Jeffrey R. Botkin (2008). Expanding Newborn Screening: Process, Policy, and Priorities. Hastings Center Report 38 (3):pp. 32-39.
Diane B. Paul (1994). Toward a Realistic Assessment of PKU Screening. PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:322 - 328.
R. H. Dees & J. M. Kwon (2013). The Ethics of Krabbe Newborn Screening. Public Health Ethics 6 (1):114-128.
S. G. Nicholls (2010). Knowledge or Understanding? Informed Choice in the Context of Newborn Bloodspot Screening. Public Health Ethics 3 (2):128-136.
Li-Ming Gong, Wen-Jun Tu, Jian He, Xiao-Dong Shi, Xin-Yu Wang & Ying Li (2012). The Use of Newborn Screening Dried Blood Spots for Research. Journal of Bioethical Inquiry 9 (2):189-193.
Ruth Chadwick, Henk ten Have, Jfrgen Husted, Mairi Levitt, Tony McGleenan, Darren Shickle & Urban Wiesing (1998). Genetic Screening and Ethics: European Perspectives. Journal of Medicine and Philosophy 23 (3):255 – 273.
E. K. Darling (2011). Is Mandatory Neonatal Eye Prophylaxis Ethically Justified? A Case Study From Canada. Public Health Ethics 4 (2):185-191.
M.-C. Huang (2005). Parental Consent for Newborn Screening in Southern Taiwan. Journal of Medical Ethics 31 (11):621-624.
Robert H. Blank (1982). Public Policy Implications of Human Genetic Technology: Genetic Screening. Journal of Medicine and Philosophy 7 (4):355-374.
Mary Ann Baily Thomas H. Murray (2008). Ethics, Evidence, and Cost in Newborn Screening. Hastings Center Report 38 (3):pp. 23-31.
N. J. Kerruish, D. Webster & N. Dickson (2008). Information and Consent for Newborn Screening: Practices and Attitudes of Service Providers. Journal of Medical Ethics 34 (9):648-652.
Lainie Friedman Ross (2013). Newborn Screening for Krabbe Disease: What Illinois Can Learn From New York. Public Health Ethics 6 (1):119-123.
Vincenzo Denicolò & Marco Mariotti (2000). Nash Bargaining Theory, Nonconvex Problems and Social Welfare Orderings. Theory and Decision 48 (4):351-358.
Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
Added to index2010-12-30
Total downloads17 ( #108,152 of 1,413,337 )
Recent downloads (6 months)1 ( #154,079 of 1,413,337 )
How can I increase my downloads?