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  1. Narrative Ethics, COVID-19, and Flawed Stories.Howard Brody - 2022 - Perspectives in Biology and Medicine 65 (4):535-539.
    ABSTRACT:The bioethics literature has paid little attention to resistance to COVID-19 vaccination, despite the safety and effectiveness of vaccines and the heavy death toll of the virus. A narrative approach to the problem might begin with descriptions of good and bad narratives about vaccination. Bad stories about vaccination tend to be constructed backwards, starting with the desired conclusion (vaccination is dangerous or ineffective) and from that filling in needed "facts" to support the conclusion. Physicians need to act in more trustworthy (...)
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  2. Protecting Practitioners in Stressed Systems: Translational Bioethics and the COVID-19 Pandemic.Mara Buchbinder, Nancy Berlinger & Tania M. Jenkins - 2022 - Perspectives in Biology and Medicine 65 (4):637-645.
    ABSTRACT:COVID-19 revealed health-care systems in crisis. Intersecting crises of stress, overwork, and poor working conditions have led to workforce strain, under-staffing, and high rates of job turnover. Bioethics researchers have responded to these conditions by investigating the ethical challenges of pandemic response for individuals, institutions, and health systems. This essay draws on pandemic findings to explore how empirical bioethics can inform post-pandemic translational bioethics. Borrowing from the concept of translational science in medicine, this essay proposes that translational bioethics should communicate (...)
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  3. Transformative Justice in Ethics Consultation.Georgina Campelia, Aleksandra E. Olszewski, Tracy Brazg & Holly Hoa Vo - 2022 - Perspectives in Biology and Medicine 65 (4):612-621.
    ABSTRACT:Clinical ethics consultants bear witness to the direct harms of intersecting axes of oppression—such as racism and classism—as they impinge on elucidating and resolving ethical dilemmas in health care. Health Care Ethics Consultation (HCEC) professional guidance supports recognizing and analyzing power dynamics and social-structural obstacles to good care. However, the most relied upon bioethical principles in clinical ethics have been criticized for insufficiency in this regard. While individual ethics consultants have found ways to expand their approaches, they do so in (...)
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  4. Ecological Health: Ethics as the Starting Place.John Compton & Keith Meador - 2022 - Perspectives in Biology and Medicine 65 (4):540-547.
    ABSTRACT:When considering the health and flourishing of humans and human communities, we cannot ignore that we are constitutively bound to the health of ecosystems of which we are a part. As such, global climate change is a central concern for health care and bioethics. Addressing the complex and interrelated realities bound up with global climate change requires a multifaceted and integrated approach from diverse academic and professional disciplines and perspectives. This essay offers a brief conceptual framing of Vanderbilt University Medical (...)
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  5. A Translational Role for Bioethics: Looking Back and Moving Forward.Marion Danis - 2022 - Perspectives in Biology and Medicine 65 (4):596-603.
    ABSTRACT:Assumptions that bioethics was intended to focus only on a narrow set of issues related to research and health care are mistaken. The field of bioethics has long been focused on pressing contemporary issues, and it will play an unduly peripheral and less significant role than it could otherwise if it fails to focus on a broad set of issues, including human relations and the relationship of humans to nonhuman beings and the environment—and if it does not consider how to (...)
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  6. The Lifeboat at World's End: Moving Beyond Crisis Standards of Care.James E. Black - 2022 - Perspectives in Biology and Medicine 65 (4):559-568.
    ABSTRACT:It may be too late to avoid the climate crisis, likely to be humanity's most expensive, widespread, and enduring catastrophe. This is a qualitatively different kind of catastrophe, in which increased costs, decreased revenue, and no possibility of bailout force communities to harshly cut budgets, especially in health care. Little is known about making such brutal cuts fair or efficient, nor how to help the public accept them. The crisis presents an opportunity for bioethicists to play a crucial role, but (...)
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  7. What Bioethicists Need to Know About the Social Determinants of Health—and Why.Gail E. Henderson - 2022 - Perspectives in Biology and Medicine 65 (4):664-671.
    ABSTRACT:What more can be said about COVID-19 and the social determinants of health? This article describes neglected perspectives that derive from the history of social epidemiology, a field that identifies the social etiology of disease and variations in disease incidence among people differentially located in the social structure. The "discovery" of social determinants of diseases like COVID-19 is nothing new for epidemiology: debate over how to analyze structural determinants versus individual-level risk factors persisted throughout the 19th and 20th centuries. By (...)
