Privacy and the human genome project
Ethics and Behavior 6 (3):189 – 202 (1996)
| Abstract | The Human Genome Project has raised many issues regarding the contributions of genetics to a variety of diseases and societal conditions. With genetic testing now easily conducted with lowered costs in nonmedical domains, a variety of privacy issues must be considered. Such testing will result in the loss of significant privacy rights for the individual. Society must now consider such issues as the ownership of genetic data, confidentiality rights to such information, limits placed on genetic screening, and legislation to control genetic testing and its applications. There is often a conflict between individual rights to privacy and the need for societal protection. | |||||||||
| Keywords | No keywords specified (fix it) | |||||||||
| Categories | ||||||||||
| Options |
|
|||||||||
| PhilPapers Archive |
Upload a copy of this paper Check publisher's policy on self-archival Papers currently archived: 5,631 |
| External links |
|
| Through your library | Configure |
Soraj Hongladarom (2009). Privacy, the Individual and Genetic Information: A Buddhist Perspective. Bioethics 23 (7):403-412.
Christian Byk (1992). The Human Genome Project and the Social Contract: A Law Policy Approach. Journal of Medicine and Philosophy 17 (4):371-380.
Eline Bunnik, Maartje Schermer & A. Cecile Janssens (2011). Personal Genome Testing: Test Characteristics to Clarify the Discourse on Ethical, Legal and Societal Issues. BMC Medical Ethics 12 (1):11-.
Philip Kitcher (1994). Who's Afraid of the Human Genome Project? PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:313 - 321.
Adam D. Moore (2000). Owning Genetic Information and Gene Enhancement Techniques: Why Privacy and Property Rights May Undermine Social Control of the Human Genome. Bioethics 14 (2):97–119.
John A. Robertson (2003). The $1000 Genome: Ethical and Legal Issues in Whole Genome Sequencing of Individuals. American Journal of Bioethics 3 (3):35-42.
Ruth Chadwick (2011). Personal Genomes: No Bad News? Bioethics 25 (2):62-65.
G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
Richard A. Spinello (2004). Property Rights in Genetic Information. Ethics and Information Technology 6 (1):29-42.
Monthly downloads |
Added to index2009-01-28Total downloads17 ( #70,972 of 548,970 )Recent downloads (6 months)1 ( #63,511 of 548,970 )How can I increase my downloads? |

