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Rebecca D. Pentz [11]Rebecca Pentz [4]Rebecca Davis Pentz [2]
  1. Cynthia Griggins, Christian Simon, Frederick Nakwagala & Rebecca Pentz (2011). Bioethics Training in Uganda: Report on Research and Clinical Ethics Workshops. [REVIEW] HEC Forum 23 (1):43-56.
    This essay describes and critically evaluates a co-operative educational program to train Ugandan health care workers in bioethics. It describes one bottom-up effort, a week-long intensive workshop in bioethics provided by the authors to health care professionals in a developing country—Uganda. We will describe the background and circumstances that led to the organization of the workshop, and review its planning, design, curriculum, and outcome. We will focus especially on measures taken to make the workshop relevant for the audience of Ugandan (...)
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  2. Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish, Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children with Cancer.
    PURPOSE: There is an increasing demand for researchers to provide research results to participants. Our aim was to define an appropriate process for this, based on needs and attitudes of participants. METHODS: A multicenter survey in five sites in the United States and Canada was offered to parents of children with cancer and adolescents with cancer. Respondents indicated their preferred mode of communication of research results with respect to implications; timing, provider, and content of the results; reasons for and against (...)
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  3. Kate Read, Conrad Vincent Fernandez, Jun Gao, Caron Strahlendorf, Albert Moghrabi, Rebecca Davis Pentz, Raymond Carlton Barfield, Justin Nathaniel Baker, Darcy Santor, Charles Weijer & Eric Kodish, Decision-Making by Adolescents and Parents of Children with Cancer Regarding Health Research Participation.
    Background: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer. Methods: This is a secondary analysis of data from validated questionnaires provided to adolescents (>12 years old) diagnosed with cancer and parents of children with cancer at 3 sites in Canada (...)
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  4. Conrad V. Fernandez, Darcy Santor, Charles Weijer, Caron Strahlendorf, Albert Moghrabi, Rebecca Pentz, Jun Gao & Eric Kodish, The Return of Research Results to Participants: Pilot Questionnaire of Adolescents and Parents of Children with Cancer.
    PURPOSE: The offer to return research results to participants is increasingly recognized as an ethical obligation, although few researchers routinely return results. We examined the needs and attitudes of parents of children with cancer and of adolescents with cancer to the return of research results. METHODS: Seven experts in research ethics scored content validity on parent and adolescent questionnaires previously developed through focus group and phone interviews. The questionnaires were revised and provided to 30 parents and 10 adolescents in a (...)
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  5. Rebecca D. Pentz, Anne L. Flamm, Jeremy Sugarman, Marlene Z. Cohen, Zhiheng Xu, Roy S. Herbst & James L. Abbruzzese (2007). Who Should Go First in Trials with Scarce Agents? The Views of Potential Participants. IRB: Ethics & Human Research 29 (4):1.
    Access to investigational drugs is a concern to patients and regulatory agencies. In order to determine potential trial participants’ views on access to investigational drugs, we surveyed one hundred people who had been referred to a phase I clinical trial. Most respondents indicated that patients had a right to investigational drugs, that the drugs should be offered only in the context of research, that getting access to these drugs is too hard, and that knowing the right people and being persistent (...)
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  6. Barbara J. Evans, Sven Ove Hansson, Steve Heilig, Ana Smith Iltis, Kenneth V. Iserson, Anita F. Khayat, Greg Loeben, Jerry Menikoff & Rebecca D. Pentz (2004). Nancy Berlinger, Ph. D., M. Div., is Deputy Director and Associate for Religious Studies at The Hastings Center, Garrison, New York. Michael A. DeVita, MD, is Associate Professor of Critical Care Medicine and Internal Medicine and Chair of the UPMC Ethics Committee, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania. [REVIEW] Cambridge Quarterly of Healthcare Ethics 13:313-314.
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  7. Rebecca D. Pentz, Ka Wah Chan, Joyce L. Neumann, Richard E. Champlin & Martin Korbling (2004). Designing an Ethical Policy for Bone Marrow Donation by Minors and Others Lacking Capacity. Cambridge Quarterly of Healthcare Ethics 13 (02):149-155.
    The child was 2 years, 8 months old and weighed 25 pounds, one-fifth the weight of her mother, for whom she was to be the bone marrow donor. The mother had suffered a relapse of acute myelogenous leukemia; her physicians recommended a bone marrow transplant. The child was the closest human leukocyte antigen match and thus the best donor candidate for her mother's transplant.
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  8. Rebecca D. Pentz & Anita F. Khayat (2004). The Poster Child for the Need for Central Review of Research Protocols: The Children's Oncology Group. Cambridge Quarterly of Healthcare Ethics 13 (04):359-365.
    Multiple groups, including the National Bioethics Advisory Commission, the American Society of Clinical Oncology , the National Coalition of Comprehensive Cancer Centers , Workgroup 6 of the Summit Series on Cancer, PRIM&R, the Bell Report, and prominent ethicists have called for replacing the current system of local institutional review with central review for multisite national trials. We argue that this need is particularly acute in pediatric oncology, as shown by the experience of the Children's Oncology Group.
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  9. Rebecca D. Pentz, Anne L. Flamm & Renata Pasqualini (2003). Revisiting Ethical Guidelines. Hastings Center Report 33:1.
     
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  10. Rebecca D. Pentz, Anne L. Flamm, Renata Pasqualini, Christopher J. Logothetis & Wadih Arap (2003). Revisiting Ethical Guidelines for Research with Terminal Wean and Brain‐Dead Participants. Hastings Center Report 33 (1):20-26.
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  11. Rebecca D. Pentz & Anne L. Flamm (2002). The Newly and Nearly Dead. Hastings Center Report 33 (1):4-4.
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  12. John F. Kilner, Rebecca D. Pentz, Frank E. Young & Richard Ashcroft (2000). Book Reviews-Genetic Ethics: Do the Ends Justify the Genes? Bioethics 14 (3):274-275.
     
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  13. Rebecca D. Pentz (2000). Core Values: An Ethics Committee's Foray Into Management Theory. [REVIEW] HEC Forum 12 (3):225-234.
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  14. Rebecca D. Pentz (1998). Expanding Into Organizational Ethics: The Experience of One Clinical Ethics Committee. [REVIEW] HEC Forum 10 (2):213-221.
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  15. Rebecca Pentz (1991). Hick and Saints. Faith and Philosophy 8 (1):96-103.
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  16. Rebecca Pentz (1991). Hick and Saints: Is Saint-Production a Valid Test?'. Faith and Philosophy 8 (1):96-103.
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  17. Rebecca D. Pentz (1982). Rules and Values and the Problem of Evil. Sophia 21 (2):23-29.