13 found
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  1.  1
    Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst (2015). Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice. American Journal of Bioethics 15 (7):3-14.
    Advances in genomics have led to calls for developing population-based preventive genomic sequencing programs with the goal of identifying genetic health risks in adults without known risk factors. One critical issue for minimizing the harms and maximizing the benefits of PGS is determining the kind and degree of control individuals should have over the generation, use, and handling of their genomic information. In this article we examine whether PGS programs should offer individuals the opportunity to selectively opt out of the (...)
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  2.  3
    Gail E. Henderson, Arlene M. Davis & Nancy M. P. King (2004). Vulnerability to Influence: A Two-Way Street. American Journal of Bioethics 4 (3):50 – 52.
  3.  2
    Arlene M. Davis, Michele Rivkin-Fish & Deborah J. Love (2012). Addressing “Difficult Patient” Dilemmas: Possible Alternatives to the Mediation Model. American Journal of Bioethics 12 (5):13-14.
    The American Journal of Bioethics, Volume 12, Issue 5, Page 13-14, May 2012.
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  4.  7
    Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond & Gail E. Henderson (2002). The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection. Journal of Law, Medicine & Ethics 30 (3):411-419.
  5.  3
    Michele M. Easter, Arlene M. Davis & Gail E. Henderson (forthcoming). Confidentiality: More Than a Linkage File and a Locked Drawer. IRB: Ethics & Human Research.
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  6.  5
    Arlene M. Davis (forthcoming). Exception From Informed Consent for Emergency Research: Drawing on Existing Skills and Experience. IRB: Ethics & Human Research.
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  7.  2
    Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine & Ethics 42 (2):220-231.
    Recent advances in next generation sequencing along with high hopes for genomic medicine have inspired interest in genomic research with the newly dead. However, applicable law does not adequately determine ethical or policy responses to such research. In this paper we propose that such research stands at a crossroads between other more established biomedical clinical and research practices. In addressing the ethical and policy issues raised by a particular research project within our institution comparatively with these other practices, we illustrate (...)
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  8. John M. Conley, Robert Mitchell, R. Jean Cadigan, Arlene M. Davis, Allison W. Dobson & Ryan Q. Gladden (2012). A Trade Secret Model for Genomic Biobanking. Journal of Law, Medicine and Ethics 40 (3):612-629.
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  9. John M. Conley, Gabriel Lázaro-Muñoz, Anya E. R. Prince, Arlene M. Davis & R. Jean Cadigan (2015). Scientific Social Responsibility: Lessons From the Corporate Social Responsibility Movement. American Journal of Bioethics 15 (12):64-66.
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  10. Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond & Gail E. Henderson (2002). The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection. Journal of Law, Medicine and Ethics 30 (3):411-419.
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  11. Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst (2015). Response to Open Peer Commentaries on “Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice”. American Journal of Bioethics 15 (12):6-9.
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  12. Anya E. R. Prince, John M. Conley, Arlene M. Davis, Gabriel Lázaro‐Muñoz & R. Jean Cadigan (2015). Automatic Placement of Genomic Research Results in Medical Records: Do Researchers Have a Duty? Should Participants Have a Choice? Journal of Law, Medicine and Ethics 43 (4):827-842.
    In genomics research, it is becoming common practice to return individualized primary and incidental findings to participants and several ongoing major studies have begun to automatically transfer these results to a participant's clinical medical record. This paper explores who should decide whether to place genomic research findings into a clinical medical record. Should participants make this decision, or does a researcher's duty to place this information in a medical record override the participant's autonomy? We argue that there are no clear (...)
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  13. Rebecca L. Walker, Eric T. Juengst, Warren Whipple & Arlene M. Davis (2014). Genomic Research with the Newly Dead: A Crossroads for Ethics and Policy. Journal of Law, Medicine and Ethics 42 (2):220-231.
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