The presented article is devoted to the question of whether extended access therapy can or should be accompanied by research activity. It consists of three parts. The first lists the tasks that can be used for medical information regarding extended access programs, which leads to the conclusion that even taking into account the specific limitations of their cognitive value, this type of data can be meaningfully used. The second part is devoted to the limited regulations in European law concerning the (...) discussed issue, and the Polish Act on the Professions of Physician and Dentist which grants physicians/researchers broader powers. In the last part of the article, two arguments are presented to ethically justify the granting of such broad powers to researchers, and thus limiting the autonomy of patients. (shrink)

One of the signs of the rapid development of medical genetics is a gradual increase in the number of genetic tests available. Different aspects of this phenomenon have been addressed and debated in the source literature, but so far relatively little has been said about the obligation to provide equal access – in the social context – to selected kinds of tests. In this article, I attempt to reconstruct those few suggestions, dealing with the principles of funding genetic tests from (...) public resources, that can still be found in the source literature. Accordingly, I have analyzed the possibilities of identifying the criteria of selecting diagnostic and preventive tests to be eligible for refund, as well as of screening programmes. (shrink)

The steady growth of the number of DNA tests offered results in the discussion on the ethical aspects of these tests becoming increasingly lively and multifaceted. This text provides an overview of selected issues concerning the characteristics, protection and quality of the information acquired as a result of carrying out DNA tests. I discuss the salient points in the debates on the possibility to justify the so-called genetic exceptionalism, and the ways of specifying the scope of the principle of confidentiality (...) that protects the privacy of the information given by the subject. The final part of the article features the discussion on the importance of the possibility to use the information, acquired from these tests, in practice – for making decisions about the introduction of new kinds of tests for the clinical application. (shrink)

Tematem artykułu jest pytanie, czy będąca podmiotem autonomicznym jednostka ma prawo do niewiedzy o własnym stanie zdrowia. Punkt odniesienia dla prowadzonych rozważań stanowi klasyczny artykuł J. Harrisa i K. Keywood pt. Ignorance, Information and Autonomy i zawarte w nim stanowisko, zgodnie z którym rzekome prawo do niewiedzy jest sprzeczne z autonomią. Autorka koncentruje się na krytycznej analizie przyjętej przez wspomnianych autorów koncepcji autonomii, która prowadzi ją do wniosku, że tak rozumiana autonomia (1) nie może zostać uznana za nadrzędną wartość etyki (...) medycznej oraz (2) wyklucza podejmowane przez jej zwolenników próby ugruntowania prawa do niewiedzy w innych wartościach. W końcowych partiach tekstu autorka stara się uzasadnić tezę, iż odpowiednio sformułowana koncepcja autonomii pozwala stwierdzić, że pacjent, jako podmiot autonomiczny, pośród innych praw ma także prawo do niewiedzy o własnym stanie zdrowia. (shrink)

This book analyzes unobvious relations between historical definitions of the face and its contemporary usage in popular culture and social media, like Facebook or Instagram. Bringing together a wide range of methodologies, it includes essays from manifold disciplines of the humanities such as philosophy, literary and art criticism, media and television studies, game studies, sociology and anthropology. The authors focus on both metaphorical and material meanings of the face. They grapple with crucial questions about modernity, modern and postmodern subjectivity, as (...) well as with origins of certain linguistic terms and popular, colloquial phrases based on the concept of the face. (shrink)

Our analysis in this paper unfolds on two levels: a critique of the ‘realities’ of graduate nursing education and an argument to sustain its ‘ideals’. We open for discussion an aspect of graduate nursing education dominated by instrumental reason, namely the research industry, using an internal critique approach developed by Max Horkheimer and Theodor Adorno of the Early Frankfurt School. As we explain, internal critique arises out of, and relies on, the mismatch between goals, or ‘ideals’, and existing realities. Thinking (...) about ‘ideals’ of the academy, we draw on Hans-Georg Gadamer's view of the university as a place to think freely, creatively, and critically. The contemporary realities of the university, on the other hand, that emphasize the market values of the research industry forcefully shape nursing academic scholarship in a particular direction. In our attempt to recognize and disrupt the forces of the research industry with its instrumental reason, we consider Judith Butler's writings on how norms operate in society. We show that our growing involvement in the research industry makes it very difficult to disentangle ourselves from that situation. The values of the research industry actually suppress the very ideals of education and scholarship that we would like to uphold. As a contra-force, the internal critique of the ‘existing realities’ in the graduate nursing education unmasks the tyranny of the research industry and makes visible the importance of sustaining the higher goals and ideals in nursing scholarship. (shrink)

