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  1. The Ethics of Animal Research: Exploring the Controversy.Jeremy Garrett (ed.) - forthcoming - MIT Press.
  2. Bioética y Derechos Humanos: Sobre la Representación Intelectual Del Origen de la Bioética.Mastroleo Ignacio - forthcoming - Véritas (Arequipa).
    En este trabajo se comparan dos representaciones en competencia sobre el origen de la bioética para llamar la atención sobre un posible cambio de marco teórico dentro de la disciplina. Por un lado, una representación parroquiana del origen de la bioética, centrada en problemas tecnológicos locales, y fundamentada en tradiciones culturales particulares. Por otro lado, una representación universal y pluralista, que enfrenta problemas de justicia y salud globales y que intenta buscar el fundamento normativo del discurso de la bioética en (...)
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  3. Continuous Glucose Monitoring as a Matter of Justice.Steven R. Kraaijeveld - forthcoming - HEC Forum:1-26.
    Type 1 diabetes (T1D) is a chronic illness that requires intensive lifelong management of blood glucose concentrations by means of external insulin administration. There have been substantial developments in the ways of measuring glucose levels, which is crucial to T1D self-management. Recently, continuous glucose monitoring (CGM) has allowed people with T1D to keep track of their blood glucose levels in near real-time. These devices have alarms that warn users about potentially dangerous blood glucose trends, which can often be shared with (...)
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  4. Bioética y derechos humanos: sobre la representación intelectual del origen de la bioética.Ignacio Mastroleo - forthcoming - Veritas – Revista de Filosofia da Pucrs.
    En este trabajo se comparan dos representaciones en competencia sobre el origen de la bioética para llamar la atención sobre un posible cambio de marco teórico dentro de la disciplina. Por un lado, una representación parroquiana del origen de la bioética, centrada en problemas tecnológicos locales, y fundamentada en tradiciones culturales particulares. Por otro lado, una representación universal y pluralista, que enfrenta problemas de justicia y salud globales y que intenta buscar el fundamento normativo del discurso de la bioética en (...)
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  5. How Should Physicians Manage Neuroprognosis with ECPR?Ian McCurry, Jason Han & Andrew Courtwright - forthcoming - Narrative Inquiry in Bioethics.
    Rapidly advancing technologies in the field of extracorporeal cardiopulmonary resuscitation (ECPR) have presented a new challenge in accurate neuroprognostication following cardiac arrest. Determination of brain state informs the prognostic picture and allows providers to begin effective communication regarding likelihood of meaningful neurological recovery as defined by patients or family members. The evolving role of sedation during ECPR and its impacts on ethical tension in decision-making is reviewed. Work surrounding the advancing field of neuroprognostication after cardiac arrest and hypothermia is summarized (...)
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  6. How Can We Decide a Fair Allocation of Healthcare Resources During a Pandemic?Cristina Roadevin & Harry Hill - forthcoming - Journal of Medical Ethics:medethics-2020-106815.
    Whenever the government makes medical resource allocation choices, there will be opportunity costs associated with those choices: some patients will have treatment and live longer, while a different group of patients will die prematurely. Because of this, we have to make sure that the benefits we get from investing in treatment A are large enough to justify the benefits forgone from not investing in the next best alternative, treatment B. There has been an increase in spending and reallocation of resources (...)
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  7. Hematopoietic Stem Cell Transplantation: Legal and Ethical Issues in the UK.David Shaw - forthcoming - In Jörg P. Halter Peter Bürkli (ed.), The Legal and Ethical Challenges of Present and Future Stem-Cell Transplantation. Schwabe Verlag.
    Hematopoietic stem cell transplantation is a widely accepted practice in the United Kingdom (UK). The relatively liberal UK law permits donation both within families and from strangers, and even allows the creation of “saviour siblings” who are brought into being with the specific intent of having them donate stem cells to save other members of their family. This chapter describes the regulation of HSCT in the UK and highlights some ethical issues related to discrimination against some categories of potential donors, (...)
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  8. Applying Nonideal Theory to Bioethics: Living and Dying in a Nonideal World.E. Victor & L. Guidry-Grimes (eds.) - forthcoming - New York: Springer.
    This book offers new essays exploring concepts and applications of nonideal theory in bioethics. Nonideal theory refers to an analytic approach to moral and political philosophy (especially in relation to justice), according to which we should not assume that there will be perfect compliance with principles, that there will be favorable circumstances for just institutions and right action, or that reasoners are capable of being impartial. Nonideal theory takes the world as it actually is, in all of its imperfections. Bioethicists (...)
