Search results for 'TB Trials Study Group' (try it on Scholar)

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  1. Anne E. Walker, Marion K. Campbell, Jeremy M. Grimshaw & the Tempest Group (2000). A Recruitment Strategy for Cluster Randomized Trials in Secondary Care Settings. Journal of Evaluation in Clinical Practice 6 (2):185-192.score: 120.0
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  2. S. Godden, G. Ambler & A. M. Pollock (2010). Recruitment of Minority Ethnic Groups Into Clinical Cancer Research Trials to Assess Adherence to the Principles of the Department of Health Research Governance Framework: National Sources of Data and General Issues Arising From a Study in One Hospital Trust in England. Journal of Medical Ethics 36 (6):358-362.score: 68.0
    Background This article describes the issues encountered when designing a study to evaluate recruitment of minority ethnic groups into clinical cancer research in order to monitor adherence to the principles for good practice set out in the Department of Health, Research Governance Framework, England. Methods (i) A review of routine data sources to determine whether their usefulness as a source of data on prevalence of cancer in the population by ethnic category. (ii) A local case study at one (...)
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  3. Deborah Yeager-Woodhouse & John Sivell (2006). Prepackaged Tour Versus Personal Journey: The Meaning of Informed Consent in the Context of the Teacher-Study Group. [REVIEW] Journal of Academic Ethics 4 (1-4):189-203.score: 67.0
    This article discusses the specific ethical dilemma of obtaining informed consent and ensuring confidentiality and participant well-being while conducting a qualitative research study with novice ESL teachers in a Teacher Study Group. The discussion outlines their process of resolution of the ambiguities inherent in the research process – in essence the researchers’ personal journey of discovery. The article concludes with the broader implications for making the research process more transparent for other academic researchers working in the field (...)
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  4. Abraham Fuks, Charles Weijer, Benjamin Freedman, Stanley Shapiro, Myriam Skrutkowska & Amina Riaz, A Study in Contrasts: Eligibility Criteria in a Twenty-Year Sample of NSABP and POG Clinical Trials.score: 63.0
    We studied changes in eligibility criteria--the largest impediment to patient accrual--in two samples of clinical trials. Trials from the NSABP (National Surgical Adjuvant Breast and Bowel Program) and POG (Pediatric Oncology Group) were analyzed. After eliminating duplications, the criteria in each protocol were enumerated and classified according to a novel schema. NSABP trials contained significantly more criteria than POG trials, and added precision criteria (making study populations homogeneous) at a faster rate than POG studies. (...)
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  5. A. Dhai, H. Etheredge & P. Cleaton-Jones (2010). A Pilot Study Evaluating an Intervention Designed to Raise Awareness of Clinical Trials Among Potential Participants in the Developing World. Journal of Medical Ethics 36 (4):238-242.score: 63.0
    Background This pilot study evaluated the speaking book ‘What it means to be part of a clinical trial’. The book aims at empowering populations with information on their rights and responsibilities when enrolled in clinical research. Wide publication of the book—at significant cost—is anticipated. It is important that the book is evaluated within the communities for whom it is intended, and the necessary changes (if any) are made, before translation and large-scale publication takes place. Objective The objective of the (...)
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  6. D. N. Shaffer (2006). Equitable Treatment for HIV/AIDS Clinical Trial Participants: A Focus Group Study of Patients, Clinician Researchers, and Administrators in Western Kenya. Journal of Medical Ethics 32 (1):55-60.score: 62.0
    Objectives: To describe the concerns and priorities of key stakeholders in a developing country regarding ethical obligations held by researchers and perceptions of equity or “what is fair” for study participants in an HIV/AIDS clinical drug trial. Design: Qualitative study with focus groups. Setting: Teaching and referral hospital and rural health centre in western Kenya. Participants: Potential HIV/AIDS clinical trial participants, clinician researchers, and administrators. Results: Eighty nine individuals participated in a total of 11 focus groups over a (...)
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  7. Benoit Montalan, Thierry Lelard, Olivier Godefroy & Harold Mouras (2012). Behavioral Investigation of the Influence of Social Categorization on Empathy for Pain: A Minimal Group Paradigm Study. Frontiers in Psychology 3.score: 54.0
    Research on empathy for pain has provided evidence of an empathic bias toward racial ingroup members. In this study, we used for the first time the “minimal group paradigm” in which participants were assigned to artificial groups and required to perform pain judgments of pictures of hands and feet in painful or non-painful situations from self, ingroup and outgroup-perspectives. Findings showed that the mere categorization of people into two distinct arbitrary social groups appears to be sufficient to elicit (...)
