Applied Ethics

Edited by Ezio Di Nucci (University of Copenhagen)
Assistant editors: Heather Stewart, Yiying Peng
Contents
2044 found
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1 — 50 / 2044
  1. added 2023-09-24
    Academic and Private Partnership to Improve Informed Consent Forms Using a Data Driven Approach.Craig Tendler, Patricia S. Hong, Conor Kane, Christa Kopaczynski, William Terry & Ezekiel J. Emanuel - forthcoming - American Journal of Bioethics.
    Informed consent documents are central to the informed consent process and are required for participation in clinical trials in the U.S. The primary purpose of the document is “to assist a prospect...
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  2. added 2023-09-24
    Synthesizing Methuselah: The Question of Artificial Agelessness.Richard B. Gibson - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-16.
    As biological organisms, we age and, eventually, die. However, age’s deteriorating effects may not be universal. Some theoretical entities, due to their synthetic composition, could exist independently from aging—artificial general intelligence (AGI). With adequate resource access, an AGI could theoretically be ageless and would be, in some sense, immortal. Yet, this need not be inevitable. Designers could imbue AGIs with artificial mortality via an internal shut-off point. The question, though, is, should they? Should researchers curtail an AGI’s potentially endless lifespan (...)
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  3. added 2023-09-24
    Professional values and nursing care quality: A descriptive study.Shanon Brickner, Kerry Fick, Jessica Panice, Katherine Bulthuis, Rita Mitchell & Rachelle Lancaster - forthcoming - Nursing Ethics.
    Background Professional values are important in promoting healthy work environments, patient satisfaction, and quality of care. Magnet® hospitals are recognized for excellence in nursing care and as such, understanding the relationship between nurses' values and Magnet status is essential as healthcare organizations seek to improve patient outcomes. Research question/aim/objectives The research question is: are there differences in individual values, professional values, and nursing care quality for nurses and nurse managers practicing in Magnet, Magnet journey, and non-Magnet direct patient care settings? (...)
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  4. added 2023-09-24
    Moral distress, psychological capital, and burnout in registered nurses.Bowen Xue, Shujin Wang, Dandan Chen, Zhiguo Hu, Yaping Feng & Hong Luo - forthcoming - Nursing Ethics.
    Aims This study aimed to explore the relationship among moral distress, psychological capital, and burnout in registered nurses. Ethical consideration The study was approved by the Ethics Committee of the School of Nursing, Hangzhou Normal University (Approval no. 2022001). Methods A cross-sectional descriptive survey was conducted with a convenience sample of 397 nurses from three Grade-A tertiary hospitals in Zhejiang Province, China. Participants completed demographic information, the Nurses’ Moral Distress Scale, the Nurses’ Psychological Capital Scale, and the Maslach Burnout Inventory (...)
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  5. added 2023-09-24
    Federalism for Bioethics?Leslie Francis & John Francis - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-9.
    In the wake of the Dobbs decision withdrawing federal constitutional protection for reproductive rights, the United States is in the throes of federalist conflicts. Some states are enacting draconian prohibitions of abortion or gender-affirming care, whereas other states are attempting to shield providers and their patients seeking care. This article explores standard arguments supporting federalism, including that it allows for cultural differences to remain along with a structure that provides for the advantages of common security and commerce, that it provides (...)
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  6. added 2023-09-24
    Decommodifying the most important determinant of health.Arianne Shahvisi - 2023 - Journal of Medical Ethics 49 (10):661-662.
    Among the most harrowing visuals of Britain’s ongoing ‘cost of living crisis’ are the security tags that began to appear on cheese, butter, chicken, sweets and infant formula milk in 2022. A week’s worth of formula milk—the sole or main food of the vast majority of infants for the first 6 months of life—now costs between £9.39 and £15.95.1 Low-income households are entitled to a ‘Healthy Start’ welfare payment, intended to avert malnutrition among the poorest children, but the weekly allowance (...)
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  7. added 2023-09-24
    Professional virtue of civility: responding to commentaries.Laurence B. McCullough, John Coverdale & Frank A. Chervenak - 2023 - Journal of Medical Ethics 49 (10):692-693.
