Online research in philosophy

Background The purpose of this study is to explore laypersons' attitudes toward the use of archived (existing) materials such as medical records and biological samples and to compare them with the attitudes of physicians who are involved in medical research. Methods Three focus group interviews were conducted, in which seven Japanese male members of the general public, seven female members of the general public and seven physicians participated. Results It was revealed that the lay public expressed diverse attitudes towards the (...) use of archived information and samples without informed consent. Protecting a subject's privacy, maintaining confidentiality, and communicating the outcomes of studies to research subjects were regarded as essential preconditions if researchers were to have access to archived information and samples used for research without the specific informed consent of the subjects who provided the material. Although participating physicians thought that some kind of prior permission from subjects was desirable, they pointed out the difficulties involved in obtaining individual informed consent in each case. Conclusions The present preliminary study indicates that the lay public and medical professionals may have different attitudes towards the use of archived information and samples without specific informed consent. This hypothesis, however, is derived from our focus groups interviews, and requires validation through research using a larger sample. (shrink)

Abstract An International Bioethics Education Survey was conducted in Australia (A), Japan (J) and New Zealand (NZ) in mid?1993. National random samples of high schools were selected, and mail response questionnaires were sent to a biology (b) and a social studies (s) teacher at each school through the principals. The number of respondents and response rate were: NZb 206 (55%), NZs 96 (26%), Ab 251 (48%), As 114 (22%), Jb 560 (40%) and Js 383 (27%). This paper compares knowledge and (...) teaching of 15 selected topics related to bioethics and biotechnology, with particular focus on the teaching of social, ethical and environmental issues of in vitro fertilisation, prenatal diagnosis, biotechnology, nuclear power, pesticides and genetic engineering. The survey found that these issues were, generally, covered more in biology classes than in social science classes; and that there were differences in coverage among the three countries, with most coverage in Australia and least in Japan. Open questions looked at images of bioethics, and the reasons why about 90% of teachers thought bioethics was needed in education. Open questions on teaching materials, current and desired are also discussed. The data suggest a need for the development of more and higher quality materials, for the moral education that is conducted, especially in biology and social studies classes. (shrink)