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  8. A. McRae, M. Taljaard, C. Weijer, C. Bennett, Z. Skea, R. Boruch, J. Brehaut, M. Eccles, J. Grimshaw & A. Donner (2013). Reporting of Patient Consent in Healthcare Cluster Randomised Trials is Associated with the Type of Study Interventions and Publication Characteristics. Journal of Medical Ethics 39 (2):119-124.score: 49.5
    Objective Cluster randomised trial (CRT) investigators face challenges in seeking informed consent from individual patients (cluster members). This study examined associations between reporting of patient consent in healthcare CRTs and characteristics of these trials. Study design Consent practices and study characteristics were abstracted from a random sample of 160 CRTs performed in primary or hospital care settings that were published from 2000 to 2008. Multivariable logistic regression was used to examine associations between reporting of patient consent (...)
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  9. Chiara Lisciandra, Matteo Colombo & Marie Nilsenova (2013). Conformorality. A Study on Group Conditioning of Normative Judgment. Review of Philosophy and Psychology 4 (4):1-14.score: 48.0
    How does other people’s opinion affect judgments of norm transgressions? In our study, we used a modification of the famous Asch paradigm (1951, 1955) to examine conformity in the moral domain. The question we addressed was how peer group opinion alters normative judgments of scenarios involving violations of moral, social, and decency norms. The results indicate that even moral norms are subject to conformity, especially in situations with a high degree of social presence. Interestingly, the degree of conformity (...)
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  10. James R. Anderson & Mark Krailo (2011). The Children's Oncology Group Routinely Applies “Lack of Efficacy” Interim Monitoring to Its Randomized Clinical Trials. American Journal of Bioethics 11 (3):18-19.score: 48.0
    (2011). The Children's Oncology Group Routinely Applies “Lack of Efficacy” Interim Monitoring to Its Randomized Clinical Trials. The American Journal of Bioethics: Vol. 11, No. 3, pp. 18-19.
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  11. Jim McCambridge, Kypros Kypri, Preben Bendtsen & John Porter (2013). The Use of Deception in Public Health Behavioral Intervention Trials: A Case Study of Three Online Alcohol Trials. American Journal of Bioethics 13 (11):39-47.score: 48.0
    Some public health behavioral intervention research studies involve deception. A methodological imperative to minimize bias can be in conflict with the ethical principle of informed consent. As a case study, we examine the specific forms of deception used in three online randomized controlled trials evaluating brief alcohol interventions. We elaborate our own decision making about the use of deception in these trials, and present our ongoing findings and uncertainties. We discuss the value of the approach of pragmatism (...)
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  12. S. Priebe, J. Sinclair, A. Burton, S. Marougka, J. Larsen, M. Firn & R. Ashcroft (2010). Acceptability of Offering Financial Incentives to Achieve Medication Adherence in Patients with Severe Mental Illness: A Focus Group Study. Journal of Medical Ethics 36 (8):463-468.score: 48.0
    Background Offering financial incentives to achieve medication adherence in patients with severe mental illness is controversial. Aims To explore the views of different stakeholders on the ethical acceptability of the practice. Method Focus group study consisting of 25 groups with different stakeholders. Results Eleven themes dominated the discussions and fell into four categories: (1) ‘wider concerns’, including the value of medication, source of funding, how patients would use the money, and a presumed government agenda behind the idea; (2) (...)
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  13. Howard Brody & Peter Vinten-Johansen (1991). Teaching the History of Medicine by Case Study and Small Group Discussion. Journal of Medical Humanities 12 (1):19-24.score: 48.0
    A case-study, small-group-discussion (“focal problem”) exercise in the history of medicine was designed, piloted, and evaluated in an overseas course and an on-campus elective course for medical students. Results suggest that this is a feasible approach to teaching history of medicine which can overcome some of the problems often encountered in teaching this subject in the medical curriculum.
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  14. Stanley H. Shapiro, Charles Weijer & Benjamin Freedman, Reporting the Study Populations of Clinical Trials. Clear Transmission or Static on the Line?score: 48.0
    In contrast to attempts that have been made to measure the clarity of reporting of the methods of clinical trials in journal articles, we report here an attempt to measure the accuracy of methods reporting. We focus in this article on eligibility criteria as a test case for the reporting of clinical trial methods. We examined the reporting of eligibility criteria in the protocol, methods paper (if applicable), journal article, and Clinical Alert for articles appearing in print between January (...)
