American Journal of Bioethics

ISSNs: 1526-5161, 1536-0075

270 found

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  1.  5
    In Their Own Image: Ethical Implications of the Rise of Digital Twins/Clones/Simulacra in Healthcare.Benjamin Amram, Uri Klempner, Yehuda Leibler & Dov Greenbaum - 2023 - American Journal of Bioethics 23 (9):79-81.
    Bioconvergence is a growing area within the evolving bioeconomy that seeks out synergistic opportunities at the intersection of engineering and the life sciences (Greenbaum 2023). One example is th...
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  2.  6
    Preventing the Slide down the Slippery Slope from Assisted Suicide to Euthanasia While Protecting the Rights of People with Disabilities Who Are “Not Dead Yet.”.George J. Annas & Heidi B. Kummer - 2023 - American Journal of Bioethics 23 (9):20-22.
    Since at least the advent of Jack Kevorkian’s “suicide machine” the major argument against adopting physician-assisted suicide laws has been that they will lead us down a slippery slope to state-sa...
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  3.  6
    Distinguishing “Reasonable Accommodation” From Physical Assistance in Aid-in-Dying.Isabel Astrachan & Benjamin E. Berkman - 2023 - American Journal of Bioethics 23 (9):28-30.
    Shavelson et al. (2023) identify an important problem in their Target article: a significant number of terminally ill patients with impaired motor function are wrongfully excluded from receiving ai...
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  4.  11
    Individuals and (Synthetic) Data Points: Using Value-Sensitive Design to Foster Ethical Deliberations on Epistemic Transitions.Jean-Christophe Bélisle-Pipon, Vardit Ravitsky, Bridge2AI-Voice Consortium & Yael Bensoussan - 2023 - American Journal of Bioethics 23 (9):69-72.
    Cho and Martinez-Martin (2023) provide a compelling critique of the profound influence that data sourcing for artificial intelligence (AI) has on the healthcare sector. They emphasize the need for...
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  5.  5
    Digital Simulacra, Bias, and Self-Reinforcing Exclusion Cycles.Ana Bracic & I. I. W. Nicholson Price - 2023 - American Journal of Bioethics 23 (9):60-63.
    Digital simulacra present an entrancing vision of a research-rich future shorn of the messiness that comes from dealing with real live patients as part of the research enterprise—and in that sheari...
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  6.  8
    When Anti-Discrimination Discriminates.Harold Braswell & Rosemarie Garland-Thomson - 2023 - American Journal of Bioethics 23 (9):35-38.
    An attempt to reduce disability discrimination can do more harm than the ostensible discrimination itself. Such is the case with Shavelson et al.’s (2023) argument for equal access to medical aid i...
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  7.  4
    MAID in America: Expanding Our Gaze on the Ethics of Assistance.Mara Buchbinder - 2023 - American Journal of Bioethics 23 (9):22-24.
    Bioethical concerns about the potential for abuse in medical aid in dying (MAID) have focused primarily on the risk of coercion (Battin et al. 2007; Foley and Hendin 2002). Accordingly, the require...
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  8.  5
    Beyond Words: Reconsidering the Moral Distinction of Action in Consent for Assisted Dying.Matthew Cho, Liam G. McCoy, Connor T. A. Brenna & Sunit Das - 2023 - American Journal of Bioethics 23 (9):25-27.
    In their forthcoming article, Shavelson and colleagues (2023) identify a key ethical concern associated with medical aid-in-dying (MAiD) laws in the eleven US jurisdictions where the practice is le...
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  9.  5
    Digital Simulacra: Circumventing Diversity and Inclusion.Benjamin Collins & Nora Jones - 2023 - American Journal of Bioethics 23 (9):76-78.
    Cho and Martinez-Martin’s (2023) “Epistemic rights and responsibilities of digital simulacra for biomedicine” presents a comprehensive overview of big data and AI in clinical medicine and research....
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  10.  5
    Digital Simulacra and the Call for Epistemic Responsibility: An Ubuntu Perspective.Brandon Ferlito & Michiel De Proost - 2023 - American Journal of Bioethics 23 (9):91-93.
    Cho and Martinez-Martin (2023) discuss the ethical challenges associated with the use of digital simulacra (also known as digital twins) in biomedicine, specifically focusing on the issue of episte...
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  11.  4
    Acknowledging Complexity and Reimagining IRBs: A Reply to Discussions of the Protection–Inclusion Dilemma.Phoebe Friesen, Luke Gelinas, Aaron Kirby, David H. Strauss & Barbara E. Bierer - 2023 - American Journal of Bioethics 23 (9):1-8.
    We are grateful to everyone who took the time to offer such insightful comments with regard to the protection–inclusion dilemma in research oversight. Nearly all respondents agreed that this dilemm...
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  12.  7
    Epistemic Value of Digital Simulacra for Patients.Eleanor Gilmore-Szott - 2023 - American Journal of Bioethics 23 (9):63-66.
    Artificial Intelligence and Machine Learning (AI/ML) models introduce unique considerations when determining their epistemic value. Fortunately, existing work on the epistemic features of AI/ML can...
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  13.  23
    AI-Based Medical Solutions Can Threaten Physicians’ Ethical Obligations Only If Allowed to Do So.Benjamin Gregg - 2023 - American Journal of Bioethics 23 (9):84-86.
    Mildred Cho and Nicole Martinez-Martin (2023) distinguish between two of the ways in which humans can be represented in medical contexts. One is technical: a digital model of aspects of a person’s...
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  14.  3
    Digital Simulacra Mark an Ontological Shift in Biomedicine with Far-Reaching Consequences for Real Patients.Hazar Haidar, Luyba Encheva & Kalina Kamenova - 2023 - American Journal of Bioethics 23 (9):81-84.
    Cho and Martinez-Martin (2023) provide a thoughtful analysis of the epistemological and ethical implications of digital twin (DT) technology in biomedical research. However, they overlook the profo...
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  15.  3
    Aid in Dying Unaided?Edwin Jesudason - 2023 - American Journal of Bioethics 23 (9):38-40.
    Why would we prohibit people with disabilities from receiving the assistance needed to achieve similar goals as people without disabilities? On its face, this would seem to be a discriminatory appr...
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  16.  5
    What Does True Equality in Assisted Dying Require?Scott Y. H. Kim - 2023 - American Journal of Bioethics 23 (9):1-4.
    Shavelson et al. (2023) raise the familiar question of parity or fairness in the assisted dying1 debate: if we legally permit the practice for one person, should we not permit everyone similarly si...
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  17.  4
    Integrating Social Determinants of Health into Ethical Digital Simulations.Kristin Kostick-Quenet, Vasiliki Rahimzadeh, Sharmila Anandasabapathy, Meghan Hurley, Anika Sonig & Amy Mcguire - 2023 - American Journal of Bioethics 23 (9):57-60.
    In their article, Cho and Martinez-Martin (2023) argue that developers and users of digital simulacra for modelling health and disease should involve a continued focus on causality of health states...
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  18.  4
    Health Digital Twins, Legal Liability, and Medical Practice.Andreas Kuersten - 2023 - American Journal of Bioethics 23 (9):66-69.
    Digital twins for health care have the potential to significantly impact the provision of medical services. In addition to possible use in care, this technology could serve as a conduit by which no...
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  19.  5
    Ethics, First.Melissa D. McCradden - 2023 - American Journal of Bioethics 23 (9):55-56.
    If you’ve ever had a time where your smartwatch buzzed to say you’ve completed your daily steps while you were actually just brushing your hair, you’ll know our data aren’t perfect. Every day, we c...
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  20.  4
    Can People Work Together to Create a Self-Administered Act? No. Should They Work Together to Repeal the End of Life Option Act? Yes.Adam Omelianchuk - 2023 - American Journal of Bioethics 23 (9):30-32.
    Shavelson et al., argues that California’s End of Life Option Act (ELOA) violates the Americans with Disabilities Act (ADA), because the ELOA requires the patient to “self-administer” their prescri...
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  21. Accommodating Aid-in-Dying Safeguards for Patients with Neurologic Disease.David Orentlicher - 2023 - American Journal of Bioethics 23 (9):16-18.
    As Shavelson et al. (2023) demonstrate with their example of Imani, the lines drawn between permissible and impermissible aid in dying can seem arbitrary, discriminatory, and inconsistent with the...
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  22.  4
    Should We be More Worried about Digital Simulacra in Healthcare Being Our “Caricatures,” Rather than Our “Replicas”?Brad Partridge - 2023 - American Journal of Bioethics 23 (9):86-88.
    The construction of digital simulacra in healthcare and medical research purportedly strives to virtually recreate some aspect of reality, whether that be a piece of human tissue, an entire organ,...
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  23.  3
    Permit Assisted Self-Administration: A Response to Open Peer Commentaries on Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability.Thaddeus M. Pope, Lonny Shavelson, Margaret Pabst Battin, Alicia Ouellette & Benzi Kluger - 2023 - American Journal of Bioethics 23 (9):9-14.
    While eleven U.S. jurisdictions have authorized medical aid in dying (MAID), it remains inaccessible to terminally ill patients who have physical disabilities that make them unable to complete self...
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  24. Value of and Value in Language: Ethics and Semantics in Physician-Assisted Suicide Laws.Thomas J. Reilly & Lauren B. Solberg - 2023 - American Journal of Bioethics 23 (9):40-42.
    The legalization of physician-assisted suicide (PAS) in various U.S. states draws into question the interpretation of the cardinal virtues of medicine, including beneficence, non-maleficence, auton...
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  25.  4
    Enabling the Nonhypothesis-Driven Approach: On Data Minimalization, Bias, and the Integration of Data Science in Medical Research and Practice.C. W. Safarlou, M. van Smeden, R. Vermeulen & K. R. Jongsma - 2023 - American Journal of Bioethics 23 (9):72-76.
    Cho and Martinez-Martin provide a wide-ranging analysis of what they label “digital simulacra”—which are in essence data-driven AI-based simulation models such as digital twins or models used for i...
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  26.  39
    Care Depersonalized: The Risk of Infocratic “Personalised” Care and a Posthuman Dystopia.Matthew Tieu & Alison L. Kitson - 2023 - American Journal of Bioethics 23 (9):89-91.
    Much of the discussion of the role of emerging technologies associated with AI, machine learning, digital simulacra, and relevant ethical considerations such as those discussed in the target article, take a relatively narrow and episodic view of a person’s healthcare needs. There is much speculation about diagnostic, treatment, and predictive applications but relatively little consideration of how such technologies might be used to address a person’s lived experience of illness and ongoing care needs. This is likely due to the greater (...)
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  27.  4
    The Importance of Self-Administration of Aid-in-Dying Medication.Neil Wenger - 2023 - American Journal of Bioethics 23 (9):18-20.
    In 2015, in preparation for implementation of the California End of Life Option Act, the UCLA Workgroup dedicated scores of hours to exploring the ethical underpinnings of aid-in-dying and the guid...
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  28.  2
    Current Medical Aid-in-Dying Laws Discriminate against Individuals with Disabilities.Megan S. Wright - 2023 - American Journal of Bioethics 23 (9):33-35.
    Shavelson and colleagues (2023) describe how medical aid-in-dying laws in the United States prohibit assistance in administering aid-in-dying medication. This prohibition distinguishes aid in dying...
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  29.  1
    A Neuroethical Analysis of Pragmatic Clinical Trials: Balancing Diverse Interests associated with Collateral Findings.Ikeolu O. Afolabi & Michael O. S. Afolabi - 2023 - American Journal of Bioethics 23 (8):66-68.
    Pragmatic clinical trials (PCTs) seek to show the effectiveness of treatments in routine, clinical practice (MacPherson 2004). However, a number of ethical challenges come to the fore when collater...
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  30.  2
    Pragmatic Research and Quality Assessment/improvement Initiatives: Kindred Spirits.Theodore Bania, Glenn Martin & Ilene Wilets - 2023 - American Journal of Bioethics 23 (8):69-70.
    Stephanie Morain and Emily Largent’s (2023) target article “Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded in Care” identified a number of important c...
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  31.  2
    Seizing the Opportunity to Improve Ethical Oversight of Clinical Research.Kirstin Borgerson - 2023 - American Journal of Bioethics 23 (8):63-65.
    In their paper, “Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded in Care,” Stephanie Morain and Emily Largent (2023) argue that investigators, and poss...
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  32.  3
    Some Treatments Over Objection, Not Others, Are Ethically Justifiable When Managing Anorexia Nervosa.Lauren Bunch - 2023 - American Journal of Bioethics 23 (8):99-101.
    Ms. Johnson’s case highlights a number of the ethical challenges that can arise when treating anorexia nervosa, including uncertainty about a patient’s decisional capacity, the limitations of treat...
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  33.  2
    Reasons for Not Participating in PCTs: The Comparative Case of Emergency Research under an Exception from Informed Consent (EFIC).Ethan Cowan, Mark Sheehan & Katherine Sahan - 2023 - American Journal of Bioethics 23 (8):70-72.
    We read with great interest Garland, Morain and Sugarman’s manuscript on the obligations of clinicians to participate in pragmatic clinical trials (PCTs) (Garland, Morain and Sugarman 2023). We bel...
