The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He (...) challenges the role and the limits of established principles in medical law and ethics, including respect for patient autonomy and confidentiality. This book will interest lawyers, philosophers and doctors concerned both with genetic information and issues of privacy; it will also interest genetic counsellors, researchers, and policy makers worldwide for its practical stance on dilemmas in modern genetic medicine. (shrink)
The foundations of the health sciences need to be re-conceptualized. The mechanistic biomedical model seemingly so successful in the past is now criticized for its failure to explain what health is and how it can be maintained. The world's major health problems no longer seem to be under control. Towards a New Science of Health presents a radical alternative to current biomedical thinking. This unique and controversial book is the first to offer serious practical ideas for the renewal of the (...) health sciences. It provides both a radical spirit of inquiry which draws on a broad knowledge base and a variety of approaches, and a science which will build on innovative research. Presenting an overview of all major paradigms in the health sciences, their historical development, sociocultural background and value, the book provides a framework for innovative thinking in health. Drawing on a range of disciplinary perspectives and focusing on a variety of approaches systems theory, human experience, and biography, the healing process and social relations the authors aim to bridge the gap between personal experience and scientific knowledge. (shrink)
Machine generated contents note: Preface; Introduction and limits; 1. On the concept (and some conceptions) of the basic minimum; 2. A welfarist basic minimum; 3. Adaptive preferences; 4. The intrinsic value of the basic minimum; 5. Against rights; 6. On objections to welfarism; Bibliography.
Since its inception as an international requirement to protect patients and healthy volunteers taking part in medical research, informed consent has become the primary consideration in research ethics. Despite the ubiquity of consent, however, scholars have begun to question its adequacy for contemporary biomedical research. This book explores this issue, reviewing the application of consent to genetic research, clinical trials, and research involving vulnerable populations. For example, in genetic research, information obtained from an autonomous research participant may have significant bearing (...) on the interests of family members who have not consented to the study. This casts doubt on the adequacy of consent for such studies. This book also questions the assumptions that informed consent is essential and that it satisfactorily protects the principle of individual autonomy. It reviews recent empirical studies that challenge the possibility of truly informed consent and highlights the extent to which consent is governed by social norms and expectations. It also investigates how consent might be of secondary importance in some circumstances, for example when a research project appears to protect a public or community interest. (shrink)
What is health policy for? In Health and the Good Society, Alan Cribb addresses this question in a way that cuts across disciplinary boundaries. His core argument is that biomedical ethics should draw upon public health values and ethics; specifically, he argues that everybody has some share of responsibility for health, including a responsibility for promoting greater health equality. In the process, Cribb argues for a major rethink of the whole project of health education.
How do engineers respond to ethical dilemmas that occur in practice? How do they view their individual and collective responsibilities? How do they make decisions before all the facts are in? Using the space shuttle programme as the framework, this book examines the role of ethical decision making in the practice of engineering. In particular, the book considers the design and development of the main engines of the space shuttle as a paradigm for how individual engineers perceive, articulate, and resolve (...) ethical dilemmas in a large, complex organisation. A series of in-depth case studies show engineers at work on various stages of the project as they balance budgets, deadlines and risks. By documenting the historical development of a single system, the book provides a unique opportunity to explore the complex interactions between political, organisational and technical pressures and engineering and management decisions. (shrink)
The realities and myths of long-term care and the challenges it poses for the ethics of autonomy are analyzed in this perceptive work. The book defends the concept of autonomy, but argues that the standard view of autonomy as non-interference and independence has only a limited applicability for long term care. The treatment of actual autonomy stresses the developmental and social nature of human persons and the priority of identification over autonomous choice. The work balances analysis of the ethical concepts (...) associated with autonomy with discussion of the implications of the ethical analysis for long term care. A central chapter involves a phenomenological analysis of four general features of everyday experience (space, time, communication, and affectivity) and explores their practical implications for long term care. This work concludes with a discussion of the advantages associated with a phenomenologically-inspired treatment of actual autonomy for the ethics of long-term care. (shrink)
This volume addresses some of the central issues of journalism today -- the nature and needs of the individual versus the nature and needs of the broader society; theories of communitarianism versus Enlightenment liberalism; independence versus interdependence (vs. co-dependency); negative versus positive freedoms; Constitutional mandates versus marketplace mandates; universal ethical issues versus situational and/or professional values; traditional values versus information age values; ethics of management versus ethics of worker bees; commitment and compassion versus detachment and professional "distance;" conflicts of interest (...) versus conflicted disinterest; and "talking to" versus "talking with." All of these issues are discussed within the framework of the frenetic field of daily journalism--a field that operates at a pace and under a set of professional standards that all but preclude careful, systematic examinations of its own rituals and practices. The explorations presented here not only advance the enterprise, but also help student and professional observers to work through some of the most perplexing dilemmas to have faced the news media and public in recent times. This lively volume showcases the differing opinions of journalistic experts on this significant contemporary issue in public life. Unlike previous books and monographs which have tended toward unbridled enthusiasm about public journalism, and trade press articles which have tended toward pessimism, this book offers strong voices on several sides of this complex debate. To help inform the debate, a series of "voices"--journalistic interviews with practitioners and critics of public journalism -- is interspersed throughout the text. At the end of each essay, a series of quotes from a wide variety of sources -- "In other words..." -- augments each chapter with ideas and insights that support and contradict the points used by each chapter author. (shrink)
Typically, case histories are used to illustrate assertions or arguments or to stimulate debate about an issue within business ethics. This volume examines that role, illustrating the link between case histories and more general theoretical approaches to business ethics.