    In our ‘The Professional Virtue of Civility and the Responsibilities of Medical Educators and Academic Leaders’,1 we provided an historically based conceptual account of the professional virtue of civility and the role of leaders of academic health centres in creating and sustaining an organisational culture of professionalism that promotes civility among healthcare professionals and between medical educators and learners. We emphasised that any adequate understanding of the virtues, including professional virtues, has cognitive, affective, behavioural and social components. Some of the (...)
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  8. added 2023-09-24
    Brain age Prediction and the Challenge of Biological Concepts of Aging.Jan-Hendrik Heinrichs - 2023 - Neuroethics 16 (3):1-13.
    Brain age prediction is a relatively new tool in neuro-medicine and the neurosciences. In research and clinical practice, it finds multiple use as a marker for biological age, for general health status of the brain and as an indicator for several brain-based disorders. Its utility in all these tasks depends on detecting outliers and thus failing to correctly predict chronological age. The indicative value of brain age prediction is generated by the gap between a brain’s chronological age and the predicted (...)
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  9. added 2023-09-24
    Ethics briefings.Rebecca Mussell, Natalie Michaux & Molly Gray - 2023 - Journal of Medical Ethics 49 (10):721-722.
    The Nuffield Council on Bioethics (NCOB) is delighted to pick up the mantel of the Ethics briefings. For readers less familiar with the NCOB’s work, we are a leading independent policy and research centre, and the foremost bioethics body in the UK. We identify, analyse and advise on ethical issues in biomedicine and health so that decisions in these areas benefit people and society.1 Established in 1991, the NCOB has tackled a wide range of bioethics and medical ethics issues over (...)
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  10. added 2023-09-24
    Compte rendu : Béatrice Desvergne. De la biologie à la médecine personnalisée : mieux soigner demain?[REVIEW]Céline Deleuze & Charles Pence - 2022 - Lato Sensu: Revue de la Société de Philosophie des Sciences 9 (1):21-22.
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  11. added 2023-09-24
    Agenda exploratory.....:.....the gospel of Harry Carey. Connor - 2000 - [United States?]: [Connor].
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  12. added 2023-09-23
    How should institutions help clinicians to practise greener anaesthesia: first-order and second-order responsibilities to practice sustainably.Joshua Parker, Nathan Hodson, Paul Young & Clifford Shelton - forthcoming - Journal of Medical Ethics.
    There is a need for all industries, including healthcare, to reduce their greenhouse gas emissions. In anaesthetic practice, this not only requires a reduction in resource use and waste, but also a shift away from inhaled anaesthetic gases and towards alternatives with a lower carbon footprint. As inhalational anaesthesia produces greenhouse gas emissions at the point of use, achieving sustainable anaesthetic practice involves individual practitioner behaviour change. However, changing the practice of healthcare professionals raises potential ethical issues. The purpose of (...)
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  13. added 2023-09-23
    Unveiling the burden of compassion fatigue in nurses.Halil İbrahim Taşdemir, Ruveyde Aydın, Fatma Dursun Ergezen, Deniz Taşdemir & Yahya Ergezen - forthcoming - Nursing Ethics.
    Background The COVID-19 pandemic has placed an unprecedented burden on nurses who have been at the forefront of patient care. The continuous exposure to suffering, death, and overwhelming demands has the potential to lead to compassion fatigue, a state of emotional, physical, and cognitive exhaustion. Research aim The study aimed to explore and understand the phenomenon of compassion fatigue in nurses as the effect of the COVID-19 pandemic. Research design A constructivist grounded theory design was used. Participants and research context (...)
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  14. added 2023-09-23
    Primary duty is to communicate moment-in-time nature of genetic variant interpretation.Carolyn Riley Chapman - forthcoming - Journal of Medical Ethics.
    In late 2021, tennis star Chris Evert learned new genetic information about her sister, who died from ovarian cancer in January 2020. As Evert has explained in posts published by ESPN, her sister had a variant in the BRCA1 gene that was reclassified—upgraded—from a variant of uncertain significance (VUS) to pathogenic. Hearing about the variant’s reclassification likely saved Evert’s life. After getting genetic testing that showed she also carried the variant, Evert underwent prophylactic surgery. Clinical testing associated with the procedure (...)
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  15. added 2023-09-23
    The ethics of using body mass index in in‐vitro fertilization risk assessment.Valerie Williams - forthcoming - Bioethics.