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  34.  2
    Challenges in the Ethics and Implementation of Learning Health Care Systems.Matthew Crane, Stephanie Morain, Nancy Kass, Ruth Faden & Robert M. Califf - 2023 - American Journal of Bioethics 23 (8):1-4.
    Pragmatic clinical trials (PCTs) serve an important function in the modern research landscape: studying interventions in an environment that reflects real-world conditions, rather than the relative...
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  35.  1
    “I Don’t Want to Gain Weight!” The Ethics of Tube Feeding Over the Objection of a Patient with Anorexia Nervosa.Leah Eisenberg - 2023 - American Journal of Bioethics 23 (8):97-98.
    Clinical ethics consultants often focus on eliciting and accommodating patient values. We encourage people to identify and share their wishes with their health care providers and families so we can...
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  36.  1
    Ethically Alluring but Legally Destructive.Charles Foster - 2023 - American Journal of Bioethics 23 (8):85-87.
    Garland, Morain, and Sugarman's (2023) proposal is ethically attractive. But (assuming that ethics and medical law should have a close relationship with one another) it is legally seismic. It requi...
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  37. Distinguishing Clinical and Research Risks in Pragmatic Clinical Trials: The Need for Further Stakeholder Engagement.Stephen B. Freedman, David Schnadower, Philip I. Tarr, Elliott M. Weiss, Stephanie A. Kraft, Sinem Toraman Turk & Benjamin S. Wilfond - 2023 - American Journal of Bioethics 23 (8):39-42.
    The target articles in this issue advance our understanding of bioethical considerations in pragmatic trials (Garland, Morain, and Sugarman 2023; Morain and Largent 2023). Both articles appreciate...
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  38.  2
    End-to-End Integration of Pragmatic Trials Into Health Care Settings.Sarah M. Greene - 2023 - American Journal of Bioethics 23 (8):45-47.
    The concept of practical, or pragmatic, clinical trials was introduced in the early 2000s, in parallel with the growing availability and use of electronic health data. Researchers and policymakers...
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  39.  1
    Treatment over Objection (in Anorexia Nervosa): Capacity Is Not the Whole Story.Barrie J. Huberman - 2023 - American Journal of Bioethics 23 (8):101-104.
    Working through Esme Johnson’s case brings to light many of the elements that make for a rich and impactful clinical ethics consultation. The health and well-being of a young person, whether a fami...
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  40.  1
    Patient Ineligibility as a Barrier to Participation in Clinical Trials.Ryan Lawrence - 2023 - American Journal of Bioethics 23 (8):83-85.
    Garland and colleagues provide many compelling reasons for why clinicians ought to participate in pragmatic clinical trials (Garland et al. 2023), also known as effectiveness trials (Thorpe et al....
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  41.  2
    Not Wanting Dialysis Does Not Necessarily Mean Non-Acceptance—Words Matter.Kenneth Lempert - 2023 - American Journal of Bioethics 23 (8):94-96.
    The ethics consultant should consider addressing the following questions to help the involved parties decide how best to proceed: Were the implications of a no-dialysis decision understood?Is it kn...
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  42.  3
    Canceling Tuskegee.Jerry Menikoff - 2023 - American Journal of Bioethics 23 (8):53-55.
    More than 50 years ago, in a front-page article in the New York Times, the truth about what happened to hundreds of black men in a government-conducted research study was revealed to the American p...
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  43.  1
    Pragmatic Research and Clinical Duties: Solutions Through Precision AI-Enabled Clinically Embedded Research.Kelly Michelson, Amanda Venables, Russell Steans, Justin Starren, Shruti Sehgal, Matthew John Baumann & Emma Friedman - 2023 - American Journal of Bioethics 23 (8):50-52.
    Both Morain and Largent (2023) and Garland, Morain, and Sugarman (2023) recognize the ethical challenges inherent in clinician participation in embedded research. Focusing on the question of integr...
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  44.  1
    Clinicians’ Duty to Participate in Pragmatic Clinical Trials: Further Considerations.Georgina Morley & Susannah L. Rose - 2023 - American Journal of Bioethics 23 (8):76-78.
    Well-designed pragmatic clinical trials (PCTs) are critical for improving healthcare delivery and patient outcomes (Haff and Choudhry 2018), and the article written by Garland et al. (2023) advance...
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  45.  2
    Medicine’s Commitment to Science and the Duties That Bind Clinicians.Daniel A. Moros & Rosamond Rhodes - 2023 - American Journal of Bioethics 23 (8):73-75.
    We whole-heartedly support Andrew Garland, Stephanie Morain, and Jeremy Sugarman’s claim that clinicians have a duty to participate in pragmatic clinical trials (Garland, Morain, and Sugarman 2023)...
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  46.  2
    Should the Incapacitated Patient’s Prior Refusal of Dialysis Be Honored? The Value of a Systematic Approach to Gathering Data in an Ethics Consultation.Alvin H. Moss - 2023 - American Journal of Bioethics 23 (8):90-91.
    In the early days of ethics consultation, two pioneer consultants noted that one of their important functions was to gather missing information and correct misinformation relevant to the facts of t...
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  47.  1
    Refusal of Dialysis: Context Matters.Debjani Mukherjee & Nekee Pandya - 2023 - American Journal of Bioethics 23 (8):91-93.
    As ethics consultants on a busy consult service in a large urban setting, we would approach this case by gathering more information and context. This involves clarifying the clinical facts, underst...
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  48.  3
    Tube Feed or Not Tube Feed: Ethics beyond the Consult Question.Scott Nelson, Nina Current & Joan Henriksen - 2023 - American Journal of Bioethics 23 (8):104-107.
    In the described case, the consult requester, nurse Gloria, wants help with the question: “is it ethically justifiable to compel tube feeding over the objection of a young adult with anorexia nervo...
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  49.  2
    Blurred Boundaries: Toward an Expanded Ethics of Research and Clinical Care.Nate W. Olson & Meghan C. Halley - 2023 - American Journal of Bioethics 23 (8):5-9.
    In this issue, Morain and Largent (2023) raise a pressing issue arising in the context of embedded research—the nature and extent of investigator duties to patient-participants when the line betwee...
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  50.  1
    Special Considerations When Research is Embedded within Community Health Centers.Danielle Pacia, Johanna Crane & Carolyn Neuhaus - 2023 - American Journal of Bioethics 23 (8):55-58.
    In “Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded in Care,” Morain and Largent 2023 persuasively argue that the prevailing ways of conceptualizing in...
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  51.  1
    Why Clinicians Do Not Have a Duty to Participate in Pragmatic Clinical Trials.Bryan Pilkington - 2023 - American Journal of Bioethics 23 (8):81-83.
    In their thoughtful and well-supported target article, Andrew Garland, Stephanie Morain, Jeremy Sugarman (2023) argue that clinicians have a duty to participate in pragmatic clinical trials. This d...
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  52.  3
    More-Than-Partial Entrustment in Pragmatic Clinical Trials.Henry S. Richardson - 2023 - American Journal of Bioethics 23 (8):42-45.
    Morain and Largent’s (2023) thorough and thoughtful article concludes that the partial-entrustment model of medical researchers’ ancillary-care obligations (Richardson and Belsky 2004; Belsky and R...
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  53.  2
    A Paradigm of Investigator Duty to Multiple Stakeholder Participants.Megan Clarke Roberts, Kriste Kuczynski, Gail E. Henderson & Kimberly Foss - 2023 - American Journal of Bioethics 23 (8):58-60.
    In this target article by Morain and Largent (2023), the authors focus on an investigator’s duty to patient-subjects specifically regarding incidental or collateral findings within the context of e...
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  54. Participation in Pragmatic Clinical Trials: A Matter of Physicians’ Professional Ethics?Sabine Salloch - 2023 - American Journal of Bioethics 23 (8):79-80.
    Garland, Morain, and Sugarman (2023) can be congratulated for their comprehensive and sharp analysis of physicians’ ethical duties with respect to pragmatic clinical trials (PCTs). PCTs embed resea...
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  55.  2
    Progressing from “Whether to” to “How to” Conduct Pragmatic Trials.Matthew W. Semler, Todd W. Rice & Jonathan D. Casey - 2023 - American Journal of Bioethics 23 (8):33-36.
    In this issue of the American Journal of Bioethics, manuscripts focus on the obligations of clinicians and researchers in pragmatic clinical trials (Garland, Morain, and Sugarman 2023; Morain and L...
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  56.  3
    Is There a Doctor in the House?Lois Shepherd & Donna Chen - 2023 - American Journal of Bioethics 23 (8):47-50.
    Embedded pragmatic clinical trials (PCTs), like other types of randomized comparative-effectiveness research (CER) studies, are sometimes conducted without informed consent. Indeed, authors of both...
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  57.  3
    A Community-Engaged Approach to Address Collateral Findings in Embedded Research.Elise Smith & Emma Tumilty - 2023 - American Journal of Bioethics 23 (8):61-63.
    In In their article Morain and Largent suggest looking “beyond the investigator-participant dyad” to understand the ethical obligations in embedded research using Electronic Health Record (EHR) dat...
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  58.  4
    Dialysis Refusal: Discerning the Credibility of a Prior Verbal Directive.Anita Tarzian - 2023 - American Journal of Bioethics 23 (8):88-89.
    Sean Morrison, the Senior Associate Editor of the Journal of Palliative Medicine, recently depicted advance directives (ADs) and advance care planning (ACP) as “clear, simple, and wrong” (Morrison...
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  59.  1
    Ethical Pragmatic Clinical Trials Require the Virtue of Cultivated Uneasiness.Jon Tilburt & Joel Pacyna - 2023 - American Journal of Bioethics 23 (8):36-38.
    It was the spring of 2020 when the email came to our inboxes—a memo from our Institutional Review Board informing us that we were approved to begin conducting our pragmatic clinical trial with a wa...
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  60.  2
    Disclosing Reproductive Genetic Carrier Status: What about the Donor?Dorian Accoe - 2023 - American Journal of Bioethics 23 (7):126-128.
    In their recent article, Dive, Holmes, and Newson (2023) argue that genetic information should be reported in accordance with the aims of reproductive genetic carrier screening (RGCS). Referring to...
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  61.  2
    Unbounding ELSI: The Ongoing Work of Centering Equity and Justice.Chessa Adsit-Morris, Rayheann NaDejda Collins, Sara Goering, James Karabin, Sandra Soo-Jin Lee & Jenny Reardon - 2023 - American Journal of Bioethics 23 (7):103-105.
    ELSI efforts long have been troubled by critiques that they privilege scientific frameworks and grant scientists the power to set ethical agendas. As the first director of the Human Genome Project’...
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  62.  4
    Social Inequality and Human Genome Editing: A Nuanced Analysis of the Ubuntuan Ethical Prism.Michael O. S. Afolabi & Stephen Sodeke - 2023 - American Journal of Bioethics 23 (7):129-131.
    The power of the scientific enterprise presents multiple avenues for harnessing and increasingly controlling biological phenomena and instituting interventions in different areas of biomedicine (Af...
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  63.  3
    Rare Disease, Advocacy, and Caregiver Burnout.Gretchen Agans - 2023 - American Journal of Bioethics 23 (7):91-94.
    We, in the rare disease community are grateful to Halley et al. (2023) for highlighting some of the long-overlooked barriers to care. As the parent of a non-ambulatory, teenage boy living with Duch...
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  64.  2
    Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together.Megan A. Allyse, Karen M. Meagher, Marsha Michie, Rosario Isasi, Kelly E. Ormond, Natasha Bonhomme, Yvonne Bombard, Heidi Howard, Kiran Musunuru, Kirsten A. Riggan & Sabina Rubeck - 2023 - American Journal of Bioethics 23 (7):55-58.
    In their target article, Conley et al. (2023) appropriately highlight the ongoing conceptual and practical opacity of public engagement (PE) in the translation of human gene editing (HGE) (Conley e...
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  65.  1
    The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease.Emily Bonkowski & Hadley Stevens Smith - 2023 - American Journal of Bioethics 23 (7):88-91.
    Halley and colleagues highlight important aspects of advocacy and justice in rare disease and provide recommendations for stakeholders to encourage progress toward equity and justice. In the rare d...
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  66.  3
    Tackling Structural Injustices: On the Entanglement of Visibility and Justice in Emerging Technologies.Matthias Braun, Hannah Bleher, Eva Maria Hille & Jenny Krutzinna - 2023 - American Journal of Bioethics 23 (7):100-102.
    In today’s world, Artificial Intelligence plays a central role in many decision-making processes. However, its use can lead to structural and epistemic injustices—especially in the context of healt...
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  67.  7
    The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.John M. Conley, R. Jean Cadigan, Arlene M. Davis, Eric T. Juengst, Kriste Kuczynski, Rami Major, Hayley Stancil, Julio Villa-Palomino, Margaret Waltz & Gail E. Henderson - 2023 - American Journal of Bioethics 23 (7):9-16.
    This paper analyses the activities of five organizations shaping the debate over the global governance of genome editing in order to assess current approaches to public engagement (PE). We compare the recommendations of each group with its own practices. All recommend broad engagement with the general public, but their practices vary from expert-driven models dominated by scientists, experts, and civil society groups to citizen deliberation-driven models that feature bidirectional consultation with local citizens, as well as hybrid models that combine elements (...)
