Reflexivity and Dialogue: Methodological and Socio-Ethical Dilemmas in Research with HIV-Affected Children in East Africa
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Ethics, Policy and Environment 15 (1):77 - 96 (2012)
This paper presents an integrated discussion of methods and ethics by drawing on participatory research with children in Ethiopia and Kenya. It examines the complex social, ethical, practical and methodological dilemmas of research with HIV-affected children, and explores how we confronted some of these dilemmas before, during and after fieldwork. The paper interrogates the role and limitations of ?global? ethical standards in childhood research, and the ways in which the researchers? gender, ethnicity/race, material power, knowledge and insider-outsider position all intersect to affect: (a) the level of children's involvement in the research process; (b) the generation of knowledge about the field; and (c) the negotiation of ethics in collaborative ways. We argue that doing ethical research with HIV-affected children should not be based solely on dominant and de-contextualised understandings of ethics, knowledge and social relations, but should be negotiated reflexively and through dialogue with participants, including the children, their guardians and ?local? community members?all with the aim of doing good and avoiding harm in the research process
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Sandra Jovchelovitch (2006). Knowledge in Context: Representations, Community, and Culture. Routledge.
Godfrey B. Tangwa (1996). Bioethics: An African Perspective. Bioethics 10 (3):183–200.
C. L. Fry (2005). Paying Research Participants: A Study of Current Practices in Australia. Journal of Medical Ethics 31 (9):542-547.
P. Christensen & A. James (2000). Research with Children: Perspectives and Practices. British Journal of Educational Studies 48 (3):344-345.
Elsbeth Robson (2001). Interviews Worth the Tears? Exploring Dilemmas of Research with Young Carers in Zimbabwe. Ethics, Place and Environment 4 (2):135 – 142.
Citations of this work BETA
No citations found.
Similar books and articles
Lorraine Young & Hazel Barrett (2001). Ethics and Participation: Reflections on Research with Street Children. Ethics, Place and Environment 4 (2):130 – 134.
Gill Valentine, Ruth Butler & Tracey Skelton (2001). The Ethical and Methodological Complexities of Doing Research with 'Vulnerable' Young People. Ethics, Place and Environment 4 (2):119 – 125.
Judy A. Kyle, Investigating Philosophical Discussion with Children as Co-Researchers : A Case Story of Doing Educative Research Using Collaborative Philosophical Inquiry.
Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein (2012). A Qualitative Study Using Traditional Community Assemblies to Investigate Community Perspectives on Informed Consent and Research Participation in Western Kenya. BMC Medical Ethics 13 (1):23-.
Gill Valentine (1999). Being Seen and Heard? The Ethical Complexities of Working with Children and Young People at Home and at School. Philosophy and Geography 2 (2):141 – 155.
Deborah Harcourt, Bob Perry & Tim Waller (eds.) (2011). Researching Young Children's Perspectives: Debating the Ethics and Dilemmas of Educational Research with Children. Routledge.
Jacquelyn Slomka (2009). Manufacturing Mistrust: Issues in the Controversy Regarding Foster Children in the Pediatric Hiv/Aids Clinical Trials. Science and Engineering Ethics 15 (4):503-516.
Joan E. Sieber (2008). Empirical Research on Ethical Issues in Pediatric Research. Ethics and Behavior 18 (2 & 3):127 – 138.
R. Macklin (2010). Intertwining Biomedical Research and Public Health in HIV Microbicide Research. Public Health Ethics 3 (3):199-209.
Mutsawashe Bwakura-Dangarembizi, Rosemary Musesengwa, Kusum Nathoo, Patrick Takaidza, Tawanda Mhute & Tichaona Vhembo (2012). Ethical and Legal Constraints to Children's Participation in Research in Zimbabwe: Experiences From the Multicenter Pediatric Hiv Arrow Trial. BMC Medical Ethics 13 (1):17-.
Marion K. Underwood (2005). Observing Anger and Aggression Among Preadolescent Girls and Boys: Ethical Dilemmas and Practical Solutions. Ethics and Behavior 15 (3):235 – 245.
Linda McDowell (2001). 'It's That Linda Again': Ethical, Practical and Political Issues Involved in Longitudinal Research with Young Men. Ethics, Place and Environment 4 (2):87 – 100.
Paul Cloke, Phil Cooke, Jerry Cursons, Paul Milbourne & Rebekah Widdowfield (2000). Ethics, Reflexivity and Research: Encounters with Homeless People. Ethics, Place and Environment 3 (2):133 – 154.
Diane Scott-Jones (1994). Ethical Issues in Reporting and Referring in Research with Low-Income Minority Children. Ethics and Behavior 4 (2):97 – 108.
Added to index2012-03-28
Total downloads9 ( #359,239 of 1,902,164 )
Recent downloads (6 months)1 ( #466,345 of 1,902,164 )
How can I increase my downloads?