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  1. Niklas Juth (forthcoming). For the Sake of Justice: Should We Prioritize Rare Diseases? Health Care Analysis:1-20.
    This article is about the justifiability of accepting worse cost effectiveness for orphan drugs, that is, treatments for rare diseases, in a publicly financed health care system. Recently, three arguments have been presented that may be used in favour of exceptionally advantageous economic terms for orphan drugs. These arguments share the common feature of all referring to considerations of justice or fairness: the argument of the irrelevance of group size, the argument from the principle of need, and the argument of (...)
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  2. Anders Rydvall, Niklas Juth, Mikael Sandlund, Magnus Domellöf & Niels Lynøe (forthcoming). To Treat or Not to Treat a Newborn Child with Severe Brain Damage? A Cross-Sectional Study of Physicians' and the General Population's Perceptions of Intentions. Medicine, Health Care and Philosophy:1-8.
    Ethical dilemmas are common in the neonatal intensive care setting. The aim of the present study was to investigate the opinions of Swedish physicians and the general public on treatment decisions regarding a newborn with severe brain damage. We used a vignette-based questionnaire which was sent to a random sample of physicians (n = 628) and the general population (n = 585). Respondents were asked to provide answers as to whether it is acceptable to discontinue ventilator treatment, and when it (...)
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  3. Manne Sjöstrand & Niklas Juth (forthcoming). Authenticity and Psychiatric Disorder: Does Autonomy of Personal Preferences Matter? [REVIEW] Medicine, Health Care and Philosophy:1-8.
    In healthcare ethics there is a discussion regarding whether autonomy of personal preferences, what sometimes is referred to as authenticity, is necessary for autonomous decision-making. It has been argued that patients’ decisions that lack sufficient authenticity could be deemed as non-autonomous and be justifiably overruled by healthcare staff. The present paper discusses this issue in relation certain psychiatric disorders. It takes its starting point in recent qualitative studies of the experiences and thoughts of patients’ with anorexia nervosa where issues related (...)
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  4. Niklas Juth (2014). The Right Not to Know and the Duty to Tell: The Case of Relatives. Journal of Law, Medicine and Ethics 42 (1):38-52.
    Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser (...)
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  5. Anna Lindblad, Niels Lynöe & Niklas Juth (2014). End‐of‐Life Decisions and the Reinvented Rule of Double Effect: A Critical Analysis. Bioethics 28 (7):368-377.
    The Rule of Double Effect (RDE) holds that it may be permissible to harm an individual while acting for the sake of a proportionate good, given that the harm is not an intended means to the good but merely a foreseen side-effect. Although frequently used in medical ethical reasoning, the rule has been repeatedly questioned in the past few decades. However, Daniel Sulmasy, a proponent who has done a lot of work lately defending the RDE, has recently presented a reformulated (...)
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  6. Petra Lilja Andersson, Niklas Juth, Åsa Petersén, Caroline Graff & Anna-Karin Edberg (2013). Ethical Aspects of Undergoing a Predictive Genetic Testing for Huntington's Disease. Nursing Ethics 20 (2):189-199.
    The aim of this study was to describe the experiences of undergoing a presymptomatic genetic test for the hereditary and fatal Huntington’s disease, using a case study approach. The study was based on 18 interviews with a young woman and her husband from the decision to undergo the test, to receiving the results and trying to adapt to them, which were analysed using a life history approach. The findings show that the process of undergoing a presymptomatic test involves several closely (...)
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  7. Niklas Juth (2013). Challenges for Principles of Need in Health Care. Health Care Analysis:1-15.
    What challenges must a principle of need for prioritisations in health care meet in order to be plausible and practically useful? Some progress in answering this question has recently been made by Hope, Østerdal and Hasman. This article continue their work by suggesting that the characteristic feature of principles of needs is that they are sufficientarian, saying that we have a right to a minimally acceptable or good life or health, but nothing more. Accordingly, principles of needs must answer two (...)
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  8. Niklas Juth, Åsa Nilsonne & Niels Lynöe (2013). Are Interpretations of Other People's Arguments Value-Impregnated? A Pilot Study Among Medical Students. Medicine, Health Care and Philosophy 16 (3):601-603.
    Analogously to Kuhn’s and Hanson’s understanding of observation as theory-impregnated, we try to test the hypothesis that observation and interpretation might also be value-impregnated. We use a written examination task for medical students who were asked to read and interpret a text where the authors provide arguments pro et contra euthanasia. Afterwards the students were asked to provide their own reflected opinion on the issue. We found that medical students who were against and indecisive provided interpretations of the text which (...)