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  68.  3
    Racism and the Textures of Visibility.Melissa S. Creary - 2023 - American Journal of Bioethics 23 (7):109-110.
    I gave remarks at the Third International Summit on Human Genome Editing in London, UK on the first day for the section titled, “Sickle Cell Disease: A Case Study Affecting Millions.” It did not es...
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  69.  1
    Whose Genome? Which Genetics?Bryan Cwik - 2023 - American Journal of Bioethics 23 (7):50-53.
    Despite what many critics see as an inability to deliver much in the way of therapeutic value (Hunter and Drazen 2019), genetics remains a bottomless source of fascination, trepidation, and reflect...
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  70.  5
    Is It Just for a Screening Program to Give People All the Information They Want?Lisa Dive, Isabella Holmes & Ainsley J. Newson - 2023 - American Journal of Bioethics 23 (7):34-42.
    Genomic screening at population scale generates many ethical considerations. One is the normative role that people’s preferences should play in determining access to genomic information in screening contexts, particularly information that falls beyond the scope of screening. We expect both that people will express a preference to receive such results and that there will be interest from the professional community in providing them. In this paper, we consider this issue in relation to the just and equitable design of population screening (...)
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  71.  4
    Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research.Deanne Dunbar Dolan, Mildred K. Cho & Sandra Soo-Jin Lee - 2023 - American Journal of Bioethics 23 (7):1-4.
    From its inception, genomics has been a speculative endeavor, fixated on a far-off horizon that would deliver on the promise of targeted diagnostics and individualized therapeutics (Fortun 2008). M...
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  72.  1
    Ethical, Legal, and Social Implications of Genomics Research: Implications for Building a More Racially Diverse Bioethics Workforce.Faith E. Fletcher - 2023 - American Journal of Bioethics 23 (7):106-108.
    Recent national calls for ethical, legal, and social implications (ELSI) research to “assess and address how ethical, historical, social, economic, legal, regulatory, socio-cultural, and contextual...
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  73. Addressing the Burdens That Newborn Screening Imposes on Underserved Communities.Meghan E. Strenk, Courtney Berrios & Jeremy R. Garrett - 2023 - American Journal of Bioethics 23 (7):79-82.
    Newborn screening (NBS) began in the 1960s by testing all newborns for a single condition—phenylketonuria, or PKU—which, when identified and treated early, significantly reduces morbidity. Over the...
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  74.  3
    Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine.Kadija Ferryman - 2023 - American Journal of Bioethics 23 (7):27-33.
    I take up the call for a more nuanced engagement with race in bioethics by using Creary’s analytic of bounded justice and argue that it helps illuminate processes of racialization, or racial formation, specifically Blackness, as a dialectical processes of both invisibility and hyper-visibility. This dialectical view of race provides a lens through which the ethical, legal, and social implications (ELSI) of genetics and genomics field can reflect on fraught issues such as inclusion in genomic and biomedical research. Countering or (...)
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  75.  2
    Rethinking the “Public” and Rethinking “Engagement”.Brandy Fox & Daphne Oluwaseun Martschenko - 2023 - American Journal of Bioethics 23 (7):66-68.
    Conley and colleagues (2023) conduct a fascinating analysis of how influential organizations in the global governance of human genome editing debate conceptualize and perform public engagement. Whi...
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  76.  1
    Curiosity and Uncertainty Resolution: Inflating the Perceived Utility of Genetic Information.Rémy Furrer, Dorit Barlevy, Stacey Pereira & Gabriel Lázaro-Muñoz - 2023 - American Journal of Bioethics 23 (7):53-55.
    When considering the question, “Is it just for a [genetic] screening program to give people all the information they want?” it is first necessary to understand how the information is being presente...
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  77.  8
    The Dialectics of Racial Invisibility and Hyper-Visibility under the Mestizaje Discourse in Latin America.Constanza P. Silva Gallardo & Tomás González Zarzar - 2023 - American Journal of Bioethics 23 (7):111-112.
    The target article “Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision Medicine” is a welcome addition to the corpus on inclusion in genomics and precision medicine (Ferrym...
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  78. Narrative Equity in Genomic Screening at the Population Level.Rosemarie Garland-Thomson & S. A. Larson - 2023 - American Journal of Bioethics 23 (7):121-123.
    Dive et al. argue to limit the scope, scale, and quantity of results in genomic screening programs at the population level. Their analysis offers two interrelated reasons for this recommendation: f...
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  79.  1
    Reliance on Advocacy is the Symptom Not the Disease.Lynette Hammond Gerido - 2023 - American Journal of Bioethics 23 (7):86-88.
    In their article, “Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care,” Halley et al. (2023) use three case examples to describe challenges patients with rar...
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  80.  16
    Imperfect Methods for Imperfect Democracies: Increasing Public Participation in Gene Editing Debates.Benjamin Gregg - 2023 - American Journal of Bioethics 23 (7):77-79.
    Given some of the various possible impacts of clinical germline editing, we can expect robust disagreement about how best to regulate it. One can point to examples of the promise of editing: “rough...
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  81.  7
    Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.Meghan C. Halley, Colin M. E. Halverson, Holly K. Tabor & Aaron J. Goldenberg - 2023 - American Journal of Bioethics 23 (7):17-26.
    Rare genetic diseases collectively impact millions of individuals in the United States. These patients and their families share many challenges including delayed diagnosis, lack of knowledgeable providers, and limited economic incentives to develop new therapies for small patient groups. As such, rare disease patients and families often must rely on advocacy, including both self-advocacy to access clinical care and public advocacy to advance research. However, these demands raise serious concerns for equity, as both care and research for a given disease (...)
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  82.  2
    Getting It Right: How Public Engagement Might (and Might Not) Help Us Determine What Is Equitable in Genomics and Precision Medicine.Sara Chandros Hull, Lawrence C. Brody & Rene Sterling - 2023 - American Journal of Bioethics 23 (7):5-8.
    The timing of this special issue of AJOB probing whether public engagement (PE)1 might help achieve equity in genomics is no coincidence. While many issues discussed by the authors are not entirely...
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  83.  2
    When Less is More: Lessons for Expanded Carrier Screening from Newborn Sequencing Research.Josephine Johnston - 2023 - American Journal of Bioethics 23 (7):118-120.
    In 2013, the U.S. National Institutes of Health funded four large interdisciplinary research projects exploring the “implications, challenges and opportunities associated with the possible use of g...
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  84.  2
    The Intrinsic Value of Public Deliberation in the Governance of Human Genome Editing.Kalina Kamenova - 2023 - American Journal of Bioethics 23 (7):63-65.
    Public deliberation has increasingly become the gold standard for citizens’ participation in the governance of science and technology, with a growing body of research suggesting that deliberative p...
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  85.  1
    From Community-Based Carrier Programs to Opportunistic Carrier Screening: How the Objective of Carrier Screening Was Lost in Translation.Anne-Marie Laberge - 2023 - American Journal of Bioethics 23 (7):123-126.
    I agree with Dive et al. (2023) “that generating and reporting information about genetic variants beyond the scope of the screening program usually lacks clinical, and perhaps personal, utility” an...
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  86.  1
    Who Is Responsible for Promoting Equity in Rare Disease Research?Matthew S. McCoy - 2023 - American Journal of Bioethics 23 (7):83-85.
    Stories of rare disease advocacy can elicit strong but ambivalent responses. It’s moving to read about the heroic efforts of parents “becoming drug developers to find a cure for their children’s ra...
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  87. Ethical Considerations in Clinical Trials for Rare Genetic Diseases: The Case of Huntington’s Disease.Adys Mendizabal & Nora L. Jones - 2023 - American Journal of Bioethics 23 (7):94-96.
    Research and clinical trial development for rare diseases pose unique bioethical challenges. Much of the literature on rare diseases focuses on patient advocacy and drug development to manage or cu...
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  88.  2
    What Difference Can Public Engagement in Genome Editing Make, and for Whom?Richard Milne, Ugbaad Aidid, Jerome Atutornu, Tuba Bircan, Daniela Boraschi, Alessia Costa, Sasha Henriques, Christine Patch & Anna Middleton - 2023 - American Journal of Bioethics 23 (7):58-60.
    Conley and colleagues (2023) explore how calls for broad public engagement (PE) in the case of heritable human genome editing are being put into action, reviewing the activities of five different i...
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  89.  2
    STS and Bioethics: Forging New Synergies for Exploring the Potentials and Pitfalls of Public Engagement with New Biotechnologies.Ruth Müller, Amy Clare & Anja K. Ruess - 2023 - American Journal of Bioethics 23 (7):72-74.
    In this commentary for Conley et al. (2023), we seek to bridge the gap that, unfortunately, still often exists between debates in Science & Technology Studies (STS) and Bioethics. We believe that t...
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  90.  1
    Critiquing the Critique of Advocacy.Ari Neeman - 2023 - American Journal of Bioethics 23 (7):97-99.
    Halley et al. (2023) highlight important equity challenges emerging out of existing health policy’s reliance on self- and family advocacy. As advocacy capacity varies dramatically across groups, pu...
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  91.  2
    The Australian Citizens’ Jury and Global Citizens’ Assembly on Genome Editing.Dianne Nicol, John Stanley Dryzek, Simon Niemeyer, Nicole Curato & Rebecca Paxton - 2023 - American Journal of Bioethics 23 (7):61-63.
    The authors of the ELSIcon special issue have advanced the conversation on ethics and genetics. Nevertheless, we have some concerns. Here, we respond specifically to Conley et al. (2023). We choose...
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  92.  1
    Hypervisibility, Surveillance, and Bounded Justice through Data-Driven Health Equity Efforts.Paige Nong & Sarah El-Azab - 2023 - American Journal of Bioethics 23 (7):115-117.
    In the era of precision medicine and expanding health information technologies, large representative datasets are considered necessary for addressing health inequities. Partially in response to gro...
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  93.  1
    What Constitutes Ethical Engagement with Africa and the Global South?Anye-Nkwenti Nyamnjoh & Cornelius Ewuoso - 2023 - American Journal of Bioethics 23 (7):132-134.
    Bonginkosi Shozi and Donrich Thaldar’s (2023) contribution is relevant to epistemic justice, which involves efforts to develop an inclusive and global bioethics that takes seriously perspectives fr...
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  94.  1
    Public Engagement in Shaping Bioethics Policy: Reasons for Skepticism.Rosamond Rhodes & Gary Ostertag - 2023 - American Journal of Bioethics 23 (7):68-72.
    Conley et al. (2023) analyze the attempts at public engagement (PE) by five governance groups. These projects were conducted by organizations that endorse both the goals and values of PE. The autho...
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  95.  1
    Deliberative Mini-Publics and Equity: Procedural Benefits and Promising Outcomes for Gene Editing.Naomi Scheinerman - 2023 - American Journal of Bioethics 23 (7):74-76.
    In “The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research,” Conley et al. raise (2023) important critiques of several public engagement practices in the re...
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  96.  5
    Promoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement Study.Bonginkosi Shozi & Donrich Thaldar - 2023 - American Journal of Bioethics 23 (7):43-49.
    In a recent public engagement study on heritable human genome editing (HHGE) conducted among South Africans, participants approved of using HHGE for serious health conditions—viewing it as a means of bringing about valuable social goods—and proposed that the government should actively invest resources to ensure everyone has equal access to the technology for these purposes. This position was animated by the view that future generations have a claim to these social goods, and this entitlement justified making HHGE available in the (...)
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  97.  2
    Reconfiguring Health: The Importance of Recognizing Embodied Subjectivity and Social Dynamics in Health.Gesine Sturm & Yann Zoldan - 2023 - American Journal of Bioethics 23 (7):112-114.
    The target article “Bounded Justice, Inclusion and the Hyper/Invisibility of Race in Precision Medicine” (Ferryman 2023) raises critical questions about the development of genuinely inclusive, fair...
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  98.  3
    The Protection-Inclusion Dilemma: A Global Distributive Justice Perspective.Eman Ahmed - 2023 - American Journal of Bioethics 23 (6):120-121.
    In their article, Friesen et al. (2023) discuss two challenging roles the IRBs are playing: protecting research participants from research-related risks and promoting inclusion of diverse populatio...
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  99.  2
    ECMO as a Destination Therapy is Not a Bridge to Nowhere.William Allen - 2023 - American Journal of Bioethics 23 (6):57-59.
    Among the terms that has become a stock phrase in articles about ECMO, whether academic or news stories, is “bridge to nowhere” (Abrams et.al. 2014; Bailey 2019). It is used to describe the tragic...
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  100.  1
    Fairly Distributing the Distributive Justice Argument Permits Stopping ECMO.Erica Andrist - 2023 - American Journal of Bioethics 23 (6):65-67.
    Childress and colleagues conclude that arguments from distributive justice do not justify discontinuing ECMO over a capacitated patient’s objections (Childress et al. 2023). However, this conclusio...
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  101.  2
    Wither Vulnerability? The Over/Under Protection Dilemma and Research Equity.Amelia K. Barwise, Megan A. Allyse, Jessica R. Hirsch, Michelle L. McGowan, Karen M. Meaghar & Kirsten A. Riggan - 2023 - American Journal of Bioethics 23 (6):113-116.
