David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Kennedy Institute of Ethics Journal 12 (4):351-372 (2002)
: This paper examines informed consent in relation to research involving the newly dead. Reasons are presented for facilitating advance decision making in relation to postmortem research, and it is argued that the informed consent of family members should be sought when the deceased have not made a premortem decision. Regardless of whether the dead can be harmed, there are two important respects in which family consent can serve to protect the dead: (1) protecting the deceased's body from being used for research that is incompatible with the person's premortem preferences and values and (2) protecting the deceased's body from being subject to disrespectful treatment. These claims are explained and justified, and several objections are critically examined. Additional reasons for securing family consent are presented including to protect them from additional emotional distress, to respect their wishes about wanting to have a say, and to maintain public trust in the medical profession and medical research. The paper also examines the scope of disclosure in relation to postmortem research
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Floris Tomasini (2009). Is Post-Mortem Harm Possible? Understanding Death Harm and Grief. Bioethics 23 (8):441-449.
Marilyn C. Morris, Tanya Sachdeva & George E. Hardart (2014). Enrolling Brain-Dead Humans in Medical Research: Stakeholder Opinions. Ajob Empirical Bioethics 5 (4):22-29.
Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine & Ethics 42 (2):220-231.
Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine and Ethics 42 (2):220-231.
Similar books and articles
Janet L. Brody, John P. Cluck & Alfredo S. Aragon (1997). Participants' Understanding of the Process of Psychological Research: Informed Consent. Ethics and Behavior 7 (4):285 – 298.
R. S. Downie (2003). Research on Dead Infants. Theoretical Medicine and Bioethics 24 (2):161-175.
T. M. Wilkinson (2001). Parental Consent and the Use of Dead Children's Bodies. Kennedy Institute of Ethics Journal 11 (4):337-358.
Mark R. Wicclair & Michael DeVita (2004). Oversight of Research Involving the Dead. Kennedy Institute of Ethics Journal 14 (2):143-164.
Michelle H. Biros (2007). Research Without Consent: Exception From and Waiver of Informed Consent in Resuscitation Research. Science and Engineering Ethics 13 (3):361-369.
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Dennis John Mazur (1998). Medical Risk and the Right to an Informed Consent in Clinical Care and Clinical Research. American College of Physician Executives.
James R. P. Ogloff & Randy K. Otto (1991). Are Research Participants Truly Informed? Readability of Informed Consent Forms Used in Research. Ethics and Behavior 1 (4):239 – 252.
Added to index2009-01-28
Total downloads24 ( #158,386 of 1,796,170 )
Recent downloads (6 months)2 ( #349,835 of 1,796,170 )
How can I increase my downloads?