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  9. If Fetuses Are Persons, Abortion is a Public Health Crisis.Bruce Blackshaw & Daniel Rodger - 2021 - Bioethics 1:1-14.
    Pro-life advocates commonly argue that fetuses have the moral status of persons, and an accompanying right to life, a view most pro-choice advocates deny. A difficulty for this pro-life position has been Judith Jarvis Thomson’s violinist analogy, in which she argues that even if the fetus is a person, abortion is often permissible because a pregnant woman is not obliged to continue to offer her body as life support. Here, we outline the moral theories underlying public health ethics, and examine (...)
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  10. A Review of “Love Drugs: The Chemical Future of Relationships”. [REVIEW]Jacob Blair - 2021 - American Journal of Bioethics 21 (1):W4-W6.
    Brian Earp’s and Julian Savulescu’s provocatively titled “Love Drugs: The Chemical Future of Relationships” is a philosophically rigorous, scientifically informed, and yet wholly accessible study o...
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  11. Double Effect Donation.Charles Camosy & Joseph Vukov - 2021 - The Linacre Quarterly 88 (2):149-162.
    Double Effect Donation claims it is permissible for a person meeting brain death criteria to donate vital organs, even though such a person may be alive. The reason this act is permissible is that it does not aim at one’s own death but rather at saving the lives of others, and because saving the lives of others constitutes a proportionately serious reason for engaging in a behavior in which one foresees one’s death as the outcome. Double Effect Donation, we argue, (...)
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  12. What Does Solidarity Do for Bioethics?Avery Kolers - 2021 - Journal of Medical Ethics 47 (2):122-128.
    Bioethical work on solidarity has yielded an array of divergent conceptions. But what do these accounts add to normative bioethics? What is solidarity’s distinctive social normative role? Prainsack and Buyx suggest that solidarity be understood as the ‘putty’ of justice. I argue here that the putty metaphor is deeply insightful and—when spelled out in detail—successfully explicates solidarity’s social normative function. Unfortunately, Prainsack and Buyx’s own account cannot play this role. I propose instead that the putty metaphor supports a conception of (...)
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  13. Ethical Implications of Alzheimer’s Disease Prediction in Asymptomatic Individuals Through Artificial Intelligence.Frank Ursin, Cristian Timmermann & Florian Steger - 2021 - Diagnostics 11 (3):440.
    Biomarker-based predictive tests for subjectively asymptomatic Alzheimer’s disease (AD) are utilized in research today. Novel applications of artificial intelligence (AI) promise to predict the onset of AD several years in advance without determining biomarker thresholds. Until now, little attention has been paid to the new ethical challenges that AI brings to the early diagnosis in asymptomatic individuals, beyond contributing to research purposes, when we still lack adequate treatment. The aim of this paper is to explore the ethical arguments put forward (...)
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  14. Empowerment or Engagement? Digital Health Technologies for Mental Healthcare.Christopher Burr & Jessica Morley - 2020 - In Christopher Burr & Silvia Milano (eds.), The 2019 Yearbook of the Digital Ethics Lab. pp. 67-88.
    We argue that while digital health technologies (e.g. artificial intelligence, smartphones, and virtual reality) present significant opportunities for improving the delivery of healthcare, key concepts that are used to evaluate and understand their impact can obscure significant ethical issues related to patient engagement and experience. Specifically, we focus on the concept of empowerment and ask whether it is adequate for addressing some significant ethical concerns that relate to digital health technologies for mental healthcare. We frame these concerns using five key (...)
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  15. Coercive Paternalism and the Intelligence Continuum.Nathan Cofnas - 2020 - Behavioural Public Policy 4 (1):88-107.
    Thaler and Sunstein advocate 'libertarian paternalism'. A libertarian paternalist changes the conditions under which people act so that their cognitive biases lead them to choose what is best for themselves. Although libertarian paternalism manipulates people, Thaler and Sunstein say that it respects their autonomy by preserving the possibility of choice. Conly argues that libertarian paternalism does not go far enough, since there is no compelling reason why we should allow people the opportunity to choose to bring disaster upon themselves if (...)
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  16. (Under)Valuing Surgical Informed Consent.Inmaculada de Melo-Martin & N. A. Meredyth - 2020 - Journal of the American College of Surgeons 2 (230):257-62.
