Localized past, globalized future: Towards an effective bioethical framework using examples from population genetics and medical tourism
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Bioethics 25 (2):83-91 (2011)
This paper suggests that many of the pressing dilemmas of bioethics are global and structural in nature. Accordingly, global ethical frameworks are required which recognize the ethically significant factors of all global actors. To this end, ethical frameworks must recognize the rights and interests of both individuals and groups (and the interrelation of these). The paper suggests that the current dominant bioethical framework is inadequate to this task as it is over-individualist and therefore unable to give significant weight to the ethical demands of groups (and by extension communal and public goods). It will explore this theme by considering the inadequacy of informed consent (the ‘global standard’ of bioethics) to address two pressing global bioethical issues: medical tourism and population genetics.Using these examples it will show why consent is inadequate to address all the significant features of these ethical dilemmas. Four key failures will be explored, namely,• That the rights and interests of those related (and therefore affected) are neglected;• That consent fails to take account of the context and commitments of individuals which may constitute inducement and coercion;• That consent alone does not have the ethical weight to negate exploitation or make an unjust action just (‘the fallacy of sufficiency’);• That consent is a single one-off act which is inappropriate for the types of decision being made.It will conclude by suggesting that more appropriate models are emerging, particularly in population genetics, which can supplement consent
|Keywords||medical tourism population genetics global future informed consent groups|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Emma C. Bullock (2014). Free Choice and Patient Best Interests. Health Care Analysis:1-19.
Krystyna Adams, Jeremy Snyder, Valorie A. Crooks & Rory Johnston (2013). Promoting Social Responsibility Amongst Health Care Users: Medical Tourists' Perspectives on an Information Sheet Regarding Ethical Concerns in Medical Tourism. Philosophy, Ethics, and Humanities in Medicine 8 (1):19.
Daniel J. Daly (2013). Unreasonable Means: Proposing A New Category for Catholic End-of-Life Ethics. Christian Bioethics 19 (1):40-59.
A. Wardrope (2015). Relational Autonomy and the Ethics of Health Promotion. Public Health Ethics 8 (1):50-62.
Similar books and articles
H. Widdows & S. Cordell (2011). Why Communities and Their Goods Matter: Illustrated with the Example of Biobanks. Public Health Ethics 4 (1):14-25.
Jeremy Snyder, Valorie Crooks & Leigh Turner (2011). Issues and Challenges in Research on the Ethics of Medical Tourism: Reflections From a Conference. [REVIEW] Journal of Bioethical Inquiry 8 (1):3-6.
Elisabeth A. Lloyd (1984). A Semantic Approach to the Structure of Population Genetics. Philosophy of Science 51 (2):242-264.
Gordon R. Mitchell (2001). Defining the Subject of Consent in DNA Research. Journal of Medical Humanities 22 (1):41-53.
Jennifer Marshall, The Development of Contemporary Medical Genetics Research Models and the Need for Scientific Responsibility.
O. O'Neill (2001). Informed Consent and Genetic Information. Studies in History and Philosophy of Science Part C 32 (4):689-704.
K. S. Steinsbekk & B. Solberg (2011). Biobanks--When is Re-Consent Necessary? Public Health Ethics 4 (3):236-250.
Bartha Maria Knoppers (ed.) (2003). Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff.
I. Glenn Cohen (2012). How to Regulate Medical Tourism (and Why It Matters for Bioethics). Developing World Bioethics 12 (1):9-20.
James Wilson (2007). Is Respect for Autonomy Defensible? Journal of Medical Ethics 33 (6):353-356.
Peter G. N. West-Oram & Heather Widdows, Global Population and Global Justice: Equitable Distribution of Resources Among Countries. The Electronic Library of Science.
Heather Widdows (2013). The Connected Self: The Ethics and Governance of the Genetic Individual. Cambridge University Press.
Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.
Angela Davey, Ainsley Newson & Peter O’Leary (2006). Communication of Genetic Information Within Families: The Case for Familial Comity. [REVIEW] Journal of Bioethical Inquiry 3 (3):161-166.
Added to index2010-12-23
Total downloads8 ( #389,157 of 1,796,216 )
Recent downloads (6 months)1 ( #468,533 of 1,796,216 )
How can I increase my downloads?