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  1.  27
    Ruth Chadwick & Bartha Maria Knoppers, Human Genetic Research: Emerging Trends in Ethics.
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
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  2.  2
    Bartha Maria Knoppers & Amy Dam (2011). Return of Results: Towards a Lexicon? Journal of Law, Medicine & Ethics 39 (4):577-582.
    Currently, the return of results in the domain of biobanking constitutes an ethical and legal quagmire, whether it involves population or specific clinical research studies. In light of the fact that population biobanks are often not seen as distinct from those biobanks created for disease research, as well as the uncertainty as to what “return of results” means concretely, this lexicon attempts to demystify the terminology. The terms — results, return, clinical significance, and utility — are discussed. Through an analysis (...)
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  3.  6
    Vural Ozdemir & Bartha Maria Knoppers (2010). One Size Does Not Fit All: Toward “Upstream Ethics”? American Journal of Bioethics 10 (6):42-44.
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  4.  1
    Bartha Maria Knoppers & Claude Laberge (2009). Return of “Accurate” and “Actionable” Results: Yes! American Journal of Bioethics 9 (6):107-109.
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  5.  4
    Bartha Maria Knoppers (2005). Biobanking: International Norms. Journal of Law, Medicine & Ethics 33 (1):7-14.
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  6.  16
    Bartha Maria Knoppers (ed.) (2003). Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff.
    This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns.
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  7.  14
    Bartha Maria Knoppers & Madelaine Saginur (2008). Bio-Banking. In Peter A. Singer & A. M. Viens (eds.), The Cambridge Textbook of Bioethics. Cambridge University Press
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  8. Bartha Maria Knoppers & Amy Dam (2011). Return of Results: Towards a Lexicon? Journal of Law, Medicine and Ethics 39 (4):577-582.
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  9.  17
    Bartha Maria Knoppers (2005). Neuroethics, New Ethics? American Journal of Bioethics 5 (2):33.
  10. Bartha Maria Knoppers (2005). Biobanking: International Norms. Journal of Law, Medicine and Ethics 33 (1):7-14.
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  11.  8
    Bartha Maria Knoppers (2014). INTRODUCTION: From the Right to Know to the Right Not to Know. Journal of Law, Medicine & Ethics 42 (1):6-10.
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  12.  1
    Bartha Maria Knoppers & Ruth Chadwick (2015). The Ethics Weathervane. BMC Medical Ethics 16 (1):1-5.
    BackgroundGlobal collaboration in genomic research is increasingly both a scientific reality and an ethical imperative. This past decade has witnessed the emergence of six new, interconnected areas of ethical consensus and emphasis for policy in genomics: governance, security, empowerment, transparency, the right not to know, and globalization.DiscussionThe globalization of genomic research warrants an approach to governance policies grounded in human rights.SummaryA human rights approach activates the ethical principles underpinning genomic research. It lends force to the right of all citizens to (...)
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  13.  7
    Linda Kharaboyan, Denise Avard & Bartha Maria Knoppers (2004). Storing Newborn Blood Spots: Modern Controversies. Journal of Law, Medicine & Ethics 32 (4):741-748.
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  14.  1
    Adrian Thorogood, Yann Joly, Bartha Maria Knoppers, Tommy Nilsson, Peter Metrakos, Anthoula Lazaris & Ayat Salman (2014). An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research. BMC Medical Ethics 15 (1):88.
    This article outlines procedures for the feedback of individual research data to participants. This feedback framework was developed in the context of a personalized medicine research project in Canada. Researchers in this domain have an ethical obligation to return individual research results and/or material incidental findings that are clinically significant, valid and actionable to participants. Communication of individual research data must proceed in an ethical and efficient manner. Feedback involves three procedural steps: assessing the health relevance of a finding, re-identifying (...)
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  15.  1
    Bartha Maria Knoppers (forthcoming). Genetic Information: Use and Abuse. Bioethics for Scientists.
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  16.  7
    Claude M. Laberge & Bartha Maria Knoppers (1992). Rationale for an Integrated Approach to Genetic Epidemiology. Bioethics 6 (4):317–330.
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  17.  2
    Bartha Maria Knoppers, Emily Kirby & Rosario Isasi (2010). Genetics and Stem Cell Research : Models of International Policy-Making. In John Elliott, W. Calvin Ho & Sylvia S. N. Lim (eds.), Bioethics in Singapore: The Ethical Microcosm. World Scientific
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  18.  1
    Dorothy Wertz & Bartha Maria Knoppers (2003). The HUGO Ethics Committee: Six Innovative Statements. New Review of Bioethics 1 (1):27-40.
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  19.  1
    Claud M. Laberge & Bartha Maria Knoppers (1990). Newborn Genetic Screening: Ethical and Social Considerations for the Nineties. Journal International de Bioethique= International Journal of Bioethics 2 (1):5-12.
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  20.  2
    Mark A. Rothstein & Bartha Maria Knoppers (2005). Introduction. Journal of Law, Medicine & Ethics 33 (1):6-6.
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  21.  2
    Bartha Maria Knoppers, Madelaine Saginur & Howard Cash (2006). Ethical Issues in Secondary Uses of Human Biological Materials From Mass Disasters. Journal of Law, Medicine & Ethics 34 (2):352-365.
    This paper addresses the ethical issues of secondary uses of samples collected for identification purposes following mass disasters. It studies norms governing secondary use of samples , ultimately concluding that limited secondary research uses of these samples should be permissible.
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  22.  1
    Bartha Maria Knoppers & Emmanuelle Lévesque (2011). INTRODUCTION: Return of Research Results: How Should Research Results Be Handled? Journal of Law, Medicine & Ethics 39 (4):574-576.
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  23. Linda Kharaboyan, Denise Avard & Bartha Maria Knoppers (2004). Storing Newborn Blood Spots: Modern Controversies. Journal of Law, Medicine and Ethics 32 (4):741-748.
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  24. Bartha Maria Knoppers, Timothy Caulfield & T. Douglas Kinsella (1998). Book Reviews-Legal Rights and Human Genetic Material. Bioethics 12 (4):343.
     
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  25. Bartha Maria Knoppers, Madelaine Saginur & Howard Cash (2006). Ethical Issues in Secondary Uses of Human Biological Materials From Mass Disasters. Journal of Law, Medicine and Ethics 34 (2):352-365.
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  26. Bartha Maria Knoppers (2014). INTRODUCTION: From the Right to Know to the Right Not to Know. Journal of Law, Medicine and Ethics 42 (1):6-10.
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  27. Bartha Maria Knoppers & Emmanuelle Lévesque (2011). INTRODUCTION: Return of Research Results: How Should Research Results Be Handled? Journal of Law, Medicine and Ethics 39 (4):574-576.
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  28. Mark A. Rothstein & Bartha Maria Knoppers (2005). Introduction. Journal of Law, Medicine and Ethics 33 (1):6-6.
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  29. Mark A. Rothstein & Bartha Maria Knoppers (2015). INTRODUCTION: Harmonizing Privacy Laws to Enable International Biobank Research. Journal of Law, Medicine and Ethics 43 (4):673-674.
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