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  1.  1
    Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Emily Rosenthal, Steven Joffe, Mildred K. Cho, Benjamin Wilfond & Sandra Soo-Jin Lee (2015). Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making. American Journal of Bioethics 15 (9):4-17.
    We conducted focus groups to assess patient attitudes toward research on medical practices in the context of usual care. We found that patients focus on the implications of this research for their relationship with and trust in their physicians. Patients view research on medical practices as separate from usual care, demanding dissemination of information and in most cases, individual consent. Patients expect information about this research to come through their physician, whom they rely on to identify and filter associated risks. (...)
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  2.  6
    Sandra Soo-Jin Lee & LaVera Crawley (2009). Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics. American Journal of Bioethics 9 (6):35-44.
    The convergence of increasingly efficient high throughput sequencing technology and ubiquitous Internet use by the public has fueled the proliferation of companies that provide personal genetic information (PGI) direct-to-consumers. Companies such as 23andme (Mountain View, CA) and Navigenics (Foster City, CA) are emblematic of a growing market for PGI that some argue represents a paradigm shift in how the public values this information and incorporates it into how they behave and plan for their futures. This new class of social networking (...)
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  3.  5
    Sandra Soo-Jin Lee (2012). Lessons Learned From the U.S. Public Health Service Syphilis Study at Tuskegee: Incorporating a Discourse on Relationships Into the Ethics of Research Participation Among Asian Americans. Ethics and Behavior 22 (6):489-492.
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  4.  1
    Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Steven Joffe, Mildred K. Cho, Benjamin Wilfond & Sandra Soo-Jin Lee (2016). The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on “Patient Perspectives on the Learning Health System”. American Journal of Bioethics 16 (2):7-9.
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  5.  6
    Sandra Soo-Jin Lee & Simone Vernez (2012). Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations. American Journal of Bioethics 12 (4):41-43.
    The American Journal of Bioethics, Volume 12, Issue 4, Page 41-43, April 2012.
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  6.  4
    Sandra Soo-Jin Lee & LaVera Crawley (2009). Response to Open Peer Commentaries on “Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics”. American Journal of Bioethics 9 (6):1-3.
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  7. Sandra Soo-Jin Lee (2000). Dys-Appearing Tongues and Bodily Memories: The Aging of First-Generation Resident Koreans in Japan. Ethos 28 (2):198-223.
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  8. Michael Morrison, Donna Dickenson & Sandra Soo-Jin Lee (2016). Introduction to the Article Collection ‘Translation in Healthcare: Ethical, Legal, and Social Implications’. BMC Medical Ethics 17 (1):74.
    New technologies are transforming and reconfiguring the boundaries between patients, research participants and consumers, between research and clinical practice, and between public and private domains. From personalised medicine to big data and social media, these platforms facilitate new kinds of interactions, challenge longstanding understandings of privacy and consent, and raise fundamental questions about how the translational patient pathway should be organised.This editorial introduces the cross-journal article collection "Translation in healthcare: ethical, legal, and social implications", briefly outlining the genesis of the (...)
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