In a time of globally changing environments and economic challenges, many institutions of higher education are attempting to reform by promoting standardization approaches. Meaning-Centered Education explores the counter-tide for an alternative vision of education, where students and instructors engage in open meaning-making processes and self-organizing educational practices. In one contributed volume, Meaning-Centered Education provides a comprehensive introduction to current scholarship and pedagogical practice on meaning-centered education. International contributors explore how modern educational scholars and practitioners all around the world are implementing (...) a comprehensive framework that supports meaning making in a classroom. This edited collection is a valuable resource for higher education faculty and scholars interested in renewing the deep purposes of higher education. (shrink)

O mundo contemporâneo é o do exílio e não o da pátria, o da errância e não o do lugar. Razão pela qual nosso tempo foi denominado de “século breve”, em que os acontecimentos e os desaparecimentos de modos de vida e valores são acelerados, não permitindo o repouso para constituição de uma memória reparadora. Exílio, expatriamento e dispersão espacial são, pois, o emblema das migrações forçadas por guerras, perseguições políticas e diferentes formas de conflito, que produzem a “nostalgia do (...) inteiramente outro” diante da “vida mutilada”. Assim, a diferença entre duas figuras: a da viagem e a da partida, a odisseia e o êxodo, uma que vive no horizonte de um retorno, outra que anseia por uma pátria que não existe mais. A viagem contemporânea para uma terra de exílio tem algo de enigmático, pois populações inteiras atravessam os mares, assombradas pelos naufrágios e pela incerteza da chegada ou do encontro de um não lugar. Herdeiro problemático de um duplo trauma – o do extermínio dos judeus europeus durante o nazismo e, simultaneamente, o da expulsão dos palestinos de sua terra com a criação do Estado de Israel – Edward Saïd, um dos mais importantes intelectuais palestinos, refletiu sobre a questão da identidade em situações de exílio e estranhamento cultural, procedendo a uma genealogia do sentimento de desorientação, desrealização e perda de si que o exílio produz. Pois se, antes, cada um de nós tem o conforto de paisagens conhecidas, o aconchego do mundo entre os seus, o país estrangeiro representa a passagem do conhecido ao desconhecido, significa o enfrentamento de um incerto acolhimento, com incompreensões, desprezo e hostilidade do lugar a que se chegou. Reunindo, assim, sua formação de scholar em literatura nos Estados Unidos e de musicólogo e pensador geopolítico, Edward Saïd refletiu sobre a construção de um Oriente pelo Ocidente, pelo medium de escritores nos quais há a personagem fantasmada do Outro. (shrink)

In this paper, I argue that critical posthumanism is a crucial tool in nursing philosophy and scholarship. Posthumanism entails a reconsideration of what ‘human’ is and a rejection of the whole tradition founding Western life in the 2500 years of our civilization as narrated in founding texts and embodied in governments, economic formations and everyday life. Through an overview of historical periods, texts and philosophy movements, I problematize humanism, showing how it centres white, heterosexual, able‐bodied Man at the top of (...) a hierarchy of beings, and runs counter to many current aspirations in nursing and other disciplines: decolonization, antiracism, anti‐sexism and Indigenous resurgence. In nursing, the term humanism is often used colloquially to mean kind and humane; yet philosophically, humanism denotes a Western philosophical tradition whose tenets underpin much of nursing scholarship. These underpinnings of Western humanism have increasingly become problematic, especially since the 1960s motivating nurse scholars to engage with antihumanist and, recently, posthumanist theory. However, even current antihumanist nursing arguments manifest deep embeddedness in humanistic methodologies. I show both the problematic underside of humanism and critical posthumanism's usefulness as a tool to fight injustice and examine the materiality of nursing practice. In doing so, I hope to persuade readers not to be afraid of understanding and employing this critical tool in nursing research and scholarship. (shrink)

