Search results for 'Informed Consent ethics' (try it on Scholar)

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  1. Wade L. Robison, Michael S. Pritchard & Colloquium on Biomedical Ethics (1979). Medical Responsibility Paternalism, Informed Consent, and Euthanasia. Monograph Collection (Matt - Pseudo).
     
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  2.  4
    Victoria Doudenkova & Jean-Christophe Bélisle Pipon (2016). Duty to Inform and Informed Consent in Diagnostic Radiology: How Ethics and Law Can Better Guide Practice. HEC Forum 28 (1):75-94.
    Although there is consensus on the fact that ionizing radiation used in radiological examinations can affect health, the stochastic nature of risk makes it difficult to anticipate and assess specific health implications for patients. The issue of radiation protection is peculiar as any dosage received in life is cumulative, the sensitivity to radiation is highly variable from one person to another, and between 20 % and 50 % of radiological examinations appear not to be necessary. In this context, one might (...)
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  3.  42
    Hillel Braude & Jonathan Kimmelman (2012). The Ethics of Managing Affective and Emotional States to Improve Informed Consent: Autonomy, Comprehension, and Voluntariness. Bioethics 26 (3):149-156.
    Over the past several decades the ‘affective revolution’ in cognitive psychology has emphasized the critical role affect and emotion play in human decision-making. Drawing on this affective literature, various commentators have recently proposed strategies for managing therapeutic expectation that use contextual, symbolic, or emotive interventions in the consent process to convey information or enhance comprehension. In this paper, we examine whether affective consent interventions that target affect and emotion can be reconciled with widely accepted standards for autonomous action. (...)
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  4.  19
    Fabrice Jotterand, Shawn M. McClintock, Archie A. Alexander & Mustafa M. Husain (2010). Ethics and Informed Consent of Vagus Nerve Stimulation (VNS) for Patients with Treatment-Resistant Depression (TRD). Neuroethics 3 (1):13-22.
    Since the Nuremberg trials (1947–1949), informed consent has become central for ethical practice in patient care and biomedical research. Codes of ethics emanating from the Nuremberg Code (1947) recognize the importance of protecting patients and research subjects from abuses, manipulation and deception. Informed consent empowers individuals to autonomously and voluntarily accept or reject participation in either clinical treatment or research. In some cases, however, the underlying mental or physical condition of the individual may alter his (...)
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  5.  35
    Franklin G. Miller & Luana Colloca (2011). The Placebo Phenomenon and Medical Ethics: Rethinking the Relationship Between Informed Consent and Risk–Benefit Assessment. Theoretical Medicine and Bioethics 32 (4):229-243.
    It has been presumed within bioethics that the benefits and risks of treatments can be assessed independently of information disclosure to patients as part of the informed consent process. Research on placebo and nocebo effects indicates that this is not true for symptomatic treatments. The benefits and risks that patients experience from symptomatic treatments can be shaped powerfully by information about these treatments provided by clinicians. In this paper we discuss the implications of placebo and nocebo research for (...)
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  6.  21
    Kevin C. Elliott (2006). An Ethics of Expertise Based on Informed Consent. Science and Engineering Ethics 12 (4):637-661.
    Ethicists widely accept the notion that scientists have moral responsibilities to benefit society at large. The dissemination of scientific information to the public and its political representatives is central to many of the ways in which scientists serve society. Unfortunately, the task of providing information can often give rise to moral quandaries when scientific experts participate in politically charged debates over issues that are fraught with uncertainty. This paper develops a theoretical framework for an “ethics of expertise” (EOE) based (...)
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  7. Mark Alfano (2015). Placebo Effects and Informed Consent. American Journal of Bioethics 15 (10):3-12.
    The concepts of placebos and placebo effects refer to extremely diverse phenomena. I recommend dissolving the concepts of placebos and placebo effects into loosely-related groups of specific mechanisms, including (potentially among others) expectation-fulfillment, classical conditioning, and attentional-somatic feedback loops. If this approach is on the right track, it has three main implications for the ethics of informed consent. First, because of the expectation-fulfillment mechanism, the process of informing cannot be considered independently from the potential effects of treatment. (...)
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  8.  50
    J. F. Meschia (2003). Reporting of Informed Consent and Ethics Committee Approval in Genetics Studies of Stroke. Journal of Medical Ethics 29 (6):371-a-372.
