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  1.  4
    Advancing a Data Justice Framework for Public Health Surveillance.Mara Buchbinder, Eric Juengst, Stuart Rennie, Colleen Blue & David L. Rosen - 2022 - AJOB Empirical Bioethics 13 (3):205-213.
    Background Bioethical debates about privacy, big data, and public health surveillance have not sufficiently engaged the perspectives of those being surveilled. The data justice framework suggests that big data applications have the potential to create disproportionate harm for socially marginalized groups. Using examples from our research on HIV surveillance for individuals incarcerated in jails, we analyze ethical issues in deploying big data in public health surveillance. -/- Methods We conducted qualitative, semi-structured interviews with 24 people living with HIV who had (...)
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  2.  2
    Quantifying Utilitarian Outcomes to Inform Triage Ethics: Simulated Performance of a Ventilator Triage Protocol Under Sars-CoV-2 Pandemic Surge Conditions.Elizabeth Chuang, Julien Grand-Clement, Jen-Ting Chen, Carri W. Chan, Vineet Goyal & Michelle Ng Gong - 2022 - AJOB Empirical Bioethics 13 (3):196-204.
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  3.  1
    Ethical Challenges Experienced by Healthcare Workers Delivering Clinical Care During Health Emergencies and Disasters: A Rapid Review of Qualitative Studies and Thematic Synthesis.Mariana Dittborn, Constanza Micolich, Daniela Rojas & Sofía P. Salas - 2022 - AJOB Empirical Bioethics 13 (3):179-195.
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  4.  1
    Patients’ Priorities for Surrogate Decision-Making: Possible Influence of Misinformed Beliefs.E. J. Jardas, Robert Wesley, Mark Pavlick, David Wendler & Annette Rid - 2022 - AJOB Empirical Bioethics 13 (3):137-151.
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  5. Managing Pandora’s Box: Familial Expectations Around the Return of (Future) Germline Results.Liza-Marie Johnson, Belinda N. Mandrell, Chen Li, Zhaohua Lu, Jami Gattuso, Lynn W. Harrison, Motomi Mori, Annastasia A. Ouma, Michele Pritchard, Katianne M. Howard Sharp & Kim E. Nichols - 2022 - AJOB Empirical Bioethics 13 (3):152-165.
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  6.  6
    Diversity, Profit, Control: An Empirical Study of Industry Employees’ Views on Ethics in Private Sector Genomics.Alexis Walker - 2022 - AJOB Empirical Bioethics 13 (3):166-178.
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  7.  3
    Governing Gene Drive Technologies: A Qualitative Interview Study.N. de Graeff, Karin R. Jongsma, Jeantine E. Lunshof & Annelien L. Bredenoord - 2022 - AJOB Empirical Bioethics 13 (2):107-124.
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  8.  1
    Surrogate Perspectives on Patient Preference Predictors: Good Idea, but I Should Decide How They Are Used.Dana Howard, Allan Rivlin, Philip Candilis, Neal W. Dickert, Claire Drolen, Benjamin Krohmal, Mark Pavlick & David Wendler - 2022 - AJOB Empirical Bioethics 13 (2):125-135.
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  9.  2
    Ethical Reasoning During a Pandemic: Results of a Five Country European Study.S. B. Johnson, F. Lucivero, B. M. Zimmermann, E. Stendahl, G. Samuel, A. Phillips & N. Hangel - 2022 - AJOB Empirical Bioethics 13 (2):67-78.
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  10.  1
    Mining the Data: Exploring Rural Patients’ Attitudes About the Use of Their Personal Information in Research.Jennifer B. McCormick, Margaret Hopkins, Erik B. Lehman & Michael J. Green - 2022 - AJOB Empirical Bioethics 13 (2):89-106.
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  11.  2
    Nature Vs. Nurture in Precision Education: Insights of Parents and the Public.Maya Sabatello, Bree Martin, Thomas Corbeil, Seonjoo Lee, Bruce G. Link & Paul S. Appelbaum - 2022 - AJOB Empirical Bioethics 13 (2):79-88.
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  12.  1
    Ethics Consultation in U.S. Hospitals: New Findings About Consultation Practices.Ellen Fox, Marion Danis, Anita J. Tarzian & Christopher C. Duke - 2022 - AJOB Empirical Bioethics 13 (1):1-9.
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  13. Quality Characteristics for Clinical Ethics Support in the Netherlands.Laura Hartman, Eva Van Baarle, Marielle Diepeveen, Guy Widdershoven & Bert Molewijk - 2022 - AJOB Empirical Bioethics 13 (1):22-32.
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  14.  3
    Employer-Sponsored Egg Freezing: Carrot or Stick?Molly Johnston, Giuliana Fuscaldo, Nadine Maree Richings, Stella May Gwini & Sally Catt - 2022 - AJOB Empirical Bioethics 13 (1):33-47.
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  15.  3
    Should Feedback of Individual Results Be Integrated Into the Consent Process in African Genomics? Participants’ Views From an HIV-TB Genomics Research Project in Botswana.Dimpho Ralefala, Mary Kasule, Ambroise Wonkam, Mogomotsi Matshaba & Jantina de Vries - 2022 - AJOB Empirical Bioethics 13 (1):48-56.
  16.  1
    Ethics Consultation in U.S. Hospitals: Adherence to National Practice Standards.Anita Tarzian, Ellen Fox, Marion Danis & Christopher C. Duke - 2022 - AJOB Empirical Bioethics 13 (1):10-21.
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  17.  7
    Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects’ Recall of Informed Consent and Motivations for Participation.Anna Wexler, Rebekah J. Choi, Ashwin G. Ramayya, Nikhil Sharma, Brendan J. McShane, Love Y. Buch, Melanie P. Donley-Fletcher, Joshua I. Gold, Gordon H. Baltuch, Sara Goering & Eran Klein - 2022 - AJOB Empirical Bioethics 13 (1):57-66.
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