BMC Medical Ethics

ISSN: 1472-6939

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  1.  8
    Cross-cultural perspectives on intelligent assistive technology in dementia care: comparing Israeli and German experts’ attitudes.Hanan AboJabel, Johannes Welsch & Silke Schicktanz - 2024 - BMC Medical Ethics 25 (1):1-13.
    Background Despite the great benefits of intelligent assistive technology (IAT) for dementia care – for example, the enhanced safety and increased independence of people with dementia and their caregivers – its practical adoption is still limited. The social and ethical issues pertaining to IAT in dementia care, shaped by factors such as culture, may explain these limitations. However, most studies have focused on understanding these issues within one cultural setting only. Therefore, the aim of this study was to explore and (...)
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  2.  10
    Evaluating the understanding of the ethical and moral challenges of Big Data and AI among Jordanian medical students, physicians in training, and senior practitioners: a cross-sectional study.Abdallah Al-Ani, Abdallah Rayyan, Ahmad Maswadeh, Hala Sultan, Ahmad Alhammouri, Hadeel Asfour, Tariq Alrawajih, Sarah Al Sharie, Fahed Al Karmi, Ahmad Azzam, Asem Mansour & Maysa Al-Hussaini - 2024 - BMC Medical Ethics 25 (1):1-14.
    Aims To examine the understanding of the ethical dilemmas associated with Big Data and artificial intelligence (AI) among Jordanian medical students, physicians in training, and senior practitioners. Methods We implemented a literature-validated questionnaire to examine the knowledge, attitudes, and practices of the target population during the period between April and August 2023. Themes of ethical debate included privacy breaches, consent, ownership, augmented biases, epistemology, and accountability. Participants’ responses were showcased using descriptive statistics and compared between groups using t-test or ANOVA. (...)
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  3.  2
    Correction to: Evaluating the understanding of the ethical and moral challenges of Big Data and AI among Jordanian medical students, physicians in training, and senior practitioners: a cross-sectional study.Abdallah Al-Ani, Abdallah Rayyan, Ahmad Maswadeh, Hala Sultan, Ahmad Alhammouri, Hadeel Asfour, Tariq Alrawajih, Sarah Al Sharie, Fahed Al Karmi, Ahmed Mahmoud Al-Azzam, Asem Mansour & Maysa Al-Hussaini - 2024 - BMC Medical Ethics 25 (1):1-1.
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  4.  4
    The role of bioethics services in paediatric intensive care units: a qualitative descriptive study.Denise Alexander, Mary Quirke, Jo Greene, Lorna Cassidy, Carol Hilliard & Maria Brenner - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background There is considerable variation in the functionality of bioethical services in different institutions and countries for children in hospital, despite new challenges due to increasing technology supports for children with serious illness and medical complexity. We aimed to understand how bioethics services address bioethical concerns that are increasingly encountered in paediatric intensive care. Methods A qualitative descriptive design was used to describe clinician’s perspectives on the functionality of clinical bioethics services for paediatric intensive care units. Clinicians who were members (...)
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  5.  6
    Moral approval of xenotransplantation in Egypt: associations with religion, attitudes towards animals and demographic factors.Gabriel Andrade, Eid AboHamza, Yasmeen Elsantil, AlaaEldin Ayoub & Dalia Bedewy - 2024 - BMC Medical Ethics 25 (1):1-15.
    Xenotransplantation has great potential as an alternative to alleviate the shortage of organs for donation. However, given that the animal most suited for xenotransplantation is the pig, there are concerns that people in Muslim countries may be more hesitant to morally approve of these procedures. In this study, the moral approval of xenotransplantation was assessed in a group of 895 participants in Egypt. The results showed that religiosity itself does not predict moral approval of xenotransplantation, but religious identity does, as (...)
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  6.  10
    Integrating ethics in AI development: a qualitative study.Laura Arbelaez Ossa, Giorgia Lorenzini, Stephen R. Milford, David Shaw, Bernice S. Elger & Michael Rost - 2024 - BMC Medical Ethics 25 (1):1-11.