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  8. The Twin Crises of Principles and Stories.Arthur W. Frank - 2022 - Perspectives in Biology and Medicine 65 (4):529-534.
    ABSTRACT:This symposium contribution argues that politicized responses to the COVID-19 pandemic mark the fracturing of the consensus that bioethics has been built upon. This consensus involved the mutual dependence of principles and stories: principles need stories to become applicable in clinical action, and stories need to reflect principles if they are to make generalized claims. Two mid-20th-century theorists, Erving Goffman and Walter Benjamin, each predicted the thinness of appeals to principles and to stories, respectively; their skepticism describes our moment. Anti–public (...)
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  9. Environmentalizing Bioethics: Planetary Health in a Perfect Moral Storm.Stephen M. Gardiner - 2022 - Perspectives in Biology and Medicine 65 (4):569-585.
    ABSTRACT:Many of humanity's most serious problems are global, intergenerational, and ecological, yet current institutions are poorly placed to confront such problems. In part, this institutional challenge reflects difficulties with our basic concepts and theories. Bioethics is a central area where such questions arise. Although some have argued for an environmentalized bioethics since its inception, biomedicine has thus far failed to embrace the challenge, and some accuse most bioethicists of being "asleep at the wheel" (Schenck and Churchill 2021). This paper discusses (...)
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  10. A Bioethics for Democracy: Restoring Civic Vision.Bruce Jennings - 2022 - Perspectives in Biology and Medicine 65 (4):646-653.
    ABSTRACT:Democracy—as a form of governance, a moral community, and a way of life—is under great stress. The prospects for democracy and bioethics are linked because bioethics relies on an open society and a democratic cultural environment in order to flourish. For its part, democracy can be restored and strengthened by widespread cultural and psychological support for the values of mutual recognition, equal dignity and respect for persons, and solidarity, interdependence, and the common good. Promoting values such as these is in (...)
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  11. Othering and Health Justice.Nancy M. P. King - 2022 - Perspectives in Biology and Medicine 65 (4):604-611.
    ABSTRACT:Bioethics needs to expand its vision. We must examine and interrogate the social and structural barriers that help traditionally privileged communities maintain minoritized groups as inherently inferior "others." Justice requires the field to look beyond the walls of hospitals, clinics, and medical academia to address and ameliorate the structural injustices that give rise to health disparities long before differential access to health services becomes an issue for underserved patients. Doing so means engaging in challenging multidisciplinary collaborations in order to understand (...)
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  12. A Call for Behavioral Science in Embedded Bioethics.Kristin M. Kostick-Quenet, Benjamin Lang, Natalie Dorfman & J. S. Blumenthal-Barby - 2022 - Perspectives in Biology and Medicine 65 (4):672-679.
    ABSTRACT:Bioethicists today are taking a greater role in the design and implementation of emerging technologies by "embedding" within the development teams and providing their direct guidance and recommendations. Ideally, these collaborations allow ethical considerations to be addressed in an active, iterative, and ongoing process through regular exchanges between ethicists and members of the technological development team. This article discusses a challenge to this embedded ethics approach—namely, that bioethical guidance, even if embraced by the development team in theory, is not easily (...)
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  13. Bioethics and Civic Education in a Post-Roe America.Elizabeth Lanphier - 2022 - Perspectives in Biology and Medicine 65 (4):654-663.
    ABSTRACT:This essay explores how bioethics as a field, rather than as a collection of individual efforts by bioethicists working within it, can inform deliberation on matters of bioethical import that, for better or worse, are in the hands of civic processes. It is motivated by the repeal of a constitutional protection of abortion access in the Supreme Court Dobbs v. Jackson Women's Health Organization decision, which effectively returned abortion regulations to states rather than setting a baseline federal protection of abortion (...)
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  14. Editors' Introduction to the Special Issue on the Translational Work of Bioethics.Elizabeth Lanphier & Larry R. Churchill - 2022 - Perspectives in Biology and Medicine 65 (4):515-520.
    In lieu of an abstract, here is a brief excerpt of the content:Editors' Introduction to the Special Issue on the Translational Work of BioethicsElizabeth Lanphier and Larry R. ChurchillRecent essays in Perspectives and Biology and Medicine, including "Can Clinical Ethics Survive Climate Change" by Andrew Jameton and Jessica Pierce and "Ethical Maxims for a Marginally Inhabitable Planet" by David Schenck and Larry R. Churchill, both appearing in the Autumn 2021 issue, inspired conversations between us, among our colleagues, and with various (...)
