David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Kennedy Institute of Ethics Journal 12 (4):351-372 (2002)
: This paper examines informed consent in relation to research involving the newly dead. Reasons are presented for facilitating advance decision making in relation to postmortem research, and it is argued that the informed consent of family members should be sought when the deceased have not made a premortem decision. Regardless of whether the dead can be harmed, there are two important respects in which family consent can serve to protect the dead: (1) protecting the deceased's body from being used for research that is incompatible with the person's premortem preferences and values and (2) protecting the deceased's body from being subject to disrespectful treatment. These claims are explained and justified, and several objections are critically examined. Additional reasons for securing family consent are presented including to protect them from additional emotional distress, to respect their wishes about wanting to have a say, and to maintain public trust in the medical profession and medical research. The paper also examines the scope of disclosure in relation to postmortem research
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Citations of this work BETA
Floris Tomasini (2009). Is Post-Mortem Harm Possible? Understanding Death Harm and Grief. Bioethics 23 (8):441-449.
Marilyn C. Morris, Tanya Sachdeva & George E. Hardart (2014). Enrolling Brain-Dead Humans in Medical Research: Stakeholder Opinions. Ajob Empirical Bioethics 5 (4):22-29.
Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine & Ethics 42 (2):220-231.
Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine and Ethics 42 (2):220-231.
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