Search results for 'Nancy E. Kass' (try it on Scholar)

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  1.  12
    James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg (2002). Public Health Ethics: Mapping the Terrain. Journal of Law, Medicine & Ethics 30 (2):170-178.
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  2.  6
    Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp (2013). An Ethics Framework for a Learning Health Care System: A Departure From Traditional Research Ethics and Clinical Ethics. Hastings Center Report 43 (s1):16-27.
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  3.  19
    Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp (2013). The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight. Hastings Center Report 43 (s1):4-15.
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  4.  26
    Nancy E. Kass (2004). Public Health Ethics From Foundations and Frameworks to Justice and Global Public Health. Journal of Law, Medicine & Ethics 32 (2):232-242.
  5.  3
    Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden (forthcoming). What Patients Say About Medical Research. IRB: Ethics & Human Research.
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  6.  17
    Nancy E. Kass, Jeremy Sugarman, Ruth Faden & Monica Schoch‐Spana (1996). Trust The Fragile Foundation of Contemporary Biomedical Research. Hastings Center Report 26 (5):25-29.
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  7. James F. Childress, Ruth R. Faden, Ruth D. Gaare, Lawrence O. Gostin, Jeffrey Kahn, Richard J. Bonnie, Nancy E. Kass, Anna C. Mastroianni, Jonathan D. Moreno & Phillip Nieburg (2002). Public Health Ethics: Mapping the Terrain. Journal of Law, Medicine and Ethics 30 (2):170-178.
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  8.  14
    Kevin P. Weinfurt, Juli M. Bollinger, Kathleen M. Brelsford, Travis J. Crayton, Rachel J. Topazian, Nancy E. Kass, Laura M. Beskow & Jeremy Sugarman (forthcoming). Patients' Views Concerning Research on Medical Practices: Implications for Consent. Ajob Empirical Bioethics:1-16.
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  9.  1
    Nancy E. Kass (2004). Public Health Ethics From Foundations and Frameworks to Justice and Global Public Health. Journal of Law, Medicine and Ethics 32 (2):232-242.
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  10.  23
    A. L. I. Joseph, Adnan A. Hyder & Nancy E. Kass (2012). Research Ethics Capacity Development in Africa: Exploring a Model for Individual Success. Developing World Bioethics 12 (2):55-62.
    The Johns Hopkins-Fogarty African Bioethics Training Program (FABTP) has offered a fully-funded, one-year, non-degree training opportunity in research ethics to health professionals, ethics committee members, scholars, journalists and scientists from countries across sub-Saharan Africa. In the first 9 years of operation, 28 trainees from 13 African countries have trained with FABTP. Any capacity building investment requires periodic critical evaluation of the impact that training dollars produce. In this paper we describe and evaluate FABTP and the efforts of its trainees.Our data (...)
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  11.  11
    Pauline E. Osamor & Nancy Kass (2012). Decision-Making and Motivation to Participate in Biomedical Research in Southwest Nigeria. Developing World Bioethics 12 (2):87-95.
    Motivations and decision-making styles that influence participation in biomedical research vary across study types, cultures, and countries. While there is a small amount of literature on informed consent in non-western cultures, few studies have examined how participants make the decision to join research. This study was designed to identify the factors motivating people to participate in biomedical research in a traditional Nigerian community, assess the degree to which participants involve others in the decision-making process, and examine issues of autonomy in (...)
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  12.  1
    Joseph Ali, Adnan A. Hyder & Nancy E. Kass (2012). Research Ethics Capacity Development in Africa: Exploring a Model for Individual Success. Developing World Bioethics 12 (2):55-62.
    We describe and evaluate FABTP and the efforts of its trainees. Our data show that since 2001, the 28 former FABTP trainees have auth.
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  13.  12
    Ruth R. Faden, Tom L. Beauchamp & Nancy E. Kass (2011). Learning Health Care Systems and Justice. Hastings Center Report 41 (4):3-3.
    Emily Largent, Steven Joffe, and Franklin Miller offer a stimulating contribution to the literature on integrating medical research and practice. We agree on both the need to move toward what the Institute of Medicine has called a learning health care system and the need for new conceptions for integrating research and practice within it. We also agree with the authors’ view, first advanced by Robert Truog and colleagues in 1999, that it can be ethically acceptable to randomize patients without express (...)