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  15. Revising the Bioethics Story: Memory and Story in Precarious Times.John A. Lynch - 2022 - Perspectives in Biology and Medicine 65 (4):521-528.
    ABSTRACT:The foundation story of bioethics is, as Susan Reverby (2009) argues, one of a trinity of horror stories culminating in what we commonly call the "Tuskegee Syphilis Study." The foundation story emphasizes that medical researchers violated participant autonomy by deceiving them about their medical conditions, the goals of the study, and the treatments they would receive, and by failing to consider the health and best interests of the research participant. While this story reflects some key elements of the Tuskegee study, (...)
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  16. Can Bioethics Do for Our Planet What It's Done for Autonomy?Cheryl C. Macpherson - 2022 - Perspectives in Biology and Medicine 65 (4):548-558.
    ABSTRACT:Planet Earth and its growing human population are challenged by the health impacts of industrial policies that drive global emissions production and cause climate change. The health-care industry has capacity and responsibility to adopt environmentally sustainable policies and practices. Bioethicists have a responsibility to support environmental sustainability through their clinical, research, educational, and policy work. They communicate complex ideas to diverse stakeholders and can communicate similarly to improve understanding about emissions and the value of environmentally sustainable policy. A growing bioethics (...)
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  17. Health Equity Is No Spectator Sport: The Radical Rooting of a Post-Pandemic Bioethics.Abraham M. Nussbaum & Matthew Allen - 2022 - Perspectives in Biology and Medicine 65 (4):586-595.
    ABSTRACT:The relationship between equality and equity has been theorized and described in many ways. Recently, this relationship has been popularly illustrated via a meme depicting three people watching a baseball game while standing on boxes. The meme's analogy, that achieving health equity is the ability to view a spectator sport, is a neoliberal account of health. The analogy defines equality at the expense of equity, characterizes health as individualistic, describes health equity as a static outcome, and implies that the bioethical (...)
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  18. Bioethics in the Current Climate.Lisa S. Parker - 2022 - Perspectives in Biology and Medicine 65 (4):680-693.
    ABSTRACT:Drawing on insights from feminist epistemology and experience in genomics-related bioethics research, this essay offers three suggestions that may enable bioethics to contribute more persuasively to urgent issues affecting the health and well-being of individuals, communities, and the world they inhabit. First, it suggests that bioethics pay more attention to people's feelings, particularly those that help constitute their self-identities, and to the role of those feelings in their health-relevant behaviors. Further, it proposes conceiving of health-relevant behaviors expansively. Second, it suggests (...)
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  19. Running Toward Disasters: One Bioethicist's Experience in Translational Ethics.Tia Powell - 2022 - Perspectives in Biology and Medicine 65 (4):622-628.
    ABSTRACT:Translational ethics is a practice that aims to apply bioethics insights and process to the real-world contexts of clinical medicine, but also government policy, systems issues, and public health. This work has been a career focus for a relatively small number of bioethicists over the years, but it has drawn greater attention due to the pandemic and a greater realization of the impact of health inequities and systemic injustice. This essay discusses the pathway, rewards, and challenges of translational bioethics as (...)
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  20. Why the World Needs Bioethics Communication.Travis N. Rieder, Lauren Arora Hutchinson & Jeffrey P. Kahn - 2022 - Perspectives in Biology and Medicine 65 (4):629-636.
    ABSTRACT:This essay argues for the importance of formalizing public engagement efforts around bioethics as something we might call "bioethics communication," and it outlines the Johns Hopkins Berman Institute of Bioethics' plans for engaging in this effort. Because science is complex and difficult to explain to nonexperts, the field of science communication has arisen to meet this need. The field involves both a practice and a subject of empirical research. Like science, bioethics is also complex and difficult to explain, which is (...)
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  21. COVID-19, Graphic Medicine, and Thinking Beyond Data.Sathyaraj Venkatesan & Ishani Anwesha Joshi - 2022 - Perspectives in Biology and Medicine 65 (4):694-709.
    ABSTRACT:Datafication has allowed us to quantify every facet of the corona-virus pandemic. A significant quantity of data sets on infection and recovery rates, mortality, comorbidities, the intensity of symptoms, region-by-region statistics, vaccination, and virus variants, among other things, has been made publicly available. However, these data sets relentlessly reduce human beings to mere numbers and graph points. The present study employs a close reading of comic panels to demonstrate how graphic medicine uses data to critique, supplement, and expose its lacunae. (...)