    The study of low penetrance gene variants in a complex genetic disorder such as stroke does not pose the same risks and benefits as a study of highly penetrant mutations.1 Because of the nature of their disease, however, stroke patients may not understand the information given when they are asked for consent to participate in research and are potentially vulnerable subjects. In a systematic review of publications on ischaemic stroke genetics, we assessed the way in which informed (...) and ethics committee approval are reported.MethodsWe searched the MEDLINE database for stroke genetics studies published in English between January 2000 and January 2002, using the medical subject heading term “cerebrovascular disorders, genetics of” plus the text words “ischaemic” and “stroke.”2 We included only original clinical trials and observational studies of human genetic risk factors for ischaemic stroke.Both authors independently reviewed every article. We used standardised forms to record whether an explicit statement described informed consent and institutional review board procedures. We also recorded whether …. (shrink)
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  9.  9
    Athula Sumathipala, Sisira Siribaddana, Suwin Hewage, Manura Lekamwattage, Manjula Athukorale, Chesmal Siriwardhana, Joanna Murray & Martin Prince (2008). Informed Consent in Sri Lanka: A Survey Among Ethics Committee Members. BMC Medical Ethics 9 (1):10-.
    BackgroundApproval of the research proposal by an ethical review committee from both sponsoring and host countries is a generally agreed requirement in externally sponsored research.However, capacity for ethics review is not universal. Aim of this study was to identify opinions and views of the members serving in ethical review and ethics committees in Sri Lanka on informed consent, essential components in the information leaflet and the consent form.MethodsWe obtained ethical approval from UK and Sri Lanka. (...)
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  10.  5
    K. A. Finlay & C. V. Fernandez (2008). Failure to Report and Provide Commentary on Research Ethics Board Approval and Informed Consent in Medical Journals. Journal of Medical Ethics 34 (10):761-764.
    Background: The Declaration of Helsinki prohibits the publication of articles that do not meet defined ethical standards for reporting of research ethics board approval and informed consent. Despite this prohibition and a call to highlight the deficiency for the reader, articles with potential ethical shortcomings continue to be published.Objective: To determine what proportion of articles in major medical journals lack statements confirming REB approval and informed consent, and whether accompanying commentary alerts readers to this (...)
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  11.  2
    K. A. Finlay & C. V. Fernandez (2008). Failure to Report and Provide Commentary on Research Ethics Board Approval and Informed Consent in Medical Journals. Journal of Medical Ethics 34 (10):761-764.
    Background: The Declaration of Helsinki prohibits the publication of articles that do not meet defined ethical standards for reporting of research ethics board approval and informed consent. Despite this prohibition and a call to highlight the deficiency for the reader, articles with potential ethical shortcomings continue to be published.Objective: To determine what proportion of articles in major medical journals lack statements confirming REB approval and informed consent, and whether accompanying commentary alerts readers to this (...)
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  12.  2
    Jeffrey Spike (2012). Anesthesiological Ethics: Can Informed Consent Be Implied? Journal of Clinical Ethics 23 (1):68.
    Surgical ethics is a well-recognized field in clinical ethics, distinct from medical ethics. It includes at least a dozen important issues common to surgery that do not exist in internal medicine simply because of the differences in their practices. But until now there has been a tendency to include ethical issues of anesthesiology as a part of surgical ethics. This may mask the importance of ethical issues in anesthesiology, and even help perpetuate an unfortunate view that (...)
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  13.  17
    Shawn Fabrice Jotterand, Archie M. McClintock, Mustafa A. Alexander & M. Husain (2010). Ethics and Informed Consent of Vagus Nerve Stimulation (Vns) for Patients with Treatment-Resistant Depression (Trd). Neuroethics 3 (1).
    Since the Nuremberg trials (1947–1949), informed consent has become central for ethical practice in patient care and biomedical research. Codes of ethics emanating from the Nuremberg Code (1947) recognize the importance of protecting patients and research subjects from abuses, manipulation and deception. Informed consent empowers individuals to autonomously and voluntarily accept or reject participation in either clinical treatment or research. In some cases, however, the underlying mental or physical condition of the individual may alter his (...)
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  14.  12
    I. M. Kaufmann & F. J. Ruhli (2010). Without 'Informed Consent'? Ethics and Ancient Mummy Research. Journal of Medical Ethics 36 (10):608-613.