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  17. Does Mental Discipline Partially Restore the Responsibility of BCI Users?Viktor Ivanković & Lovro Savic - 2020 - American Journal of Bioethics Neuroscience 11 (1):67-70.
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  18. Vaccinating for Whom? Distinguishing Between Self-Protective, Paternalistic, Altruistic and Indirect Vaccination.Steven R. Kraaijeveld - 2020 - Public Health Ethics 13 (2):190-200.
    Preventive vaccination can protect not just vaccinated individuals, but also others, which is often a central point in discussions about vaccination. To date, there has been no systematic study of self- and other-directed motives behind vaccination. This article has two major goals: first, to examine and distinguish between self- and other-directed motives behind vaccination, especially with regard to vaccinating for the sake of third parties, and second, to explore some ways in which this approach can help to clarify and guide (...)
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  19. BOOK REVIEW: John McMillan, THE METHODS OF BIOETHICS: AN ESSAY IN META-BIOETHICS.Iva Martinić - 2020 - European Journal of Analytic Philosophy 16 (1):117-122.
    BOOK REVIEW: John McMillan, THE METHODS OF BIOETHICS: AN ESSAY IN META- BIOETHICS Oxford University Press, 2018 ISBN-13: 978-0199603756 ISBN-10: 0199603758.
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  20. Commentary on ‘Four Types of Gender Bias Affecting Women Surgeons, and Their Cumulative Impact’ by Hutchison. [REVIEW]Carolyn McLeod - 2020 - Journal of Medical Ethics 46 (4):242-243.
    The central concerns of Hutchison’s paper are the under-representation and unequal pay of women in surgery and the role that subtle gender biases play in explaining these phenomena. My comments focus on how well executed and important this work is and also why we need more of it to fully understand the gravity of the situation for women in surgery and how it compares with similar situations for women in other fields.
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  21. Human Rights of Users of Humanlike Care Automata.Lantz Fleming Miller - 2020 - Human Rights Review 21 (2):181-205.
    Care is more than dispensing pills or cleaning beds. It is about responding to the entire patient. What is called “bedside manner” in medical personnel is a quality of treating the patient not as a mechanism but as a being—much like the caregiver—with desires, ideas, dreams, aspirations, and the gamut of mental and emotional character. As automata, answering an increasing functional need in care, are designed to enact care, the pressure is on their becoming more humanlike to carry out the (...)
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  22. Can Reproductive Genetic Manipulation Save Lives?G. Owen Schaefer - 2020 - Medicine, Health Care and Philosophy (3):381-386.
    It has recently been argued that reproductive genetic manipulation technologies like mitochondrial replacement and germline CRISPR modifications cannot be said to save anyone’s life because, counterfactually, no one would suffer more or die sooner absent the intervention. The present article argues that, on the contrary, reproductive genetic manipulations may be life-saving (and, from this, have therapeutic value) under an appropriate population health perspective. As such, popular reports of reproductive genetic manipulations potentially saving lives or preventing disease are not necessarily mistaken, (...)
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  23. European Bioethics – From Cyborgs to Surrogacy.Trevor Stammers - 2020 - The New Bioethics 26 (3):195-196.
    Volume 26, Issue 3, September 2020, Page 195-196.
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  24. The Dignity of Human Life: Sketching Out an 'Equal Worth' Approach.Helen Watt - 2020 - Ethics and Medicine 36 (1):7-17.
    The term “value of life” can refer to life’s intrinsic dignity: something nonincremental and time-unaffected in contrast to the fluctuating, incremental “value” of our lives, as they are longer or shorter and more or less flourishing. Human beings are equal in their basic moral importance: the moral indignities we condemn in the treatment of e.g. those with dementia reflect the ongoing human dignity that is being violated. Indignities licensed by the person in advance remain indignities, as when people might volunteer (...)
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  25. The Dictates of Conscience: Can They Justify Conscientious Refusals in Healthcare Contexts?Mary Carman - 2019 - Cambridge Quarterly of Healthcare Ethics 28 (2):303-315.
    In a recent article in this journal, Steve Clarke (2017) identifies two different bases for conscience-based refusals in healthcare: (1) all-things-considered moral judgments, and (2) the dictates of conscience. He argues that these two bases have distinct roles in justifying conscientious objection. However, accepting that there are these two bases, I argue that both are not able to justify conscientious objection. In particular, I argue that the second basis of the dictates of conscience cannot justify conscience-based refusal in a healthcare (...)