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  22.  5
    A Brief History of the Discovery of Gene Cloning in 1975.Jacalyn Duffin & Bernard Mach - 2022 - Perspectives in Biology and Medicine 65 (3):442-457.
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  23.  4
    Genetic Essentialism and Social Warranting.Colin M. E. Halverson - 2022 - Perspectives in Biology and Medicine 65 (3):396-414.
  24.  2
    Darwinian Repurposing of Molecular Motifs in an Evolving Redox Environment and Its Biomedical Implications.Joseph Loscalzo & Dan L. Longo - 2022 - Perspectives in Biology and Medicine 65 (3):415-425.
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  25.  3
    Autonomy and Social Responsibility: The Post-Pandemic Challenge.Jonathan D. Moreno, Judit Sándor & Ulf Schmidt - 2022 - Perspectives in Biology and Medicine 65 (3):426-441.
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  26.  2
    The Wayback Machine.Abraham M. Nussbaum - 2022 - Perspectives in Biology and Medicine 65 (3):484-498.
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  27.  1
    Joining Humanity and Science: Medical Humanities, Compassionate Care, and Bioethics in Medical Education.Stephen G. Post & Susan W. Wentz - 2022 - Perspectives in Biology and Medicine 65 (3):458-468.
  28.  4
    Philosophical Foundations of Human Research Ethics.David B. Resnik - 2022 - Perspectives in Biology and Medicine 65 (3):499-513.
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  29.  2
    Could Behavioral Economics Mitigate Shortcomings in Shared Decision-Making?Farhad R. Udwadia, Shivam Singh & Jonathan M. Marron - 2022 - Perspectives in Biology and Medicine 65 (3):469-483.
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  30.  4
    Risk and Dignity in Requesting Signed Language Interpreter Accommodations.Teresa Blankmeyer Burke - 2022 - Perspectives in Biology and Medicine 65 (2):179-188.
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  31.  3
    Considering Dignity of Risk in the Care of People with Intellectual Disabilities: A Clinical Perspective.Brian Chicoine & Kristi L. Kirschner - 2022 - Perspectives in Biology and Medicine 65 (2):189-198.
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  32.  6
    Age and Aging: Some Facts and a Lot of Hype.A. Mark Clarfield - 2022 - Perspectives in Biology and Medicine 65 (2):345-355.
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  33.  2
    Calculation, Comparison, and the Incommensurable: Balancing Risk in Pain Care.Megan Crowley-Matoka - 2022 - Perspectives in Biology and Medicine 65 (2):337-344.
  34.  2
    Not Wanting to Lose the Dignity of Risk: On Living Alone with Dementia.Kate de Medeiros, Nancy Berlinger & Laura Girling - 2022 - Perspectives in Biology and Medicine 65 (2):274-282.
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  35.  11
    Being and Becoming Pregnant: Valuing Risks.Inmaculada de Melo-Martín - 2022 - Perspectives in Biology and Medicine 65 (2):327-336.
    Pregnant women are insistently urged to limit or eliminate risks to their fetuses. This is done even when the risks to fetuses are only theoretical or minimal, and the health and well-being of the pregnant woman is at stake. When using reproductive and reprogenetic technologies, however, evaluations about what risks are acceptable to impose on embryos change radically. In the context of these technologies, women are not only allowed to impose risks on embryos, but actively encouraged to do so-insofar as (...)
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  36.  2
    Engaging the Dignity of Risk in Home Hospice Care.Veronica Dyer & Timothy W. Kirk - 2022 - Perspectives in Biology and Medicine 65 (2):242-251.
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  37.  3
    Dignity of Risk, Reemergent Agency, and the Central Thalamic Stimulation Trial for Moderate to Severe Brain Injury.Joseph J. Fins & Megan S. Wright - 2022 - Perspectives in Biology and Medicine 65 (2):307-315.
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  38.  2
    What Du Bois and I Know About Dignity of Risk.Rosemarie Garland-Thomson - 2022 - Perspectives in Biology and Medicine 65 (2):171-178.
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  39.  2
    Dignity of Risk in Adolescent Development: A Neuropsychological Perspective.Wendy Heller & Haley Skymba - 2022 - Perspectives in Biology and Medicine 65 (2):295-306.
  40.  2
    A Place of His Own: Applying Dignity of Risk to Bioethics Consultation.Adira Hulkower - 2022 - Perspectives in Biology and Medicine 65 (2):232-241.
  41.  3
    Dignity of Risk and Living at Home Despite Severe Disability.Lisa I. Iezzoni - 2022 - Perspectives in Biology and Medicine 65 (2):252-261.