    We are grateful to Friesen and colleagues for drawing attention to the tension between the protection of populations that may experience vulnerability with their inclusion in research (Friesen et a...
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  102.  2
    When Critically Ill Patients with Decision Making Capacity and No Further Therapeutic Options Request Indefinite Life Support.Jason N. Batten, Elizabeth Dzeng, Stuart Finder, Jacob A. Blythe & Michael Nurok - 2023 - American Journal of Bioethics 23 (6):21-23.
    Some patients who are dependent on extracorporeal membrane oxygenation (ECMO) are alert and retain capacity to participate in decision-making, including decisions regarding whether to continue life...
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  103.  1
    Unilateral ECMO Withdrawal and the Argument From Distributive Justice.Daniel Edward Callies - 2023 - American Journal of Bioethics 23 (6):72-74.
    Childress and colleagues (2023) review several arguments that would support the unilateral withdrawal of ECMO (extracorporeal membrane oxygenation) against the wishes of a capacitated patient (Mr....
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  104.  3
    Significant Protection-Inclusion Tensions in Research on Medical Emergencies: A Practical Challenge for IRBs.Rachel C. Conrad, Neal W. Dickert & Benjamin C. Silverman - 2023 - American Journal of Bioethics 23 (6):91-93.
    Friesen et al. (2023) describe barriers to research in patient populations that have been historically labeled as vulnerable and, as a result, are under-represented in research due to the Instituti...
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  105.  1
    The Moral Relevance of ECMO Bridge Maintenance.Andrew M. Courtwright - 2023 - American Journal of Bioethics 23 (6):52-54.
    Childress et al. (2023) have provided a cogent overview of the ethical considerations involved in withdrawing extracorporeal membrane oxygenation (ECMO) over a capacitated patient’s objection. Alth...
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  106.  2
    The Research Protection-Inclusion Dilemma in Pregnancy: Who is Being Protected? Who is Being Included?Carl Terhune D'Angio & Lainie Ross - 2023 - American Journal of Bioethics 23 (6):103-106.
    Pregnant people are often listed among groups that have been excluded from research on the basis of perceived vulnerability, to the detriment of the entire class. Lack of research among pregnant pe...
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  107.  6
    The ECMO Bridge and 5 Paths.Arthur R. Derse - 2023 - American Journal of Bioethics 23 (6):1-4.
    Childress and coauthors present a case considering ECMO withdrawal over the objection of the conscious patient who is no longer a candidate for transplantation or other definitive therapeutic inter...
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  108.  4
    Ethical Issues in the Transition to ECMO as a Destination Therapy.Samuel N. Doernberg, Derek R. Soled & Robert D. Truog - 2023 - American Journal of Bioethics 23 (6):18-20.
    Childress et al. (2023) present the case of a patient with capacity who requests to stay on extracorporeal membrane oxygenation (ECMO) indefinitely and highlight the ethical challenges associated w...
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  109.  5
    Balancing Protection and Inclusion by Including More Non-Scientist and Nonaffiliated Members on IRBs.Emily E. Anderson - 2023 - American Journal of Bioethics 23 (6):116-118.
    Given the primary mandate for institutional review boards (IRBs) to protect potential participants from harm, the egregious history of research abuses, and the fact that there is no mention of incl...
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  110.  9
    Why Deny ECMO-DT to the Incapacitated?Kyle E. Karches - 2023 - American Journal of Bioethics 23 (6):70-72.
    Childress et al. (2023) argue in favor of “ECMO-DT,” the provision of ECMO indefinitely as “destination therapy” in the ICU for patients who are dependent on the technology to sustain their lives....
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  111.  4
    The Divergence of Technical and Human Teleology.Roxanne E. Kirsch - 2023 - American Journal of Bioethics 23 (6):38-41.
    Childress et al. (2023) describe a disagreement between the competent patient and the physician recommending withdrawal of life-sustaining therapy (WLST). While the scenario is specific to ECMO, th...
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  112.  2
    What is Fair Representation in Research?Jennifer E. Miller & Stephen Latham - 2023 - American Journal of Bioethics 23 (6):89-91.
    Friesen et al. (2023) article explores tensions within institutional review boards (IRBs) when they aim both to protect participants from harm and to include under-represented populations in clinic...
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  113.  3
    ECMO: What Would a Deliberative Public Judge?Leonard Michael Fleck - 2023 - American Journal of Bioethics 23 (6):46-48.
    I fundamentally agree with Childress et al. (2023) in the scenario they have constructed with Mr. J. None of the arguments they critically assess are ethically persuasive enough to justify removing...
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  114.  2
    Bridge or Destination: Ethical Complexity, Emotional Unrest.Joel Frader, Erin Paquette, Kelly Michelson & Elaine Morgan - 2023 - American Journal of Bioethics 23 (6):44-46.
    The ethics of long-term Extracorporeal Membrane Oxygenation (ECMO) use, especially when organ recovery appears highly unlikely and the patient does not qualify for organ transplantation, are compli...
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  115.  3
    Reflection Requires Representation.Stephen S. Hanson - 2023 - American Journal of Bioethics 23 (6):126-128.
    I agree fully that a “clearer picture of how vulnerability might manifest and how it can be accommodated, ideally without resorting to mere exclusion from research, is needed” (Friesen et al. 2023,...
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  116.  3
    IRBs and Industry Sponsors: Clash of Priorities.Jacquelyn Harootunian-Cutts - 2023 - American Journal of Bioethics 23 (6):122-124.
    In their target article, Friesen et al. (2023) offer recommendations primarily aimed at IRBs for reaching a better balance in the ongoing challenge of the protection-inclusion dilemma. The authors...
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  117.  3
    A Bridge to Nowhere.Seth Hollander & Danton Char - 2023 - American Journal of Bioethics 23 (6):54-56.
    In the pediatric heart-failure population, severity of illness often forces therapeutic decisions to be made under time-pressure, such that mechanical circulatory support (MCS) can be offered as a...
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  118.  3
    When the Bridge Crumbles: Balancing ECMO-DT With Transplant Program Needs.Paul J. Hutchison, Neeraj Joshi & Katherine Wasson - 2023 - American Journal of Bioethics 23 (6):49-51.
    In their analysis Childress et al. (2023) suggest that withdrawal of extracorporeal membrane oxygenation (ECMO) over a patient’s dissent is not justified by existing ethical arguments. The alternat...
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  119.  3
    Can the Extraordinary Become Ordinary? Re-Examining the Ethics of ECMO-DT.Eric J. Kim & Jonathan M. Marron - 2023 - American Journal of Bioethics 23 (6):59-61.
    Extracorporeal membrane oxygenation (ECMO) is currently reserved predominantly for bridging patients to a different destination therapy, but the use of ECMO as a destination therapy itself (ECMO-DT...
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  120.  5
    Battle of the Bridge: Ethical Considerations Related to Withdrawal of ECMO Support for Pediatric Patients over Family Objections.Jenny Kingsley, Emily R. Berkman & Sabrina F. Derrington - 2023 - American Journal of Bioethics 23 (6):32-35.
    Childress et al. (2023) critically examine claims used to support unilateral withdrawal of life-sustaining ECMO over the objections of capacitated patients. The authors raise important concerns abo...
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  121.  2
    Withdrawal of ECMO Support over the Objections of a Capacitated Patient can be Appropriate.Alexander A. Kon - 2023 - American Journal of Bioethics 23 (6):30-32.
    Unfortunately, there is broad confusion regarding the justification for healthcare professionals unilaterally limiting or withdrawing life-prolonging interventions. Many mistakenly believe that suc...
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  122.  5
    “Sorry, but the Ethicist Said Your Life Isn’t Actually Worth Living”: Misunderstanding Ethics and the Role of the Ethics Consultant.Andy Kondrat - 2023 - American Journal of Bioethics 23 (6):24-27.
    In their target article, Childress et al. (2023) contemplate the ethical considerations associated with determining if and when life-sustaining interventions (in this case, ECMO) can be unilaterall...
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  123.  3
    Unilateral Withdrawal, Technological Creep, and the Role of Proportionality in ECMO Policy.Brendan Leier & Gurmeet Singh - 2023 - American Journal of Bioethics 23 (6):68-70.
    There is a well-known American legal maxim, hard cases make bad law. If we agree that Mr. J’s case is hard, what lessons follow from the application of current ECMO guidelines and what kind of supp...
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  124.  2
    Integrating Community Perspectives on Inclusion and Protection into IRB Structures.Isabella Li & Christine Grady - 2023 - American Journal of Bioethics 23 (6):94-97.
    IRBs often face dueling values in research: their historically grounded mission to protect research participants from harm conflicts with more recent attention to the importance of including underr...
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  125.  2
    Community Engagement and the Protection-Inclusion Dilemma.Rebekah McWhirter, Azure Hermes, Sharon Huebner & Alex Brown - 2023 - American Journal of Bioethics 23 (6):100-102.
    In articulating the protection-inclusion dilemma, Friesen et al. (2023) identify an important issue facing institutional review boards (IRBs) and elucidate historical factors contributing to its de...
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  126.  2
    Personalizing Care and Communication at the Limits of Technology.Wynne Morrison & Katie Moynihan - 2023 - American Journal of Bioethics 23 (6):41-43.
    Life-saving healthcare technology evolves over time, raising new ethical questions. What was once experimental becomes standard care, and what was once unthinkable becomes the next frontier. Ethici...
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  127.  4
    Adolescents, Sensitive Topics, and Appropriate Access to Biomedical Prevention Research.Mary A. Ott - 2023 - American Journal of Bioethics 23 (6):110-112.
    Adolescence, defined in the US as 11–21 years of age, is a critical period for prevention, as it marks the onset of risk behaviors. Minor (<18 years) self-consent and inclusion in biomedical resear...
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  128.  4
    Don’t Ask Too Much: Non-maleficence as the Guiding Principle in IRB Decision-Making.Bryan Pilkington & Elli Gourna Paleoudis - 2023 - American Journal of Bioethics 23 (6):124-126.
    In “IRBs and The Protection Inclusion Dilemma: Finding a Balance,” Friesen et al. (2023) argue that IRBs ought to attend more, and better, to the need for the inclusion of under-researched populati...
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  129.  3
    The Human and Humanity that Differentiate Withholding from Withdrawing Life-Sustaining Therapy: An ECMO Bridge to Nowhere.Jonah Rubin, Ellen Robinson & Emily B. Rubin - 2023 - American Journal of Bioethics 23 (6):62-64.
    In this issue of American Journal of Bioethics, Childress et al. address one of the most challenging modern clinical ethical dilemmas: the awake, competent patient dependent on extracorporeal membr...
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  130.  3
    Leveraging the Power of the Centralized IRB Review.Holly A. Taylor - 2023 - American Journal of Bioethics 23 (6):118-119.
    First, the authors should be congratulated for bringing our attention to this important issue. They have made important observations about what may be holding us back in efforts to make progress in...
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  131.  3
    Researching Those in the Shadows: Undocumented Immigrants, Vulnerability, and the Significance of Research.Brian Tuohy & Jillian Jatres - 2023 - American Journal of Bioethics 23 (6):106-109.
    In “IRBs and the Protection-Inclusion Dilemma: Finding a Balance,” Dr. Phoebe Friesen and her collaborators (2023) provide a compelling framework that helps Institutional Review Boards (IRBs) think...
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  132.  4
    Included but Still Invisible?: Considering the Protection-Inclusion Dilemma in Qualitative Research Findings.Erika Versalovic, Asad Beck & Timothy Emmanuel Brown - 2023 - American Journal of Bioethics 23 (6):97-100.
    The COVID-19 pandemic’s disproportionate harm to racialized communities and increased public attention to the deaths of Black people at the hands of police (Elijah McClain, Breonna Taylor, George F...
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  133.  5
    ECMO as a Palliative Bridge to Death.Rachel Rutz Voumard, Zied Ltaief, Lucas Liaudet & Ralf J. Jox - 2023 - American Journal of Bioethics 23 (6):35-38.
    ECMO is a short-term measure providing temporary life support until resolution of the primary insult or transplantation. Thanks to technological advances in life support, its use has increased enor...
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  134.  4
    Ethical Withdrawal of ECMO Support Over the Objections of Competent Patients.Dominic Wilkinson, John Fraser, Jacky Suen, Mioko Kasagi Suzuki & Julian Savulescu - 2023 - American Journal of Bioethics 23 (6):27-30.
    In their target article, Childress et al provide a detailed analysis of dilemmas arising from disagreement between an ICU team and a competent patient (Mr J) about dis/continuation of extra-corpore...
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  135.  20
    Therapists or Replicants? Ethical, Legal, and Social Considerations for Using ChatGPT in Therapy.Benjamin Amram, Uri Klempner, Shira Shturman & Dov Greenbaum - 2023 - American Journal of Bioethics 23 (5):40-42.
    Sedlakova and Trachsel (2023) discuss the ethical concerns associated with employing what they term conversational artificial intelligence as therapist substitutes. Given their apprehensions, they...
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  136.  7
    Conversational Artificial Intelligence—Patient Alliance Turing Test and the Search for Authenticity.Oren Asman, Amir Tal & Yechiel Michael Barilan - 2023 - American Journal of Bioethics 23 (5):62-64.
