1. Clarissa Allen, Karine Sénécal & Denise Avard (2014). Defining the Scope of Public Engagement: Examining the “Right Not to Know” in Public Health Genomics. Journal of Law, Medicine and Ethics 42 (1):11-18.
    In this article, we explore the concept of a “right not to know” on a population rather than individual level. We argue that a population level “right not to know” is a useful concept for helping to define the appropriate boundaries of public engagement initiatives in the emerging public health genomics context.
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  2. Yann Joly, Clarissa Allen & Bartha M. Knoppers (2012). Currents in Contemporary Bioethics. Journal of Law, Medicine and Ethics 40 (1):143-146.
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  3. Clarissa Allen & William D. Foulkes (2011). Qualitative Thematic Analysis of Consent Forms Used in Cancer Genome Sequencing. BMC Medical Ethics 12 (1):14.
    Large-scale whole genome sequencing (WGS) studies promise to revolutionize cancer research by identifying targets for therapy and by discovering molecular biomarkers to aid early diagnosis, to better determine prognosis and to improve treatment response prediction. Such projects raise a number of ethical, legal, and social (ELS) issues that should be considered. In this study, we set out to discover how these issues are being handled across different jurisdictions.
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