Evaluating palliative care: Facilitating reflexive dialgoues about an ambiguous concept [Book Review]

Palliation is a relatively new concept that is used in connection with the integral care provided to those who are unable to recover from their illness. The specific meaning of the concept has not been clearly defined. This article explores the possibilities offered by a responsive approach to evaluation that can facilitate a reflexive dialogue on this ambiguous concept. In doing so it draws on a case study of a palliative care project in a Dutch health care authority. The article begins with an overview of the characteristics of a responsive approach to evaluation and addresses interpretative, representational and practical dilemmas. It goes on to present a series of dialogues between health professionals, informal caregivers, patients and evaluators. These dialogues take the form of juxtaposed stories, transcribed conversations and interpretations. Finally, the learning experiences are summarised and the appropriateness of the responsive approach to evaluate palliative care is discussed
Keywords responsive evaluation  palliative care  dialogue  narrative  empirical ethics
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DOI 10.1023/A:1012096917865
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Wim Dekkers (2009). On the Notion of Home and the Goals of Palliative Care. Theoretical Medicine and Bioethics 30 (5):335-349.

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