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  15. Kana Suzuki, Ikuyo Morimoto, Etsuo Mizukami, Hiroko Otsuka & Hitoshi Isahara (2009). An Exploratory Study for Analyzing Interactional Processes of Group Discussion: The Case of a Focus Group Interview. AI and Society 23 (2):233-249.score: 48.0
    The purposes of this study are (a) to establish a measurement for evaluating conversational impressions of group discussions, and (b) to make an exploratory investigation on their interactional processes which may affect to form those impressions. The impression rating and factor analysis undertaken first give us four factors concerning conversational impressions of “focus group interviews (FGIs)”: conversational activeness, conversational sequencing, the attitudes of participants and the relationships of participants. In relation to the factors of conversational activeness and (...)
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  16. Lydia Zepeda, Hui-Shung Chang & Catherine Leviten-Reid (2006). Organic Food Demand: A Focus Group Study Involving Caucasian and African-American Shoppers. [REVIEW] Agriculture and Human Values 23 (3):385-394.score: 48.0
    A focus group study using four groups of food shoppers provides insights into consumers’ knowledge, beliefs, and behaviors regarding organic foods. Two focus groups consisted of shoppers who regularly bought organic foods and two focus groups of shoppers who predominantly purchased conventional foods. Participants in one of the conventional groups were all Caucasian; in the other they were all African-American. While familiarity with organic foods was much lower in the African-American group, its members were more receptive and (...)
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  17. N. Bidad, L. MacDonald, Z. E. Winters, S. J. L. Edwards & R. Horne (2014). Views on the Right to Withdraw From Randomised Controlled Trials Assessing Quality of Life After Mastectomy and Breast Reconstruction (QUEST): Findings From the QUEST Perspectives Study (QPS). Research Ethics 10 (1):47-57.score: 48.0
    The purpose of this study is to examine the importance that real patients attach to their right to withdraw from an on-going feasibility randomised trial (RCT) evaluating types and timings of breast reconstruction (two parallel trials) following mastectomy for breast cancer. Our results show that, while some respondents appreciated that exercising the right to withdraw would defeat the scientific objective of the trial, some patients with a surgical preference consented only given the knowledge they could withdraw if they (...)
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  18. Lydia Zepeda & Jongsoog Kim (2006). Farm Parents' Views on Their Children's Labor on Family Farms: A Focus Group Study of Wisconsin Dairy Farmers. [REVIEW] Agriculture and Human Values 23 (1):109-121.score: 48.0
    This study examines parents’ perspectives on their children working on their family dairy farms in Wisconsin. The objective of this focus group study is (1) to gain insights on why children work on their family farms, (2) to identify those benefits that parents perceive that they and their children gain from their children working on-farm, (3) to determine the concerns that parents have about their children working, (4) to identify ways to improve the safety of children on (...)
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  19. N. Sofaer, C. Thiessen, S. D. Goold, J. Ballou, K. A. Getz, G. Koski, R. A. Krueger & J. S. Weissman (2009). Subjects' Views of Obligations to Ensure Post-Trial Access to Drugs, Care and Information: Qualitative Results From the Experiences of Participants in Clinical Trials (EPIC) Study. Journal of Medical Ethics 35 (3):183-188.score: 47.0
    Objectives: To report the attitudes and opinions of subjects in US clinical trials about whether or not, and why, they should receive post-trial access (PTA) to the trial drug, care and information. Design: Focus groups, short self-administered questionnaires. Setting: Boston, Dallas, Detroit, Oklahoma City. Participants: Current and recent subjects in clinical trials, primarily for chronic diseases. Results: 93 individuals participated in 10 focus groups. Many thought researchers, sponsors, health insurers and others share obligations to facilitate PTA to the (...)
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  20. Rajiv Sarkar, Thuppal V. Sowmyanarayanan, Prasanna Samuel, Azara S. Singh, Anuradha Bose, Jayaprakash Muliyil & Gagandeep Kang (2010). Comparison of Group Counseling with Individual Counseling in the Comprehension of Informed Consent: A Randomized Controlled Trial. BMC Medical Ethics 11 (1):8-.score: 45.0
    BackgroundStudies on different methods to supplement the traditional informed consent process have generated conflicting results. This study was designed to evaluate whether participants who received group counseling prior to administration of informed consent understood the key components of the study and the consent better than those who received individual counseling, based on the hypothesis that group counseling would foster discussion among potential participants and enhance their understanding of the informed consent.MethodsParents of children participating in a trial (...)