    Ethical issues are of foremost importance in modern bio-medical science. Ethical guidelines and socio-cultural public awareness exist for modern samples, whereas for ancient mummy studies both are de facto lacking. This is particularly striking considering the fact that examinations are done without informed consent or that the investigations are invasive due to technological aspects and that it affects personality traits. The aim of this study is to show the pro and contra arguments of ancient mummy research from an (...)
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  15.  4
    V. M. Marsh, D. M. Kamuya, A. M. Mlamba, T. N. Williams & S. S. Molyneux (2009). Experiences with Community Engagement and Informed Consent in a Genetic Cohort Study of Severe Childhood Diseases in Kenya. BMC Medical Ethics 11 (1):13-13.
    BackgroundThe potential contribution of community engagement to addressing ethical challenges for international biomedical research is well described, but there is relatively little documented experience of community engagement to inform its development in practice. This paper draws on experiences around community engagement and informed consent during a genetic cohort study in Kenya to contribute to understanding the strengths and challenges of community engagement in supporting ethical research practice, focusing on issues of communication, the role of field workers in 'doing (...)
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  16.  27
    Irene Pollach (2005). A Typology of Communicative Strategies in Online Privacy Policies: Ethics, Power and Informed Consent. [REVIEW] Journal of Business Ethics 62 (3):221 - 235.
    The opaque use of data collection methods on the WWW has given rise to privacy concerns among Internet users. Privacy policies on websites may ease these concerns, if they communicate clearly and unequivocally when, how and for what purpose data are collected, used or shared. This paper examines privacy policies from a linguistic angle to determine whether the language of these documents is adequate for communicating data-handling practices in a manner that enables informed consent on the part of (...)
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  17. Athula Sumathipala, Sisira Siribaddana, Suwin Hewege, Manura Lekamwattage, Manjula Athukorale, Chesmal Siriwardhana, Joanna Murray & Martin Prince (2008). Ethics Review Committee Approval and Informed Consent: An Analysis of Biomedical Publications Originating From Sri Lanka. BMC Medical Ethics 9 (1):3-.
    BackgroundInternational guidelines on research have focused on protecting research participants. Ethical Research Committee (ERC) approval and informed consent are the cornerstones. Externally sponsored research requires approval through ethical review in both the host and the sponsoring country. This study aimed to determine to what extent ERC approval and informed consent procedures are documented in locally and internationally published human subject research carried out in Sri Lanka.MethodsWe obtained ERC approval in Sri Lanka and the United Kingdom. Theses (...)
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  18.  1
    J. Fraser (2005). Ethics of HIV Testing in General Practice Without Informed Consent: A Case Series. Journal of Medical Ethics 31 (12):698-702.
    This case series presents two general practice cases where HIV testing occurred, or results suggestive of HIV were received, before informed consent was obtained. Bioethical and professional principles are used to explore these dilemmas.
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  19.  4
    Don Chalmers & Robert Schwartz (1993). Malpractice Liability for the Failure to Adequately Educate Patients: The Australian Law of “Informed Consent” and Its Implications for American Ethics Committees. Cambridge Quarterly of Healthcare Ethics 2 (3):371.
    At first glance, the first informed consent case to be decided by the High Court of Australia appears to be little more than a clear and simple description of the substantive law accepted in most American jurisdictions - although that is no small accomplishment in and of itself. In Rogers v. Whitaker, the highest court in Australia succinctly and persuasively rejected informed consent as a species of battery law, accepted it as a form, of ordinary professional (...)
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  20.  20
    Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.
    Several attempts have been made to transfer the concept of informed consent from medical and research ethics to dealing with affected groups in other areas such as engineering, land use planning, and business management. It is argued that these attempts are unsuccessful since the concept of informed consent is inadequate for situations in which groups of affected persons are dealt with collectively (rather than individually, as in clinical medicine). There are several reasons for this. The (...)
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  21.  25
    Keith Miller (1998). Software Informed Consent: Docete Emptorem, Not Caveat Emptor. [REVIEW] Science and Engineering Ethics 4 (3):357-362.
    Should software be sold “as is”, totally guaranteed, or something else? This paper suggests that “informed consent”, used extensively in medical ethics, is an appropriate way to envision the buyer/developer relationship when software is sold. We review why the technical difficulties preclude delivering perfect software, but allow statistical predictions about reliability. Then we borrow principles refined by medical ethics and apply them to computer professionals.