L'ouvrage présente, argumente et illustre la sémantique des possibles argumentatifs, une théorie et un modèle de fonctionnement du sens linguistique à l'interface de ses deux formes de manifestation : la signification des expressions linguistiques, en particulier des mots, et le sens discursif, produit dans et par les occurrences de parole. Cette approche, que l'auteur construit depuis une vingtaine d'années et qui a été déjà investie dans de nombreuses recherches en analyse du discours et des (inter)actions verbales, s'inscrit à la fois (...) dans la filiation des sémantiques argumentatives et dans celle des sémantiques du stéréotype, et adhère à la vision cognitiviste, expérientialiste du langage. Trois éléments polarisent dans l'ouvrage l'argumentation des apports de la théorie SPA et du modèle qu'elle habilite. Le premier pose l'hétérogénéité de la signification des mots et l'entrelacement argumentatif, d'une part, entre le noyau et l'ensemble ouvert de stéréotypes qui lui sont attachés, et, d'autre part, entre le mot et l'ensemble ouvert de ses potentialités de sens discursif. Le second concerne le potentiel du sens discursif qui déploie les significations des mots de confirmer et régénérer, ou de déconstruire et reconstruire ces significations. Le troisième est le cinétisme permanent du sens linguistique dans l'espace de rencontre des possibles argumentatifs de la signification et des déploiements discursifs de celle-ci. Le cinétisme sémantique est envisagé comme une réponse à l'injonction paradoxale du langage : contrainte du potentiel argumentatif des expressions linguistiques sur la construction du sens discursif et contrainte de celui-ci sur la (re)construction de la signification de ces expressions."--Page 4 of cover. (shrink)

Introduction: oh no, not another wellness trend! -- What is niksen? -- But what if the Dutch got it right? -- Why is niksen so hard? -- Niksen is good for you. Yes, it is -- Niksening up your life -- When niksen doesn't work -- Epilogue: creating nikstopia.

... explores the limitations of the transnationalist approach to feminism and questions the neoliberal emphasis on individual freedom and consumer choice as the central goals of feminist activism.... All chapters proceed from the belief in the continued usefulness of intersectionality as a valuable category of critical analysis that is particularly necessary at the time when the effects of neoliberal globalization are undermining many familiar categories of critical inquiry.

A leitura deste volume decerto trará novas luzes para o entendimento de temas diversos da pesquisa historiográfica, bem à feição da personalidade acadêmica da homenageada, cujo interesse plural percorre os caminhos da gramaticografia do português no Brasil, da linguística missionária, da política linguística, da edificação dos estudos linguísticos universitários, entre tantos outros que residem em sua obra. Uma última palavra de louvor a Cristina Altman, com os votos de que a aposentadoria não lhe iniba o ânimo para continuar contribuindo, com (...) o talento e a competência usuais, para a renovação permanente dos estudos linguístico-historiográficos brasileiros. Ricardo Cavaliere UFF. (shrink)

At the bedside, nurses are expected to be precise when they read indications on screens and on the bodies of patients and decide on the meaning of words framed by the context of acute care. In academia, although there is no incident report to fill when we misread or misrepresent complex philosophical ideas, the consequences of inaccurate reading include misplaced epistemological claims and poor scholarship. A long and broad convention of nursing phenomenological research, in its various forms, claims a philosophical (...) grounding in the ideas of Husserl, Heidegger, and other thinkers. But for nearly two decades, nurse phenomenologists' knowledge claims have been challenged by well‐informed criticisms, most notably by John Paley. At the heart of criticism lies an observation that Continental phenomenological thought is misrepresented in many nursing sources and that nursing phenomenology, both descriptive and interpretive, cannot appeal to the authority of either Husserl or Heidegger. Taking these criticisms seriously, I am asking, Is phenomenology after Paley possible? If misreading seems to be an issue, how can – or should – we read rigorously? My thinking through these questions is influenced by the ideas of Jacques Derrida. Under a condition of a play of language, of Derridian différance, when meaning is never self‐identical and never fully arrives, I suggest that one has to negotiate meanings through reading for differences. I develop this idea in relation to the methodological conventions of phenomenological nursing research and argue for a careful rereading of the whole field of phenomenological nursing research. Such rereading presupposes and necessitates interdisciplinary engagement between nursing and the humanities and interpretive social sciences. Greater familiarity with research practices of those disciplines that stress theoretical and writing rigour might make visible the limits of nursing research approaches and their quality criteria. An understanding of philosophical and theoretical works – a condition of quality scholarship – depends on our reading of both originary texts and contemporary literature from the humanities and the social sciences. This understanding, far from obliging researchers to always trace (often erroneously) their work to its philosophical roots, opens other, often more sound, methodological possibilities. (shrink)

