David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Bioethical Inquiry 5 (1):33-37 (2008)
Approximately 1 in 30 people develop cancer due to an underlying familial predisposition. Genetic counselling and testing for people with (and at risk of) familial cancer are becoming more widely available, but service providers need to address challenging issues in relation to privacy and property. As in any counselling situation, a genetic counsellor seeks to ensure that the principles of autonomy, confidentiality, beneficence, and equity operate in favour of the client. But in dealing with a familial disorder, the application of these principles to the individual must be balanced with the potential for these principles to apply to other family members. This paper summarises the recent experience of a familial cancer service in seeking to avoid situations in which these principles, operating for both individual clients and their relatives, can come into conflict.
|Keywords||Genetics Genetic counselling Ethics Familial cancer Privacy|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
M. Ponder, H. Statham, N. Hallowell, J. A. Moon, M. Richards & F. L. Raymond (2008). Genetic Research on Rare Familial Disorders: Consent and the Blurred Boundaries Between Clinical Service and Research. Journal of Medical Ethics 34 (9):690-694.
Dallas M. High & Howard B. Turner (1987). Surrogate Decision-Making: The Elderly's Familial Expectations. Theoretical Medicine and Bioethics 8 (3).
Stephen Murgatroyd (1974). Ethical Issues in Secondary School Counselling. Journal of Moral Education 4 (1):27-37.
E. Dye Danielle, Beverley McNamara Leanne Youngs & Peter O’Leary Jack Goldblatt (2010). The Disclosure of Genetic Information: A Human Research Ethics Perspective. Journal of Bioethical Inquiry 7 (1).
David L. Wiesenthal & Neil I. Wiener (1996). Privacy and the Human Genome Project. Ethics and Behavior 6 (3):189 – 202.
G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
Rebecca Dresser (2011). Bioethics and Cancer: When the Professional Becomes Personal. Hastings Center Report 41 (6):14-18.
Angela Davey, Ainsley Newson & Peter O’Leary (2006). Communication of Genetic Information Within Families: The Case for Familial Comity. [REVIEW] Journal of Bioethical Inquiry 3 (3):161-166.
Knut Borch-Johnsen, Jørgen H. Olsen & Thorkild I. A. Sørensen (1994). Genes and Family Environment in Familial Clustering of Cancer. Theoretical Medicine and Bioethics 15 (4).
Added to index2009-01-28
Total downloads2 ( #418,650 of 1,692,924 )
Recent downloads (6 months)1 ( #193,926 of 1,692,924 )
How can I increase my downloads?