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  1.  1
    Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Emily Rosenthal, Steven Joffe, Mildred K. Cho, Benjamin Wilfond & Sandra Soo-Jin Lee (2015). Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making. American Journal of Bioethics 15 (9):4-17.
    We conducted focus groups to assess patient attitudes toward research on medical practices in the context of usual care. We found that patients focus on the implications of this research for their relationship with and trust in their physicians. Patients view research on medical practices as separate from usual care, demanding dissemination of information and in most cases, individual consent. Patients expect information about this research to come through their physician, whom they rely on to identify and filter associated risks. (...)
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  2.  6
    Sandra Soo-Jin Lee & LaVera Crawley (2009). Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics. American Journal of Bioethics 9 (6):35-44.
    The convergence of increasingly efficient high throughput sequencing technology and ubiquitous Internet use by the public has fueled the proliferation of companies that provide personal genetic information (PGI) direct-to-consumers. Companies such as 23andme (Mountain View, CA) and Navigenics (Foster City, CA) are emblematic of a growing market for PGI that some argue represents a paradigm shift in how the public values this information and incorporates it into how they behave and plan for their futures. This new class of social networking (...)
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  3.  66
    Heidi E. Keller & Sandra Lee (2003). Ethical Issues Surrounding Human Participants Research Using the Internet. Ethics and Behavior 13 (3):211 – 219.
    The Internet appears to offer psychologists doing research unrestricted access to infinite amounts and types of data. However, the ethical issues surrounding the use of data and data collection methods are challenging research review boards at many institutions. This article illuminates some of the obstacles facing researchers who wish to take advantage of the Internet's flexibility. The applications of the APA ethical codes for conducting research on human participants on the Internet are reviewed. The principle of beneficence, as well as (...)
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  4.  4
    Sandra Soo-Jin Lee (2012). Lessons Learned From the U.S. Public Health Service Syphilis Study at Tuskegee: Incorporating a Discourse on Relationships Into the Ethics of Research Participation Among Asian Americans. Ethics and Behavior 22 (6):489-492.
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  5.  1
    Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Steven Joffe, Mildred K. Cho, Benjamin Wilfond & Sandra Soo-Jin Lee (2016). The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on “Patient Perspectives on the Learning Health System”. American Journal of Bioethics 16 (2):7-9.
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  6.  12
    Stephanie Fullerton & Sandra Lee (2011). Secondary Uses and the Governance of De-Identified Data: Lessons From the Human Genome Diversity Panel. [REVIEW] BMC Medical Ethics 12 (1):16-.
    Background: Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this paper explores the secondary uses of one de-identified DNA sample collection with limited oversight: the Human Genome Diversity Project (HGDP)-Centre d'Etude du Polymorphisme Humain, Fondation Jean Dausset (CEPH) Human Genome Diversity Panel. Methods: Using a combination of keyword (...)
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  7.  6
    Sandra Soo-Jin Lee & Simone Vernez (2012). Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations. American Journal of Bioethics 12 (4):41-43.
    The American Journal of Bioethics, Volume 12, Issue 4, Page 41-43, April 2012.
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  8.  2
    Sandra Soo‐Jin Lee (2000). Dys‐Appearing Tongues and Bodily Memories: The Aging of First‐Generation Resident Koreans in Japan. Ethos: Journal of the Society for Psychological Anthropology 28 (2):198-223.
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  9.  7
    Sue E. Schonberg & Sandra S. Lee (1996). Identifying the Real Eap Client: Ensuing Ethical Dilemmas. Ethics and Behavior 6 (3):203 – 212.
    As employee assistance programs (EAPs) have evolved and expanded their scope in the past decade, many factors have contributed to meeting the demands of conflicting client constituencies in a multifaceted client environment. This article enumerates several of these factors, notes consequences of ensuing conflicts, and ultimately proposes some methods to counter some of these ethical dilemmas in the future. It is the hope that greater recognition and understanding of ethical conflicts in client loyalty within a host organization will foster increased (...)
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  10.  4
    Sandra Soo-Jin Lee & LaVera Crawley (2009). Response to Open Peer Commentaries on “Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics”. American Journal of Bioethics 9 (6):1-3.
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  11. Stephanie M. Fullerton & Sandra S.-J. Lee (2011). Secondary Uses and the Governance of de-Identified Data: Lessons From the Human Genome Diversity Panel. BMC Medical Ethics 12 (1):16.
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  12. Sandra Soo-Jin Lee (2000). Dys-Appearing Tongues and Bodily Memories: The Aging of First-Generation Resident Koreans in Japan. Ethos 28 (2):198-223.
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