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  21. S. G. Simpson, E. Morrow, M. Vreeswijk & C. Reid (2009). Group Schema Therapy for Eating Disorders: A Pilot Study. Frontiers in Psychology 1:182-182.score: 45.0
    This paper describes the use of Group Schema Therapy for Eating Disorders (ST-E-g) in a case-series of eight participants with chronic eating disorders and high levels of co-morbidity. Treatment was comprised of 20 sessions which included cognitive, experiential and interpersonal strategies, with an emphasis on behavioural change. Specific schema-based strategies focused on bodily felt-sense and body-image, as well as emotional regulation skills. Six attended until end of treatment, two dropped-out at mid-treatment. Eating disorder severity, global schema severity, shame and (...)
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  22. Ronald K. F. Fung & Ian H. Kerridge (2013). Uncertain Translation, Uncertain Benefit and Uncertain Risk: Ethical Challenges Facing First-in-Human Trials of Induced Pluripotent Stem (Ips) Cells. Bioethics 27 (2):89-96.score: 42.0
    The discovery of induced pluripotent stem (iPS) cells in 2006 was heralded as a major breakthrough in stem cell research. Since then, progress in iPS cell technology has paved the way towards clinical application, particularly cell replacement therapy, which has refueled debate on the ethics of stem cell research. However, much of the discourse has focused on questions of moral status and potentiality, overlooking the ethical issues which are introduced by the clinical testing of iPS cell replacement therapy. First-in-human (...), in particular, raise a number of ethical concerns including informed consent, subject recruitment and harm minimisation as well as the inherent uncertainty and risks which are involved in testing medical procedures on humans for the first time. These issues, while a feature of any human research, become more complex in the case of iPS cell therapy, given the seriousness of the potential risks, the unreliability of available animal models, the vulnerability of the target patient group, and the high stakes of such an intensely public area of science. Our paper will present a detailed case study of iPS cell replacement therapy for Parkinson's disease to highlight these broader ethical and epistemological concerns. If we accept that iPS cell technology is fraught with challenges which go far beyond merely refuting the potentiality of the stem cell line, we conclude that iPS cell research should not replace, but proceed alongside embryonic and adult somatic stem cell research to promote cross-fertilisation of knowledge and better clinical outcomes. (shrink)
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  23. Stephen Wilmot, Lesley Legg & Janice Barratt (2002). Ethical Issues in the Feeding of Patients Suffering From Dementia: A Focus Group Study of Hospital Staff Responses to Conflicting Principles. Nursing Ethics 9 (6):599-611.score: 42.0
    Feeding difficulties in older patients who are suffering from dementia present problems with balancing conflicting ethical principles. They have been considered by several writers in recent years, and the views of nursing and care staff have been studied in different contexts. The present study used focus groups to explore the way in which nursing and care staff in a National Health Service trust deal with conflict between ethical principles in this area. Three focus groups were convened, one each from (...)
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  24. A. Anastasi & J. P. Foley Jr (1944). An Experimental Study of the Drawing Behavior of Adult Psychotics in Comparison with That of a Normal Control Group. Journal of Experimental Psychology 34 (3):169.score: 42.0
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  25. James G. Simmons (1973). Patterned Versus Unpatterned Sequences of Study and Recall Trials in Free Recall of a Categorizable Word List. Journal of Experimental Psychology 101 (1):191.score: 42.0
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  26. Stephen J. Gotts, Ziad S. Saad, Hang Joon Jo, Gregory L. Wallace, Robert W. Cox & Alex Martin (2013). The Perils of Global Signal Regression for Group Comparisons: A Case Study of Autism Spectrum Disorders. Frontiers in Human Neuroscience 7.score: 42.0
    We have previously argued from a theoretical basis that the standard practice of regression of the Global Signal from the FMRI time series in functional connectivity studies is ill advised, particularly when comparing groups of participants. Here, we demonstrate in resting-state data from participants with an Autism Spectrum Disorder and matched controls that these concerns are also well founded in real data. Using the prior theoretical work to formulate predictions, we show: 1) rather than simply altering the mean or range (...)