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  26. Still Human: A Thomistic Analysis of ‘Persistent Vegetative State’.Stewart Clem - 2019 - Studies in Christian Ethics 32 (1):46-55.
    Would Aquinas hold the view that a patient in a persistent vegetative state (PVS) is something other than a human being? Some recent interpreters have argued for this position. I contend that this reading is grounded in a false symmetry between the three stages of Aquinas’s embryology and the (alleged) three-stage process of death. Instead, I show that there are textual grounds for rejecting the view that the absence of higher brain activity in a patient would lead Aquinas to say (...)
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  27. Is Vegetarianism Healthy for Children?Nathan Cofnas - 2019 - Critical Reviews in Food Science and Nutrition 59 (13):2052-2060.
    According to the Academy of Nutrition and Dietetics’ influential position statement on vegetarianism, meat and seafood can be replaced with milk, soy/legumes, and eggs without any negative effects in children. The United States Department of Agriculture endorses a similar view. The present paper argues that the Academy of Nutrition and Dietetics ignores or gives short shrift to direct and indirect evidence that vegetarianism may be associated with serious risks for brain and body development in fetuses and children. Regular supplementation with (...)
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  28. Artificial Wombs, Birth, and "Birth": A Response to Romanis.Nicholas Colgrove - 2019 - Journal of Medical Ethics:medethics-2019-105845.
    Recently, I argued that human subjects in artificial wombs (AWs) “share the same moral status as newborns” and so, deserve the same treatment and protections as newborns. This thesis rests on two claims: (A) “Subjects of partial ectogenesis—those that develop in utero for at time before being transferred to AWs—are newborns,” and (B) “Subjects of complete ectogenesis—those who develop in AWs entirely—share the same moral status as newborns.” In response, Elizabeth Chloe Romanis argued that the subject in an AW is (...)
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  29. Impartiality and Infectious Disease: Prioritizing Individuals Versus the Collective in Antibiotic Prescription.Bernadine Dao, Thomas Douglas, Alberto Giubilini, Julian Savulescu, Michael Selgelid & Nadira S. Faber - 2019 - AJOB Empirical Bioethics 10 (1):63-69.
    Antimicrobial resistance (AMR) is a global public health disaster driven largely by antibiotic use in human health care. Doctors considering whether to prescribe antibiotics face an ethical conflict between upholding individual patient health and advancing public health aims. Existing literature mainly examines whether patients awaiting consultations desire or expect to receive antibiotic prescriptions, but does not report views of the wider public regarding conditions under which doctors should prescribe antibiotics. It also does not explore the ethical significance of public views (...)
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  30. 7 Click Here! To Find More About Organ Transplantation: Ethical Aspects of Media Stories on Organ Donation From Romanian Newspapers.Mihaela Frunză, Iulia Grad, Sandu Frunză & Ovidiu Grad - 2019 - In Emilian Mihailov, Tenzin Wangmo, Victoria Federiuc & Bernice Elger (eds.), Contemporary Debates in Bioethics: European Perspectives. De Gruyter Open. pp. 72-85.
    An analysis of media stories from Romanian newspapers on organ donation. Focus is placed on the ethical aspects of the stories.
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  31. Introduction: The Limits of Respect for Autonomy.David G. Kirchhoffer - 2019 - In D. Kirchhoffer & B. Richards (eds.), Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law. Cambridge:
    This book makes an important contribution to ongoing efforts in the fields of medical law and bioethics to answer the challenges posed by the limitations of the principle of respect for autonomy, especially as these pertain to human research ethics. The principle of respect for autonomy seems to have become firmly embedded in human research ethics since its inclusion in the 1947 Nuremberg Code, which was a response to atrocities committed by Nazi doctors. Nonetheless, there is an increasing awareness of (...)
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  32. Beneficence in Research Ethics.David G. Kirchhoffer, C. Favor & C. Cordner - 2019 - In D. Kirchhoffer & B. Richards (eds.), Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law. Cambridge:
    This chapter examines the explicit and implicit roles that the concept of beneficence plays in the guidelines that govern biomedical research involving humans. We suggest that the role beneficence is actually playing in the guidelines is more comprehensive than is commonly assumed. The broader conceptualisation of beneficence proposed here clarifies the relationship of beneficence to respect for autonomy. It does this by showing how respect for autonomy is at the service of beneficence rather than in tension with it.
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  33. Disruption, Diversity, and Global Biobanking.Edwina Light, Miriam Wiersma, Lisa Dive, Ian Kerridge, Christine Critchley & Wendy Lipworth - 2019 - American Journal of Bioethics 19 (5):45-47.