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  14.  2
    Ruth R. Faden, Michael J. Klag, Nancy E. Kass & Sharon S. Krag (2002). On the Importance of Research Ethics and Mentoring. American Journal of Bioethics 2 (4):50 – 51.
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  15.  14
    Adnan A. Hyder, Joseph Ali, Kristina Hallez, Tara White, Nelson K. Sewankambo & Nancy E. Kass (2015). Exploring Institutional Research Ethics Systems: A Case Study From Uganda. Ajob Empirical Bioethics 6 (3):1-14.
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  16.  2
    Caroline Kithinji & Nancy E. Kass (2010). Assessing the Readability of Non-English-Language Consent Forms: The Case of Kiswahili for Research Conducted in Kenya. IRB: Ethics & Human Research 32 (4):10.
    A large body of literature supports the notion that the language used in informed consent forms is not comprehensible to most research participants. Creating comprehensible informed consent forms for international research presents a further challenge because they are generally written first in English and then translated into the local language. The Kenya Medical Research National Ethical Review Committee determines readability of English consent forms before translation; however, it is neither their policy nor practice to determine whether the forms, once translated (...)
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  17. Nancy E. Kass (2008). Just Research in an Unjust World : Can Harm Reduction Be an Acceptable Tool for Public Health Prevention Research? In Ronald Michael Green, Aine Donovan & Steven A. Jauss (eds.), Global Bioethics: Issues of Conscience for the Twenty-First Century. Oxford University Press
     
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  18.  3
    Nancy E. Kass, Jeremy Sugarman, Amy M. Medley, Linda A. Fogarty, Holly A. Taylor, Christopher K. Daugherty, Mark R. Emerson, Steven N. Goodman, Fay J. Hlubocky & Herbert I. Hurwitz (2009). An Intervention to Improve Cancer Patients' Understanding of Early-Phase Clinical Trials. IRB: Ethics & Human Research 31 (3):1.
    Participants in clinical research sometimes view participation as therapy or exaggerate potential benefits, especially in phase I or phase II trials. We conducted this study to discover what methods might improve cancer patients’ understanding of early-phase clinical trials. We randomly assigned 130 cancer patients from three U.S. medical centers who were considering enrollment in a phase I or phase II cancer trial to receive either a multimedia intervention or a National Cancer Institute pamphlet explaining the trial and its purpose. Intervention (...)
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  19.  18
    Nancy E. Kass (forthcoming). Contemporary Biomedical Research. Hastings Center Report.
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  20.  3
    Nancy E. Kass (1992). Insurance for the Insurers The Use of Genetic Tests. Hastings Center Report 22 (6):6-11.
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  21.  25
    Nancy E. Kass, Holly A. Taylor & Patricia A. King (1996). Harms of Excluding Pregnant Women From Clinical Research: The Case of HIV-Infected Pregnant Women. Journal of Law, Medicine & Ethics 24 (1):36-46.
  22.  1
    Nancy E. Kass, Suzanne Maman & Joan Atkinson (2005). Motivations, Understanding, and Voluntariness in International Randomized Trials. IRB: Ethics & Human Research 27 (6):1.
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  23.  5
    Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman (2003). The Use of Medical Records in Research: What Do Patients Want? Journal of Law, Medicine & Ethics 31 (3):429-433.
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  24. Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin & Julia Slutsman (2003). The Use of Medical Records in Research: What Do Patients Want? Journal of Law, Medicine and Ethics 31 (3):429-433.
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  25.  3
    Jeremy Sugarman & Nancy E. Kass (1996). Are Research Subjects Adequately Protected? A Review and Discussion of Studies Conducted by the Advisory Committee on Human Radiation Experiments. Kennedy Institute of Ethics Journal 6 (3):271-282.
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  26.  10
    Nancy E. Kass (2005). Bioethics Exchange. Bioethics 1 (2):2.
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  27.  9
    Loane Skene, Jeremy Sugarman, Nancy E. Kass, Nadine Taub & Marion Danis (1994). Request From a Middle Eastern Bride. Cambridge Quarterly of Healthcare Ethics 3 (3):422.
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  28.  2
    Nancy E. Kass (forthcoming). Participation in Pedigree Studies and the Risk of Impeded Access to Health Insurance. IRB: Ethics & Human Research.
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  29.  2
    Holly A. Taylor & Nancy E. Kass (forthcoming). Attending to Local Justice: Lessons From Pediatric HIV. IRB: Ethics & Human Research.