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  27. Michael Misiko, Pablo Tittonell, Ken E. Giller & Paul Richards (2011). Strengthening Understanding and Perceptions of Mineral Fertilizer Use Among Smallholder Farmers: Evidence From Collective Trials in Western Kenya. [REVIEW] Agriculture and Human Values 28 (1):27-38.score: 42.0
    It is widely recognized that mineral fertilizers must play an important part in improving agricultural productivity in western Kenyan farming systems. This paper suggests that for this goal to be realized, farmers’ knowledge must be strengthened to improve their understanding of fertilizers and their use. We analyzed smallholder knowledge of fertilizers and nutrient management, and draw practical lessons from empirical collective fertilizer-response experiments. Data were gathered from the collective fertilizer-response trials, through focus group discussions, by participant observation, and (...)
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  28. Claudia Pagliari & Jeremy Grimshaw (2002). Impact of Group Structure and Process on Multidisciplinary Evidence‐Based Guideline Development: An Observational Study. Journal of Evaluation in Clinical Practice 8 (2):145-153.score: 42.0
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  29. George E. Weaver, Ronald H. Hopkins & Rudolf W. Schulz (1968). The a-B, B-C, a-C Mediation Paradigm: A-C Performance in the Absence of Study Trials. Journal of Experimental Psychology 77 (4):670.score: 42.0
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  30. Neil Jumonville (2002). The Cultural Politics of the Sociobiology Debate. Journal of the History of Biology 35 (3):569 - 593.score: 40.5
    The sociobiology debate, in the final quarter of the twentieth century, featured many of the same issues disputed in the culture war in the humanities during this same time period. This is evident from a study of the writings of Edward O. Wilson, the best known of the sociobiologists, and from an examination of both the minutes of the meetings of the Sociobiology Study Group (SSG) and the writings of Stephen Jay Gould, the SSG's most prominent member. (...)
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  31. David C. Reisman & Ahmed H. Al-Rahim (eds.) (2003). Before and After Avicenna: Proceedings of the First Conference of the Avicenna Study Group. Brill.score: 40.5
    This collection of papers addresses a variety of aspects of the life and thought of the medieval philosopher Avicenna including his reception of Classical ...
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  32. C. Delisle Burns (1940). Book Review:Nationalism: A Report by a Study Group of Members of the Royal Institute of International Affairs. [REVIEW] Ethics 50 (4):470-.score: 40.5
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  33. Douglas E. Berg & Robert P. H. Logan (1997). Helicobacter Pylori, Individual Host Specificity and Human Disease. European Helicobacter Study Group Meeting, Copenhagen, October 16–19, 1996. [REVIEW] Bioessays 19 (1):86-90.score: 40.5
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  34. Karen Brudney (1993). Homelessness and TB: A Study in Failure. Journal of Law, Medicine and Ethics 21 (3-4):360-367.score: 40.5
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  35. Susan Boynton (1998). Reviews Arnoldus Vohburgensis, Historia Sancti Emmerammi Arnoldi Vohburgensis, Circa 1030, Ed. David Hiley. Introductory Matter in English and German. (Historiae; Wissenschaftliche Abhandlungen/Musicological Studies, 65/2.) Ottawa: Institute of Mediaeval Music, for the Study Group “Cantus Planus” of the International Musicological Society, 1996. Pp. Xxix, 43; Musical Examples and Black-and-White Facsimiles. [REVIEW] Speculum 73 (4):1101-1101.score: 40.5
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  36. A. Dumitriu & Editura Academieii Republicii Socialiste Romania (1974). AA. W., Speech Understanding Systems, Final Report of a Study Group, North-Holland/American Elsevier, 1973. Artificial and Human Thinking, Ed. By A. Elithorn and D. Jones, Elsevier Publ. Comp., 1973. K. Atanasijevic, The Metaphysical and Geometrical Doctrine of Bruno, Trad. D. [REVIEW] International Logic Review: Rassegna Internazionale di Logica 7 (9-12):154.score: 40.5
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  37. D. B. Forrester (1979). The Sensitive Scientist: Report of a British Association Study Group. Journal of Medical Ethics 5 (2):91-91.score: 40.5
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  38. Marjorie Glicksman Grene (ed.) (1969). The Anatomy of Knowledge: Papers Presented to the Study Group on Foundations of Cultural Unity, Bowdoin College, 1965 and 1966. London, Routledge & K. Paul.score: 40.5