    Psychotherapy is provided by professionals, trained, supervised and certified by other professionals, all the way back to Freud and similar founding fathers. Even though methods and styles vary, pa...
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  137.  8
    No Substitute: The False Promise of Artificial Womb Technology as an Alternative to Abortion.Benjamin Patterson Brown & Katie Watson - 2023 - American Journal of Bioethics 23 (5):87-89.
    In their scoping review of the literature on artificial womb technology (AWT), De Bie et al. report that “complete ectogenesis has been hailed as an alternative to abortion,” (De Bie et al. 2023, 7...
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  138.  4
    Feminist Concerns About Artificial Womb Technology.Tamara Kayali Browne, Evie Kendal & Tiia Sudenkaarne - 2023 - American Journal of Bioethics 23 (5):97-99.
    The paper by De Bie et al. (2023) provides an overview of various ethical arguments related to artificial womb technology (AWT). We believe some important feminist concerns about this technology ne...
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  139.  6
    On the Permissibility of Elective Ectogestation.James Cordeiro - 2023 - American Journal of Bioethics 23 (5):116-118.
    Successful deployment of “artificial womb technology (AWT)” is anticipated within a decade or so. In the case of “partial” ectogestation, in vivo gestation precedes fetal transfer to an artificial...
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  140.  3
    Lost in Gestation: On Fetonates, Perinates, and Gestatelings.Lien De Proost & Geertjan Zuijdwegt - 2023 - American Journal of Bioethics 23 (5):108-110.
    Recent discussion on artificial womb technology (AWT) has given rise to a proliferation of terms to denote the subject of AWT. De Bie et al. opt for “fetal neonate” or “fetonate’ as “the best way t...
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  141.  10
    Conversational Artificial Intelligence and the Potential for Epistemic Injustice.Michiel De Proost & Giorgia Pozzi - 2023 - American Journal of Bioethics 23 (5):51-53.
    In their article, Sedlakova and Trachsel (2023) propose a holistic, ethical, and epistemic analysis of conversational artificial intelligence (CAI) in psychotherapeutic settings. They mainly descri...
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  142.  9
    The Actionless Agent: An Account of Human-CAI Relationships.Charles E. Binkley & Bryan Pilkington - 2023 - American Journal of Bioethics 23 (5):25-27.
    We applaud Sedlakova and Trachsel’s work and their description of conversational artificial intelligence (CAI) as possessing a hybrid nature with features of both a tool and an agent (Sedlakova and...
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  143.  5
    Therapeutic Artificial Intelligence: Does Agential Status Matter?Meghan E. Hurley, Benjamin H. Lang & Jared N. Smith - 2023 - American Journal of Bioethics 23 (5):33-35.
    In their paper, “Conversational Artificial Intelligence in Psychotherapy: A New Therapeutic Tool or Agent?” Sedlakova and Trachsel (2023) claim that therapeutic insights and therapeutic changes are...
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  144.  6
    Beyond the Domains: What Would be the Fundamental Ethical Questions in the Development of the Artificial Womb.Montserrat Esquerda, David Lorenzo & Margarita Bofarull - 2023 - American Journal of Bioethics 23 (5):125-127.
    De Bie et al. (2023) introduces a framework to conceptualize ethical issues based on four different domains, but the problem lies in the domains being falsely bounded. Apart from the step from doma...
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  145.  6
    Abortion, Artificial Wombs, and the “No Difference” Argument.Leonard Michael Fleck - 2023 - American Journal of Bioethics 23 (5):94-97.
    De Bie et al. (2023) call attention at the conclusion of their essay to the “novel questions” generated by complete ectogenesis. The question I explore is how complete ectogenesis from conception t...
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  146.  5
    Artificial Wombs or Artificial Feminism: What Is Wrong With Being Pregnant?Tessa Gavina, Chris Gastmans & Alice Cavolo - 2023 - American Journal of Bioethics 23 (5):104-106.
    De Bie et al. (2023) found that most feminist literature praises Artificial Womb Technologies (AWT) for its potential to increase equality among the sexes. This literature frames gestation as a poi...
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  147.  5
    Artificial Womb Technology and the Restructuring of Gestational Boundaries.Richard B. Gibson & Lisa Campo-Engelstein - 2023 - American Journal of Bioethics 23 (5):106-108.
    In their article, De Bie et al. (2023) provide a scoping review of the ethical and socio-legal issues arising from research into, and the potential, maybe even likely deployment of, artificial womb...
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  148.  5
    Deception Mode: How Conversational AI Can Respect Patient Autonomy.Jesse Gray - 2023 - American Journal of Bioethics 23 (5):55-57.
    Sedlakova and Traschel (2023) propose limiting the scope and capabilities of psychotherapy-delivering conversational artificial intelligence (CAI), as (1) they deceive some users into thinking they...
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  149.  98
    Therapeutic Conversational Artificial Intelligence and the Acquisition of Self-understanding.J. P. Grodniewicz & Mateusz Hohol - 2023 - American Journal of Bioethics 23 (5):59-61.
    In their thought-provoking article, Sedlakova and Trachsel (2023) defend the view that the status—both epistemic and ethical—of Conversational Artificial Intelligence (CAI) used in psychotherapy is complicated. While therapeutic CAI seems to be more than a mere tool implementing particular therapeutic techniques, it falls short of being a “digital therapist.” One of the main arguments supporting the latter claim is that even though “the interaction with CAI happens in the course of conversation… the conversation is profoundly different from a conversation with (...)
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  150.  7
    Artificial Womb on Maternal Request and Without the Father’s Consent: Ethical Perspectives Through a Principlist Approach.Matteo Gulino, Pasquale Ricci & Gianluca Montanari Vergallo - 2023 - American Journal of Bioethics 23 (5):121-123.
    De Bie et al. argued that the decision “to transfer the fetus to AWT falls under maternal autonomy” while “once the fetonate is being supported by AWT, decision making would become a shared parenta...
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  151.  5
    Tools, Agents or Something Different? – The Importance of Techno-Philosophical Premises in Analyzing Health Technology.Joschka Haltaufderheide & Robert Ranisch - 2023 - American Journal of Bioethics 23 (5):19-22.
    In their careful analysis of conversational artificial intelligence (CAI) in psychotherapy, Sedlakova and Trachsel (2023) propose a framework for the ethical evaluation of such technologies that lo...
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  152.  3
    Artificial Womb Technology, Catholic Health Care, and Social Justice.John Holmes & Laura Hosford - 2023 - American Journal of Bioethics 23 (5):123-125.
    As strong as the ethical overview of artificial womb technology (AWT) by De Bie and colleagues is (De Bie et al. 2023), it does not adequately address ethical considerations that may arise within C...
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  153.  5
    Staying Curious With Conversational AI in Psychotherapy.Michael Holohan, Alena Buyx & Amelia Fiske - 2023 - American Journal of Bioethics 23 (5):14-16.
    With the public release of the large language model-driven ChatGPT in November 2022, the potential for Conversational Artificial Intelligence (CAI) has once again catapulted into the spotlight. CAI...
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  154.  3
    Differences in Degree-not-Kind-of Responsibility within Conversational Artificial Intelligence.Kathryn Huber - 2023 - American Journal of Bioethics 23 (5):31-32.
    Sedlakova and Trachsel (hereafter referred to as “the authors”) argue that conversational artificial intelligence (CAI) in psychotherapy presents an ethical challenge as a tool with aspects of agen...
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  155.  7
    A Different Take on the Law and Ethics of AWT.Susan Kennedy & Lawrence Nelson - 2023 - American Journal of Bioethics 23 (5):92-94.
    De Bie et al. (2023) hold out their paper as an effort “to identify the broad range of ethical concerns and considerations regarding AWT” and to organize them “into a comprehensive framework to org...
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  156.  2
    Toward a Broader Conception of Equity in Artificial Womb Technology.Laura L. Kimberly & Gwendolyn P. Quinn - 2023 - American Journal of Bioethics 23 (5):114-116.
    De Bie et al. provide a novel framework for assessing ethical considerations in artificial womb technology (AWT) based on four phases of human prenatal development (DeBie 2023). As the authors note...
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  157.  8
    Justice, Vulnerable Populations, and the Use of Conversational AI in Psychotherapy.Bennett Knox, Pierce Christoffersen, Kalista Leggitt, Zeia Woodruff & Matthew H. Haber - 2023 - American Journal of Bioethics 23 (5):48-50.
    Sedlakova and Trachsel (2023) identify a major benefit of conversational artificial intelligence (CAI) in psychotherapy as its ability to expand access to mental healthcare for vulnerable populatio...
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  158.  2
    Capabilities and Stakeholders – Two Ways of Enriching the Ethical Debate on Artificial Womb Technology.André Krom, Angret de Boer, Rosa Geurtzen & Martine C. de Vries - 2023 - American Journal of Bioethics 23 (5):110-113.
    The review by De Bie et al. (2023) provides an overview of the current ethical literature on artificial womb technology (AWT). Two characteristics stand out, and provide the basis for our commentar...
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  159.  14
    Bias and Epistemic Injustice in Conversational AI.Sebastian Laacke - 2023 - American Journal of Bioethics 23 (5):46-48.
    According to Russell and Norvig’s (2009) classification, Artificial Intelligence (AI) is the field that aims at building systems which either think rationally, act rationally, think like humans, or...
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  160.  11
    The Dilemmas of Artificial Wombs: Conventional Ethics and Science Fiction.John D. Lantos & Annie Janvier - 2023 - American Journal of Bioethics 23 (5):82-85.
    Five years ago, remarkable animal experiments on artificial womb technology (AWT) at Children’s Hospital of Philadelphia (CHOP) got us thinking about the ethical for premature babies. We recognized...
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  161.  3
    Expanding the Frame: An Afrofuturist Response to Artificial Womb Technology.Leah Lomotey-Nakon & Elizabeth Lanphier - 2023 - American Journal of Bioethics 23 (5):99-101.
    De Bie et al. (2023) provide a thorough review of the existing literature concerning Artificial Womb Technology (AWT) using the PRISMA-ScR method. The summary of the scoping review they conducted a...
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  162.  5
    Viewing CAI as a Tool Within the Mental Health Care System.Nicole Martinez-Martin - 2023 - American Journal of Bioethics 23 (5):57-59.
    Sedlakova and Trachsel (2023) advocate for a holistic approach to assessing ethical application of conversational artificial intelligence (CAI) in mental health therapy. They first describe CAI as...
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  163.  4
    Responsible Use of CAI: An Evolving Field.Mehrdad Rahsepar Meadi, Neeltje Batelaan, Anton J. L. M. van Balkom & Suzanne Metselaar - 2023 - American Journal of Bioethics 23 (5):53-55.
    Sedlakova and Trachsel (2023) argue that on the one hand, conversational artificial intelligence (CAI) does not fulfill the necessary conditions for full attribution of agency, such as having consc...
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  164.  6
    Thinking Inside the Bag: Patient Selection, Framing the Ethical Discourse, and the Importance of Terminology in Artificial Womb Technology.Mark R. Mercurio & Kelly M. Werner - 2023 - American Journal of Bioethics 23 (5):79-82.
    In 2017, Partridge et al. published remarkable experimental results concerning the use of a new artificial womb technology (AWT) with lambs, developed at Children’s Hospital of Philadelphia, called...
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  165.  19
    Tools and/or Agents? Reflections on Sedlakova and Trachsel’s Discussion of Conversational Artificial Intelligence.Sven Nyholm - 2023 - American Journal of Bioethics 23 (5):17-19.
    Sedlakova and Trachsel (2023) consider conversational artificial intelligence (CAI) as a new way of providing psychotherapy to patients. This is an important topic, and Sedlakova and Trachsel have...
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  166.  2
    Prenatal Testing: Responsibility and Reality.Rosamond Rhodes & Matthew J. Drago - 2023 - American Journal of Bioethics 23 (5):128-131.
    In their article, “Non-invasive prenatal testing for ‘non-medical’ traits: ensuring consistency in ethical decision-making,” Hilary Bowman-Smart and colleagues (2023) claim merely to lay out the gr...
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  167.  3
    Beyond a Medicalized View of Reproduction: Recentering Pregnant People in the Ethics of Ectogenesis.Nina Roesner - 2023 - American Journal of Bioethics 23 (5):102-104.
    De Bie et al. (2023) provide a helpful framework for understanding many of the ethical considerations regarding artificial womb technology (AWT), particularly in relation to existing reproductive t...
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  168.  7
    The Ethical and Legal Status of ‘Fetonates’ Or ‘Gestatelings’.Elizabeth Chloe Romanis - 2023 - American Journal of Bioethics 23 (5):90-92.
    De Bie et al. posit thatthe best way to describe the person who would receive current AWT is as a “fetal neonate” or fetonate. Neonatal pertains to the fact that the subject is removed from the wom...
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  169.  5
    Ethical Aspects of Machine Listening in Healthcare.Austin M. Stroud, Joel E. Pacyna & Richard R. Sharp - 2023 - American Journal of Bioethics 23 (5):1-3.
    Good listening is an essential element in the provision of quality healthcare (Attree 2001). Good listening also supports accurate diagnosis, patient adherence to medical recommendations, and stron...