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  22.  13
    Sigurdur Kristinsson (2007). Autonomy and Informed Consent: A Mistaken Association? [REVIEW] Medicine, Health Care and Philosophy 10 (3):253-264.
    For decades, the greater part of efforts to improve regulatory frameworks for research ethics has focused on informed consent procedures; their design, codification and regulation. Why is informed consent thought to be so important? Since the publication of the Belmont Report in 1979, the standard response has been that obtaining informed consent is a way of treating individuals as autonomous agents. Despite its political success, the philosophical validity of this Belmont view cannot be (...)
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  23.  15
    Asya Al-Riyami, Deepali Jaju, Sanjay Jaju & Henry J. Silverman (2011). The Adequacy of Informed Consent Forms in Genetic Research in Oman: A Pilot Study. Developing World Bioethics 11 (2):57-62.
    Genetic research presents ethical challenges to the achievement of valid informed consent, especially in developing countries with areas of low literacy. During the last several years, a number of genetic research proposals involving Omani nationals were submitted to the Department of Research and Studies, Ministry of Health, Oman.The objective of this paper is to report on the results of an internal quality assurance initiative to determine the extent of the information being provided in genetic research informed (...) forms. In order to achieve this, we developed checklists to assess the inclusion of basic elements of informed consent as well as elements related to the collection and future storage of biological samples. Three of the authors independently evaluated and reached consensus on seven informed consent forms that were available for review.Of the seven consent forms, four had less than half of the basic elements of informed consent. None contained any information regarding whether genetic information relevant to health would be disclosed, whether participants may share in commercial products, the extent of confidentiality protections, and the inclusion of additional consent forms for future storage and use of tissue samples. Information regarding genetic risks and withdrawal of samples were rarely mentioned (1/7), whereas limits on future use of samples were mentioned in 3 of 7 consent forms.Ultimately, consent forms are not likely to address key issues regarding genetic research that have been recommended by research ethics guidelines. We recommend enhanced educational efforts to increase awareness, on the part of researchers, of information that should be included in consent forms. (shrink)
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  24.  22
    Adnan Qureshi & Amer Johri (2008). Issues Involving Informed Consent for Research Participants with Alzheimer's Disease. Journal of Academic Ethics 6 (3):197-203.
    Alzheimer’s disease is the most common form of dementia which is estimated to impact 350,000 people over 65 years of age in Canada. The lack of effective treatment and the growing number of people who are expected to be diagnosed with Alzheimer’s disease in the near future are compelling reasons why continued research is in this area is necessary. With additional research, there needs to be greater recognition of the complexity of seeking ongoing informed consent from those with (...)
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  25.  34
    Ayodele S. Jegede (2009). Understanding Informed Consent for Participation in International Health Research. Developing World Bioethics 9 (2):81-87.
    To participate in health research, there is a need for well-administered informed consent. Understanding of informed consent, especially in international health research, is influenced by the participants' understanding of information and the meaning attached to the information communicated to them regarding the purpose and procedure of the research. Incorrect information and the power differential between researcher and participants may lead to participants becoming victims of harmful research procedures. Meningitis epidemics in Kano in early 1996 led to (...)
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  26.  40
    Martin Tolich (2009). The Principle of Caveat Emptor: Confidentiality and Informed Consent as Endemic Ethical Dilemmas in Focus Group Research. [REVIEW] Journal of Bioethical Inquiry 6 (1):99-108.
    Informed consent and confidentiality supposedly minimize harm for research participants in all qualitative research methodologies, inclusive of one-on-one unstructured interviews and focus groups. This is not the case for the latter. Confidentiality and informed consent uniquely manifest themselves as endemic ethical dilemmas for focus group researchers. The principle of caveat emptor (let the buyer beware) may be a more useful tool for those involved in focus group research: that is, let the researcher, the participants and the (...)
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  27.  17
    Ben Almassi (2014). Medical Ghostwriting and Informed Consent. Bioethics 28 (9):491-499.
    Ghostwriting in its various forms has received critical scrutiny from medical ethicists, journal editors, and science studies scholars trying to explain where ghostwriting goes wrong and ascertain how to counter it. Recent analyses have characterized ghostwriting as plagiarism or fraud, and have urged that it be deterred through stricter compliance with journal submission requirements, conflict of interest disclosures, author-institutional censure, legal remedies, and journals' refusal to publish commercially sponsored articles. As a supplement to such efforts, this paper offers a critical (...)