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  30.  3
    Holly A. Taylor & Nancy E. Kass (2009). Research Ethics Consultation at the Johns Hopkins Bloomberg School of Public Health. IRB: Ethics & Human Research 31 (2):9.
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  31.  6
    Dya Eldin M. Elsayed & Nancy E. Kass (2007). Assessment of the Ethical Review Process in Sudan. Developing World Bioethics 7 (3):143–148.
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  32.  1
    Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman (1994). Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics. Journal of Law, Medicine & Ethics 22 (1):29-35.
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  33.  5
    Nancy E. Kass & Jeremy Sugarman (1996). Are Research Subjects Adequately Protected? A Review and Discussion of Studies Conducted by the Advisory Committee on Human Radiation Experiments. Kennedy Institute of Ethics Journal 6 (3):271-282.
    : In light of information uncovered about human radiation experiments conducted during the Cold War, an important charge for the Advisory Committee on Human Radiation Experiments was to assess the current state of protections for human research subjects. This assessment was designed to enhance the Committee's ability to make informed recommendations for the improvement of future policies and practices for the protection of research subjects. The Committee's examination of current protections revealed great improvement over those from the past, yet some (...)
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  34.  3
    Holly A. Taylor & Nancy E. Kass (2008). Our Two Cents: Research Ethics Consultation at Johns Hopkins Bloomberg School of Public Health. American Journal of Bioethics 8 (3):33 – 35.
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  35. Nancy E. Kass, Holly A. Taylor & Patricia A. King (1996). Harms of Excluding Pregnant Women From Clinical Research: The Case of HIV-Infected Pregnant Women. Journal of Law, Medicine and Ethics 24 (1):36-46.
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  36. Jeremy Sugarman, Nancy E. Kass, Ruth R. Faden & Steven N. Goodman (1994). Catalysts for Conversations About Advance Directives: The Influence of Physician And Patient Characteristics. Journal of Law, Medicine and Ethics 22 (1):29-35.
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  37.  14
    Anne Barnhill, Katherine F. King, Nancy Kass & Ruth Faden (2014). The Value of Unhealthy Eating and the Ethics of Healthy Eating Policies. Kennedy Institute of Ethics Journal 24 (3):187-217.
    As concerns about the negative health effects of unhealthy eating, overweight and obesity have increased, so too have policy efforts to promote healthy eating. Federal, state, and local governments have proposed and implemented a variety of healthy eating policies. Many of these policies are controversial, facing objections that range from the practical (e.g., the policy won’t succeed at improving people’s diets) to the ethical (e.g., the policy is paternalistic or inequitable). Especially controversial have been policies limiting the options offered in (...)
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  38.  1
    Jean-Luc Nancy (2015). O sistema, ontem e hoje. Veritas 59 (2):239-254.
    Será que a filosofia francesa possua um espírito de sistema?” Essa questão nos é colocada com uma habilidade que somos, por este fato mesmo, convidados a identificar, avaliar e contornar.
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  39.  5
    Ingrid Burger & Nancy Kass (2009). Screening in the Dark: Ethical Considerations of Providing Screening Tests to Individuals When Evidence is Insufficient to Support Screening Populations. American Journal of Bioethics 9 (4):3-14.
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  40.  77
    Ademola J. Ajuwon & Nancy Kass (2008). Outcome of a Research Ethics Training Workshop Among Clinicians and Scientists in a Nigerian University. BMC Medical Ethics 9 (1):1.
    In Nigeria, as in other developing countries, access to training in research ethics is limited, due to weak social, economic, and health infrastructure. The project described in this article was designed to develop the capacity of academic staff of the College of Medicine, University of Ibadan, Nigeria to conduct ethically acceptable research involving human participants.
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  41.  4
    Jeremy Sugarman, Nancy Kass & Ruth Faden (2009). Categorizing Empirical Research in Bioethics: Why Count the Ways? American Journal of Bioethics 9 (6):66-67.
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  42.  8
    Olaniyi O. Taiwo & Nancy Kass (2009). Post-Consent Assessment of Dental Subjects' Understanding of Informed Consent in Oral Health Research in Nigeria. BMC Medical Ethics 10 (1):11.
    Research participants may not adequately understand the research in which they agree to enroll. This could be due to a myriad of factors. Such a missing link in the informed consent process contravenes the requirement for an.
