Protecting Communities in Pharmacogenetic and Pharmacogenomic Research
| Abstract | The existing EELS literature has usefully identified the scope of ethical issues posed by pharmacogenetic and pharmacogenomic research. The time has come for in-depth examination of particular ethical issues. The involvement of racial and ethnic communities in pharmacogenetic and pharmacogenomic research is contentious precisely because it touches upon the science and politics of studying racial and ethnic difference. To date, the ethics literature has not seriously taken account of the fact that such research impinges upon the interests of communities, and that taking such interests seriously requires that we both protect and empower communities in research. We propose a framework that rests upon the recognition that communities are heterogeneous human associations and differing policies are appropriate for differing communities. Community consent and consultation and community consultation alone are neither appropriate nor required for all pharmacogenetic and pharmacogenomic research. Rather, application of these policy protections must take into account particulars of both planned research and the communities involved | |||||||||
| Keywords | No keywords specified (fix it) | |||||||||
| Categories | ||||||||||
| Options |
|
|||||||||
Download options| PhilPapers Archive |
Upload a copy of this paper Check publisher's policy on self-archival Papers currently archived: 5,701 |
| External links |
  Try with proxy. |
| Through your library | Only published papers are available at libraries |
Similar books and articlesSegun Gbadegesin & David Wendler (2006). Protecting Communities in Health Research From Exploitation. Bioethics 20 (5):248-253.
Sara Goering, Suzanne Holland & Kelly Fryer-Edwards (2008). Transforming Genetic Research Practices with Marginalized Communities: A Case for Responsive Justice. Hastings Center Report 38 (2):43-53.
Ernest Wallwork (2008). Ethical Analysis of Research Partnerships with Communities. Kennedy Institute of Ethics Journal 18 (1):pp. 57-85.
Charles Weijer (1999). Protecting Communities in Research: Philosophical and Pragmatic Challenges. Cambridge Quarterly of Healthcare Ethics 8 (04).
Lisa Eckenwiler (2001). Moral Reasoning and the Review of Research Involving Human Subjects. Kennedy Institute of Ethics Journal 11 (1):37-69.
A. A. Hyder, C. B. Krubiner, G. Bloom & A. Bhuiya (2012). Exploring the Ethics of Long-Term Research Engagement With Communities in Low- and Middle-Income Countries. Public Health Ethics 5 (3):252-262.
Allen E. Buchanan, Andrea Califano, Jeffrey Kahn, Elizabeth McPherson, John A. Robertson & Baruch A. Brody (2002). Pharmacogenetics: Ethical Issues and Policy Options. Kennedy Institute of Ethics Journal 12 (1):1-15.
Richard R. Sharp & Morris W. Foster (2007). Grappling with Groups: Protecting Collective Interests in Biomedical Research. Journal of Medicine and Philosophy 32 (4):321 – 337.
Vivien Runnels, Elizabeth Hay, Elyse Sevigny & Paddi O.’Hara (forthcoming). The Ethics of Conducting Community-Engaged Homelessness Research. Journal of Academic Ethics.
Analytics
Monthly downloads
Sorry, there are not enough data points to plot this chart.
|
Added to index2010-09-08Total downloads1 ( #274,921 of 549,122 )Recent downloads (6 months)0How can I increase my downloads? |
My notes
Discussion