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  28.  3
    Wayne Xavier Shandera (2013). Can Our Understanding of Informed Consent Be Strengthened Using the Idea of Cluster Concepts? Medicine, Health Care and Philosophy 16 (4):679-682.
    Informed consent is thought to exist as a well-defined entity. Altered concepts of patient autonomy, differential cultural understanding of the entity, and the failure of clients to distinguish between research and clinical ethics, and various hierarchical cultural views of informed consent all suggest that alterations may be needed in the traditional concept. By using the methodology outlined by Gasking in which he defines the idea of “cluster concepts,” one may be able to enlarge the definition (...)
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  29. Marion Kalabuanga, Raffaella Ravinetto, Vivi Maketa, Hypolite Muhindo Mavoko, Blaise Fungula, Raquel Inocêncio da Luz, Jean‐Pierre Van Geertruyden & Pascal Lutumba (2015). The Challenges of Research Informed Consent in Socio‐Economically Vulnerable Populations: A Viewpoint From the Democratic Republic of Congo. Developing World Bioethics 16 (1):n/a-n/a.
    In medical research, the ethical principle of respect for persons is operationalized into the process of informed consent. The consent tools should be contextualized and adapted to the different socio-cultural environment, especially when research crosses the traditional boundaries and reaches poor communities. We look at the challenges experienced in the malaria Quinact trial, conducted in the Democratic Republic of Congo, and describe some lessons learned, related to the definition of acceptable representative, the role of independent witness and (...)
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  30.  27
    Roberta M. Berry (2005). Informed Consent Law, Ethics, and Practice: From Infancy to Reflective Adolescence. [REVIEW] HEC Forum 17 (1):64-81.
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  31.  29
    D. K. Sokol (2005). Commentary on Ethics of HIV Testing in General Practice Without Informed Consent: A Case Series. Journal of Medical Ethics 31 (12):701-702.
    Case 1 reminds us that patients have duties too, while case 2 presents an instance of justified withholding of informationHow refreshing to read these two cases! No conjoined twins, fantastical chimeras, or other incredible scenarios at the fringes of medical reality. Each case highlights the practical and theoretical difficulties that doctors face in their everyday practice.Case 1: In case 1, the patient, who had declined an HIV test, changed his mind and requested an HIV test on the request form without (...)
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  32.  14
    Thomas May (2004). Social Restrictions on Informed Consent: Research Ethics and Medical Decision Making. HEC Forum 16 (1):38-44.
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  33. Paul B. Hofmann, William Nelson, Neal Cohen & Robert L. Schwartz (1996). Ethics Committees at Work: Physician Experience as a Measure of Competency: Implications for Informed Consent. Cambridge Quarterly of Healthcare Ethics 5 (3):458.
    The following description is based upon an actual case in which a patient initiated legal action after suffering a complication subsequent to an invasive diagnostic procedure performed by a senior fellow. Named as codefendants were the senior fellow, attending physician, and the hospital. Because any hospital with house staff is potentially vulnerable to similar litigation, Ethics Committees at Work is addressing the questions raised by this dilemma.
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  34. P. Fisher (2012). Questioning the Ethics of Vulnerability and Informed Consent in Qualitative Studies From a Citizenship and Human Rights Perspective. Ethics and Social Welfare 6:2-17.
  35.  12
    Judith W. Spain (2003). Sell Global, Pay Local—The Ethics of Taller Product Markets, Lower Labor Markets, and Informed Consent in Global Employment Contracts. Business and Professional Ethics Journal 22 (4):25-41.
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  36.  8
    Abraham R. Oduro, Raymond A. Aborigo, Dickson Amugsi, Francis Anto, Thomas Anyorigiya, Frank Atuguba, Abraham Hodgson & Kwadwo A. Koram (2008). Understanding and Retention of the Informed Consent Process Among Parents in Rural Northern Ghana. BMC Medical Ethics 9 (1):12-.
    The individual informed consent model remains critical to the ethical conduct and regulation of research involving human beings. Parental informed consent process in a rural setting of northern Ghana was studied to describe comprehension and retention among parents as part of the evaluation of the existing informed consent process.
