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Pascal Borry [17]P. Borry [5]
  1. Pascal Borry & Mahsa Shabani (2015). Challenges of Web-Based Personal Genomic Data Sharing. Life Sciences, Society and Policy 11 (1):1-13.
    In order to study the relationship between genes and diseases, the increasing availability and sharing of phenotypic and genotypic data have been promoted as an imperative within the scientific community. In parallel with data sharing practices by clinicians and researchers, recent initiatives have been observed in which individuals are sharing personal genomic data. The involvement of individuals in such initiatives is facilitated by the increased accessibility of personal genomic data, offered by private test providers along with availability of online networks. (...)
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  2. Pascal Borry, Mahsa Shabani & Heidi Carmen Howard (2014). Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children. Journal of Law, Medicine and Ethics 42 (1):19-27.
    The increasing implementation of next-generation sequencing technologies in the clinical context and the expanding commercial offer of genetic tests directly-toconsumers has increased the availability of previously inaccessible genetic information. A particular concern in both situations is how the volume of novel information will affect the processing of genetic and genomic information from minors. For minors, it is argued that in the provision of genetic testing, their “right not to know” should be respected as much as possible. Testing a minor early (...)
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  3. Pascal Borry, Mahsa Shabani & Heidi Carmen Howard (2013). Nonpropositional Content in Direct-to-Consumer Genetic Testing Advertisements. American Journal of Bioethics 13 (5):14-16.
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  4. Carlo Leget & Pascal Borry (2010). Empirical Ethics. Ethical Perspectives 17 (2):231-252.
    The actual rise of empirical contributions in bioethics questions – at a fundamental level – the place bioethics will reserve for empirical approaches in its field. This article aims to discuss the relationship between empirical research and normative evaluations and to apply this to the use of the concept of dignity in end-of-life research.It describes five possible ways in which empirical research can be related to normative ethics: prescriptive applied ethics, theorist ethics, critical applied ethics, particularist ethics and integrated empirical (...)
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  5. L. Bezuidenhout & P. Borry (2009). Examining the Role of Informal Interpretation in Medical Interviews. Journal of Medical Ethics 35 (3):159-162.
    A linguistic barrier between healthcare professional and patient is a challenging experience for both parties. In many cases, the absence of formally trained medical interpreters necessitates that an informal interpreter, drawn from the immediate environment, be used to facilitate communication. While the presence of an interpreter in a medical interview raises many questions about the effectiveness of the communication between healthcare professional and patient, it also gives rise to new speculations revolving on patient rights, medical ethics and patient privacy. In (...)
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  6. A. Boyce & P. Borry (2009). Parental Authority, Future Autonomy, and Assessing Risks of Predictive Genetic Testing in Minors. Journal of Bioethical Inquiry 6 (3):379-385.
    The debate over the genetic testing of minors has developed into a major bioethical topic. Although several controversial questions remain unanswered, a degree of consensus has been reached regarding the policies on genetic testing of minors. Recently, several commentators have suggested that these policies are overly restrictive, too narrow in focus, and even in conflict with the limited empirical evidence that exists on this issue. We respond to these arguments in this paper, by first offering a clarification of three key (...)
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  7. Heidi Howard & Pascal Borry (2009). Personal Genome Testing: Do You Know What You Are Buying? American Journal of Bioethics 9 (6):11-13.
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  8. Carlo Leget, Pascal Borry & Raymond de Vries (2009). 'Nobody Tosses a Dwarf!' The Relation Between the Empirical and the Normative Reexamined. Bioethics 23 (4):226-235.
    This article discusses the relation between empirical and normative approaches in bioethics. The issue of dwarf tossing, while admittedly unusual, is chosen as a point of departure because it challenges the reader to look with fresh eyes upon several central bioethical themes, including human dignity, autonomy, and the protection of vulnerable people. After an overview of current approaches to the integration of empirical and normative ethics, we consider five ways that the empirical and normative can be brought together to speak (...)
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  9. P. Borry, L. Stultiens, T. Goffin, H. Nys & K. Dierickx (2008). Minors and Informed Consent in Carrier Testing: A Survey of European Clinical Geneticists. Journal of Medical Ethics 34 (5):370-374.
    Purpose: A study was made of attitudes of clinical geneticists regarding the age at which minors should be allowed to undergo a carrier test and the reasons they provide to explain their answer. Methods: European clinical institutions where genetic counselling is offered to patients were contacted. 177 (63%) of the 287 eligible respondents answered a questionnaire. Results: Clinical geneticists were significantly more in favour of providing a carrier test to a younger person if the request was made together with the (...)