Today the medical community faces a number of pressing issues. Molecular and high-tech medicine, despite their tremendous successes, also burden us with new ethical dilemmas: when and how to die, whose life to preserve, whether to modify genes and to create life, and how to pay for it all. Furthermore, alternative methods appear to work at least for certain disorders. They are popular and definitely cost less, while the spiraling costs of conventional medicine have led to the development of managed (...) care and health economy assessments with controversial consequences. An international symposium in Berlin, in September 1999, sought to address some of these issues by sparking an interdisciplinary discussion gathering leading experts in the field of genetics, robotic surgery, medical ethics, preventive health and health economics, history, and law. This book contains all the contributions and seeks to involve scholars and medical practitioners who are interested in shaping the future of medicine. (shrink)
The basic relationship between people should be care, and the caring life is the highest which humans can live. Unfortunately, care that is not thoughtful slides into illegitimate intrusion on autonomy. Autonomy is a basic good, and we should not abridge it without good reason. On the other hand, it is not the only good. We must sometimes intervene in the lives of others to protect them from grave harms or provide them with important benefits. The reflective person, therefore, needs (...) guidelines for caring. Some contemporary moralists condemn paternalism categorically. This work examines weaknesses in their arguments and proposes new guidelines for paternalism, which it calls "parentalism" to avoid the patriarchal connotations of the old term. Its antiparentalism is more moderate than standard antipaternalism based on an exaggerated respect for autonomy. The work explores implications for both the personal sphere of interactions between individuals, such as friends and family members, and the public sphere of institutions, legislation, and the professional practices. (shrink)
This volume explores the focus of interest in community and the emerging theoretical opposition between communitarianism and liberalism, including the practical, theoretical and ethical issues that relate to community in the healthcare professions.
Frames of Deceit is a philosophical investigation of the nature of trust in public and private life. It examines how trust originates, how it is challenged, and how it is recovered when moral and political imperfections collide. In politics, rulers may be called upon to act badly for the sake of a political good, and in private life intimate attachments are formed in which the costs of betrayal are high. This book asks how trust is tested by human goods, moral (...) character, and power relations. It explores whether an individual's experience of betrayal differs totally from that of a community when it loses and then seeks to recover a vital public trust. Although this is a work of political philosophy it is distinctive in examining three literary texts--Sophocles' Philoctetes, Shakespeare's Troilus and Cressida, and Zola's The;rèse Raquin--in order to deepen our understanding of the place of trust in morality and politics. (shrink)
Using classical American pragmatism, the authors provide a philosophical framework for rethinking the nature of the corporation--how it is embedded in its natural, technological, cultural, and international environments, emphasizing throughout its pervasive relational and moral dimensions. They explore the relationship of this framework to other contemporary business ethics perspectives, as well as its implications for moral leadership in business and business education.
In this book, C. G. Prado addresses the difficult question of when and whether it is rational to end one’s life in order to escape devastating terminal illness. He specifically considers this question in light of the impact of multiculturalism on perceptions and judgments about what is right and wrong, permissible and impermissible. Prado introduces the idea of a “coincidental culture” to clarify the variety of values and commitments that influence decision. He also introduces the idea of a “proxy premise” (...) to deal with reasoning issues that are raised by intractably held beliefs. Primarily intended for medical ethicists, this book will be of interest to anyone concerned about the ability of modern medicine to keep people alive, thereby forcing people to choose between living and dying. In addition, Prado calls upon medical ethicists and practitioners to appreciate the value of a theoretical basis for their work. (shrink)
This is a comprehensive and practical guide to the ethical issues raised by different kinds of medical research, and is the first such book to be written with the needs of the researcher in mind. Clearly structured and written in a plain and accessible style, the book covers every significant ethical issue likely to be faced by researchers and research ethics committees. The author outlines and clarifies official guidelines, gives practical advice on how to adhere to these, and suggests procedures (...) in areas where official recommendations are vague or absent. This invaluable handbook will help researchers identify and address the ethical issues at an early stage in the design of their studies, to avoid unnecessary delay and to safeguard the wellbeing of patients and healthy volunteers. It will also be extremely useful to members of research ethics committees. (shrink)
This book is a unique collection of essays by the leading scholars in business ethics. The purpose of the volume is to examine the emergence of business ethics as an important element of managerial practice and as an integral area of scholarship. The four lead essays--by Norman Bowie, Kenneth Goodpaster, Thomas Donaldson, and Ezra Bowen--are examples of some of the best thinking about the role of ethics in business. These essays examine such issues as the nature of scholarship and knowledge (...) in business ethics, how ethics is a central factor in managerial leadership, the complexities of ethics in multinational and multicultural settings, and the problems of ethical literacy and moral debate in a free society. Each lead essay develops several themes which are then explored by other prominent thinkers, including Robert Solomon, Richard DeGeorge, and Joanne Cuilla. (shrink)