Genetic information: Important but not “exceptional” [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Identity in the Information Society 3 (3):457-472 (2010)
Much legislation dealing with the uses of genetic information could be criticised for exceptionalising genetic information over other types of information personal to the individual. This paper contends that genetic exceptionalism clouds the issues, and precludes any real debate about the appropriate uses of genetic information. An alternative to “genetically exceptionalist” legislation is to “legislate for fairness”. This paper explores the “legislating for fairness” approach, and concludes that it demonstrates a fundamental misunderstanding of both how legislation is drafted, and how it is interpreted. The uncomfortable conclusion is this: policy-makers and legislators must tackle head-on the difficult policy questions concerning what should and should not be done with genetic information. Only by confronting this crucial issue will they achieve a workable legislative solution to the problems caused by genetic information.
|Keywords||Genetic information Genetic exceptionalism Insurance Legislation Law Ethics|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
V. Launis (2000). The Use of Genetic Test Information in Insurance: The Argument From Indistinguishability Reconsidered. Science and Engineering Ethics 6 (3):299-310.
Neil C. Manson (2006). What is Genetic Information, and Why is It Significant? A Contextual, Contrastive, Approach. Journal of Applied Philosophy 23 (1):1–16.
Joseph S. Alper & Jon Beckwith (1998). Distinguishing Genetic From Nongenetic Medical Tests: Some Implications for Antidiscrimination Legislation. Science and Engineering Ethics 4 (2):141-150.
B. M. Kious (2010). Genetic Nondiscrimination and Health Care as an Entitlement. Journal of Medicine and Philosophy 35 (2):86-100.
Ludvig Beckman (2004). Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy. Theoretical Medicine and Bioethics 25 (5-6):387-398.
Antoinette Rouvroy (2008). Human Genes and Neoliberal Governance: A Foucauldian Critique. Routledge-Cavendish.
Neil C. Manson (2006). What is Genetic Information, and Why is It Significant? A Contextual, Contrastive, Approach. Journal of Applied Philosophy 23 (1):1-16.
James H. Moor (1999). Using Genetic Information While Protecting the Privacy of the Soul. Ethics and Information Technology 1 (4):257-263.
Eli Feiring (2009). Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice. Bioethics 23 (5):300-310.
Lyle Glowka (1998). A Guide to Designing Legal Frameworks to Determine Access to Genetic Resources. The World Conservation Union (Iucn).
Richard A. Spinello (2004). Property Rights in Genetic Information. Ethics and Information Technology 6 (1):29-42.
S. Matthew Liao (2009). Is There a Duty to Share Genetic Information? Journal of Medical Ethics 35 (5):306-309.
G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
Ainsley Newson (2004). The Nature and Significance of Behavioural Genetic Information. Theoretical Medicine and Bioethics 25 (2):89-111.
P. J. Malpas (2008). Is Genetic Information Relevantly Different From Other Kinds of Non-Genetic Information in the Life Insurance Context? Journal of Medical Ethics 34 (7):548-551.
Added to index2010-11-18
Total downloads18 ( #203,469 of 1,796,303 )
Recent downloads (6 months)3 ( #283,262 of 1,796,303 )
How can I increase my downloads?