    Background While the theoretical benefits and harms of Artificial Intelligence (AI) have been widely discussed in academic literature, empirical evidence remains elusive regarding the practical ethical challenges of developing AI for healthcare. Bridging the gap between theory and practice is an essential step in understanding how to ethically align AI for healthcare. Therefore, this research examines the concerns and challenges perceived by experts in developing ethical AI that addresses the healthcare context and needs. Methods We conducted semi-structured interviews with 41 (...)
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  7.  5
    Ethical use of artificial intelligence to prevent sudden cardiac death: an interview study of patient perspectives.Marieke A. R. Bak, Georg L. Lindinger, Hanno L. Tan, Jeannette Pols, Dick L. Willems, Ayca Koçar & Menno T. Maris - 2024 - BMC Medical Ethics 25 (1):1-15.
    BackgroundThe emergence of artificial intelligence (AI) in medicine has prompted the development of numerous ethical guidelines, while the involvement of patients in the creation of these documents lags behind. As part of the European PROFID project we explore patient perspectives on the ethical implications of AI in care for patients at increased risk of sudden cardiac death (SCD).AimExplore perspectives of patients on the ethical use of AI, particularly in clinical decision-making regarding the implantation of an implantable cardioverter-defibrillator (ICD).MethodsSemi-structured, future scenario-based (...)
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  8.  6
    A bioethical perspective on the meanings behind a wish to hasten death: a meta-ethnographic review.Paulo J. Borges, Pablo Hernández-Marrero & Sandra Martins Pereira - 2024 - BMC Medical Ethics 25 (1):1-35.
    Background The expressions of a “wish to hasten death” or “wish to die” raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the “wish to hasten death/die” based specifically on the ethical principles of autonomy, dignity, and vulnerability. The aim of this review is to understand if and (...)
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  9.  7
    Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France.Hilary Bowman-Smart, Adeline Perrot & Ruth Horn - 2024 - BMC Medical Ethics 25 (1):1-13.
    Background Non-invasive prenatal testing (NIPT), which can screen for aneuploidies such as trisomy 21, is being implemented in several public healthcare systems across Europe. Comprehensive communication and information have been highlighted in the literature as important elements in supporting women’s reproductive decision-making and addressing relevant ethical concerns such as routinisation. Countries such as England and France are adopting broadly similar implementation models, offering NIPT for pregnancies with high aneuploidy probability. However, we do not have a deeper understanding of how professionals’ (...)
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  10.  4
    How stable are moral judgements? A longitudinal study of context dependency in attitudes towards patient responsibility.Berit H. Bringedal & Karin Isaksson Rø - 2024 - BMC Medical Ethics 25 (1):1-9.
    Background Whether patients' life-style should involve lower priority for treatment is a controversial question in bioethics. Less is known about clinicians' views. Aim To study how clinical doctors' attitudes to questions of patient responsibility and priority vary over time. Method Surveys of doctors in Norway in 2008, 2014, 2021. Questionnaires included statements about patients' lifestyle's significance for priority to care, and vignettes of priority cases (only in 2014). Results Attitudes were fairly stable between 2008 and 2021. 17%/14% agreed that patients' (...)
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  11.  6
    What are the views of Quebec and Ontario citizens on the tiebreaker criteria for prioritizing access to adult critical care in the extreme context of a COVID-19 pandemic?Claudia Calderon Ramirez, Yanick Farmer, Andrea Frolic, Gina Bravo, Nathalie Orr Gaucher, Antoine Payot, Lucie Opatrny, Diane Poirier, Joseph Dahine, Audrey L’Espérance, James Downar, Peter Tanuseputro, Louis-Martin Rousseau, Vincent Dumez, Annie Descôteaux, Clara Dallaire, Karell Laporte & Marie-Eve Bouthillier - 2024 - BMC Medical Ethics 25 (1):1-14.
    Background The prioritization protocols for accessing adult critical care in the extreme pandemic context contain tiebreaker criteria to facilitate decision-making in the allocation of resources between patients with a similar survival prognosis. Besides being controversial, little is known about the public acceptability of these tiebreakers. In order to better understand the public opinion, Quebec and Ontario’s protocols were presented to the public in a democratic deliberation during the summer of 2022. Objectives (1) To explore the perspectives of Quebec and Ontario (...)