    In‐vitro fertilization clinics across the world currently use the body mass index (BMI) to assess risk for and determine access to in‐vitro fertilization (IVF); however, clinics vary widely in both setting specific BMI limits for access to IVF and articulating the reasons for their policies. Given that scholars have begun to question the usefulness of BMI for individual health risk assessment, it is striking that ethicists have not yet systematically evaluated the reasons given for using BMI in assessing individuals' risk (...)
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  16. added 2023-09-23
    Ectogenesis rescue case: a reply to Hendricks.William Simkulet - forthcoming - Journal of Medical Ethics.
    Hendricks set out to construct an antiabortion version of Jeff McMahan’s Embryo Rescue case in which you have two choices—(1) save a woman from an unwilling pregnancy or (2) save a fetus from being killed. In his Pregnancy Rescue case, he contends we ought to choose (2), which he thinks shows abortion is immoral. However, I argue the Pregnancy Rescue case is a false dilemma because you can save both. I propose an alternative, more elegant dilemma, the Ectogenesis Rescue case (...)
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  17. added 2023-09-23
    Principles for Just Prioritization of Expensive Biological Therapies in the Danish Healthcare System.Tara Bladt, Thomas Vorup-Jensen & Mette Ebbesen - forthcoming - Journal of Bioethical Inquiry:1-20.
    The Danish healthcare system must meet the need for easy and equal access to healthcare for every citizen. However, investigations have shown unfair prioritization of cancer patients and unfair prioritization of resources for expensive medicines over care. What is needed are principles for proper prioritization. This article investigates whether American ethicists Tom Beauchamp and James Childress’s principle of justice may be helpful as a conceptual framework for reflections on prioritization of expensive biological therapies in the Danish healthcare system. We present (...)
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  18. added 2023-09-23
    Downgrades: a potential source of moral tension.Anke J. M. Oerlemans, Ilse Feenstra, Helger G. Yntema & Marianne Boenink - forthcoming - Journal of Medical Ethics.
    While Gabriel Watts and Ainsley Newson argue that diagnostic laboratories do not have a general duty to routinely reinterpret genomic variant classifications, they do formulate several restricted duties to actively reinterpret specific types of classifications.1 They place these duties with laboratories, acknowledging that they are setting aside any responsibilities that might arise for clinicians. Here, we will discuss the implications of this obligation for clinicians and the moral tension it may confront them with. We focus in particular on the consequences (...)
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  19. added 2023-09-23
    R. Edward Freeman’s Selected Works on Stakeholder Theory and Business Ethics.Sergiy D. Dmytriyev & R. Edward Freeman (eds.) - 2023 - Springer Verlag.
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  20. added 2023-09-23
    Researching the future: scenarios to explore the future of human genome editing.Cynthia Selin, Lauren Lambert, Stephanie Morain, John P. Nelson, Dorit Barlevy, Mahmud Farooque, Haley Manley & Christopher T. Scott - 2023 - BMC Medical Ethics 24 (1):1-12.
    Background Forward-looking, democratically oriented governance is needed to ensure that human genome editing serves rather than undercuts public values. Scientific, policy, and ethics communities have recognized this necessity but have demonstrated limited understanding of how to fulfill it. The field of bioethics has long attempted to grapple with the unintended consequences of emerging technologies, but too often such foresight has lacked adequate scientific grounding, overemphasized regulation to the exclusion of examining underlying values, and failed to adequately engage the public. Methods (...)
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  21. added 2023-09-23
    Addiction and Volitional Abilities: Stakeholders’ Understandings and their Ethical and Practical Implications.Marianne Rochette, Matthew Valiquette, Claudia Barned & Eric Racine - 2023 - Neuroethics 16 (3):1-22.
    Addiction is a common condition affecting millions of people worldwide of which only a small proportion receives treatment. The development and use of healthcare services is influenced by how addiction is understood (e.g., a condition to treat, a shameful condition to stigmatize), notably with respect to how volition is impacted (e.g., addiction as a choice or a disease beyond one’s control). Through semi-structured qualitative interviews, we explore the implicit views and understandings of addiction and volition across three stakeholder groups: people (...)