    Volume 19, Issue 5, May 2019, Page 45-47.
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  34. Contemporary Debates in Bioethics: European Perspectives.Emilian Mihailov, Tenzin Wangmo, Victoria Federiuc & Bernice Elger (eds.) - 2019 - De Gruyter Open.
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  35. An Ethical Overview on Cloning in Nigeria.Joseph Nkang Ogar - 2019 - Journal of Social, Humanities and Administrative Sciences 5 (18):658-667.
    This work titled "An Ethical Overview on Cloning in Nigeria" analyzed the debate on cloning for which many scholars believe that cloning is not just ethically and morally acceptable, but beneficial in that they allow otherwise infertile couples to have children and permit the study of genetic diseases and indeed genetic development. This work examined cloning from an ethical/moral perspective and held the view that there is everything inherently wrong with the idea of human cloning. As a scientific discovery, it (...)
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  36. The Harm of Ableism: Medical Error and Epistemic Injustice.David M. Peña-Guzmán & Joel Michael Reynolds - 2019 - Kennedy Institute of Ethics Journal 29 (3):205-242.
    This paper argues that epistemic errors rooted in group- or identity- based biases, especially those pertaining to disability, are undertheorized in the literature on medical error. After sketching dominant taxonomies of medical error, we turn to the field of social epistemology to understand the role that epistemic schemas play in contributing to medical errors that disproportionately affect patients from marginalized social groups. We examine the effects of this unequal distribution through a detailed case study of ableism. There are four primary (...)
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  37. Professional Objections and Healthcare: More Than a Case of Conscience.Michal Pruski - 2019 - Ethics and Medicine 35 (3):149-160.
    While there is a prolific debate surrounding the issue of conscientious objection of individuals towards performing certain clinical acts, this debate ignores the fact that there are other reasons why clinicians might wish to object providing specific services. This paper briefly discusses the idea that healthcare workers might object to providing specific services because they are against their professional judgement, they want to maintain a specific reputation, or they have pragmatic reasons. Reputation here is not simply understood as being in (...)
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  38. Controversies in Latin American Bioethics.Eduardo Rivera-López & Martin Hevia (eds.) - 2019 - Cham: Springer Verlag.
  39. Bioethics in Canada, Second Edition.Anthony Skelton (ed.) - 2019 - Don Mills: Oxford University Press.
    This is the second edition of the textbook Bioethics in Canada. It is the most up to date bioethics textbook on the Canadian market. Twenty-nine of its 54 contributions are by Canadians. All the chapters carried over from the first edition are revised in full (especially the chapters on obligations to the global poor, on medical assistance in dying, and on public health). It comprises *new* chapters on emerging genetic technologies and on indigenous peoples' health. It contains *new* case studies (...)
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  40. A Hobbesian Qualm with Space Settlement.Koji Tachibana - 2019 - Futures 110:28-30.
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  41. The Info-Computational Turn in Bioethics.Constantin Vică - 2019 - In Emilian Mihailov, Tenzin Wangmo, Victoria Federiuc & Bernice Elger (eds.), Contemporary Debates in Bioethics: European Perspectives. De Gruyter Open. pp. 108-120.
    Our technological lifeworld has become an info-computational media populated by data and algorithms, an artificial environment for life and shared experiences. In this chapter, I tried to sketch three new assumptions for bioethics – it is hardly possible to substantiate ethical guidelines or an idea of normativity in an aprioristic manner; moral status is a function of data entities, not something solely human; agency is plural and thus is shared or sometimes delegated – in order to chart a proposal for (...)
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  42. Vulnerability and Incarceration: Evaluating Protections for Prisoners in Research.Elizabeth Victor - 2019 - New York City: Lexington Books.
    While many books on ethics contain a chapter discussing prisoners’ rights and the ethical dimensions of research involving incarcerated persons, Vulnerability and Incarceration is the first monograph devoted to the subject. Victor interrogates the concept of vulnerability to examine prisoners’ right to medical research from a novel point of view.
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  43. The Epistemic Costs of Compromise in Bioethics.Katrien Devolder & Thomas Douglas - 2018 - Bioethics 32 (2):111-118.
