David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Kennedy Institute of Ethics Journal 14 (3):217-234 (2004)
: Although "brain death" and the dead donor rule—i.e., patients must not be killed by organ retrieval—have been clinically and legally accepted in the U.S. as prerequisites to organ removal, there is little data about public attitudes and beliefs concerning these matters. To examine the public attitudes and beliefs about the determination of death and its relationship to organ transplantation, 1351 Ohio residents ≥18 years were randomly selected and surveyed using random digit dialing (RDD) sample frames. The RDD telephone survey was conducted using computer-assisted telephone interviews. The survey instrument was developed from information provided by 12 focus groups and a pilot study of the questionnaire. Three scenarios based on hypothetical patients were presented: "brain dead," in a coma, or in a persistent vegetative state (PVS). Respondents provided personal assessments of whether the patient in each scenario was dead and their willingness to donate that patient's organs in these circumstances. More than 98 percent of respondents had heard of the term "brain death," but only one-third (33.7%) believed that someone who was "brain dead" was legally dead. The majority of respondents (86.2%) identified the "brain-dead" patient in the first scenario as dead, 57.2 percent identified the patient in a coma as dead (Scenario 2), and 34.1 percent identified the patient in a PVS as dead (Scenario 3). Nearly one-third (33.5%) were willing to donate the organs of patients they classified as alive for at least one scenario, in seeming violation of the dead donor rule. Most respondents were not willing to violate the dead donor rule, although a substantial minority was. However, the majority of respondents were unaware, misinformed, or held beliefs that were not congruent with current definitions of "brain death." This study highlights the need for more public dialogue and education about "brain death" and organ donation
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James L. Bernat (2014). Whither Brain Death? American Journal of Bioethics 14 (8):3-8.
M. Nair-Collins, S. R. Green & A. R. Sutin (2015). Abandoning the Dead Donor Rule? A National Survey of Public Views on Death and Organ Donation. Journal of Medical Ethics 41 (4):297-302.
S. K. Shah, K. Kasper & F. G. Miller (2015). A Narrative Review of the Empirical Evidence on Public Attitudes on Brain Death and Vital Organ Transplantation: The Need for Better Data to Inform Policy. Journal of Medical Ethics 41 (4):291-296.
Robert D. Truog (2007). Brain Death - Too Flawed to Endure, Too Ingrained to Abandon. Journal of Law, Medicine & Ethics 35 (2):273-281.
Kurt Gray, T. Anne Knickman & Daniel M. Wegner (2011). More Dead Than Dead: Perceptions of Persons in the Persistent Vegetative State. Cognition 121 (2):275-280.
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