18 found
Sort by:
  1. Bartha Maria Knoppers (forthcoming). Genetic Information: Use and Abuse. Bioethics for Scientists.
    No categories
    Direct download  
     
    My bibliography  
     
    Export citation  
  2. Bartha Maria Knoppers & Amy Dam (2011). Return of Results: Towards a Lexicon? Journal of Law, Medicine and Ethics 39 (4):577-582.
    Currently, the return of results in the domain of biobanking constitutes an ethical and legal quagmire, whether it involves population or specific clinical research studies. In light of the fact that population biobanks are often not seen as distinct from those biobanks created for disease research, as well as the uncertainty as to what “return of results” means concretely, this lexicon attempts to demystify the terminology. The terms — results, return, clinical significance, and utility — are discussed. Through an analysis (...)
    Direct download (4 more)  
     
    My bibliography  
     
    Export citation  
  3. Bartha Maria Knoppers & Emmanuelle Lévesque (2011). INTRODUCTION: Return of Research Results: How Should Research Results Be Handled? Journal of Law, Medicine and Ethics 39 (4):574-576.
    Direct download (4 more)  
     
    My bibliography  
     
    Export citation  
  4. Bartha Maria Knoppers, Emily Kirby & Rosario Isasi (2010). Genetics and Stem Cell Research : Models of International Policy-Making. In John Elliott, W. Calvin Ho & Sylvia S. N. Lim (eds.), Bioethics in Singapore: The Ethical Microcosm. World Scientific.
    Direct download  
     
    My bibliography  
     
    Export citation  
  5. Vural Ozdemir & Bartha Maria Knoppers (2010). One Size Does Not Fit All: Toward “Upstream Ethics”? American Journal of Bioethics 10 (6):42-44.
    Direct download (3 more)  
     
    My bibliography  
     
    Export citation  
  6. Bartha Maria Knoppers & Claude Laberge (2009). Return of “Accurate” and “Actionable” Results: Yes! American Journal of Bioethics 9 (6):107-109.
    Direct download (4 more)  
     
    My bibliography  
     
    Export citation  
  7. Bartha Maria Knoppers & Madelaine Saginur (2008). Bio-Banking. In Peter A. Singer & A. M. Viens (eds.), The Cambridge Textbook of Bioethics. Cambridge University Press.
    No categories
    Direct download  
     
    My bibliography  
     
    Export citation  
  8. Bartha Maria Knoppers, Madelaine Saginur & Howard Cash (2006). Ethical Issues in Secondary Uses of Human Biological Materials From Mass Disasters. Journal of Law, Medicine Ethics 34 (2):352-365.
    Direct download (3 more)  
     
    My bibliography  
     
    Export citation  
  9. Ruth Chadwick & Bartha Maria Knoppers, Human Genetic Research: Emerging Trends in Ethics.
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
    Direct download (3 more)  
     
    My bibliography  
     
    Export citation  
  10. Bartha Maria Knoppers (2005). Biobanking: International Norms. Journal of Law, Medicine and Ethics 33 (1):7-14.
    Direct download (3 more)  
     
    My bibliography  
     
    Export citation  
  11. Bartha Maria Knoppers (2005). Neuroethics, New Ethics? American Journal of Bioethics 5 (2):33.
    Direct download (5 more)  
     
    My bibliography  
     
    Export citation  
  12. Mark A. Rothstein & Bartha Maria Knoppers (2005). Introduction. Journal of Law, Medicine and Ethics 33 (1):6-6.
    Direct download (3 more)  
     
    My bibliography  
     
    Export citation  
  13. Linda Kharaboyan, Denise Avard & Bartha Maria Knoppers (2004). Storing Newborn Blood Spots: Modern Controversies. Journal of Law, Medicine and Ethics 32 (4):741-748.
    Direct download (5 more)  
     
    My bibliography  
     
    Export citation  
  14. Bartha Maria Knoppers (ed.) (2003). Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff.
    This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns.
    Direct download  
     
    My bibliography  
     
    Export citation  
  15. Dorothy Wertz & Bartha Maria Knoppers (2003). The HUGO Ethics Committee: Six Innovative Statements. New Review of Bioethics 1 (1):27-40.
    No categories
    Direct download (2 more)  
     
    My bibliography  
     
    Export citation  
  16. Bartha Maria Knoppers, Timothy Caulfield & T. Douglas Kinsella (1998). Book Reviews-Legal Rights and Human Genetic Material. Bioethics-Oxford 12 (4):343.
    No categories
     
    My bibliography  
     
    Export citation  
  17. Claude M. Laberge & Bartha Maria Knoppers (1992). Rationale for an Integrated Approach to Genetic Epidemiology. Bioethics 6 (4):317–330.
    Direct download (6 more)  
     
    My bibliography  
     
    Export citation  
  18. Claud M. Laberge & Bartha Maria Knoppers (1990). Newborn Genetic Screening: Ethical and Social Considerations for the Nineties. Journal International de Bioethique= International Journal of Bioethics 2 (1):5-12.
    No categories
    Direct download  
     
    My bibliography  
     
    Export citation