Confronted with an unprecedented scale of human-induced environmental crisis, there is a need for new modes of theorizing that would abandon human exceptionalism and anthropocentrism and instead focus on developing environmentally ethical projects suitable for our times. In this paper, we offer an anti-anthropocentric project of an ethos for living in the Anthropocene. We develop it through revisiting the notion of sustainability in order to problematize the linear vision of human-centric futurity and the uniform ‘we’ of humanity upon which it (...) relies. We ground our analyses in posthumanism and material feminism, using works by posthumanist and material feminist thinkers such as Stacy Alaimo, Rosi Braidotti, Donna Haraway and Jane Bennett, among others. In dialogue with them, we offer the concept of posthuman sustainability that decenters the human, re-positions it in its ecosystem and, while remaining attentive to difference, fosters the thriving of all instances of life. (shrink)

Using the two cases of the Icelandic Health Sector Database and Russian initiatives in biobanking, the article criticizes the view of narratives and imaginaries as a sufficient and unproblematic means of shaping public understanding of genetics and justifying population-wide projects. Narrative representations of national biobanking engage particular imaginaries that are not bound by the universal normative framework of human rights, promote affective thinking, distract the public from recognizing and discussing tangible ethical and socioeconomic issues, and harm trust in science and (...) technology. In the Icelandic case, the presentation of the project in association with national imaginaries concealed its market identity and could lead to the commodification of biodata. In the Russian case, framing in terms of "genetic sovereignty" and "civilizational code" offers pretexts for state securitization. Adherence to normative framework of human rights and public discussion of genetics in an argumentative and factual mode can counter these trends. (shrink)

This article offers an anthropological perspective on autism, a condition at once neurological and social, which complements existing psychological accounts of the disorder, expanding the scope of inquiry from the interpersonal domain, in which autism has been predominantly examined, to the socio-cultural one. Persons with autism need to be viewed not only as individuals in relation to other individuals, but as members of social groups and communities who act, displaying both social competencies and difficulties, in relation to socially and culturally (...) ordered expectations of behavior. The article articulates a socio-cultural approach to perspective-taking in autism in three social domains: participating in conversational turn-taking and sequences; formulating situational scenarios; and interpreting socio-cultural meanings of indexical forms and behavior. Providing ethnographic data on the everyday lives of high-functioning children with autism and Asperger syndrome, the article outlines a cline of competence across the three domains, from most success in conversational turn-taking to least in inferring indexical meanings. Implications of these abilities and limitations are considered for theoretical approaches to society and culture, illuminating how members of social groups are at once shaped by, and are agents of, social life and cultural understanding. (shrink)

Since the beginning of signed language research, the linguistic units have been divided into conventional, standard and fixed signs, all of which were considered as the core of the language, and iconic and productive signs, put at the edge of language. In the present paper, we will review different models proposed by signed language researchers over the years to describe the signed lexicon, showing how to overcome the hierarchical division between standard and productive lexicon. Drawing from the semiotic insights of (...) Peirce we proposed to look at signs as a triadic construction built on symbolic, iconic, and indexical features. In our model, the different iconic, symbolic, and indexical features of signs are seen as the three sides of the same triangle, detectable in the single linguistic sign. The key aspect is that the dominance of the feature will determine the different use of the linguistic unit, as we will show with examples from different discourse types. (shrink)