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  22. added 2023-09-23
    Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study.Stephanie A. Kraft, Devan M. Duenas & Seema K. Shah - 2023 - BMC Medical Ethics 24 (1):1-11.
    Background Standard interpretations of the ethical principle of respect for persons have not incorporated the views and values of patients, especially patients from groups underrepresented in research. This limits the ability of research ethics scholarship, guidance, and oversight to support inclusive, patient-centered research. This study aimed to identify the practical approaches that patients in community-based settings value most for conveying respect in genomics research. Methods We conducted a 3-round, web-based survey using the modified Delphi technique to identify areas of agreement (...)
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  23. added 2023-09-23
    A qualitative study of experiences of institutional objection to medical assistance in dying in Canada: ongoing challenges and catalysts for change.Eliana Close, Ruthie Jeanneret, Jocelyn Downie, Lindy Willmott & Ben P. White - 2023 - BMC Medical Ethics 24 (1):1-24.
    Background In June 2016, Canada legalized medical assistance in dying (MAiD). From the outset, some healthcare institutions (including faith-based and non-faith-based hospitals, hospices, and residential aged care facilities) have refused to allow aspects of MAiD onsite, resulting in patient transfers for MAiD assessments and provision. There have been media reports highlighting the negative consequences of these “institutional objections”, however, very little research has examined their nature and impact. Methods This study reports on findings from 48 semi-structured qualitative interviews conducted with (...)
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  24. added 2023-09-23
    “If relatives inherited the gene, they should inherit the data.” Bringing the family into the room where bioethics happens.Deborah R. Gordon & Barbara A. Koenig - 2022 - New Genetics and Society 41 (1):23-46.
    Biological kin share up to half of their genetic material, including predisposition to disease. Thus, variants of clinical significance identified in each individual’s genome can implicate an exponential number of relatives at potential risk. This has renewed the dilemma over family access to research participant’s genetic results, since prevailing US practices treat these as private, controlled by the individual. These individual-based ethics contrast with the family-based ethics – in which genetic information, privacy, and autonomy are considered to be familial – (...)
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  25. added 2023-09-23
    The innocent mosquito? The environmental ethics of mosquito eradicatio.Anna Https://Orcidorg Wienhues - 2021 - In .
    In any proposal for specicide, as represented by mosquito eradication, one must acknowledge that this involves a complex set of moral trade-offs. Taking it as given that the health burden of vector-borne diseases has to be reduced drastically, this chapter lays out the landscape of normative arguments that can be brought in the mosquito’s defence. These, in turn, should be involved in deliberations about whether such large-scale eradication practices can be morally justified. In favour of mosquito protection, several (but not (...)
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  26. added 2023-09-23
    Navigating complex end-of-life decisions in a family-centric society.Guozhang Lee - 2020 - Nursing Ethics 27 (4):1003-1011.
    End-of-life decision making frequently involves a complex balancing of clinical, cultural, social, ethical, religious and economic considerations. Achieving a happy balance of these sometimes-competing interests, however, can be particularly fraught in a family-centric society like Singapore where the family unit often retains significant involvement in care determinations necessitating careful consideration of the family’s position during the decision-making process. While various decision-making tools such as relational autonomy, best interests principle and welfare-based models have been proposed to help navigate such difficult decision-making (...)
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  27. added 2023-09-23
    Justice in managing global climate change.Ivo Https://Orcidorg Wallimann-Helmer - 2019 - In .
    Ethics in managing climate change most often involves two issues that are tightly connected. The first involves considerations about the just distribution of entitlements and burdens, and the second concerns the fair differentiation of responsibilities. The chapter explains the most important ethical implications of international climate politics and shows why justice plays a key role in all areas of climate policy. Furthermore, it introduces the main domains of climate justice: historical, global, and intergenerational justice. Depending on the policy area at (...)
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  28. added 2023-09-23
    Bioethics in historical perspective.Richard Ashcroft - 2018 - New Genetics and Society 37 (1):88-89.
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  29. added 2023-09-23
    Ethical issues in advanced nursing practice.Karen Bartter (ed.) - 2001 - Boston: Butterworth-Heinemann.
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  30. added 2023-09-22
    The Existential Threat of Climate Change in advance.Johanna Oksala - forthcoming - Environmental Philosophy.