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  170.  3
    Is the Mother’s Decision to Opt for Artificial Womb Technology Always “Supererogatory”?Kyoko Takashima, Tomohide Ibuki & Keiichiro Yamamoto - 2023 - American Journal of Bioethics 23 (5):119-121.
    In their comprehensive review article, De Bie et al., using some references, discreetly point out that pregnant women’s decision in Domain III to undergo fetal extraction via C-section should conti...
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  171.  5
    Toward Relational Diversity for AI in Psychotherapy.Daniel W. Tigard - 2023 - American Journal of Bioethics 23 (5):64-66.
    It is an understatement to say we live in an exciting time considering the increasingly widespread applications of artificial intelligence (AI). This observation is brought to the fore by Sedlakova...
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  172.  6
    Conversational Artificial Intelligence and Distortions of the Psychotherapeutic Frame: Issues of Boundaries, Responsibility, and Industry Interests.Meghana Kasturi Vagwala & Rachel Asher - 2023 - American Journal of Bioethics 23 (5):28-30.
    Sedlakova and Traschel argue that conversational artificial intelligence (CAI) is more than a mere tool, but not quite an agent, as it “simulates having a therapeutic conversation [but] does not re...
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  173.  15
    Why We Should Understand Conversational AI as a Tool.Marlies N. van Lingen, Noor A. A. Giesbertz, J. Peter van Tintelen & Karin R. Jongsma - 2023 - American Journal of Bioethics 23 (5):22-24.
    The introduction of chatGPT illustrates the rapid developments within Conversational Artificial Intelligence (CAI) technologies (Gordijn and Have 2023). Ethical reflection and analysis of CAI are c...
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  174.  9
    Artificial Placenta – Imminent Ethical Considerations for Research Trials and Clinical Translation.E. J. Verweij & Elselijn Kingma - 2023 - American Journal of Bioethics 23 (5):85-87.
    De Bie et al. (2023) propose an organizing framework for different stages of human gestational development from conception to the viable premature. They also identify ethical considerations and con...
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  175.  8
    The Postphenomenological Impact of Conversational Artificial Intelligence on Autonomy and Psychological Integrity.Jordan Joseph Wadden - 2023 - American Journal of Bioethics 23 (5):37-40.
    When used in psychotherapy, Sedlakova and Trachsel (2023) hypothesize that conversational artificial intelligence (CAI) ought to be considered as a new and hybrid artifact somewhere on a spectrum b...
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  176.  8
    Relational Reciprocity from Conversational Artificial Intelligence in Psychotherapy.Lillian Carol Wieland - 2023 - American Journal of Bioethics 23 (5):35-37.
    I thank Jane Sedlakova and Manuel Trachsel for their work on situating conversational artificial intelligence’s (CAI) potential role in psychotherapy. In their article, Sedlakova and Trachsel argue...
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  177.  5
    Is the Algorithm Good in a Bad World, or Has It Learned to be Bad? The Ethical Challenges of “Locked” Versus “Continuously Learning” and “Autonomous” Versus “Assistive” AI Tools in Healthcare.Alaa Youssef, Michael Abramoff & Danton Char - 2023 - American Journal of Bioethics 23 (5):43-45.
    What happens when a patient-interfacing conversational artificial intelligence system (CAI)—AI that combines natural language understanding, processing, and machine-learning models to autonomously...
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  178.  2
    Moral Distress in Military Medicine: Toward Analysis of, and Approach to Measurement, Prevention and Care.Megan Applewhite & James Giordano - 2023 - American Journal of Bioethics 23 (4):86-88.
    Kolbe and de Melo-Martin (2023) describe fatal problems in current definitions and measurement of moral distress and injury (MD/I) in medical professionals, which impede development of genuine atte...
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  179.  1
    On Racist Tools and the Bioethics Lexicon.Robert Baker - 2023 - American Journal of Bioethics 23 (4):25-28.
    Shen-yi Liao and Vanessa Cabonell’s “Materialized Oppression in Medical Tools and Technologies,” joins the long list of groundbreaking papers whose importance is obscured by an innocuous title. Som...
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  180.  17
    How Medical Technologies Materialize Oppression.Marion Boulicault - 2023 - American Journal of Bioethics 23 (4):40-43.
    Biomedical practice can encode and perpetuate oppressive ideologies. This encoding and perpetuation, scholars like Liao and Carbonell (2023) convincingly argue, can occur not only via social practi...
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  181.  1
    Measuring Moral Distress: Improving the Tools by Educating Clinicians.Lauren Boxell & Elizabeth Lanphier - 2023 - American Journal of Bioethics 23 (4):61-63.
    In “Moral Distress: What are we measuring?” Kolbe and de Melo-Martin (2023) rightly note that varied understanding of moral distress, paired with shortcomings in existing empirical tools to accurat...
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  182.  4
    Ethics Debriefs and Moral Distress: What are we Doing?A. Lee de Bie, Steve Abdool, Jeremy Butler, Alexandra Campbell, Maram Hassanein, Sean Hillman, Juhee Makkar, Rochelle Maurice, Jamie Robertson, Michael J. Szego & Dave Langlois - 2023 - American Journal of Bioethics 23 (4):74-77.
    Our team at the Centre for Clinical Ethics has long been engaged in internal discussion about the purpose and value of ethics debriefs and their purported role in reducing moral distress (Morley an...
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  183.  3
    Preventing Bias in Medical Devices: Identifying Morally Significant Differences.Anne-Floor J. de Kanter, Manon van Daal, Nienke de Graeff & Karin R. Jongsma - 2023 - American Journal of Bioethics 23 (4):35-37.
    Liao and Carbonell discuss the role of (supposed) racial differences and racism in two medical devices: pulse oximeters and spirometers. They show that what might seem like cases of mere bias, are...
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  184. ChatGPT: Temptations of Progress.Rushabh H. Doshi, Simar S. Bajaj & Harlan M. Krumholz - 2023 - American Journal of Bioethics 23 (4):6-8.
    ChatGPT is an artificial intelligence (AI) chatbot that processes and generates natural language text, offering human-like responses to a wide range of questions and prompts. Five days after its re...
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  185.  3
    Measure for Measure: Condemning the Actor and Not the Fault.Elizabeth G. Epstein, Ashley R. Hurst, Dawn Bourne & Mary Faith Marshall - 2023 - American Journal of Bioethics 23 (4):66-68.
    Kolbe and de Melo-Martin’s (2023) arguments draw attention to what is most useful about moral distress—identifying its causes is at least as important as measuring its severity. Jameton’s original...
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  186.  1
    How Materialized Oppression Contributes to Bioethics.Kadija Ferryman & J. Henry Brems - 2023 - American Journal of Bioethics 23 (4):1-5.
    Liao and Carbonell’s (2023) article, “Materialized Oppression in Medical Tools and Technologies” directs our attention, not to new cutting edge medical technologies, but to the pulse oximeter and t...
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  187. Materialized Oppression in Inpatient Psychiatric Unit Design.Grayson Holt, Jeffrey Zabinski & Topaz Sampson-Mills - 2023 - American Journal of Bioethics 23 (4):43-45.
    Liao and Carbonell argue that medical devices are often not merely biased, but rather materialize oppression through the perpetuation of oppression into the present and future (Liao and Carbonell 2...
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  188.  3
    Historicizing Technological Hegemony.Joel D. Howell - 2023 - American Journal of Bioethics 23 (4):38-40.
    Liao and Carbonell point out that much of the danger embedded in “materialized oppression” derives from the fact that the essence of that marginalized oppression may not be overt. It can often rece...
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  189.  4
    Systems, Wrongs, and Moral Aggregation.Katrina Hutchison - 2023 - American Journal of Bioethics 23 (4):24-25.
    Medical devices with built-in bias can both result from, and contribute to, harmful systemic racial oppression—a point that Liao and Carbonell (2023) argue convincingly in the target article of thi...
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  190.  2
    Moral Distress as Critique: Going beyond ‘Illegitimate Institutional Constraints’.Kate Jackson-Meyer, Xavier Symons & Charlotte Duffee - 2023 - American Journal of Bioethics 23 (4):79-82.
    Kolbe and de Melo-Martin (2023) raise important concerns about the limited usefulness of measures of moral distress. They propose that moral distress is best measured in terms of “illegitimate inst...
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  191.  1
    Racism-Conscious Praxis: A Framework to Materialize Anti-Oppression in Medicine, Public Health, and Health Policy.Rohan Khazanchi, Derek R. Soled & Ruqaiijah Yearby - 2023 - American Journal of Bioethics 23 (4):31-34.
    Liao and Carbonell explore how oppressive medical technologies constitute materiality insofar as they reflect past oppression, embody oppression in the present day, and carry oppression into the fu...
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  192.  1
    Moral Distress: The Context of Measurement.Niek Kok, Marieke Zegers, Cornelia Hoedemaekers & Jelle van Gurp - 2023 - American Journal of Bioethics 23 (4):71-74.
    Kolbe and de Melo-Martin (2023) provide a much needed reflection on the methods by which we measure moral distress. Their analysis, however, gives off the impression that the measures of moral dist...
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  193. Materialized Oppression in Medical Tools and Technologies.Shen-yi Liao & Vanessa Carbonell - 2023 - American Journal of Bioethics 23 (4):9-23.
    It is well-known that racism is encoded into the social practices and institutions of medicine. Less well-known is that racism is encoded into the material artifacts of medicine. We argue that many medical devices are not merely biased, but materialize oppression. An oppressive device exhibits a harmful bias that reflects and perpetuates unjust power relations. Using pulse oximeters and spirometers as case studies, we show how medical devices can materialize oppression along various axes of social difference, including race, gender, class, (...)
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  194.  4
    Capturing Moral Distress as a Global Phenomenon in Healthcare.Heidi Matisonn, Jantina de Vries & Jackie Hoare - 2023 - American Journal of Bioethics 23 (4):82-84.
    Whilst Kolbe and de Melo-Martin (2023) appropriately identify a range of concerns about the validity of existing instruments to measure moral distress, one additional limitation that the authors di...
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  195.  1
    Medicalized Oppression: Labels of “Violence Risk” in the Electronic Medical Record.Zamina Mithani & J. Wesley Boyd - 2023 - American Journal of Bioethics 23 (4):28-31.
    Often a physician’s first introduction to a patient is not a physical encounter but a review of their chart. A glaring “violence risk” flag in an Electronic Medical Record (EMR) is often noticeable...
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  196.  4
    Moral Distress and Justifiable Constraints on Moral Agency.Georgina Morley & Lauren R. Sankary - 2023 - American Journal of Bioethics 23 (4):77-79.
    While Jameton’s (1984) definition of moral distress has been embraced by researchers and scholars for recognizing the many constraints that nurses experience on their moral agency, it has also been...
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  197.  1
    Moral Distress Tools: Not Just a Question of What but Why Are We Measuring?Trisha M. Prentice - 2023 - American Journal of Bioethics 23 (4):59-61.
    All research tools have limitations. Not all tools will be suited to every purpose. Understanding the limitations and accurately interpreting the output from any tool is essential to conducting mea...
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  198.  3
    Instruments of Moral Distress: An Analysis Based on Scientificity and Application Value.Lijun Shen, Hui Zhang, Yongguang Yang, Shixiu Liao & Yuming Wang - 2023 - American Journal of Bioethics 23 (4):89-91.
    In the target article by Kolbe and de Melo-Martin (2023), the authors discussed several shortcomings of major instruments of moral distress, including the Moral Distress Scale (MDS) (Corley et al....
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  199.  6
    Measuring Moral Distress and its Various Sources.Connie M. Ulrich & Christine Grady - 2023 - American Journal of Bioethics 23 (4):63-65.
    Moral distress is indeed distressing for those who experience it and whose sense of integrity can be shaken by exposure to events or situations that test their core values and ethical belief system...
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  200.  1
    Moral Distress Is a Systemic Problem Requiring Organizational Solutions.Timothy Usset & Sophia Fantus - 2023 - American Journal of Bioethics 23 (4):84-86.
    Laura Kolbe and Inmaculada de Melo-Martin (2023) give perspective on the challenge of measuring and defining the concept of moral distress (MD). Limitations in psychometric instruments are a consta...
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  201.  1
    Evolving Measures of Moral Distress: Imperfect Does Not Mean Irrelevant.Lucia D. Wocial - 2023 - American Journal of Bioethics 23 (4):68-71.
    The article “Moral distress: What are we measuring?” by Kolbe and de Melo-Martin (2023) is an important contribution both to the literature and research agenda for the complicated construct of mora...
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  202.  5
    The Slippery Slope of Prenatal Testing for Social Traits.Courtney Canter, Kathleen Foley, Shawneequa L. Callier, Karen M. Meagher, Margaret Waltz, Aurora Washington, R. Jean Cadigan, Anya E. R. Prince & the Beyond the Medical R01 Research Team - 2023 - American Journal of Bioethics 23 (3):36-38.
    Bowman-Smart et al. (2023) argue for a framework to examine the ethical issues associated with genetic screening for non-medical traits in the context of noninvasive prenatal testing (NIPT). Such s...
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  203.  1
    Terminology and Consistency.Angus Clarke - 2023 - American Journal of Bioethics 23 (3):53-55.
    The paper by Bowman-Smart et al. (2023) on noninvasive prenatal genetic testing (NIPT) for non-medical traits aims to set out the case for and the case against such testing. In response to their pa...