BackgroundCurrent preimplantation genetic testing (PGT) technologies enable embryo genotyping across the whole genome. This has led to the development of polygenic risk scoring of human embryos (PGT-P). Recent implementation of PGT-P, including screening for intelligence, has been extensively covered by media reports, raising major controversy. Considering the increasing demand for assisted reproduction, we evaluated how information about PGT-P is communicated in press media and explored the diversity of ethical themes present in the public debate.MethodsLexisNexis Academic database and Google News were (...) searched to identify articles about polygenic embryo screening. This led to 535 news articles. 59 original articles met the inclusion criteria. Inductive content analysis was used to analyse these articles.Results8.8% of articles gave embryo polygenic scoring a positive portrayal, while 36.8% expressed a negative attitude. 54.4% were neutral, mostly highlighting limited practical value of the technology in in vitro fertilization settings. We identified five main ethical themes that are also present in academic literature and the broader debate on reproductive technologies: a slippery slope towards designer babies, well-being of the child and parents, impact on society, deliberate choice and societal readiness.ConclusionsImplementation of embryo polygenic profiling engenders a need for specific recommendations. Current media analysis discloses important ethical themes to consider when creating future guidelines for PGT-P. (shrink)

While the implementation of digital technology in psychiatry appears promising, there is an urgent need to address the implications of the absence of ethical design in the early development of such technologies. Some authors have noted the gap between technology development and ethical analysis and have called for an upstream examination of the ethical issues raised by digital technologies. In this paper, we address this suggestion, particularly in relation to digital healthcare technologies for patients with schizophrenia spectrum disorders. The introduction (...) of digital technologies in psychiatry offers a broad spectrum of diagnostic and treatment options tailored to the health needs and goals of patients’ care. These technologies include wearable devices, smartphone applications for high-immersive virtual realities, smart homes, telepsychiatry and messaging systems for patients in rural areas. The availability of these technologies could increase access to mental health services and improve the diagnostics of mental disorders.Additional Instruction AbstractIn this descriptive review, we systematize ethical concerns about digital technologies for mental health with a particular focus on individuals suffering from schizophrenia. There are many unsolved dilemmas and conflicts of interest in the implementation of these technologies, such as (1) the lack of evidence on efficacy and impact on self-perception; (2) the lack of clear standards for the safety of their daily implementation; (3) unclear roles of technology and a shift in the responsibilities of all parties; (4) no guarantee of data confidentiality; and (5) the lack of a user-centered design that meets the particular needs of patients with schizophrenia. mHealth can improve care in psychiatry and make mental healthcare services more efficient and personalized while destigmatizing mental health disorders. To ensure that these technologies will benefit people with mental health disorders, we need to heighten sensitivity to ethical issues among mental healthcare specialists, health policy makers, software developers, patients themselves and their proxies. Additionally, we need to develop frameworks for furthering sustainable development in the digital technologies industry and for the responsible usage of such technologies for patients with schizophrenia in the clinical setting. We suggest that digital technology in psychiatry, particularly for schizophrenia and other serious mental health disorders, should be integrated into treatment with professional supervision rather than as a self-treatment tool. (shrink)

Although epidemiology as a scientific study of disease in populations claimed an independent disciplinary status already in the mid–nineteenth century, its history in the twentieth century can be seen as a continuous and often contentious attempt to define the field’s social and intellectual boundaries vis-à-vis a variety of neighboring scientific fields and public health practices. In a period dominated by laboratory biomedical sciences, epidemiologists repeatedly tried to spell out how their discipline met the requirements of scientificity despite its focus on (...) disease as a collective phenomenon and its reliance on nonlaboratory methods. This article asks about the relationship between the changing institutional and intellectual contexts of British epidemiological practice and the epidemiologists’attempts to define both science in general and epidemiology in particular. An examination of the epidemiologists’boundary-making endeavors is also used to reflect on the circumstances in which scientists engage in the discourse of disciplinary demarcations. (shrink)