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  37.  7
    Linda Farber Post, Jeffrey Blustein, Elysa Gordon & Nancy Neveloff Dubler (1996). Pain: Ethics, Culture, and Informed Consent to Relief. Journal of Law, Medicine & Ethics 24 (4):348-359.
  38.  8
    D. Sarin, Brij B. Agarwal & B. K. Rao (2007). Ethics for Surgeons: The Role of Trainees, Surgical Innovations and the Informed Consent. In Laurie DiMauro (ed.), Ethics. Greenhaven Press 20--3.
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  39.  13
    Abbey L. Berg, A. Herb & M. Hurst (2005). Cochlear Implants in Children: Ethics, Informed Consent, and Parental Decision Making. Journal of Clinical Ethics 16 (3):239.
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  40.  2
    Engle, Norbert F. Elbert & Judith W. Spain (2003). Sell Global, Pay Local—The Ethics of Taller Product Markets, Lower Labor Markets, and Informed Consent in Global Employment Contracts. Business and Professional Ethics Journal 22 (4):25-41.
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  41. Irene Pollach (2005). A Typology of Communicative Strategies in Online Privacy Policies: Ethics, Power and Informed Consent. Journal of Business Ethics 62 (3):221-235.
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  42.  10
    G. Adshead (1999). Informed Consent in Psychiatry: European Perspectives of Ethics, Law and Clinical Practice. Journal of Medical Ethics 25 (5):428-429.
  43.  3
    D. Raymond (1986). AIDS, HIV Testing, and the Ethics of Informed Consent. Ethics and Medicine: A Christian Perspective on Issues in Bioethics 3 (1):9-15.
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  44.  5
    George R. Hoffmann (2007). Letter to the Editor on Ethics of Expertise, Informed Consent, and Hormesis. Science and Engineering Ethics 13 (2):135-137.
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  45. J. Ames & M. Thurston (2008). Trials and Treatments: Some Reflections on Informed Consent and the Role of Research Ethics Committees. Research Ethics 4 (3):95-100.
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  46. Randall Horton & Howard Brody (2012). Informed Consent, Shared Decision-Making, and the Ethics Committee. In D. Micah Hester & Toby Schonfeld (eds.), Guidance for Healthcare Ethics Committees. Cambridge University Press
     
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  47. Linda Farber Post, Jeffrey Blustein, Elysa Gordon & Nancy Neveloff Dubler (1996). Pain: Ethics, Culture, and Informed Consent to Relief. Journal of Law, Medicine and Ethics 24 (4):348-359.
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  48.  2
    Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein (2012). A Qualitative Study Using Traditional Community Assemblies to Investigate Community Perspectives on Informed Consent and Research Participation in Western Kenya. BMC Medical Ethics 13 (1):23-.
    Background International collaborators face challenges in the design and implementation of ethical biomedical research. Evaluating community understanding of research and processes like informed consent may enable researchers to better protect research participants in a particular setting; however, there exist few studies examining community perspectives in health research, particularly in resource-limited settings, or strategies for engaging the community in research processes. Our goal was to inform ethical research practice in a biomedical research setting in western Kenya and similar resource-limited (...)
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  49.  1
    Sarah E. Morris & Robert K. Heinssen (2014). Informed Consent in the Psychosis Prodrome: Ethical, Procedural and Cultural Considerations. Philosophy, Ethics, and Humanities in Medicine 9 (1):19.
    Research focused on the prodromal period prior to the onset of psychosis is essential for the further development of strategies for early detection, early intervention, and disease pre-emption. Such efforts necessarily require the enrollment of individuals who are at risk of psychosis but have not yet developed a psychotic illness into research and treatment protocols. This work is becoming increasingly internationalized, which warrants special consideration of cultural differences in conceptualization of mental illness and international differences in health care practices and (...)
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  50.  2
    R. Nakkash, J. Makhoul & R. Afifi (2009). Obtaining Informed Consent: Observations From Community Research with Refugee and Impoverished Youth. Journal of Medical Ethics 35 (10):638-643.
    This paper presents challenges facing researchers in applying basic ethical principles while conducting research with youth in a developing country context. A discussion of the cultural and social challenges to adherence to the elements of informed consent : disclosure, comprehension, capacity, voluntariness and consent is presented. The authors argue that the current institutional review board requirements that guide research reflect values and stem from western contexts that may not be fully applicable to non-western contexts. More dialogue is (...)
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