David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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American Journal of Bioethics 12 (1):23 - 31 (2012)
Pediatric research without the potential for clinical benefit is vital to improving pediatric medical care. This research also raises ethical concern and is regarded by courts and commentators as unethical. While at least 10 justifications have been proposed in response, all have fundamental limitations. This article describes and defends a new justification based on the fact that enrollment in clinical research offers children the opportunity to contribute to a valuable project. Contributing as children to valuable projects can benefit individuals in two ways. First, individuals may come to ?embrace? the contributions they made as children. Second, contributing to valuable projects can lead to a better overall life. Because these potential benefits can outweigh small research risks, they provide a justification for pediatric research without the potential for clinical benefit, when it poses low risks and has the potential to benefit others in important ways
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References found in this work BETA
Derek Parfit (1984). Reasons and Persons. Oxford University Press.
Thomas Scanlon (1998). What We Owe to Each Other. Belknap Press of Harvard University Press.
Robert Nozick (1974). Anarchy, State and Utopia. Basic Books.
Martha Craven Nussbaum (2001). The Fragility of Goodness: Luck and Ethics in Greek Tragedy and Philosophy. Cambridge University Press.
Jeremy Bentham (1780/2007). An Introduction to the Principles of Morals and Legislation. Dover Publications.
Citations of this work BETA
Loretta M. Kopelman (2012). On Justifying Pediatric Research Without the Prospect of Clinical Benefit. American Journal of Bioethics 12 (1):32 - 34.
Silvia Camporesi & Matteo Mameli (2012). The Context of Clinical Research and Its Ethical Relevance: The COMPAS Trial as a Case Study. American Journal of Bioethics 12 (1):39 - 40.
David Hunter (2012). Why Even Inappropriate Parental Consent Might Be Enough to Justify Minimal Risk Pediatric Research Without Clinical Benefit. American Journal of Bioethics 12 (1):35 - 36.
Carlo Petrini (2012). Consent to Pediatric Research: A Couple of Distinctions. American Journal of Bioethics 12 (1):37 - 38.
Merle Spriggs (2012). Justifying Pediatric Research Not Expected to Benefit Child Subjects. American Journal of Bioethics 12 (1):42 - 44.
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