David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
The main purpose was to investigate children's participation in the decision-making processes in health care. Twenty-four children (0-18 år)admitted to hospital, their parents, and the staff present were observed during totally 135 hours in order to (i) identify the children's needs, (ii) their participation in the decision-making processes, and (iii) their parents' participation. Twenty-six children (6-17 years) and 21 parents were interviewed about their experiences of hospital stay, and finally 92 health care professionals described situations containing different degrees of children's participation. The result showed that children had different needs in non threatening and threatening situations. The need for information and participation was most obvious in non threatening situations. By using an instrument, "The scale if participation in decision-making" it was possible to assess the degree of participation in decision-making. It was considered that children were not allways allowed to participate to the extent that was judged optimal. Factors influencing the degree of participation were the age of the child, the child's protest, parents' role, staff's attitude, the time factor, and alternative solutions to the problems. Parents participated to different degrees, depending on how explicit they explained their needs and how sensitive staff were to the parents' sometime vagely expressed needs. Staff have to be aware of the individual child's needs in different situations and facilitate for optimal participation. The instrument used could be helpful in claryfying the discussion concerning participation. Every person is called upon to assess the child's competence, investigate the opinions, wishes, and valuations of the child, and decide how to respect them
|Keywords||No keywords specified (fix it)|
No categories specified
(categorize this paper)
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library||
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Jérémy Vanhelst, Ludovic Hardy, Dina Bert, Stéphane Duhem, Stéphanie Coopman, Christian Libersa, Dominique Deplanque, Frédéric Gottrand & Laurent Béghin (2013). Effect of Child Health Status on Parents' Allowing Children to Participate in Pediatric Research. BMC Medical Ethics 14 (1):7.
Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish, Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.
Victoria A. Miller, William W. Reynolds & Robert M. Nelson (2008). Parent-Child Roles in Decision Making About Medical Research. Ethics and Behavior 18 (2 & 3):161 – 181.
A. S. Iltis (2010). Toward a Coherent Account of Pediatric Decision Making. Journal of Medicine and Philosophy 35 (5):526-552.
Benedetto Vitiello (2008). Effectively Obtaining Informed Consent for Child and Adolescent Participation in Mental Health Research. Ethics and Behavior 18 (2 & 3):182 – 198.
Barry Lyons (2012). Solidarity, Children and Research. Bioethics 26 (7):369-375.
Rona Abramovitch, Jonathan L. Freedman, Kate Henry & Michelle Van Brunschot (1995). Children's Capacity to Agree to Psychological Research: Knowledge of Risks and Benefits and Voluntariness. Ethics and Behavior 5 (1):25 – 48.
Claudia Wiesemann (2009). Off-Label, Off-Limits? Parental Awareness and Attitudes Towards Off-Label Use in Paediatrics. European Journal of Pediatrics 168:1473-1478.
Cynthia B. Cohen (1998). Wrestling with the Future: Should We Test Children for Adult-Onset Genetic Conditions? Kennedy Institute of Ethics Journal 8 (2):111-130.
Michael Gill, Picu Prometheus: Ethical Issues in the Treatment of Very Sick Children in Paediatric Intensive Care.
Matt Commers (2002). Determinants of Health: Theory, Understanding, Portrayal, Policy. Kluwer Academic Publishers.
Laurence D. Houlgate (2002). Lainie Friedman Ross, Children, Families, and Health Care Decision‐Making:Children, Families, and Health Care Decision‐Making. Ethics 112 (3):639-641.
Sonja Grover (2003). On the Limits of Parental Proxy Consent: Children's Right to Non-Participation in Non-Therapeutic Research. [REVIEW] Journal of Academic Ethics 1 (4):349-383.
Hugh LaFollette (1989). Freedom of Religion and Children. Public Affairs Quarterly (1):75-87.
Ferdinand Schoeman (1985). Parental Discretion and Children's Rights: Background and Implications for Medical Decision-Making. Journal of Medicine and Philosophy 10 (1):45-62.
Added to index2010-09-25
Total downloads6 ( #214,088 of 1,101,947 )
Recent downloads (6 months)1 ( #306,569 of 1,101,947 )
How can I increase my downloads?