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  12.  2
    Oncologists’ perspective on advance directives, a French national prospective cross-sectional survey – the ADORE study.Amélie Cambriel, Kevin Serey, Adrien Pollina-Bachellerie, Mathilde Cancel, Morgan Michalet, Jacques-Olivier Bay, Carole Bouleuc, Jean-Pierre Lotz & Francois Philippart - 2024 - BMC Medical Ethics 25 (1):1-10.
    Background The often poor prognosis associated with cancer necessitates empowering patients to express their care preferences. Yet, the prevalence of Advance Directives (AD) among oncology patients remains low. This study investigated oncologists' perspectives on the interests and challenges associated with implementing AD. Methods A French national online survey targeting hospital-based oncologists explored five areas: AD information, writing support, AD usage, personal perceptions of AD's importance, and respondent's profile. The primary outcome was to assess how frequently oncologists provide patients with information (...)
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  13.  18
    Perceptions of COVID-19 patients in the use of bioethical principles and the physician-patient relationship: a qualitative approach.Guillermo Cantú Quintanilla, Irma Eloisa Gómez-Guerrero, Nuria Aguiñaga-Chiñas, Mariana López Cervantes, Ignacio David Jaramillo Flores, Pedro Alonso Slon Rodríguez, Carlos Francisco Bravo Vargas, America Arroyo-Valerio & María del Carmen García-Higuera - 2024 - BMC Medical Ethics 25 (1):1-9.
    Background The COVID-19 pandemic has influenced the approach to the health-disease system, raising the question about the principles of bioethics present in physician–patient relations. The principles while widely accepted may not be sufficient for a comprehensive ethical analysis. Therefore, the aim of this study was to explore the perception of these principles and the physician–patient relationship during a hospital stay through a qualitative approach. Method Sixteen semi-structured interviews took place to know the patients’ perception during their 2020 hospitalization for COVID-19. (...)
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  14.  3
    An empirical ethics study of the coherence of NICE technology appraisal policy and its implications for moral justification.Victoria Charlton & Michael DiStefano - 2024 - BMC Medical Ethics 25 (1):1-22.
    Background As the UK’s main healthcare priority-setter, the National Institute for Health and Care Excellence (NICE) has good reason to want to demonstrate that its decisions are morally justified. In doing so, it has tended to rely on the moral plausibility of its principle of cost-effectiveness and the assertion that it has adopted a fair procedure. But neither approach provides wholly satisfactory grounds for morally defending NICE’s decisions. In this study we adopt a complementary approach, based on the proposition that (...)
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  15.  15
    A scoping review of the ethical impacts of international medical electives on local students and patient care.Magdalena Chmura & Shobhana Nagraj - 2024 - BMC Medical Ethics 25 (1):1-8.
    Background International electives are often considered a valuable learning opportunity for medical students. Yet, as travelling to lower and middle income countries (LMICs) becomes more common, ethical considerations of such practices emerge. We conducted a scoping review to assess the extent to which five ethical themes were addressed in existing literature about electives, with the aim of investigating the ethical impacts of medical student electives on local resources, patients and clinicians in LMICs. Methods We systematically searched PubMed, Global Health and (...)
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  16.  6
    Understanding drug exceptional access programs (DEAPs) in Canada, and their associated social and political issues.Pierre-Marie David, Kayley Laura Lata, Marie-Eve Bouthillier & Jean-Christophe Bélisle-Pipon - 2024 - BMC Medical Ethics 25 (1):1-7.
    Drug exceptional access programs (DEAPs) exist across Canada to address gaps in access to pharmaceuticals. These programs circumvent standard procedures, raising epistemic, economic, social and political issues. This commentary provides insights into these issues by revealing the context and procedures on which these programs depend.
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  17.  13
    AI-driven decision support systems and epistemic reliance: a qualitative study on obstetricians’ and midwives’ perspectives on integrating AI-driven CTG into clinical decision making.Rachel Dlugatch, Antoniya Georgieva & Angeliki Kerasidou - 2024 - BMC Medical Ethics 25 (1):1-11.