    The article analyzes the experience of climate anxiety. The investigation is phenomenological in the sense that I will attempt to show that contemporary climate anxiety has a distinctive structure and philosophical meaning, which make it different from both psychological anxiety and existential anxiety, as commonly understood. I will also draw out the consequences of my phenomenological analysis for climate politics. My contention is that forms of prefigurative climate politics can respond to the profound disorientation and apathy regarding our future and (...)
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  31. added 2023-09-22
    An account of medical treatment, with a preliminary account of medical conditions.Steven Tresker - forthcoming - Theoretical Medicine and Bioethics:1-27.
    In this article, I present a philosophical account of medical treatment. In support of this account, I offer a suggestive account of medical conditions. The account of medical treatment uses three desiderata to demarcate treatment from non-treatment. Namely, a treatment should: (1) be describable by features that enable it to be standardized and characterized as a discrete intervention, (2) target a specific medical condition, and (3) have the possibility of being effective. The account of medical conditions underlies the second desideratum (...)
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  32. added 2023-09-22
    Meaningful Human Control over AI for Health? A Review.Eva Maria Hille, Patrik Hummel & Matthias Braun - forthcoming - Journal of Medical Ethics.
    Artificial intelligence is currently changing many areas of society. Especially in health, where critical decisions are made, questions of control must be renegotiated: who is in control when an automated system makes clinically relevant decisions? Increasingly, the concept of meaningful human control (MHC) is being invoked for this purpose. However, it is unclear exactly how this concept is to be understood in health. Through a systematic review, we present the current state of the concept of MHC in health. The results (...)
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  33. added 2023-09-22
    The Case for Human Challenge Trials in COVID-19.George P. Drewett - forthcoming - Journal of Bioethical Inquiry:1-15.
    The COVID-19 pandemic has necessitated rapid research to aid in the understanding of the disease and the development of novel therapeutics. One option is to conduct controlled human infection trials (CHITs). In this article I examine the history of deliberate human infection and CHITs and their utilization prior to the COVID-19 pandemic, key ethical considerations of CHITs in the COVID-19 setting, an analysis of the World Health Organization’s (WHO) Key criteria for the ethical acceptability of COVID-19 human challenge studies, and (...)
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  34. added 2023-09-22
    Collective Agents as Moral Actors.Säde Hormio - forthcoming - In Säde Hormio & Bill Wringe (eds.), Collective Responsibility: Perspectives on Political Philosophy from Social Ontology. Studies in the Philosophy of Sociality series, Springer.
    How should we make sense of praise and blame and other such reactions towards collective agents like governments, universities, or corporations? Collective agents can be appropriate targets for our moral feelings and judgements because they can maintain and express moral positions of their own. Moral agency requires being capable of recognising moral considerations and reasons. It also necessitates the ability to react reflexively to moral matters, i.e. to take into account new moral concerns when they arise. While members of a (...)
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  35. added 2023-09-22
    Politically Branding India’s “First Fully Organic State”: Re-Signification of Traditional Practices and Markets in Organic Agriculture.Suchismita Das - 2023 - Journal of Agricultural and Environmental Ethics 36 (4):1-18.
    In 2016, summarily outlawing all chemical inputs, the Indian state of Sikkim transitioned to completely organic agriculture. Despite “organic discontents” of farmers and citizens about autocratic implementation, lowered yields, and unsatisfactory prices, “Sikkim Organic” enjoys global accolades and local compliance. The paradox of alternative agriculture in the Global South is that it is often promoted by the same state-science-capital hegemonic formation that pushed the conventional paradigm. How has the Sikkimese state negotiated this paradox and continued to claim success, when other (...)
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  36. added 2023-09-22
    Rethinking Responsibility for Climate Change Harm – Essays on Remedial Responsibility and Its Justification.Kathrin Https://Orcidorg von Allmen - unknown
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  37. added 2023-09-22
    Colonial injustice, legitimate authority, and immigration control.Lukas Schmid - 2023 - European Journal of Political Theory.
    There is lively debate on the question if states have legitimate authority to enforce the exclusion of (would-be) immigrants. Against common belief, I argue that even non- cosmopolitan liberals have strong reason to be sceptical of much contemporary border authority. To do so, I first establish that for liberals, broadly defined, a state can only hold legitimate authority over persons whose moral equality it is not engaged in undermining. I then reconstruct empirical cases from the sphere of international relations in (...)
