Understanding preferences for disclosure of individual biomarker results among participants in a longitudinal birth cohort
Journal of Medical Ethics (forthcoming)
| Abstract | This article has no associated abstract. (fix it) | |||||||||
| Keywords | No keywords specified (fix it) | |||||||||
| Categories | ||||||||||
| Options |
|
|||||||||
Download options| PhilPapers Archive |
Upload a copy of this paper Check publisher's policy on self-archival Papers currently archived: 5,875 |
| External links |
  Try with proxy. |
| Through your library | Configure |
Similar books and articlesJuli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson (2008). Public Expectations for Return of Results From Large-Cohort Genetic Research. American Journal of Bioethics 8 (11):36 – 43.
Ines M. Barrio-Cantalejo, Pablo Simón-Lorda, Adoración Molina-Ruiz, Fátima Herrera-Ramos, Encarnación Martínez-Cruz, Rosa Maria Bailon-Gómez, Antonio López-Rico & Patricia Peinado Gorlat (2013). Stability Over Time in the Preferences of Older Persons for Life-Sustaining Treatment. Journal of Bioethical Inquiry 10 (1):103-114.
Lee Black & Kelly A. McClellan (2011). Familial Communication of Research Results: A Need to Know? Journal of Law, Medicine and Ethics 39 (4):605-613.
A. Jeffery (2005). Ethical Dilemmas: Feeding Back Results to Members of a Longitudinal Cohort Study. Journal of Medical Ethics 31 (3):153-153.
Vardit Ravitsky & Benjamin S. Wilfond (2006). Disclosing Individual Genetic Results to Research Participants. American Journal of Bioethics 6 (6):8 – 17.
Akira Akabayashi, Brian Taylor Slingsby & Ichiro Kai (2003). Perspectives on Advance Directives in Japanese Society: A Population-Based Questionnaire Survey. BMC Medical Ethics 4 (1):1-9.
Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman (2012). Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives. American Journal of Bioethics 12 (10):1-8.
G. Helgesson (2005). How to Handle Informed Consent in Longitudinal Studies When Participants Have a Limited Understanding of the Study. Journal of Medical Ethics 31 (11):670-673.
Annelien L. Bredenoord & Johannes Jm van Delden (2012). Disclosing Individual Genetic Research Results to Deceased Participants' Relatives by Means of a Qualified Disclosure Policy. American Journal of Bioethics 12 (10):10-12.
Jeffrey Friedman (1991). Accounting for Political Preferences: Cultural Theory Vs. Cultural History. Critical Review 5 (3):325-351.
S. D. MacNeil & C. V. Fernandez (2007). Attitudes of Research Ethics Board Chairs Towards Disclosure of Research Results to Participants: Results of a National Survey. Journal of Medical Ethics 33 (9):549-553.
Analytics
Monthly downloads
Sorry, there are not enough data points to plot this chart.
|
Added to index2010-09-13Total downloads0Recent downloads (6 months)0How can I increase my downloads? |
My notes
Discussion