    Background Given that AI-driven decision support systems (AI-DSS) are intended to assist in medical decision making, it is essential that clinicians are willing to incorporate AI-DSS into their practice. This study takes as a case study the use of AI-driven cardiotography (CTG), a type of AI-DSS, in the context of intrapartum care. Focusing on the perspectives of obstetricians and midwives regarding the ethical and trust-related issues of incorporating AI-driven tools in their practice, this paper explores the conditions that AI-driven CTG (...)
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  18.  3
    Questionable research practices of medical and dental faculty in Pakistan – a confession.Ayesha Fahim, Aysha Sadaf, Fahim Haider Jafari, Kashif Siddique & Ahsan Sethi - 2024 - BMC Medical Ethics 25 (1):1-8.
    Purpose Intellectual honesty and integrity are the cornerstones of conducting any form of research. Over the last few years, scholars have shown great concerns over questionable research practices (QRPs) in academia. This study aims to investigate the questionable research practices amongst faculty members of medical and dental colleges in Pakistan. Method A descriptive multi-institutional online survey was conducted from June-August 2022. Based on previous studies assessing research misconduct, 43 questionable research practices in four domains: Data collection & storage, Data analysis, (...)
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  19.  6
    How patients experience respect in healthcare: findings from a qualitative study among multicultural women living with HIV.Sofia B. Fernandez, Alya Ahmad, Mary Catherine Beach, Melissa K. Ward, Michele Jean-Gilles, Gladys Ibañez, Robert Ladner & Mary Jo Trepka - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background Respect is essential to providing high quality healthcare, particularly for groups that are historically marginalized and stigmatized. While ethical principles taught to health professionals focus on patient autonomy as the object of respect for persons, limited studies explore patients’ views of respect. The purpose of this study was to explore the perspectives of a multiculturally diverse group of low-income women living with HIV (WLH) regarding their experience of respect from their medical physicians. Methods We analyzed 57 semi-structured interviews conducted (...)
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  20.  8
    Ethics rounds in the ambulance service: a qualitative evaluation.Catharina Frank, Andreas Rantala, Anders Svensson, Anders Sterner, Jessica Green, Anders Bremer & Bodil Holmberg - 2024 - BMC Medical Ethics 25 (1):1-10.
    Background It is a common ethical challenge for ambulance clinicians to care for patients with impaired decision-making capacities while assessing and determining the degree of decision-making ability and considering ethical values. Ambulance clinicians’ ethical competence seems to be increasingly important in coping with such varied ethical dilemmas. Ethics rounds is a model designed to promote the development of ethical competence among clinicians. While standard in other contexts, to the best of our knowledge, it has not been applied within the ambulance (...)
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  21.  13
    Ethics of early detection of disease risk factors: A scoping review.Sammie N. G. Jansen, Bart A. Kamphorst, Bob C. Mulder, Irene van Kamp, Sandra Boekhold, Peter van den Hazel & Marcel F. Verweij - 2024 - BMC Medical Ethics 25 (1):1-16.
    Background Scientific and technological advancements in mapping and understanding the interrelated pathways through which biological and environmental exposures affect disease development create new possibilities for detecting disease risk factors. Early detection of such risk factors may help prevent disease onset or moderate the disease course, thereby decreasing associated disease burden, morbidity, and mortality. However, the ethical implications of screening for disease risk factors are unclear and the current literature provides a fragmented and case-by-case picture. Methods To identify key ethical considerations (...)
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  22.  6
    Conscientious objection and barriers to abortion within a specific regional context - an expert interview study.Robin Krawutschke, Tania Pastrana & Dagmar Schmitz - 2024 - BMC Medical Ethics 25 (1):1-9.
    Background While most countries that allow abortion on women’s request also grant physicians a right to conscientious objection (CO), this has proven to constitute a potential barrier to abortion access. Conscientious objection is regarded as an understudied phenomenon the effects of which have not yet been examined in Germany. Based on expert interviews, this study aims to exemplarily reconstruct the processes of abortion in a mid-sized city in Germany, and to identify potential effects of conscientious objection. Methods Five semi-structured interviews (...)