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  39. Rita T. Layson, Harold M. Adelman, Paul M. Wallach, Mark P. Pfeifer, Sarah Johnston & Robert A. McNutt (1994). Discussions About the Use of Life-Sustaining Treatments: A Literature Review of Physicians' and Patients' Attitudes and Practices. End of Life Study Group. Journal of Clinical Ethics 5 (3):195.score: 40.5
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  40. Rahim Leiden, Islamic Humanism By Lenn E. Goodman & Letting Go (2004). Aquinas on Being. By Anthony Kenny. Oxford: Clarendon Press, 2002. Pp. X+ 212. Price Not Given. Before and After Avicenna: Proceedings of the First Conference of the Avicenna Study Group. Edited by David C. Reisman, with the Assistance of Ahmed H. Al. [REVIEW] Philosophy East and West 54 (2):277-278.score: 40.5
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  41. Jon McGinnis (ed.) (2004). Interpreting Avicenna: Science and Philosophy in Medieval Islam: Proceedings of the Second Conference of the Avicenna Study Group. Brill.score: 40.5
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  42. David Morley (1978). The Sensitive Scientist: Report of a British Association Study Group. Scm Press.score: 40.5
     
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  43. Theda Rehbock (2007). How It Come to the Resolution" Man Lives Only by Bread Alone?"?-Background Information and Commentary of the Study Group" Pflege Und Ethik". Ethik in der Medizin 19 (2):157-158.score: 40.5
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  44. Elizabeth Russell (1983). Collaboration in Medical Research in Europe. (A Ciba Foundation Study Group). Edited by Evered David and O'Connor Maeve. Pp. Viii + 153. (Pitman, 1981.) £9.95. [REVIEW] Journal of Biosocial Science 15 (2):248-249.score: 40.5
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  45. L. K. Yu (2004). A New Counteroffensive of the Reactionary Blood Lineage Theory-Refuting" The Big Poisonous Weed'On Family Background'Must Be Torn Up by the Roots"(Paper Written by Yu Luoke Under the Pen Name the Beijing-Family-Background-Study-Group). Contemporary Chinese Thought 35 (4):91-108.score: 40.5
     
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  46. L. K. Yu (2004). On Chasm (Paper Written by Yu Luoke Under the Pen Name the Beijing-Family-Background-Study-Group). Contemporary Chinese Thought 35 (4):76-90.score: 40.5
     
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  47. L. K. Yu (2004). On" Purity"(A Paper Written by Yu Luoke Under the Pen Name the Beijing-Family-Background-Study-Group). Contemporary Chinese Thought 35 (4):56-59.score: 40.5
     
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  48. L. K. Yu (2004). What Does the Disturbance of the United Action Committe Reveal? A Rebuttal of the Criticism of" On Family Background" by the Red Guards of the Attached High School of Tsinghua University (Paper Written by Yu Luoke Under the Pen Name the Beijing-Family-Background-Study-Group). Contemporary Chinese Thought 35 (4):60-75.score: 40.5
     
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  49. F. Corbett, J. Oldham & R. Lilford (1996). Offering Patients Entry in Clinical Trials: Preliminary Study of the Views of Prospective Participants. Journal of Medical Ethics 22 (4):227-231.score: 39.0
    OBJECTIVE: To ascertain attitudes to different methods of obtaining informed consent for randomised clinical trials (RCTs). DESIGN: Structured interviews with members of the public, medical secretaries and medical students. SETTING: The public were approached in a variety of public places. Medical secretaries and students were approached in their place of work. SUBJECTS: Fifty members of the public, 25 secretaries and 25 students. MAIN OUTCOME MEASURES: Views on RCTs were elicited, with particular emphasis on how subjects thought the concept of (...)
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  50. Bridget Haire & Christopher Jordens (2013). Mind the Gap: An Empirical Study of Post‐Trial Access in HIV Biomedical Prevention Trials. Developing World Bioethics 14 (2).score: 39.0
    The principle of providing post-trial access for research participants to successful products of that research is widely accepted and has been enshrined in various declarations and guidelines. While recent ethical guidelines recognise that the responsibility to provide post-trial access extends to sponsors, regulators and government bodies as well as to researchers, it is the researchers who have the direct duty of care to participants. Researchers may thus need to act as advocates for trial participants, especially where government bodies, sponsors, and (...)
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