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  1. Lainie Friedman Ross (forthcoming). Newborn Screening. Pediatric Bioethics.
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  2. Lainie Friedman Ross, Mark Siegler & J. Richard Thistlethwaite Jr (forthcoming). Perspective: We Need a Registry of Living Kidney Donors. Hastings Center Report.
     
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  3. Ellen Wright Clayton, Laurence B. McCullough, Leslie G. Biesecker, Steven Joffe, Lainie Friedman Ross, Susan M. Wolf & For the Clinical Sequencing Exploratory Research (2014). Addressing the Ethical Challenges in Genetic Testing and Sequencing of Children. American Journal of Bioethics 14 (3):3-9.
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  4. Erin Talati Paquette & Lainie Friedman Ross (2014). The Moral and Legal Need to Disclose Despite a Certificate of Confidentiality. American Journal of Bioethics 14 (10):51-53.
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  5. Lainie Friedman Ross (2013). Newborn Screening for Krabbe Disease: What Illinois Can Learn From New York. Public Health Ethics 6 (1):119-123.
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  6. Lainie Friedman Ross (2013). Predictive Genetic Testing of Children and the Role of the Best Interest Standard. Journal of Law, Medicine and Ethics 41 (4):899-906.
    The “best interest standard” is the guidance principle for pediatric healthcare in the United States (US) and the United Kingdom (UK). In the UK, the best interest standard may also be used as an intervention principle when parents make good but non-ideal decisions whereas intervention in the US requires a determination of abuse or neglect. I examine whether and how the different uses of the best interest standard influence predictive genetic testing of children.
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  7. Jennifer K. Walter & Lainie Friedman Ross (2013). A Non-Paternalistic Conception of Relational Autonomy Still Needs Others. Philosophy, Psychiatry, and Psychology 20 (2):187-189.
  8. Jennifer K. Walter & Lainie Friedman Ross (2013). Relational Autonomy as the Key to Effective Behavioral Change. Philosophy, Psychiatry, and Psychology 20 (2):169-177.
    The Common Health problems that plague Americans today are often the result of people’s choices and behaviors: obesity, cigarette smoking, accidental pediatric head trauma owing to failure to properly restrain children, and failure to adhere to medication regimens. For each problem, there is a well-studied effective behavioral intervention: a healthy diet and exercise for obesity, smoking cessation programs to overcome cigarette addiction, appropriate car restraints to prevent accidental head trauma, and direct observation of treatment and simplification of medical regimens to (...)
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  9. Lainie Friedman Ross (2010). Forty Years Later The Scope of Bioethics Revisited. Perspectives in Biology and Medicine 53 (3):452-457.
    Van Rensselaer Potter was an American biochemist who worked in the McArdle Laboratory for Cancer Research at the University of Wisconsin at Madison. In 1970, in an article in this journal, Potter coined the term bioethics to combine a new discipline that combines biological knowledge with ethics. Potter wrote, “Ethical values cannot be separated from biological facts” (p. 127). His conception was broad-ranging: “We are in great need of a land ethic, a wild-life ethic, a population ethic, a consumption ethic, (...)
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  10. Lainie Friedman Ross (2010). Mandatory Versus Voluntary Consent for Newborn Screening? Kennedy Institute of Ethics Journal 20 (4):299-328.
    Virtually every infant in the United States (U.S.) undergoes a heel stick within the first week of life to test for a variety of metabolic, endocrine, and hematological conditions as part of state-run universal newborn screening (NBS) programs. In the U.S., NBS began in the 1960s for phenylketonuria (PKU), a metabolic condition that causes intellectual disability if left untreated. I review the history of how NBS came to be a mandatory public health program that did not require parental consent1 and (...)
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  11. Lainie Friedman Ross (2009). Arguments Against Respecting a Minor's Refusal of Efficacious Life-Saving Treatment Redux, Part II. Cambridge Quarterly of Healthcare Ethics 18 (04):432-.
    This CQ department is dedicated to bringing noted bioethicsts together in order to debate some of the most perplexing contemporary bioethics issues. You are encouraged to contact department editor, D. Micah Hester (hesterdm@uams.ed), UAMS/Humanities, 4301 W. Markham St. #646, Little Rock, AR 72205, with any suggestions for debate topics and interlocutors you would like to see published herein.
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  12. Lainie Friedman Ross (2009). Against the Tide: Arguments Against Respecting a Minor's Refusal of Efficacious Life-Saving Treatment. Cambridge Quarterly of Healthcare Ethics 18 (03):302-.
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  13. Jennifer K. Walter, Elizabeth Pappano & Lainie Friedman Ross (2009). A Descriptive and Moral Evaluation of Providing Informal Medical Care to One's Own Children. Journal of Clinical Ethics 20 (4):353.