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  23.  7
    The Diversity Compass: a clinical ethics support instrument for dialogues on diversity in healthcare organizations.Charlotte Kröger, Bert Molewijk, Maaike Muntinga & Suzanne Metselaar - 2024 - BMC Medical Ethics 25 (1):1-14.
    Background Increasing social pluralism adds to the already existing variety of heterogeneous moral perspectives on good care, health, and quality of life. Pluralism in social identities is also connected to health and care disparities for minoritized patient (i.e. care receiver) populations, and to specific diversity-related moral challenges of healthcare professionals and organizations that aim to deliver diversity-responsive care in an inclusive work environment. Clinical ethics support (CES) services and instruments may help with adequately responding to these diversity-related moral challenges. However, (...)
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  24.  5
    Ethical challenges in global research on health system responses to violence against women: a qualitative study of policy and professional perspectives.Natalia V. Lewis, Beatriz Kalichman, Yuri Nishijima Azeredo, Loraine J. Bacchus & Ana Flavia D’Oliveira - 2024 - BMC Medical Ethics 25 (1):1-16.
    Background Studying global health problems requires international multidisciplinary teams. Such multidisciplinarity and multiculturalism create challenges in adhering to a set of ethical principles across different country contexts. Our group on health system responses to violence against women (VAW) included two universities in a European high-income country (HIC) and four universities in low-and middle-income countries (LMICs). This study aimed to investigate professional and policy perspectives on the types, causes of, and solutions to ethical challenges specific to the ethics approval stage of (...)
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  25.  8
    Analyzing the composition of the editorial boards in high-impact medical ethics journals: a survey study.Wei Li, Xiyan Zhao, Tianlin Wen, Xingxuan Li, Donghua Liu & Zhiwei Jia - 2024 - BMC Medical Ethics 25 (1):1-8.
    BackgroundThe underrepresentation of scholarly works from low- and middle-income countries (LMICs) in academic literature is a documented concern, attributed partly to editorial biases. This trend, prevalent across various disciplines, has been less explored in the context of medical ethics journals. This study aimed to examine the composition of editorial board members (EBM) in high-impact medical ethics journals and to evaluate the extent of international diversity within these editorial teams.MethodsThis study incorporated an analysis of 16 high-impact medical ethics journals. Information regarding (...)
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  26.  4
    A QALY is [still] a QALY is [still] a QALY?Hamideh Mahdiani, Nikolai Münch & Norbert W. Paul - 2024 - BMC Medical Ethics 25 (1):1-6.
    Despite clinical evidence of drug superiority, therapeutic modalities, like combination immunotherapy, are mostly considered cost-ineffective due to their high costs per life year(s) gained. This paper, taking an ethical stand, reevaluates the standard cost-effectiveness analysis with that of the more recent justice-enhanced methods and concludes by pointing out the shortcomings of the current methodologies.
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  27.  7
    Layered vulnerability and researchers’ responsibilities: learning from research involving Kenyan adolescents living with perinatal HIV infection.Vicki Marsh, Amina Abubakar, Maureen Kelley, Alun Davies, Rita Njeru, Gladys Sanga, Scholastica M. Zakayo, Anderson Charo, Sassy Molyneux & Mary Kimani - 2024 - BMC Medical Ethics 25 (1):1-20.
    BackgroundCarefully planned research is critical to developing policies and interventions that counter physical, psychological and social challenges faced by young people living with HIV/aids, without increasing burdens. Such studies, however, must navigate a ‘vulnerability paradox’, since including potentially vulnerable groups also risks unintentionally worsening their situation. Through embedded social science research, linked to a cohort study involving Adolescents Living with HIV/aids (ALH) in Kenya, we develop an account of researchers’ responsibilities towards young people, incorporating concepts of vulnerability, resilience, and agency (...)
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  28.  15
    Correction to: Mapping trust relationships in organ donation and transplantation: a conceptual model.María Victoria Martínez-López, Leah McLaughlin, Alberto Molina-Pérez, Krzysztof Pabisiak, Nadia Primc, Gurch Randhawa, David Rodríguez-Arias, Jorge Suárez, Sabine Wöhlke & Janet Delgado - 2024 - BMC Medical Ethics 25 (1):1-2.
