David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Medical Ethics 26 (2):89 - 94 (2000)
This article challenges the view of disability presented by Harris in his article, “Is gene therapy a form of eugenics?”1 It is argued that his definition of disability rests on an individual model of disability, where disability is regarded as a product of biological determinism or “personal tragedy” in the individual. Within disability theory this view is often called “the medical model” and it has been criticised for not being able to deal with the term “disability”, but only with impairment. The individual model of disability presupposes a necessary causal link between a certain condition in the individual and disablement. The shortcomings of such a view of disability are stated and it is argued that in order to have an adequate ethical discourse on gene therapy perspectives from disability research need to be taken into consideration
|Keywords||Disability theory Eugenics gene therapy|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Guy Kahane (2009). Non-Identity, Self-Defeat, and Attitudes to Future Children. Philosophical Studies 145 (2):193 - 214.
Sofia Jeppsson (2014). Purebred Dogs and Canine Wellbeing. Journal of Agricultural and Environmental Ethics 27 (3):417-430.
B. Cox-White & S. F. Boxall (2008). Redefining Disability: Maleficent, Unjust and Inconsistent. Journal of Medicine and Philosophy 33 (6):558-576.
Similar books and articles
John Harris (1993). Is Gene Therapy a Form of Eugenics? Bioethics 7 (2-3):178-187.
Bernard M. Gert (1991). Genetic Disorders and the Ethical Status of Germ-Line Gene Therapy. Journal of Medicine and Philosophy 16 (6):667-683.
W. French Anderson (1989). Human Gene Therapy: Why Draw a Line? Journal of Medicine and Philosophy 14 (6):681-693.
W. French Anderson (1985). Human Gene Therapy: Scientific and Ethical Considerations. Journal of Medicine and Philosophy 10 (3):275-292.
Torbjörn Tännsjö (1993). Should We Change the Human Genome? Theoretical Medicine and Bioethics 14 (3).
John C. Fletcher (1985). Ethical Issues in and Beyond Prospective Clinical Trials of Human Gene Therapy. Journal of Medicine and Philosophy 10 (3):293-310.
James C. Harris (2010). Developmental Perspective on the Emergence of Moral Personhood. In Eva Feder Kittay & Licia Carlson (eds.), Cognitive Disability and its Challenge to Moral Philosophy. Wiley-Blackwell. 55--73.
Maurizio Salvi (2001). Shaping Individuality: Human Inheritable Germ Line Gene Modification. Theoretical Medicine and Bioethics 22 (6):527-542.
Gerd Richter & Matthew D. Bacchetta (1998). Interventions in the Human Genome: Some Moral and Ethical Considerations. Journal of Medicine and Philosophy 23 (3):303 – 317.
Mark Greene & Steven Augello (2011). Everworse: What's Wrong with Selecting for Disability? Public Affairs Quarterly 25 (2):131-140.
Larry R. Churchill, Myra L. Collins, Nancy M. R. King, Stephen G. Pemberton & Keith A. Wailoo (1998). Genetic Research as Therapy: Implications of "Gene Therapy" for Informed Consent. Journal of Law, Medicine and Ethics 26 (1):38-47.
John C. Fletcher & W. French Anderson (1992). Germ-Line Gene Therapy: A New Stage of Debate. Journal of Law, Medicine and Ethics 20 (1-2):26-39.
Eric T. Juengst (1997). Can Enhancement Be Distinguished From Prevention in Genetic Medicine? Journal of Medicine and Philosophy 22 (2):125-142.
Gregory Fowler, Eric T. Juengst & Burke K. Zimmerman (1989). Germ-Line Gene Therapy and the Clinical Ethos of Medical Genetics. Theoretical Medicine and Bioethics 10 (2).
Added to index2010-08-24
Total downloads20 ( #96,758 of 1,410,046 )
Recent downloads (6 months)3 ( #75,795 of 1,410,046 )
How can I increase my downloads?