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  14. Lainie Friedman Ross (2008). Prenatal Testing and Newborn Screening. In Peter A. Singer & A. M. Viens (eds.), The Cambridge Textbook of Bioethics. Cambridge University Press.
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  15. Lainie Friedman Ross (2007). The Moral Status of the Newborn and its Implications for Medical Decision Making. Theoretical Medicine and Bioethics 28 (5):349-355.
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  16. Lainie Friedman Ross, Mark Siegler & J. Richard Thistlethwaite (2007). We Need a Registry of Living Kidney Donors. Hastings Center Report 37 (6):49-49.
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  17. Lainie Friedman Ross (2006). Children in Medical Research: Access Versus Protection. OUP Oxford.
    Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional (...)
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  18. Lainie Friedman Ross (2006). Heterozygote Carrier Testing in High Schools Abroad: What Are the Lessons for the U.S.? Journal of Law, Medicine and Ethics 34 (4):753-764.
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  19. Lainie Friedman Ross (2006). The Ethical Limits in Expanding Living Donor Transplantation. Kennedy Institute of Ethics Journal 16 (2):151-172.
    : The past decade has witnessed the emergence of novel methods to increase the number of living donors. Although such programs are not likely to yield high volumes of organs, some transplant centers have gone to great lengths to establish one or more of them. I discuss some of the ethical and policy issues raised by five such programs: (1) living-paired and cascade exchanges; (2) unbalanced living-paired exchanges; (3) list-paired exchanges; (4) nondirected donors; and (5) nondirected donors catalyzing cascade exchanges. (...)
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  20. Lainie Friedman Ross (2006). What Is Wrong with the Physician Charter on Professionalism. Hastings Center Report 36 (4):17-19.
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  21. Lainie Friedman Ross & Walter Glannon (2006). A Compounding of Errors: The Case of Bone Marrow Donation Between Non-Intimate Siblings. Journal of Clinical Ethics 17 (3):220.
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  22. Walter Glannon & Lainie Friedman Ross (2005). Motivation, Risk, and Benefit in Living Organ Donation: A Reply to Aaron Spital. Cambridge Quarterly of Healthcare Ethics: Cq: The International Journal of Healthcare Ethics Committees 14 (2):191.
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  23. Walter Glannon & Lainie Friedman Ross (2005). Response to “Intrafamilial Organ Donation Is Often an Altruistic Act” by Aaron Spital (CQ Vol 12, No 1) and “Donor Benefit Is the Key to Justified Living Organ Donation,” by Aaron Spital (CQ Vol 13, No 1): Motivation, Risk, and Benefit in Living Organ Donation: A Reply to Aaron Spital. [REVIEW] Cambridge Quarterly of Healthcare Ethics 14 (02):191-194.
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  24. Lainie Friedman Ross (2005). Useful Bodies: Humans in the Service of Medical Science in the Twentieth Century (Review). Perspectives in Biology and Medicine 48 (2):312-314.
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  25. Lainie Friedman Ross (2004). Children in Medical Research: Balancing Protection and Access: Has the Pendulum Swung Too Far? Perspectives in Biology and Medicine 47 (4):519-536.
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  26. Lainie Friedman Ross (2004). Informed Consent in Pediatric Research. Cambridge Quarterly of Healthcare Ethics 13 (04):346-358.
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  27. Lainie Friedman Ross (2004). Convening a 407 Panel for Research Not Otherwise Approvable: "Precursors to Diabetes in Japanese American Youth" as a Case Study. Kennedy Institute of Ethics Journal 14 (2):165-186.
    : Subpart D of 45 CFR 46 focuses on research involving children. Section 46.407 addresses research that is not otherwise approvable. The research is not otherwise approvable because either (1) it seeks to enroll healthy children, but offers no prospect of direct benefit and entails more than minimal risk; or (2) it seeks to enroll children with a disorder or condition, but offers no prospect of direct benefit and entails more than a minor increase over minimal risk. According to 46.407, (...)
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  28. Tracy K. Koogler, Benjamin S. Wilfond & Lainie Friedman Ross (2003). Lethal Language, Lethal Decisions. Hastings Center Report 33 (2):37-41.
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  29. Lainie Friedman Ross (2003). From Detached Concern to Empathy: Humanizing Medical Practice (Review). Perspectives in Biology and Medicine 46 (2):310-311.
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  30. Lainie Friedman Ross (2003). Responding to the Challenge of the Children's Health Act: An Introduction to Children in Research. Theoretical Medicine and Bioethics 24 (2):101-106.