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  29.  10
    “That’s just Future Medicine” - a qualitative study on users’ experiences of symptom checker apps.Regina Müller, Malte Klemmt, Roland Koch, Hans-Jörg Ehni, Tanja Henking, Elisabeth Langmann, Urban Wiesing & Robert Ranisch - 2024 - BMC Medical Ethics 25 (1):1-19.
    Background Symptom checker apps (SCAs) are mobile or online applications for lay people that usually have two main functions: symptom analysis and recommendations. SCAs ask users questions about their symptoms via a chatbot, give a list with possible causes, and provide a recommendation, such as seeing a physician. However, it is unclear whether the actual performance of a SCA corresponds to the users’ experiences. This qualitative study investigates the subjective perspectives of SCA users to close the empirical gap identified in (...)
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  30.  10
    Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda.Harriet Nankya, Edward Wamala, Vincent Pius Alibu & John Barugahare - 2024 - BMC Medical Ethics 25 (1):1-13.
    Background Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR. Aim To assess the perspectives of genetics and genomics researchers in Uganda on CE (...)
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  31.  1
    Attitudes of the Portuguese population towards advance directives: an online survey.Rui Nunes, Luísa Castro & João Carlos Macedo - 2024 - BMC Medical Ethics 25 (1):1-10.
    BackgroundAdvance directives (ADs) were implemented in Portugal in 2012. Although more than a decade has passed since Law 25/2012 came into force, Portuguese people have very low levels of adherence. In this context, this study aimed to identify and analyse the attitudes of people aged 18 or older living in Portugal towards ADs and to determine the relationships between sociodemographic variables (gender/marital status/religion/level of education/residence/whether they were a health professional/whether they had already drawn up a living will) and people’s attitudes (...)
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  32.  3
    Physicians’ views on the role of relatives in euthanasia and physician-assisted suicide decision-making: a mixed-methods study among physicians in the Netherlands.H. Roeline Pasman, Agnes van der Heide, Bregje D. Onwuteaka-Philipsen & Sophie C. Renckens - 2024 - BMC Medical Ethics 25 (1):1-14.
    BackgroundRelatives have no formal position in the practice of euthanasia and physician-assisted suicide (EAS) according to Dutch legislation. However, research shows that physicians often involve relatives in EAS decision-making. It remains unclear why physicians do (not) want to involve relatives. Therefore, we examined how many physicians in the Netherlands involve relatives in EAS decision-making and explored reasons for (not) involving relatives and what involvement entails.MethodsIn a mixed-methods study, 746 physicians (33% response rate) completed a questionnaire, and 20 were interviewed. The (...)
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  33.  15
    Culturally appropriate consent processes for community-driven indigenous child health research: a scoping review.Cindy Peltier, Sarah Dickson, Viviane Grandpierre, Irina Oltean, Lorrilee McGregor, Emilie Hageltorn & Nancy L. Young - 2024 - BMC Medical Ethics 25 (1):1-12.
    Background Current requirements for ethical research in Canada, specifically the standard of active or signed parental consent, can leave Indigenous children and youth with inequitable access to research opportunities or health screening. Our objective was to examine the literature to identify culturally safe research consent processes that respect the rights of Indigenous children, the rights and responsibilities of parents or caregivers, and community protocols. Methods We followed PRISMA guidelines and Arksey and O’Malley’s approach for charting and synthesizing evidence. We searched (...)
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  34.  8
    Towards the implementation of law n. 219/2017 on informed consent and advance directives for patients with psychiatric disorders and dementia. Physicians’ knowledge, attitudes and practices in four northern Italian health care facilities. [REVIEW]Corinna Porteri, Giulia Ienco, Mariassunta Piccinni & Patrizio Pasqualetti - 2024 - BMC Medical Ethics 25 (1):1-11.
    Background On December 2017 the Italian Parliament approved law n. 219/2017 “Provisions for informed consent and advance directives” regarding challenging legal and bioethical issues related to healthcare decisions and end-of life choices. The law promotes the person’s autonomy as a right and provides for the centrality of the individual in every scenario of health care by mean of three tools: informed consent, shared care planning and advance directives. Few years after the approval of the law, we conducted a survey among (...)