The Ukrainian–Russian conflict of 2013–2017 is characterized as ‘hybrid’ warfare, with a crucial role of informational component. Using ideological discourse analytic tools, this article demonstrates how two prominent Russian TV channels shaped the persuasive message, creating strong unity and mobilizing a high level of support among the national audience. Based on legitimation and de-legitimation patterns, Channel One and Russia-1 built ideologically polarized opposition between ‘Our’ and ‘Their’ sides of the conflict. The wide range of editorializing tools, socio-cultural and historical Soviet-time (...) constructs, and references to gay culture served to promote one group and to debase the opposition. Close institutional ties between government and media in Russia sustain multiplicity and intertextuality of ‘general line’, thus eliminating discordant interpretations. The article shows strong evidence that the analyzed TV news programs present a typical illustration of ideological discourse, exploited by the Russian government in order to achieve its political goals. (shrink)

The article analyses the relevance of Nietzsche's ideas on life and the body in the general context of the Western philosophical tradition. The author comes to the conclusion that Nietzsche's vitalism, which she interprets as a "counter-desomatisation" of a human being, has not yet lost its heuristic potential and continues to excite the philosophical conscience of new generations.

This essay explores the return of the subject in the computational context, which I address as a digital subject. This digital subject encompasses a digital identifier, correlations in data or a data profile, moving between biological characteristics and symbolic expression. I focus on the processes through which digital subjects are constructed by matching, correlating, modelling, as well as how they become enactive. The ways of pulling data together into a digital subject is often presented as a logic of fact, where (...) data is equated with documentary evidence. Instead, I propose the notion of the distance in which digital subjects are produced. Indexicality comes from outside of data, whereas the regard for the thick distance becomes a mark of the form of knowledge. I conclude by arguing for a posthumanities approach that establishes the distance while allowing for different subjects to be called upon. (shrink)

Experience-dependent neural plasticity is high in the developing brain, presenting a unique window of opportunity for training. To optimize existing training programs and develop new interventions, it is important to understand what processes take place in the developing brain during training. Here, we systematically review MRI-based evidence of training-induced neural plasticity in children and adolescents. A total of 71 articles were included in the review. Significant changes in brain activation, structure, microstructure, and structural and functional connectivity were reported with different (...) types of trainings in the majority of the studies. Significant correlation of performance improvement with neural changes was reported in 51% of the studies. Yet, only 48% of the studies had a control condition. Overall, the review supports the hypothesized neural changes with training while at the same time charting empirical and methodological desiderata for future research. (shrink)

Dans le champ de la linguistique francaise, Olga Galatanu est de ceux qui ont muni l'analyse du discours et des interactions verbales d'un modele semantique de description. La Semantique des Possibles Argumentatifs qu'elle developpe depuis une vingtaine d'annees adhere aux visions argumentative, stereotypique, referentielle, cognitiviste de la langue, et s'attache a rendre compte de la construction des representations en langue et en discours.<BR> Les articles que ses collaborateurs et amis lui offrent dans ce volume se rapportent de pres ou (...) de loin a la SPA. Certains en partagent les postulats: sens referentiel et denomination, interfaces semantique-syntaxe et semantique-pragmatique, construction discursive du sens, valeurs; d'autres reprennent et developpent des elements specifiques de la SPA: possibles argumentatifs, deploiements argumentatifs, modalites; d'autres encore montrent les convergences et complementarites entre la SPA et des theories voisines.<BR> Les analyses portent notamment sur l'attitude metalinguistique des locuteurs, la malleabilite semantique des mots, la negociation des sens et des valeurs, les principes et strategies discursives qui regulent la communication, l'heterogeneite discursive, la presentation de soi, la construction d'objets discursifs, les actes de langage indirects, etc.". (shrink)

This article addresses the issue of how team identity is constructed between two people during a series of regular meetings of a work group in Serbia. Using conversation analysis to investigate social actions, this study looks at the recurrent construction of an implicit team identity by focusing on management of speaking rights and co-construction of units, and displays of knowledge and accountability. With its longitudinal perspective, the article contributes to the existing body of research on teams in interaction in general, (...) as it builds upon previous research on interactional parties and conjoined participation. The results are especially relevant for the investigations of teams in meetings, as they provide evidence of how formal features of interaction are recurrently employed to display institutionally relevant epistemics and accountability. (shrink)