PURPOSE: To evaluate the effects of social support on comprehension and recall of consent form information in a study of Parkinson disease patients and their caregivers.DESIGN and METHODS: Comparison of comprehension and recall outcomes among participants who read and signed the consent form accompanied by a family member/friend versus those of participants who read and signed the consent form unaccompanied. Comprehension and recall of consent form information were measured at one week and one month respectively, using Part A of the (...) Quality of Informed Consent Questionnaire .RESULTS: The mean age of the sample of 143 participants was 71 years . Analysis of covariance was used to compare QuIC scores between the intervention group and control group . In the 1-week model, no statistically significant intervention effect was found . However, the intervention status by patient status interaction was statistically significant . In the 1-month model, no statistically significant intervention effect was found . Again, however, the intervention status by patient status interaction was statistically significant . At both time periods, intervention group patients scored higher on the QuIC than did intervention group caregivers, and control group patients scored lower on the QuIC than did control group caregivers.IMPLICATIONS: Social support played a significant role in enhancing comprehension and recall of consent form information among patients. (shrink)

: Originally presented during Ethic Rounds at the Dana-Farber Cancer Institute, this commentary on the case of a patient treated for life-threatening cancer explores the responsibilities of health care providers when addressing the patient's desire to adopt a child.

Fieldwork experiences in the summer of 2003 resulted in confusion regarding the ethical positioning of myself (the interviewer) in relation to the multiple 'actants' that constituted the research subject(s). This paper explores some of these personal issues and conflicts in order to clarify, gain perspective on and critique the nature (and indeed the 'Nature') of my fieldwork. The multiple positioning of participants within networks of agricultural and social ethics is addressed. I borrow Lewis Holloway's idea of relational ethical identity, in (...) order to resituate and rethink the interviews in terms of actor-network theory. This paper argues that ethical identities and ethical 'natures' can be understood as relationally constructed and constituted within networks. The ways in which notions of (un)ethical agricultural relations shaped each interview experience are also explored. Specifically, how did my ideas of (un)ethical farming influence my 'ethical take' on how different farmers operated? I also argue that all encounters are ethically charged and, as such, encounters result in emotional tensions. (shrink)