David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Journal of Bioethical Inquiry 8 (4):363-377 (2011)
Most legal analyses of selective nontreatment of seriously ill children centre on the question of whether it is in a child’s best interests to be kept alive in the face of extreme suffering and/or an intolerable quality of life. Courts have resisted any direct confrontation with the question of whether the child’s death is in his or her best interests. Nevertheless, representations of death may have an important role to play in this field of jurisprudence. The prevailing philosophy is to configure death as a release from a futile or painful existence and/or as a dignified end in an objectively hopeless situation. However, there can be disagreement about the meaning of death in these settings. Some parents object that death would be premature or that it represents a culpable neglect of their child. A closer examination of these discordant interpretations allows for a better comprehension of the cultural understandings that underscore clinical and legal accounts of death following end-of-life decisions
|Keywords||Death and dying Treatment-limitation in children Parental opposition Good death Legal responsibility for death Personhood and disability|
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References found in this work BETA
Peter Singer (1996). Rethinking Life and Death: The Collapse of Our Traditional Ethics. St. Martin's Griffin.
Eva Feder Kittay (2005). At the Margins of Moral Personhood. Ethics 116 (1):100-131.
D. Wilkinson (2006). Is It in the Best Interests of an Intellectually Disabled Infant to Die? Journal of Medical Ethics 32 (8):454-459.
Peter Singer (1995). Rethinking Life & Death the Collapse of Our Traditional Ethics. Monograph Collection (Matt - Pseudo).
Citations of this work BETA
Rosalind McDougall, Lauren Notini & Jessica Phillips (2015). Conflicts Between Parents and Health Professionals About a Child’s Medical Treatment: Using Clinical Ethics Records to Find Gaps in the Bioethics Literature. Journal of Bioethical Inquiry 12 (3):429-436.
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