David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Medicine, Health Care and Philosophy 6 (1):45-50 (2003)
Due to the potential ethical and psychological implications of screening, and especially inregard of screening on children without available and acceptable therapeutic measures, there is a common view that such procedures are not advisable. As part of an independent research- and bioethical case study, our aim was therefore to explore and describe bioethical issues among a representative sample of participant families (n = 17,055 children) in the ABIS (All Babies In South-east Sweden) research screening for Type 1 diabetes (IDDM).The primary aim is the identification of risk factors important for the development of diabetes and other multifactorial immune-mediated diseases. Four hundred, randomly chosen, participant mothers were asked to complete a questionnaire exploring issues of information, informed consent, bio-material, confidentiality and autonomy, and of prevention/intervention. 293 completed the questionnaire, resulting in a response rate of 73.3%. The majority of questions had the form of 6-point Likert-type response scales (1â6).We found that the majority of respondents felt calm in regard of samples and written material, and also concerning the possibility of their child in the future being identified as having high risk of developing Type 1 diabetes. An important finding concerning access and control of mainly biological data was indicated, with the respondents expressing concern for potential future use. We believe our findings indicate that this kind of empirical studies can substantially contribute to our understanding of bioethical issues of medical research involving genetics. Issues, such as safeguards ensuring theethical criteria of autonomy and respect, were emphasised by our respondents. We believe theissues brought up may promote further discussion, and do suggest issues for consideration by, among others, researchers, bioethicists and Institutional Review Boards
|Keywords||bioethics diabetes prevention screening|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
C. Degeling, M. Rock & W. A. Rogers (2012). Testing Relationships: Ethical Arguments for Screening for Type 2 Diabetes Mellitus with HbA1C. Journal of Medical Ethics 38 (3):180-183.
Anya Plutynski (2012). Ethical Issues in Cancer Screening and Prevention. Journal of Medicine and Philosophy 37 (3):310-323.
Caroline Jones (2010). An Australian Based Study on the Readability of HIV/AIDS and Type 2 Diabetes Clinical Trial Informed Consent Documents. Journal of Bioethical Inquiry 7 (3):313-319.
Laura Buccini, Donald Iverson, Peter Caputi & Caroline Jones (2010). An Australian Based Study on the Readability of HIV/AIDS and Type 2 Diabetes Clinical Trial Informed Consent Documents. Journal of Bioethical Inquiry 7 (3):313-319.
Victoria Seavilleklein (2009). Challenging the Rhetoric of Choice in Prenatal Screening. Bioethics 23 (1):68-77.
Ruth Chadwick, Henk ten Have, Jfrgen Husted, Mairi Levitt, Tony McGleenan, Darren Shickle & Urban Wiesing (1998). Genetic Screening and Ethics: European Perspectives. Journal of Medicine and Philosophy 23 (3):255 – 273.
Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
Sahin Aksoy (2001). Antenatal Screening and its Possible Meaning From Unborn Baby's Perspective. BMC Medical Ethics 2 (1):1-11.
Robert H. Blank (1982). Public Policy Implications of Human Genetic Technology: Genetic Screening. Journal of Medicine and Philosophy 7 (4):355-374.
Maui L. Hudson, Annabel L. M. Ahuriri-Driscoll, Marino G. Lea & Rod A. Lea (2007). Whakapapa – a Foundation for Genetic Research? Journal of Bioethical Inquiry 4 (1):43-49.
Lainie Friedman Ross (2003). The Ethics of Type 1 Diabetes Prediction and Prevention Research. Theoretical Medicine and Bioethics 24 (2):177-197.
Aisling M. Sheehan & Hannah McGee (2013). Screening for Depression in Medical Research: Ethical Challenges and Recommendations. [REVIEW] BMC Medical Ethics 14 (1):4-.
Jyotsna Agnihotri Gupta (2007). Private and Public Eugenics: Genetic Testing and Screening in India. [REVIEW] Journal of Bioethical Inquiry 4 (3):217-228.
Aisling Sheehan & Hannah McGee (2013). Screening for Depression in Medical Research: Ethical Challenges and Recommendations. [REVIEW] BMC Medical Ethics 14 (1):1-4.
Sorry, there are not enough data points to plot this chart.
Added to index2010-08-31
Total downloads1 ( #301,596 of 1,006,421 )
Recent downloads (6 months)0
How can I increase my downloads?