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  35.  6
    Knowledge, attitudes, and practices of the ethics in medical research among Moroccan interns and resident physicians.Karima El Rhazi, Tarik Sqalli Houssaini, Mohammed Faouzi Belahsen, Moustapha Hida, Nabil Tachfouti, Soumaya Benmaamar & Ibtissam El Harch - 2024 - BMC Medical Ethics 25 (1):1-9.
    BackgroundIn Morocco, medical research ethics training was integrated into the medical curriculum during the 2015 reform. In the same year, a law on medical research ethics was enacted to protect individuals participating in medical research. These improvements, whether in the reform or in the enactment of the law, could positively impact the knowledge of these researchers and, consequently, their attitudes and practices regarding medical research ethics. The main objective of this work is to assess Moroccan physicians’ knowledge, attitudes, and practices (...)
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  36.  6
    Measuring moral distress in health professionals using the MMD-HP-SPA scale.Manuel Romero-Saldaña, Manuel Lopez-Valero, Alejandro Gomez-Carranza, Dolores Aguilera-Lopez, Jaime Boceta-Osuna, Cristina M. Beltran-Aroca & Eloy Girela-Lopez - 2024 - BMC Medical Ethics 25 (1):1-12.
    BackgroundMoral distress (MD) is the psychological damage caused when people are forced to witness or carry out actions which go against their fundamental moral values. The main objective was to evaluate the prevalence and predictive factors associated with MD among health professionals during the pandemic and to determine its causes.MethodsA regional, observational and cross-sectional study in a sample of 566 professionals from the Public Health Service of Andalusia (68.7% female; 66.9% physicians) who completed the MMD-HP-SPA scale to determine the level (...)
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  37.  12
    Cross-sectional analysis of financial relationships between board certified allergists and the pharmaceutical industry in Japan.Yuki Senoo & Anju Murayama - 2024 - BMC Medical Ethics 25 (1):1-9.
    BackgroundFinancial interactions between pharmaceutical companies and physicians lead to conflicts of interest. This study examines the extent and trends of non-research payments made by pharmaceutical companies to board-certified allergists in Japan between 2016 and 2020.MethodsA retrospective analysis of disclosed payment data from pharmaceutical companies affiliated with the Japanese Pharmaceutical Manufacturers Association was conducted. The study focused on non-research payments for lecturing, consulting, and manuscript drafting made to board-certified allergists from 2016 to 2020. We performed descriptive analyses on payment data. Trends (...)
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  38.  6
    Ethical dilemmas in prioritizing patients for scarce radiotherapy resources.Cyprien Shyirambere, Vincent K. Cubaka, Scott A. Triedman, Lawrence N. Shulman, Katherine Van Loon, Nicaise Nsabimana, Jean Bosco Bigirimana, Grace Umutesi, Cam Nguyen, Espérance Mutoniwase, Anita Ho & Rebecca J. DeBoer - 2024 - BMC Medical Ethics 25 (1):1-11.
    BackgroundRadiotherapy is an essential component of cancer treatment, yet many countries do not have adequate capacity to serve all patients who would benefit from it. Allocation systems are needed to guide patient prioritization for radiotherapy in resource-limited contexts. These systems should be informed by allocation principles deemed relevant to stakeholders. This study explores the ethical dilemmas and views of decision-makers engaged in real-world prioritization of scarce radiotherapy resources at a cancer center in Rwanda in order to identify relevant principles.MethodsSemi-structured interviews (...)
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  39.  7
    “She was finally mine”: the moral experience of families in the context of trisomy 13 and 18– a scoping review with thematic analysis. [REVIEW]Maxwell J. Smith, Randi Zlotnik Shaul, Gail Teachman & Zoe Ritchie - 2024 - BMC Medical Ethics 25 (1):1-20.