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  38. added 2023-09-22
    The matrix of stem cell research: an approach to rethinking science in society: edited by C. Hauskeller, A. Manzeschke, and A. Pichl, Abingdon, Routledge, 2020, 213 pp., £36.99 (pbk), ISBN 13: 978-0-367-72683-6. [REVIEW]Michael Morrison - 2022 - New Genetics and Society 41 (4):358-361.
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  39. added 2023-09-22
    Planning later life with dementia: comparing family caregivers’ perspectives on biomarkers with laypersons’ attitudes towards genetic testing of dementia prediction.Zümrüt Alpinar-Sencan, Leopold Lohmeyer & Silke Schicktanz - 2020 - New Genetics and Society 39 (1):52-79.
    Predictive medicine presents opportunities to consider later life under conditions of illness, such as dementia. This paper examines how family caregivers (N = 27) assess the opportunity of prediction and early diagnosis of dementia for oneself based on their particular experience. Furthermore, it compares their attitudes with laypersons’ attitudes (N = 43) towards genetic testing of APOE. By this, we elaborate how much personal experience impacts anticipation and affects, but also moral attitudes towards predictive medicine. Differences in our settings do (...)
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  40. added 2023-09-22
    Transparency, consent and trust in the use of customers' data by an online genetic testing company: an Exploratory survey among 23andMe users.Aviad E. Raz, Emilia Niemiec, Heidi C. Howard, Sigrid Sterckx, Julian Cockbain & Barbara Prainsack - 2020 - New Genetics and Society 39 (4):459-482.
    23andMe not only sells genetic testing but also uses customer data in its R&D activities and commercial partnerships. This raises questions about transparency and informed consent. Based on a online survey conducted in 2017–18, we examine attitudes of 368 customers of 23andMe toward the company's use of their data. Our findings point at divides in the context of customers' awareness of the two-sided business model of DTC genetics and their attitudes toward consent. While most of our respondents (68%) were aware (...)
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  41. added 2023-09-22
    Clinical usefulness of genetic testing for drug toxicity in cancer care: decision-makers’ framing, knowledge and perceptions.Shirley Sun - 2020 - New Genetics and Society 39 (4):359-384.
    To explore the clinical uptake of pharmacogenetic/pharmacogenomic toxicity testing to reduce adverse drug reaction incidences, this paper analyzes data collected through semi-structured face-to-face interviews with clinicians and/or clinician-scientists, primarily in the context of cancer treatment in multi-ethnic California (US), Vancouver (Canada) and Singapore. Recurrent themes in the data include the following: first, the scientific evidence for drug-gene interactions is perceived to be generally weak. Second, the primacy of medical treatment’s efficacy over toxicity is the predominant frame through which clinicians consider (...)
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  42. added 2023-09-22
    Attitudes and experiences of European clinical geneticists towards direct-to-consumer genetic testing: a qualitative interview study.Louiza Kalokairinou, Pascal Borry & Heidi C. Howard - 2019 - New Genetics and Society 38 (4):410-429.
    Direct-to-consumer (DTC) genetic tests (GT) enable consumers to access a wide range of GT, without involving a healthcare professional, promoting an increasing disassociation of genetics from the clinical context. This study explores, through semi-structured interviews, the experiences and attitudes of European clinical geneticists towards DTCGT. Our results indicate that the participants have limited experience of consultations with patients regarding such tests. The majority of participants stated that consumers purchased tests out of curiosity and sought a general interpretation of test results (...)
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  43. added 2023-09-22
    Nietzsche and Friendship.Willow Verkerk - 2019 - London: Bloomsbury.
    In Nietzsche and Friendship, Willow Verkerk provides a new and provocative account of Nietzsche's philosophy which identifies him as an agonistic thinker concerned with the topics of love and friendship. She argues that Nietzsche's challenges to the received principles of friendship from Aristotle to Kant offer resources for reinvigorating our thinking about friendship today. Through an examination of his free spirit texts, Human, All Too Human, Daybreak and The Gay Science together with Thus Spoke Zarathustra and Beyond Good and Evil, (...)