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  204.  1
    Expanding Our Thoughts about Autonomy in Relation to Whether We Should Offer Genetic Testing for Nonmedical Traits.Kelly E. Ormond - 2023 - American Journal of Bioethics 23 (3):21-23.
    The Target Article “Non-invasive prenatal testing for ‘non-medical’ traits: ensuring consistency in ethical decision making” by Bowman-Smart et al. (2023) raises the important issue that “decision-...
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  205.  1
    Response to Open Peer Commentaries on “Ethical Issues in Using Behavior Contracts to Manage the ‘Difficult’ Patient Family”.Autumn Fiester - 2023 - American Journal of Bioethics 23 (3):1-4.
    In the piece, “Ethical Issues in Using Behavior Contracts to Manage the ‘Difficult’ Patient and Family,” Chase Yuan and I (Fiester and Yuan 2023) argue that an important set of ethical concerns nee...
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  206.  1
    Nurtured Genetics: Prenatal Testing and the Anchoring of Genetic Expectancies.Rémy Furrer, Shai Carmi, Todd Lencz & Gabriel Lázaro-Muñoz - 2023 - American Journal of Bioethics 23 (3):42-44.
    If polygenic risk scores for traits are to be provided to parents before—as opposed to after—a child is born, these scores will provide the very first units of information upon which parents will b...
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  207.  2
    Considering the Collective in Ethical Decision-Making Concerning Non-Medical Uses of Noninvasive Prenatal Testing.Tess Johnson - 2023 - American Journal of Bioethics 23 (3):23-25.
    In their recently published target article, Bowman-Smart et al. (2023) summarize the ethical issues at play in both the case for and the case against using NIPT to screen for non-medical traits.The...
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  208.  3
    Bioethicists Are Not so Divided on Reproductive Testing for Non-Medical Traits: Emerging Perspectives on Polygenic Scores.Kalina Kamenova & Hazar Haidar - 2023 - American Journal of Bioethics 23 (3):48-50.
    The article by Bowman-Smart et al. (2023) argues that there are inconsistencies in our ethical frameworks regarding the use of noninvasive prenatal testing (NIPT) and polygenic scores for identifyi...
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  209.  6
    Going Back to Basics: What is the Target of Prenatal Screening?Anne-Marie Laberge, Marie-Christine Roy, Erika Kleiderman & Vardit Ravitsky - 2023 - American Journal of Bioethics 23 (3):50-52.
    In “Non-invasive prenatal testing for ‘non-medical’ traits: Ensuring consistency in ethical decision-making,” Bowman-Smart et al. (2023) lay out arguments both for and against the potential use of...
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  210.  2
    The Need for Diverse Empirical Data to Inform the Use of Polygenic Risk Scores in Prenatal Screening.Skye Adell Miner & Stacey Pereira - 2023 - American Journal of Bioethics 23 (3):39-41.
    Bowman-Smart et al. (2023) suggest that the current ethical frameworks used to evaluate the use of noninvasive prenatal technologies (e.g., NIPT) are inconsistent when used to analyze the ethics of...
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  211.  6
    The Potential Role of Nudging in Expanded Noninvasive Prenatal Testing.Kelsey Mumford, Nina Roesner & Benjamin E. Berkman - 2023 - American Journal of Bioethics 23 (3):61-63.
    The authors of the target article discuss the expansion of the scope of noninvasive prenatal testing (NIPT) that is likely to occur in the near future, including its possible extension to “non-medi...
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  212.  2
    Consistency of What? Appropriately Contextualizing Ethical Analysis of Non-Invasive Prenatal Testing.Ainsley J. Newson, Zuzana Deans, Lisa Dive & Isabella Catherine Holmes - 2023 - American Journal of Bioethics 23 (3):56-58.
    It is unarguable that the implementation and use of noninvasive prenatal testing (NIPT) should be critical and appropriate. After all, decisions that influence when and how to have children have ut...
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  213.  1
    Role of Vulnerability and Control in Prenatal Testing Ethical Decision-Making.Renzo Pegoraro, Carlo Casalone & Monica Consolandi - 2023 - American Journal of Bioethics 23 (3):34-36.
    Due to the recent gains in biomedical sciences, the fetus1 is more exposed and subjected to increasing possibilities of intervention, becoming a full-fledged patient, and entering more often into a...
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  214.  6
    Prenatal Testing for Non-Medical Traits.Stephen R. Quake - 2023 - American Journal of Bioethics 23 (3):1-2.
    Bowman-Smart et al. (2023) have written a thoughtful and balanced essay examining some of the ethical issues surrounding large scale use of noninvasive prenatal testing (NIPT) (Fan et al. 2008; Chi...
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  215.  6
    Genomic uncertainty as a burden for reproductive choice? The problem of probabilistic causation in non-invasive prenatal testing.Jon Rueda & Mar Vallés-Poch - 2023 - American Journal of Bioethics 23 (3):26-28.
    Hilary Bowman-Smart et al. (2023) have rightly pointed out that one of the recurring criticisms of the use of noninvasive prenatal testing (NIPT) for nonmedical trait prediction is the probabilistic nature of polygenic scores. Those estimates do not establish a direct causal relationship, but rather a probabilistic association between having some genetic variants and the development of particular traits. The authors then suggest that differences in the predictive value of polygenic scores may pose a practical problem that increases the information (...)
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  216.  3
    Genomic Uncertainty as a Burden for Reproductive Choice? The Problem of Probabilistic Causation in Non-Invasive Prenatal Testing.Jon Rueda & Mar Vallès-Poch - 2023 - American Journal of Bioethics 23 (3):26-28.
    Hilary Bowman-Smart et al. (2023) have rightly pointed out that one of the recurring criticisms of the use of noninvasive prenatal testing (NIPT) for non-medical trait prediction is the probabilist...
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  217.  2
    Including Non-Medical Traits in the NIPT: What Can We Learn from an Ethics of Care Approach?Anke Snoek & Sanne Van Der Hout - 2023 - American Journal of Bioethics 23 (3):32-33.
    Bowman-Smart and colleagues (2023) argue that techniques to screen and analyze the fetal genome are rapidly evolving, and are sometimes already offered commercially. These new developments will all...
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  218.  3
    Noninvasive Testing for “Non-Medical” Traits: A Misplaced Expressive Concern, Tough Policy Choices.David Wasserman - 2023 - American Journal of Bioethics 23 (3):59-61.
    Bowman-Smart et al. (2023) do an admirable job of explaining the expansion of noninvasive prenatal testing and outlining the arguments for and against testing for “non-medical” traits—arguments com...
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  219.  1
    Security and Sharing of NIPT Data Are the Basis of Ethical Decision-Making Related to Non-Medical Traits.Wenke Yang, Zhenglong Guo, Weili Shi, Litao Qin, Xiaoliang Xia, Bingtao Hao & Shixiu Liao - 2023 - American Journal of Bioethics 23 (3):29-31.
    Bowman-Smart et al. (2023) outlined the scenario that with the content expansion of noninvasive prenatal testing (NIPT) in the future, its application is not limited to the screening for aneuploidi...
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  220.  1
    Anticipatory Governance of Noninvasive Prenatal Testing for “Non-Medical” Traits: Lessons from Regulation of Medically Assisted Reproduction.Hui Zhang, Jing Wang, Yan Qin, Chuanfeng Zhang, Bingwei Wang & Yuming Wang - 2023 - American Journal of Bioethics 23 (3):45-47.
    Bowman-Smart et al. (2023) sketched a hypothetical scenario involving noninvasive prenatal testing (NIPT) for “non-medical” traits available for expectant parents in the near future. By critically...
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  221.  5
    Clarifying the DDR and DCD.James L. Bernat - 2023 - American Journal of Bioethics 23 (2):1-3.
    Over the past quarter century, organ donation after the circulatory determination of death (DCD) has grown in acceptance and prevalence throughout the world (Domínguez-Gil et al. 2021). Notwithstan...
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  222.  10
    Never Let Me Go: “Almost Dead” Isn’t Good Enough.Michelle J. Clarke - 2023 - American Journal of Bioethics 23 (2):60-61.
    Nobel Laureate Kazou Ishiguro’s (2010) novel “Never Let Me Go” follows individuals intentionally bred to donate their organs over multiple years, ultimately dying when the final “vital organs” are...
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  223.  4
    Changing the Focus in the Donation After Circulatory Death Debates.Miriam Piven Cotler, Michael Nurok, Pedro A. Catarino, Rosemary O’Meeghan & Jason N. Batten - 2023 - American Journal of Bioethics 23 (2):48-49.
    In their target article, Nielsen Busch and Mjaaland (2023) address a longstanding debate within the bioethics and organ transplantation community regarding whether controlled donation after circula...
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  224.  7
    Normothermic Regional Perfusion, Causes, and the Dead Donor Rule.Andrew M. Courtwright - 2023 - American Journal of Bioethics 23 (2):46-47.
    The interpretation of the dead donor rule (DDR) has been central to recent debates regarding normothermic regional perfusion with controlled donation after circulatory death (NRP-cDCD). Proponents...
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  225.  6
    Donor Rules—Dead and Living.Jed Adam Gross - 2023 - American Journal of Bioethics 23 (2):61-63.
    The “Dead Donor Rule” (DDR) is an important injunction shaping the field of organ retrieval and scholarly assessments of specific retrieval practices’ permissibility (e.g., Pasquerella, Smith, and...
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  226.  3
    Some Problems with the ‘It Has Been Decided That You Will Die and Are No Longer in Need of Your Organs Donor Rule’.Søren Holm - 2023 - American Journal of Bioethics 23 (2):26-28.
    In their intriguing and closely argued paper Nielsen Busch and Mjaaland argue that the “Dead Donor Rule” (DDR) has been consistently misinterpreted and that it should properly be understood as a ru...
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  227.  16
    DCD Donors Are Dying, but Not Dead.L. Syd M. Johnson - 2023 - American Journal of Bioethics 23 (2):28-30.
    As usually understood, the Dead Donor Rule (DDR) for organ donation requires either that (1) the donor is already dead (which legally occurs when death is determined by neurological criteria), and/or that (2) organ procurement does not cause the donor’s death.
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  228.  6
    Almagest Again? An Epistemological Critique of Nielsen Busch and Mjaaland.David Kaufman, Michael J. Nabozny & Margie Hodges Shaw - 2023 - American Journal of Bioethics 23 (2):33-35.
    Nielsen Busch and Mjaaland (2023) argue that controlled donation after circulatory death does not violate the dead donor rule because the dead donor rule “merely requires that procurement of organs...
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  229.  3
    The Needs to Focus on Process and Precise Language in Ethical Determination of cDCD.Robert Klitzman & Ahmed N. Khan - 2023 - American Journal of Bioethics 23 (2):50-52.
    Nielsen Busch and Mjaaland (2023) raise important considerations, but confuse certain critical issues and overlook others, and questions emerge about how these decisions should be made in our socie...
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  230.  4
    Why We Still Need a Substantive Determination of Death.Karola Kreitmair - 2023 - American Journal of Bioethics 23 (2):55-57.
    In their target article, Nielsen Busch and Mjaaland (2023) exhort us to stop “focus[ing] on the validity of the criteria for determination of [circulatory] death” and “instead [look at] DCD protoco...
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  231.  5
    The Dead Donor Rule, Reversibility and Donor Wishes.Stephen R. Latham & Ramesh K. Batra - 2023 - American Journal of Bioethics 23 (2):31-32.
    We agree with Nielsen Busch and Mjaaland’s (2023) assessment that the Dead Donor Rule (DDR) should be viewed as an essential requirement of the organ donation process, and that the essence of the r...
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  232.  4
    Cerebral Circulatory Arrest and the Dead Donor Rule.Christos Lazaridis - 2023 - American Journal of Bioethics 23 (2):43-45.
    Nielsen Busch and Mjaaland argue that controlled donation after circulatory death (DCD), and normothermic regional perfusion (NRP) do not violate the dead donor rule (DDR) (Nielsen Busch and Mjaala...
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  233.  5
    Donors and Organs at the Borders of Vitality and Public Trust: Why DCD Donors Must Be Dead and Not Dying.John P. Lizza & Aasim Padela - 2023 - American Journal of Bioethics 23 (2):53-55.
    In their target article, Nielsen Busch and Mjaaland seek to shift focus away from controversy over whether donors in protocols of controlled donation after circulatory death (cDCD) are dead. Citing...
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  234.  6
    Dead Enough? NRP-cDCD and Remaining Questions for the Ethics of DCD Protocols.Patrick McCruden, Jason T. Eberl, Erica K. Salter & Kyle Karches - 2023 - American Journal of Bioethics 23 (2):41-43.
    In their article, Nielsen Busch and Mjaaland defend the moral permissibility of cDCD, suggesting that much of the controversy around this donation practice has been the result of a misinterpretatio...
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  235.  6
    Is Transparency about the Line between Life and Death Good for Organ Donation?Jerry Menikoff - 2023 - American Journal of Bioethics 23 (2):24-26.
    People of a certain age will immediately recognize the image of a distraught woman, hand to her forehead, bemoaning how she just now realized that she forgot to have children. Nielsen Busch and Mja...