    IntroductionThe value of a short life characterized by disability has been hotly debated in the literature on fetal and neonatal outcomes.MethodsWe conducted a scoping review to summarize the available empirical literature on the experiences of families in the context of trisomy 13 and 18 (T13/18) with subsequent thematic analysis of the 17 included articles.FindingsThemes constructed include (1) Pride as Resistance, (2) Negotiating Normalcy and (3) The Significance of Time.InterpretationOur thematic analysis was guided by the moral experience framework conceived by Hunt (...)
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  40.  7
    Comprehension of informed consent and voluntary participation in registration cohorts for phase IIb HIV vaccine trial in Dar Es Salaam, Tanzania: a qualitative descriptive study.Edith A. M. Tarimo & Masunga K. Iseselo - 2024 - BMC Medical Ethics 25 (1):1-13.
    BackgroundInformed consent as stipulated in regulatory human research guidelines requires volunteers to be well-informed about what will happen to them in a trial. However, researchers may be faced with the challenge of how to ensure that a volunteer agreeing to take part in a clinical trial is truly informed. This study aimed to find out volunteers’ comprehension of informed consent and voluntary participation in Human Immunodeficiency Virus (HIV) clinical trials during the registration cohort.MethodsWe conducted a qualitative study among volunteers who (...)
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  41.  5
    Understanding, being, and doing of bioethics; a state-level cross-sectional study of knowledge, attitude, and practice among healthcare professionals.Poovishnu Devi Thangavelu, Balamurugan Janakiraman, Renuka Pawar, Pravin H. Shingare, Suresh Bhosale, Russel D. Souza, Ivone Duarte & Rui Nunes - 2024 - BMC Medical Ethics 25 (1):1-13.
    Background The field of bioethics examines the moral and ethical dilemmas that arise in the biological sciences, healthcare, and medical practices. There has been a rise in medical negligence cases, complaints against healthcare workers, and public dissatisfaction with healthcare professionals, according to reports from the Indian Medical Council and other healthcare associations. We intend to assess the level of knowledge, attitude, and practice of bioethics among the registered healthcare professionals (HCPs) of Maharashtra, India. Methods A State-level online survey was conducted (...)
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  42.  6
    Compliance with research ethics in epidemiological studies targeted to conflict-affected areas in Western Ethiopia: validity of informed consent (VIC) by information comprehension and voluntariness (ICV).Nicki Tiffin, Anja Bedeker, Michelle Nichols, Lami Bayisa, Eba Abdisa, Bizuneh Wakuma, Mekdes Yilma & Gemechu Tiruneh - 2024 - BMC Medical Ethics 25 (1):1-9.
    BackgroundThe conduct of research is critical to advancing human health. However, there are issues of ethical concern specific to the design and conduct of research in conflict settings. Conflict-affected countries often lack strong platform to support technical guidance and monitoring of research ethics, which may lead to the use of divergent ethical standards some of which are poorly elaborated and loosely enforced. Despite the growing concern about ethical issues in research, there is a dearth of information about ethical compliance in (...)
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  43.  5
    Exploring health and disease concepts in healthcare practice: an empirical philosophy of medicine study.Rik R. van der Linden & Maartje H. N. Schermer - 2024 - BMC Medical Ethics 25 (1):1-15.
    In line with recent proposals for experimental philosophy and philosophy of science in practice, we propose that the philosophy of medicine could benefit from incorporating empirical research, just as bioethics has. In this paper, we therefore take first steps towards the development of an empirical philosophy of medicine, that includes investigating practical and moral dimensions. This qualitative study gives insight into the views and experiences of a group of various medical professionals and patient representatives regarding the conceptualization of health and (...)
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  44.  9
    Family roles in informed consent from the perspective of young Chinese doctors: a questionnaire study.Hanhui Xu & Mengci Yuan - 2024 - BMC Medical Ethics 25 (1):1-10.
    Background Based on the principle of informed consent, doctors are required to fully inform patients and respect their medical decisions. In China, however, family members usually play a special role in the patient’s informed consent, which creates a unique “doctor-family-patient” model of the physician-patient relationship. Our study targets young doctors to investigate the ethical dilemmas they may encounter in such a model, as well as their attitudes to the family roles in informed consent. Methods A questionnaire was developed including general (...)
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