Genetic ignorance, moral obligations and social duties
Journal of Medicine and Philosophy 25 (1):107 – 113 (2000)
| Abstract | In a contribution to The Journal of Medicine and Philosophy , Professor Rosamond Rhodes argues that individuals sometimes have an obligation to know about their genetic disorders, because this is required by their status as autonomous persons. Her analysis, which is based on Kant's concept of autonomy and Aristotle's notion of friendship, is extended here to consequentialist concerns. These are of paramount importance if, as we believe and Professor Rhodes herself implies, the Kantian and Aristotelian doctrines can be helpful only in the sphere of private morality, not in the public realm. Better tools for assessing the right to genetic ignorance as an issue of public policy can, we contend, be found in Mill's ideas concerning liberty and the prevention of harm. Our own conclusion, based on the Millian way of thinking, is that individuals probably do have the right to remain in ignorance in the cases Professor Rhodes presents as examples of a duty to know. | |||||||||
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Matti Häyry & Tuija Takala (2001). Genetic Information, Rights, and Autonomy. Theoretical Medicine and Bioethics 22 (5).
Tuija Takala (1999). The Right to Genetic Ignorance Confirmed. Bioethics 13 (3-4):288-293.
Eli Feiring (2009). Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice. Bioethics 23 (5):300-310.
Iain Brassington (2011). Is There a Duty to Remain in Ignorance? Theoretical Medicine and Bioethics 32 (2):101-115.
Rebecca Bennett (2001). Antenatal Genetic Testing and the Right to Remain in Ignorance. Theoretical Medicine and Bioethics 22 (5).
Marko Ahteensuu (2012). Assumptions of the Deficit Model Type of Thinking: Ignorance, Attitudes, and Science Communication in the Debate on Genetic Engineering in Agriculture. Journal of Agricultural and Environmental Ethics 25 (3):295-313.
Tuija Takala (2001). Genetic Ignorance and Reasonable Paternalism. Theoretical Medicine and Bioethics 22 (5).
Rosamond Rhodes (2000). Autonomy, Respect, and Genetic Information Policy: A Reply to Tuija Takala and Matti Häyry. Journal of Medicine and Philosophy 25 (1):114 – 120.
Rosamond Rhodes (1998). Genetic Links, Family Ties, and Social Bonds: Rights and Responsibilities in the Face of Genetic Knowledge. Journal of Medicine and Philosophy 23 (1):10 – 30.
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