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  42.  2
    Hospital Discharge as a Locus for Curiosity, Affirmation, and Advocacy.Laura Kolbe - 2022 - Perspectives in Biology and Medicine 65 (2):221-231.
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  43.  2
    Clinical Ethics Consultation and the Reframing of Risk.Andy Kondrat - 2022 - Perspectives in Biology and Medicine 65 (2):207-212.
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  44.  2
    Dignity of Risk and Attributions About the Other.Debjani Mukherjee - 2022 - Perspectives in Biology and Medicine 65 (2):213-220.
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  45.  1
    Editor's Introduction: Disability, Social Justice, and Dignity of Risk at 50 Years.Debjani Mukherjee - 2022 - Perspectives in Biology and Medicine 65 (2):157-161.
    Dignity of risk is a simple concept that is surprisingly hard to enact, honor, and prioritize in health care. The term was coined 50 years ago by Robert Perske in an article entitled "The Dignity of Risk and the Mentally Retarded". And as I have written in "Discharge Decisions and the Dignity of Risk", "the concept involves respect for persons, self-determination, and attempts to minimize paternalism or parentalism". Most simply, the dignity of risk embraces respecting or honoring an individual's choices (...)
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  46.  6
    Prescribing the Binary for Intersex (and Transgender) Children.Elizabeth Reis - 2022 - Perspectives in Biology and Medicine 65 (2):316-326.
  47.  2
    Swimming Upstream: Taking Risks as a Woman Living with TBI.Judy Panko Reis & Marilyn J. Martin - 2022 - Perspectives in Biology and Medicine 65 (2):162-170.
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  48.  3
    Dignity of Risk, Intellectual/Developmental Disabilities, and Living in the Community.Teresa A. Savage & Amy Bowers - 2022 - Perspectives in Biology and Medicine 65 (2):262-273.
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  49.  2
    Dignity of Risk in Rehabilitation: Theory and Practice.Preya S. Tarsney - 2022 - Perspectives in Biology and Medicine 65 (2):199-206.
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  50.  2
    Drawing Pain: Graphic Medicine, Pain Metaphors, and Georgia Webber's Dumb.Sathyaraj Venkatesan, Diptarup Ghosh Dastidar & A. David Lewis - 2022 - Perspectives in Biology and Medicine 65 (2):356-372.
  51.  2
    Disproportionate Risk at Both Ends: Housing, Health, and Systems of Exposure.H. Shellae Versey - 2022 - Perspectives in Biology and Medicine 65 (2):283-294.
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  52.  4
    A Tale of Two Bioethics.Raymond De Vries - 2022 - Perspectives in Biology and Medicine 65 (1):133-142.
  53.  22
    Robots with Moral Status?David DeGrazia - 2022 - Perspectives in Biology and Medicine 65 (1):73-88.
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  54.  7
    Rhetoric, Persuasion, Compulsion, and the Stubborn Problem of Vaccine Hesitancy.Douglas S. Diekema - 2022 - Perspectives in Biology and Medicine 65 (1):106-123.
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  55.  3
    Moral Distress in Deciding How Others Die.Arthur W. Frank - 2022 - Perspectives in Biology and Medicine 65 (1):59-72.
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  56.  3
    When Corona Came to Canada: The 2003 SARS Outbreak and Its Aftermath.Muriel R. Gillick - 2022 - Perspectives in Biology and Medicine 65 (1):25-40.
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  57.  3
    The Arc Toward Hope in Postapocalyptic American Films: From On the Beach to The Midnight Sky.Anne Hudson Jones - 2022 - Perspectives in Biology and Medicine 65 (1):124-132.
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  58.  6
    Expanding the Social Status of "Corpse" to the Severely Comatose: Henry Beecher and the Harvard Brain Death Committee.Michael Nair-Collins - 2022 - Perspectives in Biology and Medicine 65 (1):41-58.
  59.  4
    Evidence of Biological Mechanisms and Health Predictions: An Insight Into Clinical Reasoning.Saúl Pérez-González & Elena Rocca - 2022 - Perspectives in Biology and Medicine 65 (1):89-105.
  60.  5
    Belonging Together: Friendship, Hope, and Well-Being Among Young Adults.Suzanne Shanahan - 2022 - Perspectives in Biology and Medicine 65 (1):143-156.
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  61.  3
    Consciousness, Placebo Effects, and the Therapeutic Allure of Psychoneuroimmunology.Steven Tresker - 2022 - Perspectives in Biology and Medicine 65 (1):1-24.
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