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  43.  1
    Baruch Brody, Nancy Dubler, Jeff Blustein, Arthur Caplan, Jeffrey P. Kahn, Nancy Kass, Bernard Lo, Jonathan Moreno, Jeremy Sugarman & Laurie Zoloth (2002). The Task Force Responds. Hastings Center Report 32 (3):22-23.
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  44.  16
    John Appiah-Poku, Sam Newton & Nancy Kass (2011). Participants' Perceptions of Research Benefits in an African Genetic Epidemiology Study. Developing World Bioethics 11 (3):128-135.
    Background: Both the Council for International Organization of Medical Sciences and the Helsinki Declaration emphasize that the potential benefits of research should outweigh potential harms; consequently, some work has been conducted on participants' perception of benefits in therapeutic research. However, there appears to be very little work conducted with participants who have joined non-therapeutic research. This work was done to evaluate participants' perception of benefits in a genetic epidemiological study by examining their perception of the potential benefits of enrollment.Methods: In-depth (...)
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  45.  26
    Adnan A. Hyder, Waleed Zafar, Joseph Ali, Robert Ssekubugu, Paul Ndebele & Nancy Kass (2013). Evaluating Institutional Capacity for Research Ethics in Africa: A Case Study From Botswana. [REVIEW] BMC Medical Ethics 14 (1):31.
    The increase in the volume of research conducted in Low and Middle Income Countries (LMIC), has brought a renewed international focus on processes for ethical conduct of research. Several programs have been initiated to strengthen the capacity for research ethics in LMIC. However, most such programs focus on individual training or development of ethics review committees. The objective of this paper is to present an approach to institutional capacity assessment in research ethics and application of this approach in the form (...)
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  46.  7
    Nicola Barsdorf, Suzanne Maman, Nancy Kass & Catherine Slack (2010). Access to Treatment in Hiv Prevention Trials: Perspectives From a South African Community. Developing World Bioethics 10 (2):78-87.
    Access to treatment, in HIV vaccine trials (HVTs), remains ethically controversial. In most prevention trials, including in South Africa, participants who seroconvert are referred to publicly funded programmes for treatment. This strategy is problematic when there is inadequate and uneven access to public sector antiretroviral therapy (ART) and support resources. The responsibilities, if any, of researchers, sponsors and public health authorities involved in HVTs has been hotly debated among academics, scholars, representatives of international organizations and sponsors. However, there is little (...)
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  47.  1
    N. W. Dickert & N. E. Kass (2009). Understanding Respect: Learning From Patients. Journal of Medical Ethics 35 (7):419-423.
    Background: The importance of respecting patients and participants in clinical research is widely recognised. However, what it means to respect persons beyond recognising them as autonomous is unclear, and little is known about what patients find to be respectful. Objective: To understand patients’ conceptions of respect and what it means to be respected by medical providers. Design: Qualitative study from an academic cardiology clinic, using semistructured interviews with 18 survivors of sudden cardiac death. Results: Patients believed that respecting persons incorporates (...)
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  48.  5
    H. A. Taylor, N. E. Kass, J. Ali, S. Sisson, A. Bertram & A. Bhan (2012). Development of a Research Ethics Knowledge and Analytical Skills Assessment Tool. Journal of Medical Ethics 38 (4):236-242.
    Introduction The goal of this project was to develop and validate a new tool to evaluate learners' knowledge and skills related to research ethics. Methods A core set of 50 questions from existing computer-based online teaching modules were identified, refined and supplemented to create a set of 74 multiple-choice, true/false and short answer questions. The questions were pilot-tested and item discrimination was calculated for each question. Poorly performing items were eliminated or refined. Two comparable assessment tools were created. These assessment (...)
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  49.  6
    Nancy Kass & Amy Medley (2007). Genetic Screening and Disability Insurance: What Can We Learn From The Health Insurance Experience? Journal of Law, Medicine & Ethics 35 (s2):66-73.
    Genetic information may be used by health and disability insurance companies to deny or restrict coverage. How health insurance companies use genetic information, and how public policy has limited that use, can be illustrative for genetics and disability insurance policy.
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  50.  19
    Valery M. Gordon, Jeremy Sugarman & Nancy Kass (forthcoming). Toward a More Comprehensive Approach to Protecting Human Subjects: The Interface of Data Safety Monitoring Boards and Institutional Review Boards in Randomized Clinical Trials. IRB: Ethics & Human Research.
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