    This overview describes the breadth of topicscovered in this volume devoted to children inresearch. It summarizes how these articles areinterrelated and how they all respond to thechallenge proposed by the Children's Health Actof 2000: to consider what modifications, ifany, are necessary to current regulations ``toensure the adequate and appropriate protectionof children participating in research.''.
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  31. Lainie Friedman Ross (2003). The Ethics of Type 1 Diabetes Prediction and Prevention Research. Theoretical Medicine and Bioethics 24 (2):177-197.
    There are approximately one million cases oftype 1 diabetes in the US, and the incidenceis increasing worldwide. Given that two-thirdsof cases present in childhood, it is criticalthat prediction and prevention research involvechildren. In this article, I examine whethercurrent research methodologies conform to theethical guidelines enumerated by the NationalCommission for the Protection of Human Subjectsof Biomedical and Behavioral Research, andadopted into the federal regulations thatprotect research subjects. I then offer twopolicy recommendations to help researchersdesign studies that conform to these ethicalrequirements.
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  32. Walter Glannon & Lainie Friedman Ross (2002). Do Genetic Relationships Create Moral Obligations in Organ Transplantation? Cambridge Quarterly of Healthcare Ethics 11 (02):153-159.
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  33. Lainie Friedman Ross (2002). Media Appeals for Directed Altruistic Living Liver Donations: Lessons From Camilo Sandoval Ewen. Perspectives in Biology and Medicine 45 (3):329-337.
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  34. Lainie Friedman Ross (2002). Review of Prenatal Testing and Disability Rights, Edited by Adrienne Asch and Erik Parens. [REVIEW] Perspectives in Biology and Medicine 45 (4):624-626.
  35. Lainie Friedman Ross (2002). All Donations Should Not Be Treated Equally: A Response to Jeffrey Kahn's Commentary. Journal of Law, Medicine and Ethics 30 (3):448-451.
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  36. Lainie Friedman Ross (2002). [Book Review] Children, Families, and Health Care Decision Making. [REVIEW] Ethics 112 (3):639-641.
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  37. Lainie Friedman Ross (2002). In Defense of the Hopkins Lead Abatement Studies. Journal of Law, Medicine and Ethics 30 (1):50-57.
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  38. Lainie Friedman Ross (2002). Patient Autonomy: Imperfect, Insufficient, but Still Quite Necessary. Journal of Clinical Ethics 13 (1):57.
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  39. Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
    : There is a general consensus in the medical and medical ethics communities against predictive genetic testing of children for late onset conditions, but minimal consideration is given to predictive testing of asymptomatic children for disorders that present later in childhood when presymptomatic treatment cannot influence the course of the disease. In this paper, I examine the question of whether it is ethical to perform predictive testing and screening of newborns and young children for conditions that present later in childhood. (...)
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  40. Lainie Friedman Ross (2002). Prenatal Testing and Disability Rights (Review). Perspectives in Biology and Medicine 45 (4):624-626.
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  41. Lainie Friedman Ross (2002). Solid Organ Donation Between Strangers. Journal of Law, Medicine and Ethics 30 (3):440-445.
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  42. Lainie Friedman Ross (2001). Behavioral Genetics: The Clash of Culture and Biology (Review). Perspectives in Biology and Medicine 44 (1):146-148.
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  43. Lainie Friedman Ross (2001). Transplantation Ethics (Review). Perspectives in Biology and Medicine 44 (4):623-628.
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  44. Lainie Friedman Ross (2001). Genetic Exceptionalism Vs. Paradigm Shift: Lessons From HIV. Journal of Law, Medicine and Ethics 29 (2):141-148.
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  45. Lynn A. Jansen & Lainie Friedman Ross (2000). Patient Confidentiality and the Surrogate's Right to Know. Journal of Law, Medicine and Ethics 28 (2):137-143.
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  46. Lainie Friedman Ross (2000). Inherited Susceptibility to Cancer: Clinical, Predictive, and Ethical Perspectives (Review). Perspectives in Biology and Medicine 43 (3):453-454.
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  47. Lainie Friedman Ross & Jeffrey Blustein (2000). Book Reviews-Children, Families, and Health Care Decision-Making. Bioethics-Oxford 14 (2):181-185.
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  48. Lainie Friedman Ross (1997). Health Care Decisionmaking by Children Is It in Their Best Interest? Hastings Center Report 27 (6):41-46.
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  49. Lainie Friedman Ross & Timothy J. Aspinwall (1997). Religious Exemptions to the Immunization Statutes: Balancing Public Health and Religious Freedom. Journal of Law, Medicine and Ethics 25 (2-3):202-209.
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  50. Lainie Friedman Ross (1996). Disclosing Misattributed Paternity. Bioethics 10 (2):114–130.
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