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  44. added 2023-09-22
    Contestable kinship: user experience and engagement on DTC genetic testing sites.Katherine Gregory - 2019 - New Genetics and Society 38 (4):387-409.
    Direct-to-consumer genetic testing products and their participatory social media outlets provide users with new ways to understand ancestral identity, build community around shared results, and conceptualize the role of genetic determinism in their lives. In this article, I explore of role of user-generated information constructed with results from direct-to-consumer genetic scanning services such as 23andme, GEDMatch, AncestryDNA, MyHeritage. In particular, this paper considers how social capital is accumulated and disseminated utilizing these participatory tools in the communication practices of users. Through (...)
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  45. added 2023-09-22
    Regulating human stem cell research and therapy in low- and middle-income countries: Malaysian perspectives.Mohammad Firdaus Bin Abdul Aziz, Michael Morrison & Jane Kaye - 2018 - New Genetics and Society 37 (1):2-20.
    Many “rising powers” such as India, China, Argentina, Singapore, and Brazil are investing in stem cell technology, joining the traditional leaders in the field, such as the UK, Germany, USA, and Japan. Malaysia is also entering this sector because of the potential medical and economic benefits that the use of stem cell technologies could provide. Like other countries, Malaysia faces the challenge of how to encourage scientific progress and innovation in an ethical manner while at the same time ensuring a (...)
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  46. added 2023-09-22
    Shifting metaphors in direct-to-consumer genetic testing: from genes as information to genes as big data.Paula Saukko - 2017 - New Genetics and Society 36 (3):296-313.
    This article analyses shifts in metaphors in direct-to-consumer genetic testing, analyzing the websites and select media coverage of the nutrigenetic testing company Sciona (2000–2009) and the personal genome service 23andMe (2006–). Sciona represented genes and communication through the classical metaphor of information; genes coded for disease, and this information was transmitted from the expert company to the consumers. 23andMe represented genes and communication through a new metaphor of big data; genes were digital data or a resource that was browsed, correlated (...)
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  47. added 2023-09-22
    Reading the fine print when buying your genetic self online: direct-to-consumer genetic testing terms and conditions.Andelka M. Phillips - 2017 - New Genetics and Society 36 (3):273-295.
    Contracts are ubiquitous online. Clickwrap and browsewrap agreements are to be encountered on almost every website a person engages with when accessing services online. Through these documents, people enter into binding contractual relationships, often without reading and sometimes without noticing these documents, when they engage with a wide variety of services online. This article discusses the use of contracts by the direct-to-consumer genetic testing (DTCGT) industry, as the dominant means of industry self-regulation. To date limited attention has been paid to (...)
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  48. added 2023-09-22
    Filosofskie problemy vyzhivanii︠a︡ chelovechestva v kontekste globalʹnogo ėkologicheskogo krizisa.E. N. Khokhrina - 2001 - Samara: Samarskiĭ in-t inzhenerov zheleznodorozhnogo transporta.
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  49. added 2023-09-21
    Moral resilience in registered nurses: Cultural adaption and validation study.Xu Tian, Qiaoling He, Xiaoling Liu, Xiuni Gan & María F. Jiménez Herrera - forthcoming - Nursing Ethics.
    Background Healthcare professionals, especially professional nurses, experience various types of moral suffering due to inevitable ethical conflicts. Moral resilience is recently proposed as a resource to address moral suffering. However, there is no tool to measure moral resilience in Chinese professional nurses. Aim This study aimed to translate the Rushton Moral Resilience Scale (RMRS) into Chinese and evaluate the psychometric properties of the Chinese version of RMRS (Chi-RMRS). Research design A methodological and descriptive research design. Participants and research context A (...)
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  50. added 2023-09-21
    Morality, Modality, and Humans with Deep Cognitive Impairments.William Gildea - forthcoming - Philosophical Quarterly.
    Philosophers struggle to explain why human beings with deep cognitive impairments have a higher moral status than certain non-human animals. Modal personism promises to solve this problem. It claims that humans who lack the capacities of “personhood” and the potential to develop them nonetheless could have been persons. I argue that modal personism has poor prospects because it's hard to see how we could offer a plausible account of modal personhood. I search for an adequate understanding of modal personhood by (...)
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