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  10. Pascal Borry, Paul Schotsmans & Dierickx & Kris (2008). The Origin and Emergence of Empirical Ethics. In Guy Widdershoven, John McMillan, Tony Hope & Lieke van der Scheer (eds.), Empirical Ethics in Psychiatry. Oup Oxford.
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  11. Pascal Borry & Heidi Howard (2008). Dtc Genetic Services: A Look Across the Pond. American Journal of Bioethics 8 (6):14 – 16.
  12. Pascal Borry, Paul Schotsmans & Kris Dierickx (2008). The Origin and Emergence of Empirical Ethics. In Guy Widdershoven (ed.), Empirical Ethics in Psychiatry. Oxford University Press. 37--50.
  13. Pascal Borry, Walter van Reusel, Leo Roels & Paul Schotsmans (2008). Donation After Uncontrolled Cardiac Death (uDCD): A Review of the Debate From a European Perspective. [REVIEW] Journal of Law, Medicine and Ethics 36 (4):752-759.
    Presumed consent alone will not solve the organ shortage, but it will create an ethical and legal context that supports organ donation, respects individuals who object to organ donation, relieves families from the burden of decision making, and can save lives.
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  14. P. Borry (2006). Empirical Research in Bioethical Journals. A Quantitative Analysis. Journal of Medical Ethics 32 (4):240-245.
    Objectives: The objective of this research is to analyse the evolution and nature of published empirical research in the fields of medical ethics and bioethics.Design: Retrospective quantitative study of nine peer reviewed journals in the field of bioethics and medical ethics .Results: In total, 4029 articles published between 1990 and 2003 were retrieved from the journals studied. Over this period, 435 studies used an empirical design. The highest percentage of empirical research articles appeared in Nursing Ethics , followed by the (...)
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  15. Pascal Borry, Paul Schotsmans & Kris Dierickx (2006). Author, Contributor or Just a Signer? A Quantitative Analysis of Authorship Trends in the Field of Bioethics. Bioethics 20 (4):213–220.
  16. Pascal Borry, Paul Schotsmans & Kris Dierickx (2006). Evidence‐Based Medicine and its Role in Ethical Decision‐Making. Journal of Evaluation in Clinical Practice 12 (3):306-311.
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  17. Pascal Borry, Paul Schotsmans & Kris Dierickx (2006). How International is Bioethics? A Quantitative Retrospective Study. BMC Medical Ethics 7 (1):1-6.
    Background Studying the contribution of individual countries to leading journals in a specific discipline can highlight which countries have the most impact on that discipline and whether a geographic bias exists. This article aims to examine the international distribution of publications in the field of bioethics. Methods Retrospective quantitative study of nine peer reviewed journals in the field of bioethics and medical ethics (Bioethics, Cambridge Quarterly of Healthcare Ethics, Hastings Center Report, Journal of Clinical Ethics, Journal of Medical Ethics, Kennedy (...)
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  18. Pascal Borry, Paul Schotsmans & Kris Dierickx (2005). The Birth of the Empirical Turn in Bioethics. Bioethics 19 (1):49–71.
  19. Pascal Borry (2004). Moss, Lenny. What Genes Can't Do. Theoretical Medicine and Bioethics 25 (1):75-77.
  20. Pascal Borry, Paul Schotsmans & Kris Dierickx (2004). Empirical Ethics: A Challenge to Bioethics. Medicine, Health Care and Philosophy 7 (1):1-3.
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  21. Pascal Borry, Paul Schotsmans & Kris Dierickx (2004). What is the Role of Empirical Research in Bioethical Reflection and Decision-Making? An Ethical Analysis. Medicine, Health Care and Philosophy 7 (1):41-53.
    The field of bioethics is increasingly coming into contact with empirical research findings. In this article, we ask what role empirical research can play in the process of ethical clarification and decision-making. Ethical reflection almost always proceeds in three steps: the description of the moral question,the assessment of the moral question and the evaluation of the decision-making. Empirical research can contribute to each step of this process. In the description of the moral object, first of all, empirical research has a (...)
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  22. P. Borry, P. Schotsmans & K. Dierickx (1995). Empirical Research in Bioethical Journals. Journal of Medical Ethics 32:240-245.
     
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