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  236.  3
    Pragmatic Aspects of Controlled Donation after Circulatory Death and Ethical Considerations for Alternative Approaches.Paul Morrissey - 2023 - American Journal of Bioethics 23 (2):14-17.
    A 55-year-old man, admitted to the hospital after an episode of aphasia due to transient ischemic attack, underwent ultrasound imaging that showed near occlusion of the left carotid artery. A carot...
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  237.  6
    The Dead Donor Rule Is Not Morally Sufficient.Stephen Napier - 2023 - American Journal of Bioethics 23 (2):57-59.
    Nielsen Busch and Mjaaland (2023) argue that controlled donation after cardiac death (cDCD) protocols prescribe the extraction of organs that do not violate the dead donor rule. I argue here that e...
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  238.  3
    Protecting Life and Ensuring Death—Confounding the Dead Donor Rule.Adam Omelianchuk - 2023 - American Journal of Bioethics 23 (2):20-22.
    Nielsen Bush and Mjaaland (“the authors” hereafter) argue that controlled donation after circulatory death (cDCD) protocols that target abdominal organs are consistent with the dead donor rule (DDR...
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  239.  3
    Not Dead, but Close Enough? You Cannot Have Your Cake and Eat It Too in Satisfying the DDR in cDCD.Brendan Parent & Tamar Schiff - 2023 - American Journal of Bioethics 23 (2):22-24.
    In “Does Controlled Donation after Circulatory Death Violate the Dead Donor Rule?” the authors maintain that compliance with the dead donor rule (DDR) does not require a valid determination of deat...
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  240.  3
    The Dead Donor Rule Does Require that the Donor is Dead.Lainie Ross - 2023 - American Journal of Bioethics 23 (2):12-14.
    Emil Nielsen Busch and Marius Mjaaland (2023) ask whether controlled donation after circulatory death (cDCD) violates the dead donor rule (DDR). They begin their article with the claim, “The dead d...
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  241.  4
    Don’t Leave the Heart Behind.Robert Sade & John Entwistle - 2023 - American Journal of Bioethics 23 (2):38-40.
    The Dead Donor Rule (DDR) states that organ donation must not cause the death of the donor and is generally interpreted as requiring that the donor be declared dead before organs can be removed (Be...
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  242.  7
    Death Lost in Translation.Daniel P. Sulmasy & Anne L. Dalle Ave - 2023 - American Journal of Bioethics 23 (2):17-19.
    We thank Nielsen Busch and Mjaaland for their article on the dead donor rule (Nielsen Busch and Mjaaland 2023). We would like to take this opportunity to go beyond the dead donor rule in order to r...
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  243.  3
    Defining the Cause of Death and Vitality of Organs in the Ethical Analysis of Controlled Donation after Circulatory Death Procedures.Giuliano Testa & Anji Wall - 2023 - American Journal of Bioethics 23 (2):35-38.
    In their manuscript, Nielsen Busch and Mjaaland (2023) argue that controlled donation after circulatory death (cDCD) is compatible with the dead donor rule (DDR) by describing the DDR and the incor...
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  244.  3
    Whose Trauma? Who’s Trauma Informed?Uchenna E. Anani & Elizabeth Lanphier - 2023 - American Journal of Bioethics 23 (1):98-100.
    This case raises questions of what “trauma-informed care” (TIC) means to the medical team caring for Maurice and how they embrace a TIC approach. There are established principles of trauma-informed...
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  245.  5
    Rethinking the Moral Authority of Experience: Critical Insights and Reflections from Black Women Scholars.Alicia Best, Folasade C. Lapite & Faith E. Fletcher - 2023 - American Journal of Bioethics 23 (1):27-30.
    The field of bioethics is calling for a new generation of scholars equipped with the normative, empirical, and practical knowledge and expertise to prioritize equity concerns largely underrepresent...
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  246.  99
    The Benefits of Experience Greatly Exceed the Liabilities.Ethan Bradley & David Wasserman - 2023 - American Journal of Bioethics 23 (1):44-46.
    Nelson et al.(2023) argue that the inclusion of personal experience in bioethical debates has significant benefits and liabilities, illustrating their claim with two examples: unproven medical treatments and disability bioethics. We believe that the benefits of including personal experience in disability bioethics far exceed its liabilities. The absence of participants with relevant experience impoverishes and biases bioethical debates, while the biases risked by their inclusion are hardly unique to personal experiences and are readily mitigated.
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  247.  2
    Paperwork: Put Behavior Contracts at the Bottom of the Pile.Caroline Ann Buchanan - 2023 - American Journal of Bioethics 23 (1):75-77.
    In their article, “Ethical Issues in Using Behavior Contracts to Manage the “Difficult’ Patient and Family,” Autumn Fiester and Chase Yuan (2023) identify six ethical concerns regarding the specifi...
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  248.  4
    Conflict Over Death by Neurologic Criteria: Caution, Consent, and Nursing Considerations.Sabrina F. Derrington & Brenda Barnum - 2023 - American Journal of Bioethics 23 (1):88-90.
    Maddie’s story illustrates the critical importance of healthcare teams (HCTs) having inclusive multidisciplinary provider meetings prior to siloed conversations with families. It is paramount that...
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  249.  3
    Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?Leah R. Eisenberg - 2023 - American Journal of Bioethics 23 (1):86-87.
    In popular culture, death is typically presented as clear and binary- someone is either walking and talking and alive, or very obviously still and dead. Reality is more complicated than the movies,...
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  250.  4
    Trusting the Ethics Consultant: Adopting a Trauma-Informed Approach to Ethics Consultation.P. J. Ford, G. Morley & L. R. Sankary - 2023 - American Journal of Bioethics 23 (1):101-103.
    Layers of complexity arise when a person arrives in an Intensive Care Unit (ICU) due to self-harm intended to end their life and when there is known past personal trauma. We highlight three importa...
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  251.  4
    The Patient as Responsible Agent: Ethical Constructs Important to considering Behavioral Contracts for “Difficult” Patients and Families.James Giordano & Megan Applewhite - 2023 - American Journal of Bioethics 23 (1):77-79.
    Fiester and Yuan (2023) highlight ethical concerns important for considering behavioral contracts to manage charged/challenging interactions with patients and/or families. We support the viability...
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  252.  2
    What is “Personal” About Personal Experience? A Call to Reflexivity for All.Meghan Halley & Colin Halverson - 2023 - American Journal of Bioethics 23 (1):39-41.
    In their article, Nelson et al. (2023) raise concerns regarding the “paradox of experience” as it relates to the practice of bioethics. They argue that while experience provides individuals with in...
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  253.  3
    The Fallibility of Personal Experience.Eva Feder Kittay - 2023 - American Journal of Bioethics 23 (1):25-27.
    This excellent article (Nelson et al. 2023) clarifies the difficulties of incorporating diverse voices and those who speak of their own experience, into bioethics, a field that aspires to be object...
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  254.  1
    The Problem of “Relevant Experience”.Craig Konnoth - 2023 - American Journal of Bioethics 23 (1):36-38.
    In their intriguing article “Bioethics and the Moral Authority of Experience,” Nelson and colleagues (2023) provide important insight into an important ethical problem. We frequently demand that th...
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  255.  2
    Beyond Mediation: A Toolkit Approach to Preventing and Managing Conflict with Patients and Families in Difficulty.Deena R. Levine, Katherine B. Steuer, Kimberly E. Sawyer, Andrew Elliott & Liza-Marie Johnson - 2023 - American Journal of Bioethics 23 (1):70-73.
    While we agree with Fiester and Yuan (2023) that ethicists should not execute behavioral agreements in their role as clinical consultants along with many of the authors’ criticisms of such contract...
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  256.  3
    The Right Tool for the Job: A Taxonomy for Stakeholder Engagement.Katherine E. MacDuffie - 2023 - American Journal of Bioethics 23 (1):33-35.
    Nelson et al. (2023) have deftly articulated a “paradox of experience” that applies to most if not all stakeholder engagement efforts in bioethics. Eliciting the perspectives of people with first-h...
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  257.  2
    Pediatric Brain Death Testing Over Parental Objections: Not an Ethically Preferable Option.Jonathan M. Marron - 2023 - American Journal of Bioethics 23 (1):90-93.
    In many ways, Maddie’s case brings together some of the most challenging features seen in clinical ethics consultation. First, it centers around a heart-wrenching event—the near-drowning of a young...
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  258.  2
    Transforming Behavior Contracts Into Collaborative Commitments With Families.Armand H. Matheny Antommaria, Laura Monhollen, Dawn Nebrig & Jerry Schwartz - 2023 - American Journal of Bioethics 23 (1):73-75.
    Staff at Cincinnati Children’s Hospital Medical Center used behavior contracts to address “difficult” patients and families for years. Nonadherence with recommended medical treatments was generally...
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  259.  6
    Who’s Experience, Which Liability?Jennifer McCurdy & Michelle T. Pham - 2023 - American Journal of Bioethics 23 (1):41-43.
    Nelson et al. (2023) make a unique contribution, raising key questions and considerations about the value of lived experiences as they pertain to normative debates in bioethics. The authors grapple...
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  260.  2
    Disability Bioethics and the “Liabilities” of Personal Experience.Kevin Todd Mintz - 2023 - American Journal of Bioethics 23 (1):31-33.
    In “Bioethics and the Moral Authority of Experience,” Ryan Nelson et al. (2022) argue that personal experience can simultaneously be an asset and a liability in the practice of bioethics and medici...
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  261.  2
    Potential Legal Problems Embedded in Behavior Contracts.Haavi Morreim - 2023 - American Journal of Bioethics 23 (1):61-64.
    Fiester and Yuan (2023) address an important, hitherto underdiscussed issue: ethical hazards of behavior contracts linked to patients’ and families’ demeanor in interacting with the healthcare team...
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  262.  5
    Unique Ethical and Practical Considerations in the Use of Behavior Contracts for Families of Minors and Minoritized Populations in Pediatric Settings.Erin Talati Paquette, Lori Mendelsohn & Aleksandra E. Olszewski - 2023 - American Journal of Bioethics 23 (1):82-85.
    Fiester and Yuan discuss important ethical concerns regarding the use of behavior contracts in addressing conflict with patients and families labeled as “difficult” (Fiester and Yuan 2023). We agre...
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  263.  6
    Behavior Contracts Are Not Psychologically Naïve.Michael Redinger - 2023 - American Journal of Bioethics 23 (1):79-81.
    Fiester and Yuan offer several critiques of the use of behavior contracts in managing difficult patients and families (Fiester and Yuan 2023). This open peer commentary is not intended to refute ea...
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  264.  2
    Behavior Contracts and Lessons from Parenting “Rotten” Kids.Rosamond Rhodes & Jolion McGreevy - 2023 - American Journal of Bioethics 23 (1):67-70.
    In their paper, “Ethical Issues in Using Behavior Contracts to Manage the “Difficult” Patient and Family,” Autumn Fiester and Chase Yuan raise numerous important ethical concerns regarding behavior...
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  265.  1
    Ethics, Engagement, and Escalating Interventions.John S. Rozel - 2023 - American Journal of Bioethics 23 (1):65-67.
    Workplace violence in healthcare has become a crisis in and of itself. Before COVID, more than three-quarters of all US workplace violence injuries were against healthcare professionals with some s...
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  266.  5
    “What Does a Life Worth Living Mean to You?” Narrative Approaches to Ethics Consultation in the Context of Trauma, Treatment Refractory Depression, and Life-Sustaining Care Refusals.Kaila A. Rudolph - 2023 - American Journal of Bioethics 23 (1):103-106.
    Trauma informed care (TIC) “realizes the widespread impact of trauma… recognizes the signs and symptoms of trauma in clients, families and staff; responds by fully integrating knowledge of trauma i...
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  267.  4
    Bioethics and the Power Asymmetry Contextualizing Experience.Joseph A. Stramondo - 2023 - American Journal of Bioethics 23 (1):1-3.
    In “Bioethics and the Moral Authority of Experience,” Nelson et al. explore what they refer to as “The Paradox of Experience.” The authors characterize this paradox formally as follows:(A) Personal...
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  268.  2
    Trauma-Informed Ethics Consultation in the ICU: Exploring Best Practices in a Case Involving a Self-Inflicted Gunshot Wound.Anita J. Tarzian - 2023 - American Journal of Bioethics 23 (1):96-97.
    Responding to the impact of prior trauma on mental and physical health and disease/injury recovery is decades-old. In the 1970s, healthcare providers and researchers expanded our understanding of h...
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  269.  2
    Assisted Dying: More Attention Should Be Paid to the Epistemic Asset of Personal Experience.Yuming Wang, Yongguang Yang, Feifei Gao, Lihan Miao & Hui Zhang - 2023 - American Journal of Bioethics 23 (1):46-49.
    The target article (Nelson et al. 2023) offers a valuable contribution to the “paradox of experience,” which was illustrated by using examples about access to unproven medical products and disabili...
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  270.  4
    Responding to Parental Objections Over Testing for Death by Neurologic Criteria.Ian D. Wolfe - 2023 - American Journal of Bioethics 23 (1):94-95.
    Navigating tragic circumstances in pediatrics requires consideration of parental grief responses. We meet parents where they are, not where we might want them to be. Different parents grieve differ...
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