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  9. Niels Lynöe & Niklas Juth (2013). Does Proficiency Creativity Solve Legal Dilemmas? Experimental Study of Medical Students' Ideas About Death-Causes. Medicine, Health Care and Philosophy 16 (4):789-793.
    The aim of the present study was to compare and examine how medical students on term one and nine understand and adopt ideas and reasoning when estimating death-causes. Our hypothesis was that compared to students in the beginning of their medical curriculum, term nine students would be more inclined to adopt ideas about causality that allows physicians to alleviate an imminently dying patient, without being suspected for manslaughter—a practice referred to as proficiency creativity. We used a questionnaire containing two similar (...)
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  10. Manne Sjöstrand, Stefan Eriksson, Niklas Juth & Gert Helgesson (2013). Paternalism in the Name of Autonomy. Journal of Medicine and Philosophy 38 (6):jht049.
    Different ideas of the normative relevance of autonomy can give rise to profoundly different action-guiding principles in healthcare. If autonomy is seen as a value rather than as a right, it can be argued that patients’ decisions should sometimes be overruled in order to protect or promote their own autonomy. We refer to this as paternalism in the name of autonomy. In this paper, we discuss different elements of autonomy (decision-making capacity, efficiency, and authenticity) and arguments in favor of paternalism (...)
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  11. Manne Sjöstrand, Gert Helgesson, Stefan Eriksson & Niklas Juth (2013). Autonomy-Based Arguments Against Physician-Assisted Suicide and Euthanasia: A Critique. [REVIEW] Medicine, Health Care and Philosophy 16 (2):225-230.
    Respect for autonomy is typically considered a key reason for allowing physician assisted suicide and euthanasia. However, several recent papers have claimed this to be grounded in a misconception of the normative relevance of autonomy. It has been argued that autonomy is properly conceived of as a value, and that this makes assisted suicide as well as euthanasia wrong, since they destroy the autonomy of the patient. This paper evaluates this line of reasoning by investigating the conception of valuable autonomy. (...)
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  12. Niklas Juth & Christian Munthe (2012). The Ethics of Screening in Health Care and Medicine: Serving Society Or Serving the Patient? Springer Verlag.
    This book involves an in-depth analysis of the ethical, political and philosophical issues related to health-oriented screening programs.
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  13. Niklas Juth (2011). And Authenticity. In Guy Kahane, Julian Savulescu & Ruud Ter Meulen (eds.), Enhancing Human Capacities. 34.
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  14. Niklas Juth (2011). Enhancement, Autonomy, and Authenticity. In Guy Kahane, Julian Savulescu & Ruud Ter Meulen (eds.), Enhancing Human Capacities. 34--48.
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  15. Erik Malmqvist, Niklas Juth, Niels Lynöe & Gert Helgesson (2011). Early Stopping of Clinical Trials: Charting the Ethical Terrain. Kennedy Institute of Ethics Journal 21 (1):51-78.
    Randomized and double-blind clinical trials are widely regarded as the most reliable way of studying the effects of medical interventions. According to received wisdom, if a new drug or treatment is to be accepted in clinical practice, its safety and efficacy must first be demonstrated in such trials. For ethical and scientific reasons, it is generally considered necessary to monitor a trial in various ways as it proceeds and to analyze data as they accumulate. Monitoring and interim analyses are often (...)
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  16. Joakim Sandberg & Niklas Juth (2011). Ethics and Intuitions: A Reply to Singer. [REVIEW] Journal of Ethics 15 (3):209-226.
    In a recent paper, Peter Singer suggests that some interesting new findings in experimental moral psychology support what he has contended all along—namely that intuitions should play little or no role in adequate justifications of normative ethical positions. Not only this but, according to Singer, these findings point to a central flaw in the method (or epistemological theory) of reflective equilibrium used by many contemporary moral philosophers. In this paper, we try to defend reflective equilibrium from Singer’s attack and, in (...)
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  17. Niels Lynöe, Niklas Juth & Gert Helgesson (2010). How to Reveal Disguised Paternalism. Medicine, Health Care and Philosophy 13 (1):59-65.
    In a Swedish setting physicians are unlikely to give explicitly paternalistic reasons when asked about their attitudes towards patients’ involvement in decision-making. There is considerable risk that they will disguise their paternalism by giving ‘socially correct answers’. We suggest that disguised paternalism can be revealed with the help of indexes based on certain responses in postal questionnaires. The indexes were developed using material from a study examining attitudes of Swedish physicians to physician-assisted suicide (PAS). Apart from being asked about their (...)
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  18. Niklas Juth, Autonomy as a Positive Value – Some Conceptual Prerequisites.
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  19. Niklas Juth (2003). Insurance Companies' Access to Genetic Information: Why Regulation Alone is Not Enough. Monash Bioethics Review 22 (1):25-41.
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