|Abstract||As scientists target communities for research into the etiology, especially the genetic determinants of common diseases, there have been calls for the protection of communities. This paper identifies the distinct characteristics of aboriginal communities and their implications for research in these communities. It also contends that the framework in the Belmont Report is inadequate in this context and suggests a fourth principle of respect for communities. To explore how such a principle might be specified and operationalized, it reviews existing guidelines for protecting aboriginal communities and points out problems with these guidelines and areas for further work|
|Keywords||No keywords specified (fix it)|
|Through your library||Only published papers are available at libraries|
Similar books and articles
Charles Weijer, Gary Goldsand & Ezekiel J. Emanuel, Protecting Communities in Research: Current Guidelines and Limits of Extrapolation.
Charles Weijer & P. B. Miller, Protecting Communities in Pharmacogenetic and Pharmacogenomic Research.
Sara Goering, Suzanne Holland & Kelly Fryer-Edwards (2008). Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice. Hastings Center Report 38 (2):43-53.
Segun Gbadegesin & David Wendler (2006). Protecting Communities in Health Research From Exploitation. Bioethics 20 (5):248-253.
Jon C. Altman & Melinda Hickson (eds.) (2010). Culture Crisis: Anthropology and Politics in Aboriginal Australia. University of New South Wales Press.
Renate Eigenbrod (2006). Who Wants These Stories? Reflections on Ethical Implications of the Re-Publication of a Missionary Work. Journal of Academic Ethics 4 (1-4).
Ezekiel J. Emanuel & Charles Weijer, Protecting Communities in Research: From a New Principle to Rational Protections.
Charles Weijer (1999). Protecting Communities in Research: Philosophical and Pragmatic Challenges. Cambridge Quarterly of Healthcare Ethics 8 (04).
Jennifer E. Dalton, Aboriginal Recognition in Canada: Distinguishing Between Peoples and Minorities.
Ernest Wallwork (2008). Ethical Analysis of Research Partnerships with Communities. Kennedy Institute of Ethics Journal 18 (1):pp. 57-85.
Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett & Charles H. Evans (2010). Bridging the Divide Between Genomic Science and Indigenous Peoples. Journal of Law, Medicine and Ethics 38 (3):684-696.
Kevin Joseph Brown (forthcoming). The Economics and Ethics of Mixed Communities: Exploring the Philosophy of Integration Through the Lens of the Subprime Financial Crisis in the Us. Journal of Business Ethics.
Richard R. Sharp & Morris W. Foster (2007). Grappling with Groups: Protecting Collective Interests in Biomedical Research. Journal of Medicine and Philosophy 32 (4):321 – 337.
Added to index2010-09-08
Total downloads3 ( #201,695 of 548,969 )
Recent downloads (6 months)1 ( #63,511 of 548,969 )
How can I increase my downloads?