Biobanks and the Return of Research Results: Out with the Old and In with the New?
Journal of Law, Medicine and Ethics 39 (4):614-620 (2011)
| Abstract | This article examines the complex and contemporary issue of the return of research results in biobanks. After suggesting the exclusion of some adjacent issues usually flanking the debate, this article reviews the current practices of biobanks on the disclosure of research results to participants. It then focuses more specifically on the debate in the literature before turning to a review of the typology of recent reforms being put forward | |||||||||
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Bartha Maria Knoppers & Amy Dam (2011). Return of Results: Towards a Lexicon? Journal of Law, Medicine and Ethics 39 (4):577-582.
Emmanuelle Lévesque, Yann Joly & Jacques Simard (2011). Return of Research Results: General Principles and International Perspectives. Journal of Law, Medicine and Ethics 39 (4):583-592.
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Anne Marie Tassé (2011). The Return of Results of Deceased Research Participants. Journal of Law, Medicine and Ethics 39 (4):621-630.
Lee Black & Kelly A. McClellan (2011). Familial Communication of Research Results: A Need to Know? Journal of Law, Medicine and Ethics 39 (4):605-613.
Christiane Auray-Blais & Johane Patenaude (2006). A Biobank Management Model Applicable to Biomedical Research. BMC Medical Ethics 7 (1):1-9.
Jean V. McHale (2011). Accountability, Governance and Biobanks: The Ethics and Governance Committee as Guardian or as Toothless Tiger? Health Care Analysis 19 (3):231-246.
Mairi Levitt (2011). Relating to Participants: How Close Do Biobanks and Donors Really Want to Be? Health Care Analysis 19 (3):220-230.
Bartha Maria Knoppers & Emmanuelle Lévesque (2011). INTRODUCTION: Return of Research Results: How Should Research Results Be Handled? Journal of Law, Medicine and Ethics 39 (4):574-576.
K. S. Steinsbekk & B. Solberg (2011). Biobanks--When is Re-Consent Necessary? Public Health Ethics 4 (3):236-250.
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson (2008). Public Expectations for Return of Results From Large-Cohort Genetic Research. American Journal of Bioethics 8 (11):36 – 43.
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