    Bioethicists sometimes defend compromise positions, particularly when they enter debates on applied topics that have traditionally been highly polarised, such as those regarding abortion, euthanasia and embryonic stem cell research. However, defending compromise positions is often regarded with a degree of disdain. Many are intuitively attracted to the view that it is almost always problematic to defend compromise positions, in the sense that we have a significant moral reason not to do so. In this paper, we consider whether this common (...)
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  44. Reconceptualizing Autonomy for Bioethics.Lisa Dive & Ainsley J. Newson - 2018 - Kennedy Institute of Ethics Journal 28 (2):171-203.
    The concept of autonomy plays a central role in bioethics,1 but there is no consensus as to how we should understand it beyond a general notion of self-determination. The conception of autonomy deployed in applied ethics2 can have crucial ramifications when it is applied in real-world scenarios, so it is important to be clear. However, this clarity is often lacking when autonomy is discussed in the bioethics literature. In this paper we outline three different conceptions of autonomy, and argue that (...)
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  45. Correction: Going Above and Beneath the Call of Duty: The Luck Egalitarian Claims of Healthcare Heroes, and the Accomodation of Professionally-Motivated Treatment Refusal.Bmj Publishing Group Ltd And Institute Of Medical Ethics - 2018 - Journal of Medical Ethics 44 (2):142-142.
    Douglas T. Going above and beneath the call ….
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  46. Institute of Medical Ethics Guidelines for Confirmation of Appointment, Promotion and Recognition of UK Bioethics and Medical Ethics Researchers.Lucy Frith, Carwyn Hooper, Silvia Camporesi, Thomas Douglas, Anna Smajdor, Emma Nottingham, Zoe Fritz, Merryn Ekberg & Richard Huxtable - 2018 - Journal of Medical Ethics 44 (5):289-291.
    This document is designed to give guidance on assessing researchers in bioethics/medical ethics. It is intended to assist members of selection, confirmation and promotion committees, who are required to assess those conducting bioethics research when they are not from a similar disciplinary background. It does not attempt to give guidance on the quality of bioethics research, as this is a matter for peer assessment. Rather it aims to give an indication of the type, scope and amount of research that is (...)
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  47. La Declaración de Ginebra revisada a la luz de la nueva cultura.Gilberto Gamboa - 2018 - Persona y Bioética 22 (1):6-17.
    Se resaltan algunas peculiaridades sobre la manera como la Asociación Médica Mundial enfoca ciertos temas, ya que sus declaraciones y resoluciones reflejan cambios más o menos apreciables, que son manifiestos en los contenidos de ellas y orientan sus políticas. Se hace un comentario comparativo de las versiones de la Declaración de Ginebra de 1948 y 2017 con el Juramento hipocrático teniendo en cuenta las siguientes categorías: Carácter de la declaración; Tiempo verbal; Extensión en apotegmas o sentencias; núcleo epistémico; omisiones; innovaciones; (...)
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  48. Risk Impositions, Genuine Losses, and Reparability as a Moral Constraint.Madeleine Hayenhjelm - 2018 - Ethical Perspectives 25 (3):419-446.
    What kind of moral principle could be sufficiently restrictive to avoid the kind of large-scale risks that have resulted in catastrophe in the past, while at the same time not be so restrictive as to halt desirable progress? Is there such a principle that is not merely a precautionary principle, but one that could be based on firm moral grounds? In this article, I set out to explore a simple idea: might it be the case that reparability could serve as (...)
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  49. From Stories to Discoveries.Krista Hoffman-Longtin & Adam Hayden - 2018 - Narrating Patienthood: Engaging Diverse Voices on Health, Communication, and the Patient Experience:17-34.
    Biomedical researchers are trained to use positivistic approaches to develop efficacious treatments and pursue cures for illness and disease. Accordingly, they may rarely engage persons living with the disease in the development of research questions and protocols (Sacristán et al., 2015). Just as patient narratives can create therapeutic partnerships in delivery of treatment (DasGupta & Charon, 2004), they offer value to the research process to emphasize the person with the disease, rather than the disease, in isolation. In this chapter, we (...)
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  50. Trust in Health Care and Vaccine Hesitancy.Elisabetta Lalumera - 2018 - Rivista di Estetica 68:105-122.
    Health care systems can positively influence our personal decision-making and health-related behavior only if we trust them. I propose a conceptual analysis of the trust relation between the public and a healthcare system, drawing from healthcare studies and philosophical proposals. In my account, the trust relation is based on an epistemic component, epistemic authority, and on a value component, the benevolence of the healthcare system. I argue that it is also modified by the vulnerability of the public on healthcare matters, (...)
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